The Family Heart Foundation is a patient-driven nonprofit focused on advocacy, research and education of FH and elevated Lipoprotein(a).
#KnowFH
#KnowLpa
We’re excited to announce the launch of FIND Lp(a), a first-of-its-kind program with leading U.S. health systems. This program, sponsored by
@NovartisUS
, uses innovative
#machinelearning
to identify patients with high Lipoprotein(a). Learn more:
#KnowLpa
Elevated Lipoprotein(a) is a genetic condition that runs in families and causes
#heartdisease
+
#strokes
early in life. Incredibly common - 1 in 5 people are born with this mutation.
#KnowLpa
Check out our Lp(a) infographic to learn more:
Recognizing Dr. Robert Hegele for his incredible work on the genetic understanding of heart disease with the
@TheFHFoundation
2020 Pioneer Award at
#FHSummit
#KnowFH
A6: New research in the
@JAHA_AHA
suggests that low dose aspirin even 3x a week may reduce events (cardiac death and heart attack) by up to 46% in people with high Lp(a) and no previous events. Speak to your health care provider to see if aspirin is right for you.
#KnowLpa
A1: Lipoprotein(a) – sometimes referred to as L-P-little-a – is an important genetic risk factor for premature heart disease and stroke. Much like low-density lipoprotein (LDL) cholesterol, Lp(a) carries cholesterol in the blood.
#KnowLpa
Dietary cholesterol, found only in foods from animals, has a LOWER impact on blood
#cholesterol
levels than
#saturatedfats
– meaning foods like shellfish, have more cholesterol than red meat, but are a healthier choice since they are lower in saturated fats.
#WellnessWednesday
Walking around with uncontrolled LDL is like walking into oncoming traffic. Get yourself out of the danger zone by learning more at .
#KnowFH
#KnowLpa
#HeartMonth
Today, the FH Foundation and 28 FH Advocates for Awareness headed to Capitol Hill to raise awareness of the needs of individuals with familial hypercholesterolemia (FH) and asking members of congress to protect access to healthcare and the privacy of health information.
#KnowFH
Lipoprotein(a) is almost never tested. Family Heart Foundation research suggests that fewer than 1% of Americans have had their Lp(a) tested, yet 1 in 5 people have elevated levels. Ask for a Lipoprotein(a) test with CPT code 83695.
#KnowLpa
Honoring great female scientists for their significant discoveries of PCSK9, paving the way for groundbreaking cholesterol lowering therapies. Dr Helen Hobbs will be this year's Family Heart Pioneer Award recipient at our annual Global Summit.
#WomensHistoryMonth
#KnowFH
#KnowLpa
Thank you dedicated, passionate individuals who care about making a difference. United to find every individual with FH and prevent
#heartdisease
. Scientists, lipidologists, nurses, genetic counselors, individuals with FH, and public health. Saving lives.
#FHSummit18
#knowfh
Today is
#LpaAwarenessDay
! Affecting 1 in 5 people - Lipoprotein(a) is genetic and can cause early
#heartdisease
and
#stroke
. Join us in raising awareness - Together we can save more families, more hearts! 💗
#KnowLpa
#Didyouknow
high Lipoprotein(a) or Lp(a) begins at birth and is associated with
#genetic
factors inherited from your parents – it is not linked to behavior. 1 in 7 people have high levels of Lp(a) putting them at risk for
#heartdisease
&
#stroke
.
#KnowLpa
34 million people worldwide have FH, the most common genetic condition that causes early heart disease. Unfortunately, only 1 in 10 of them are diagnosed and receiving lifesaving care. Help everyone
#KnowFH
by sharing this
#FHAwareness
video.
Heart disease is the
#1
killer of women, and, in the US, 1 in 4 women dies from heart disease. Women with familial hypercholesterolemia (FH) have an increased risk of having heart disease. Help us raise awareness for Women's Heart Week by sharing this post!
#KnowFH
It’s our 10th anniversary & we’re expanding our mission! We're now the Family Heart Foundation w/a broader mission to drive awareness of both FH & lipoprotein(a), which put people @ risk for early
#heartattack
&
#stroke
.
#10YearAnniversary
#KnowFH
#KnowLpa
A2: FH is the
#1
genetic condition that causes early heart disease. Unlike other forms of high
#cholesterol
, people with FH are at a 20-times risk of heart disease at any cholesterol level.
#KnowFH
Are you the one? If you have high Lp(a), you could be walking around at risk for a heart attack and not know it. You can
#KnowLpa
and get ahead of heart disease.
Great panel on Lipoprotein(a) at
#NLASessions
. It is extremely important to screen for Lp(a) when carrying out a lipid panel. 30% of individuals w familial hypercholesterolemia (FH) also have elevated Lp(a) & are at even greater risk for heart disease.
#KnowFH
@lipoproteinaFDN
Our time has come to close. Thank you for everyone for participating today. Please continue to retweet and share our
#knowledge
. Together we can raise awareness of FH and save lives!
#KnowFH
#FHCantWait
New HoFH treatment just approved by FDA to lower LDL-Cholesterol -- Evinacumab, Evkeeza™. In studies, adding evinacumab to other lipid-lowering therapies cut LDL-C levels in half in patients with
#HoFH
, including the most difficult-to-treat.
#KnowFH
What an amazing day of learning and sharing about familial hypercholesterolemia (FH). Thank you to all who joined us in raising awareness for
#FHAwarenessDay
. We hope that you continue to learn and share!
#KnowFH
We are celebrating seven years of raising awareness for familial hypercholesterolemia so that we can prevent early
#heartdisease
. Thank you to everyone who has supported our work!
#KnowFH
#FHCantWait
.
@CatDavisAhmed
shares how she spent her entire life worried that her father would have a
#heartattack
. A story for many individuals who have inherited FH. Now she thinks about her daughter and all of the children with FH who need diagnosis and treatment.
#knowfh
#aha19
We are pleased to announce that Dr. Samuel Gidding is joining us as Chief Medical Officer. His extensive background in preventative cardiology & FH will accelerate our work to identify the 90% of undiagnosed FH.
#KnowFH
30 million people worldwide are living with familial hypercholesterolemia (FH). ~90% of the FH population are not even aware they have it. This is a global health issue. It is our continued mission to raise awareness of FH and save lives.
#KnowFH
#WorldHealthDay
Your risk factors for heart disease may be hiding in plain sight. This American
#HeartMonth
, take the time to better understand how heart disease - the
#1
killer in the US - may affect you and future you.
#KnowFH
#KnowLpa
More awareness. More education. More action. Doing everything possible to find hope for children and parents with familial hypercholesterolemia.
#FightOn
#KnowFH
#FHSummit19
Brilliant speech from Kate Robinson.
A1: Familial Hypercholesterolemia is a genetic condition. Knowing your family’s heart history helps you understand if you are at risk for early
#HeartDisease
and
#Stroke
.
#KnowFH
A1: Lipoprotein(a) – sometimes referred to as L-P “little a” – is an important genetic risk factor for premature heart disease and stroke. It is very common and practically invisible — often, the first sign of this condition is a stroke or a heart attack.
#KnowLpa
A3: High Lp(a) is a triple threat. It contributes to artery blocking, clogging, and inflammation – all potentially leading to cardiovascular events.
#KnowLpa
NEWS ALERT - Repatha approved by
@US_FDA
for children with FH 10 years or older. The need for LDL-C management for pediatric patients with FH is important, as lifelong exposure to high LDL-C levels in individuals with FH can cause early, aggressive
#heartdisease
.
#KnowFH
#HoFH
A2: Homozygous FH is the rare and most aggressive form of FH. HoFH leads to aggressive heart disease as early as childhood. If both parents have FH, there is a 25% chance their child will have HoFH.
#KnowFH
#HoFH
Great to have new treatment options for cholesterol lowering and familial hypercholesterolemia. Thanks to all the researchers and the people who participated in the clinical trials. ❤️
#KnowFH
#FHCantWait
Today we honor our founder
@KAWilemon
for her vision and non-stop commitment to creating a world where the 30 million people globally with familial hypercholesterolemia (FH) are found and receiving the proper care to prevent
#heartdisease
. Thank you!
#IWD2019
#KnowFH
#FindFH
"When I clicked on the first result, the Family Heart Foundation... I knew I’d found my people... "
We are so grateful to have
@CMulliganWalsh
as an Advocate for Awareness & to know we are part of her tribe! Read her
@WebMD
blog as she shares the importance of community.
#KnowFH
New research: Kelly Myers and colleagues at
@TheFHFoundation
present a tool to identify individuals with familial hypercholesterolaemia at a national level. Being presented at
#FHSummit19
today!
#FindFH
#KnowFH
Ready to go for day 2 of
#ACC18
and continued dialogue around how to find and treat familial hypercholesterolemia (FH) early. It takes a lot of heart to keep FH top of mind and no three with bigger hearts than
@KAWilemon
@joshuawknowles
@CatDavisAhmed
We are thrilled to hear that the 2018 AHA/ACC Cholesterol Guidelines include the treatment of Familial Hypercholesterolemia (FH)!! What a great step forward.
#AHA18
#KnowFH
More education and awareness could have helped this family identify xanthomas on their young son, and discover he had a severe form of FH
#HoFH
. Now this famil advocates for more funding and treatment.
#FHCantWait
#FHSummit19
#KnowFH
@TheFHFoundation
Advocates for Awareness
@MaDonna_Hi
and
@scottrad67
are at the
#NLASessions
to share their FH stories with everyone and inform them of the great work we do to improve the scientific understanding and advancement of FH. Come check out booth 207 to
#KnowFH
We're excited to kickoff
#CholesterolEducationMonth
!
Those born with a cholesterol disorder, like FH, have been historically under diagnosed. Now we have gone from 1% to 30% in the last 10 years in the United States!
Join us this month and
#FHAwarenessDay
to help all
#KnowFH
!
Do you
#KnowFH
? Our NEW familial hypercholesterolemia (FH) infographic provides info and tips for identifying and managing the most common genetic condition that causes early
#heartdisease
. RT today!
#KnowFH
#FHCantWait
We are pleased to announce
@skathire
will present his latest research at the 2019 FH Global Summit exploring genetic mutations & modifiers to
#heartdisease
including Familial Hypercholesterolemia. Read more & register now!
#FHSummit19
#KnowFH
@KAWilemon
Q1. Heart disease has become the number one killer of men and woman around the world. Familial hypercholesterolemia (FH) is the # 1 genetic cause. How would you know if FH was the cause of
#heartdisease
in their family? Are there signs and symptoms?
#KnowFH
20 years ago
@WHO
called upon governments to make familial hypercholesterolemia a
#publichealth
priority. Not much has changed. Until now. Our vision is to partner with the global FH community to
#advocate
for FH and ensure it is a priority.
@KAWilemon
#FHCantWait
#KnowFH
Does early
#heartdisease
or
#stroke
run in your family? It could be elevated Lipoprotein(a). 1 in 5 people have elevated Lp(a), but less than 1% have been screened! Ask your doctor and learn more so you can advocate for this simple blood test.
#KnowLpa
#LpaAwarenessDay
A Global Call to Action on Familial Hypercholesterolemia was just published in
@JAMACardio
. Proud to partner with
@WorldHeartFed
and global FH community to issue recommendations to increase detection and management of FH
#KnowFH