FD Foundation
@FamDys
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Following
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FD Foundation is the leader in FD treatment and research. Our mission is to raise funds & operate programs with best medical treatment & sci. research for FD
New York
Joined September 2009
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Donate
#crypto
today!
@FamDys
is now accepting over 40 leading
#cryptocurrencies
to increase our mission’s reach. Your donation will help sustain our annual grant to the
#bitcoin
#ethereum
#btc
#cryptonews
#nft
@TheGivingBlock
1
1
6
Donate
#crypto
today!
In order to increase our mission’s reach,
@FamDys
is now accepting
#cryptocurrencies
. Your donation will help sustain our annual grant to the
#bitcoin
#ethereum
#btc
#cryptonews
#eth
#nft
@TheGivingBlock
6
0
6
Support life-saving medical care and clinical research to extend the lives of people with FD by donating
#Crypto
on
#CryptoGivingTuesday
!
#bitcoin
#cryptocurrency
#ethereum
#btc
#money
#investment
#bitcoins
#FamilialDysautonomia
#rarediseases
#giving
0
2
8
This
#CryptoGivingTuesday
, support life-saving
#medicalcare
& clinical
#research
to extend the lives of people with FD by donating
#Crypto
#bitcoin
#cryptocurrency
#ethereum
#bitcoins
#FamilialDysautonomia
#rarediseases
#givingtuesday
@TheGivingBlock
0
2
7
Help us increase awareness for FD on
#RareDiseaseDay
!
Submit Your Zebra Artwork before Feb. 23, 2022!
Submit your art here:
#raredisease
#RareDiseaseDay
#jewish
#jewishnews
#FamilialDysautonomia
#saturdaythoughts
#saturdaymotivation
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2
5
In honor of
#RareDiseaseDay
@FamDys
will share
#ShowYourStripes
zebra artwork received, to raise awareness & generate positive action for the
#raredisease
,
#FamilialDysautonomia
community
Today we are delighted to share Leah Cohen's zebra artwork with you!
@RareDiseases
#jewish
1
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The countdown is on!
#GivingTuesday
&
#CryptoGivingTuesday
are only 1 WEEK AWAY! Find out how you can support the
@FamDys
by donating
#Crypto
or
#shopping
the
#Hanukkah
Market on our website
#BagSeason
#NFTuesday
#DonateCrypto
#BTC
#ETH
@TheGivingBlock
1
2
6
Tonight, we will be honoring
#BenRainer
. His friends from all over the multi-verse will gather and pay tribute.
Tune live here 8:00 PM EDT
Throughout the night, we will be raising money for
@famdys
in Ben's name, at the link below:
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3
5
Apply today!
Applications close August 5th, 2022.
The
@EveryLifeOrg
is offering the
#YarrLeadershipAcademy
a series of on-line courses offered to a group of young adults in the
#raredisease
community.
#FamilialDysautonomia
#positiveaction
#jewish
1
1
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Leading off the clinical session is Dr. Horacio Kaufmann from NYU's Dysautonomia Center.
0
1
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Donate
#crypto
to
@FamDys
today!
Your donation will help sustain our annual
#grant
to the Dysautonomia Center at
@nyulangone
#bitcoin
#ethereum
#btc
#nft
#medicalcare
#fridaymorning
#donate
#nonprofit
#raredisease
@TheGivingBlock
1
0
4
As we commemorate 70 years of serving the FD community, we acknowledge that only because of friends like you we have been able to accomplish so much.
We sincerely thank you for your continuous interest & support.
#jumpforfd
#jewish
#boxjumpchallenge
#ashkenazi
#nervoussystem
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0
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Today is
#RareDiseaseDay
&
@FamDys
is a proud member of the
#RareDisease
community.
#ShowYourStripes
& support the rare community today:
#FamilialDysautonomia
#jewish
#MondayMorning
#MondayMotivation
@RareDiseases
@jdforward
@JewishVoice
@NYJewishWeek
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0
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The FD Foundation wishes all of our families and friends a holiday season filled with light, warmth, and joy.
#hanukkahgifts
#hanukkah
#hanukkah2022
#FamilialDysautonomia
#rarediseases
#BagSeason
#Support
#Community
#Charity
#Nonprofit
#Donate
#Giveback
#BagSeason
#shopping
0
1
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FD Day is LIVE!
Join us Now!
#FDday2022
#FDday
#community
#FamilialDysautonomia
#RareDisease
#jewish
#art
#Ashkenazi
0
2
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Silent Auction is Now Open for
#PeeperPypersParty
.
Bid Now:
Bid on fabulous prizes including: trips, jewelry, unique experiences, sports tickets and more!
#raredisease
#jewish
#FamilialDysautonomia
#FridayMotivation
#FridayVibes
@NickCiletti
1
1
3
Planning to start a
#family
? Don't forget to request your
#genetic
test kit
@MyJScreen
#Reproductive
carrier screening can help determine an individual or couple’s risk of having a
#child
with an inherited
#geneticdisease
.
#FamilialDysautonomia
#rarediseases
#MondayMotivation
0
0
2
Help us increase
#awareness
for FD on
#RareDiseaseDay
!
Submit Your Zebra Artwork before Feb. 23, 2022!
Submit your art here:
#raredisease
#jewish
#jewishnews
#FamilialDysautonomia
#FridayMotivation
#zebra
#positiveaction
#rarediseases
0
2
3
@mamageekrainer
@MulltiGeekdom
@HeadGeekBen
Thank you to everyone who donated to
@FamDys
. We are truly grateful for all of the loving support. 💙💛
0
1
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Thank you to Dr. Patricio Millar for a fun and engaging session during
#FDday2022
. Dr. Millar is a neurologist trained in autonomic disorders and movement disorders.
#scientists
#community
#FamilialDysautonomia
#RareDisease
#jewish
#art
#FDday
#Ashkenazi
0
0
3
@ashleycomeau
@thekarenparker1
@HaHaForbes
@markandrada
@MrKristianBruun
Thanks for jumping in and taking on the challenge Ashley!
0
0
3
Donate
#crypto
to
@FamDys
today!
Your donation will help sustain our annual
#grant
to the Dysautonomia Center at
@nyulangone
#bitcoin
#ethereum
#btc
#nft
#medicalcare
#fridaymorning
#donate
#nonprofit
#raredisease
@TheGivingBlock
2
0
1
#FDday2022
is this Sunday, June, 12!
Register Today:
#community
#FamilialDysautonomia
#RareDisease
#jewish
#art
#Ashkenazi
#FDday
0
1
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We're proud to announce that we are now accepting
#DOT
donations to support our mission! Donate
@Polkadot
& 80+ other
#cryptos
today:
#bitcoin
#blockchain
#ethereum
#btc
#cryptonews
#investing
#eth
#nft
#cryptocurrency
#CaringWithCrypto
@TheGivingBlock
1
0
2
Donate
#crypto
to
@FamDys
Your support impacts
#MedicalCare
&
#ClinicalResearch
at the Dysautonomia Center:
#bitcoin
#cryptocurrency
#ethereum
#btc
#cryptocurrencies
#investing
#eth
#investment
#bitcoins
#nft
@SBF_Alameda
@adamscochran
@SahilBloom
0
1
2
5 members of our
@nycmarathon
team ran 26.2 miles through the streets of
#NYC
& shared a commitment to support FD
They've raised $52K for FD care & research programs, & we can't thank them enough.
#TeamFD
ROCKS!!!
#nycmarathon2022
#nycmarathon
#Marathon
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0
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Seth Walk, MSU: “the guy is a huge surface to be able to work with and understand.”
0
0
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Thank you to everyone who joined us for
#FDDay2021
! Didn't catch the live program? Keep an eye out for videos of this year's event in the coming weeks. We look forward to seeing you next year at the 37th annual FD Day!
1
0
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Caregivers Brian and Stephanie Stillman recently shared why they fundraise for
#FDMatch19
: "We fundraise to support Pyper, in the hopes of a cure, and to give her a chance at a full life."
Support patients like Pyper:
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0
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FUN
#STING
- LAS VEGAS CONCERT EXPERIENCE FOR 2
BID NOW:
- (2) Tickets (VIP Friends & family sections) to see Sting in
Las Vegas in June 2022
#sting
#stingconcert
#stinglasvegas
#music
#livemusic
#WednesdayMotivation
#Wednesdayvibe
@OfficialSting
0
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Here is a SNEAK PEAK painting by Mara Clawson, one of five artists who will be exhibiting at TEARLESS on April 7th! Mara titled this piece "Pancake Love"
Reserve your tickets or become a sponsor here!
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0
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If you missed
#FDday2022
on June 12, or wish to re-watch any part of this dynamic and engaging program, recordings of the sessions are now available at:
#scientists
#community
#FamilialDysautonomia
#RareDisease
#jewish
#art
#Ashkenazi
#ThursdayMotivaton
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Got
#Crypto
?
@FamDys
is accepting
#Cryptocurrency
#DonateCrypto
:
Your support funds top-notch
#medicalcare
@nyulangone
, cutting-edge
#scientificresearch
to discover treatments for ppl with FD
#BTC
#ETH
#NFT
#BagSeason
#Crypto4Good
@TheGivingBlock
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0
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Such a pleasure to have Dr. Lefcort speak during
#FDday2022
.
Frances Lefcort is a Research Professor at Montana State University and her lab studies the molecular, cellular, and systems-wide mechanisms that cause the clinical symptoms of FD.
#RareDisease
#jewish
#art
#FDday
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Don't forget to submit your
#art
before April 14, 2022!
FD Day 2022 art competition “The World Through My Eyes, The Mitzvah Year” - tell your story of how it feels to live with
#familialdysautonomia
#rarediseases
#jewish
#jewishnews
#educate
#wednesdaythought
#love
#research
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FD is a genetic disorder that affects the autonomic and sensory nervous system.
Infants are born unable to sense information coming from inside their own bodies.
To learn more about FD visit
#jumpforfd
#jewish
#boxjumpchallenge
#ashkenazi
#sensory
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We are excited for this year’s FD Day to kick-off in 1 hour at 11AM EST. Throughout the event, you will hear from our expert panel of intl physicians & researchers. It’s not too late to register for the virtual event! For more information go to
#FDDay2020
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Support TeamFD!
Every mile ran, every dollar raised, helps the Dysautonomia Center team at NYU Langone provide quality medical care for FD patients.
Click the link to donate
#nycmarathon
#marathon
#tcsnycmarathon
#donate
#familialdysautonomia
#Jewish
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0
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Join comedian
@EliLebowicz
on 12/6 as he hosts UNIFIED, an exciting virtual concert benefitting the FD Foundation. Register at for a fun filled afternoon of music, & don’t forget to invite your friends via the Facebook event below!
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Register for FD Day Today!
The FD Foundation and the Dysautonomia Center at NYU Langone are pleased to host the 37th annual FD Day.
#scientists
#community
#FamilialDysautonomia
#RareDisease
#jewish
#art
#FDday2022
#Ashkenazi
1
1
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Send a Card this Holiday Season!
Donate in honor or in memory of someone you love--or to commemorate a special occasion.
Visit
#FamilialDysautonomia
#Ashkenazi
#jewish
#research
#raredisease
#medicalcare
#tribute
#anniversary
#gift
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BID NOW on AMAZING PRIZES! Proceeds benefiting
@FamDys
Bid Now:
To learn more about
@phxhomegarden
2022 Home Tour, visit:
#FamilialDysautonomia
#community
#rarediseases
#scientificresearch
#ngo
#healthcare
#love
#silentauction
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#DidYouKnow
?
If you are age 70 ½ or older, you can contribute up to $100,000 per year from your
#IRA
directly to a
#charity
and avoid paying
#income
#taxes
on the distribution.
Learn more by contacting the
@FamDys
directly today
#FamilialDysautonomia
#rarediseases
#tax
#jewish
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3 DAYS TO GO!
#RareDiseaseDay
is on Feb. 28
@FamDys
is delighted to share a
#drawing
by Avalon Jade Theisen
#ShowYourStripes
#raiseawareness
#FridayMorning
#FridayFeelin
#advocate
#love
#jewish
#fd
@RareDiseases
@CNNPR
@NYTimesPR
@guardian
@jdforward
@JewishVoice
@NYJewishWeek
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0
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Thank you to the Dysautonomia Center team members
@nyulangone
for supporting the
#JumpforFD
#BoxJumpChallenge
😍 💜 💖
Today, we nominate all of YOU to join the fun, jump on board and post your video!
0
1
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May the light of your menorah brighten your evenings and signal hope for the days to come.
We wish you and your family a happy and healthy Chanukah!
0
0
2
Join us for
#PeeperPypersParty
on Feb. 27, 2022 to raise funds for
@FamDys
. Hosted by 5-time Emmy award-winner
@NickCiletti
,
@AbcArizona
will feature a Scavenger Hunt, Live & Silent Auctions
#FridayMotivation
#jewish
#raredisease
#emmywinner
@subyn_1
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View Pyper's Story Today!
Pyper was born with a
#RareDisease
called
#FamilialDysautonomia
. FD affects the autonomic & sensory nervous systems which controls voluntary & involuntary bodily functions etc.
#thursdayvibes
#family
#love
@NYTHealth
@jdforward
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Today kicks off Jewish Disability Awareness & Inclusion Month (JDAIM)! Join us as we enhance visibility 4 FD starting w the JCC Chicago Film Festival’s viewing & talkback of Living Art (film avail. now, disc. 2/3) & culminating w Rare Disease Day. How r u raising awareness 4 FD?
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Join the fun and
#jumpforFD
Today 😀
Most importantly, don’t forget to donate at
Every dollar helps!
#JumpforFD
#FDfoundation
#autonomic
#sensory
#nervoussystems
#FamilialDysautonomia
#Ashkenazi
#jewish
#boxjumpchallenge
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It is an honor to have Dr. Kaufmann, Director of the Dysautonomia Center who leads the clinical research program in
#familialdysautonomia
(FD) at NYU School of Medicine speak during
#FDday2022
!
Join us now at
#scientists
#community
#RareDisease
#jewish
0
1
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#DidiYouKnow
? The box jump challenge was launched by Stevie Schwartzberg's family to support the mental health program established in his memory at the Dysautonomia Center at
@nyugrossman
#mentalhealth
#JumpforFD
#raredisease
#Ashkenazi
#Jewish
@TheCJN
1
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#DidYouKnow
? You can Become a
#Fundraiser
or Start/Join a Team for
#FDMatch22
Click here:
#FamilialDysautonomia
#community
#rarediseases
#scientificresearch
#donate
#charity
#givingback
#ngo
#health
#ashkenazi
#support
#love
#fundraiser
#crowdfunding
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2
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#FDgolf2022
is here! We’re so excited and thankful to see everyone today!
Silent Auction Closes Today at 6:30PM EDT
Bid Now!
Your bidding supports
@FamDys
#golf
#golflife
#FamilialDysautonomia
#sports
#RareDisease
#jewish
#golfcourse
#tiger
#golfer
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Rare Disease Day fact 2 FD is classified as a rare disease because there r less than 350 individuals living w/ this genetic disorder worldwide. That is why we work to enhance awareness on this day, & throughout the year. What r u doing to increase awareness for Rare Disease Day?
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Check out our latest FD Heroes comic, featuring Lindsay R.!
Last call for people who’d like to be featured as an FD Hero IRL. Please let us know if you’d like to participate, as the series is coming to an end.
#famdys
#familialdysautonomia
#fd
#raredisease
#featurefriday
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Register for FD Day Now!
The FD Foundation and the Dysautonomia Center at NYU Langone are pleased to host the 37th annual FD Day.
#clinicalcare
#scientificresearch
#scientists
#community
#FamilialDysautonomia
#RareDisease
#jewish
#FDday2022
#Ashkenazi
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1
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#DidYouKnow
? Contributions to the Foundation support the Dysautonomia Center at
@nyulangone
fund ground-breaking research around the world & raise public awareness about FD.
Visit
#FamilialDysautonomia
#Ashkenazi
#jewish
#nervoussystems
#raredisease
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The FD Foundation 2022
#crowdfunding
campaign FDMatch22 is almost here!!! 09.20.2022
Participate now:
#FamilialDysautonomia
#community
#rarediseases
#scientificresearch
#donate
#charity
#givingback
#ngo
#health
#ashkenazi
#support
#love
#fundraiser
0
1
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Did you know it’s Jewish Genetic Screening Awareness Week? FD 1 of the rarest of genetic disorders can be tested for by
@MyJScreen
Use the coupon for a discount on genetic testing. Don’t forget to share it with friends to raise awareness about FD & how easy it is to
#getscreened
!
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0
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February is Jewish Disability Awareness, Acceptance & Inclusion Month! Join the FD Foundation, JCC Chicago & Sarnoff Center 2/3/2021 for a free virtual screening & talkback about “Living Art,” a film by David Rochkind feat. Mara Clawson an artist with FD.
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1
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Today’s FD community lives all over the world, & many r cared 4 by local physicians. NYU’s Dysautonomia Center has provided a list of articles that u can share with ur local doctors & nurses 2 help increase their understanding of FD. View the resources:
0
2
2
This year we honor FD
#MOMS
for our
#crowdfunding
campaign
#FDMatch23
Your gift to
#FDMatch23
praises the love & dedication that FD MOMS have shown to their children
#families
and the FD
#community
over the years
#fundraise
#donate
#jewish
#momslove
0
0
1
Have you registered for FD Day 2021 yet? For the 2nd year you’ll be able to enjoy presentations from experts in FD from the comfort of your home! Register for FD Day, support the event and/or participate in the opening video “I’m/We’re Watching From…" at
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0
1
#FDday2022
is just around the corner!
Register Today:
#community
#FamilialDysautonomia
#RareDisease
#jewish
#art
#Ashkenazi
#saturdayvibes
0
1
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Support TeamFD Today!
TeamFD will run 26.2 miles through all five boroughs of NYC on November 5th to raise funds and awareness for the Familial Dysautonomia (FD) community.
#marathon
#marathonrunner
#TeamFD
#nycmarathon2023
#familialdysautonomia
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0
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#GivingTuesday
is one week away!
This year the FD Foundation invites you to join us in a show of support and solidarity with the
#Israeli
FD Organization.
To
#donate
visit:
#familialdysautonomia
#raredisease
#jewish
#support
0
0
1
Have you been following the
#BoxJumpChallenge
?
Thanks to all the generous donors we have raised $30,000 so far! 👏 & thanks to all the jumps we have raised awareness for FD 🥳
Today we invite you to join the
#BoxJumpChallenge
and
#jumpforfd
Donate at:
0
0
1
We're excited for this year's FD Day kicking off in 1 hour at 11am EDT. Throughout the event, you will hear from our expert panel of international physicians & researchers. It's not too late to register for the virtual event! For more information go to
0
0
1
Have you donated yet to support your sibling, child, cousin, friend with FD? Donate today to support medical care and research at NYU's Dysautonomia Center!
So....what are you waiting for?
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0
1
Join the fun &
#jumpforfd
Today 😀
It's very simple: record yourself jumping on a box, nominate 3 friends to jump, share on social media with hashtag
#JumpforFD
& add donation link:
#autonomic
#sensory
#nervoussystems
#Ashkenazi
#jewish
#boxjumpchallenge
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0
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SAVE THE DATE!
Sunday, June 12, 2022 is FD DAY
Join Us Virtually for our 37th Annual International FD Day Conference! A Day When Families, Healthcare Providers & Researchers Come Together
#familialdysautonomia
#raredisease
#family
#scientificresearch
#FridayMotivation
#jewish
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#TeamFD
has raised $39,516 for the FD Foundation! YAYYY!! GO00oo TEAMFD :)
Please help us reach $40K by donating at:
#TCSNYCMarathon2022
#runforfd
#raredisease
#jewish
#advocate
#tcsnewyorkcitymarathon
#NYC
#run
#donate
#love
#marathon
#SaturdayMorning
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October is
#DysautonomiaAwarenessMonth
!
#FamilialDysautonomia
(FD) is a genetic disorder affecting the
#autonomic
and
#sensory
#nervoussystems
.
Learn more about FD at
#rarediseases
#DysautonomiaWarrior
#31DaysofDys
#fdmatch22
#ngo
#health
#tuesdayvibe
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Big thank you to everyone who donated on
#CryptoGivingTuesday
yesterday!
#bitcoin
#cryptocurrency
#ethereum
#btc
#money
#investing
#eth
#investment
#bitcoins
#FamilialDysautonomia
#rarediseases
#ashkenazi
#fundraise
"
0
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Join the fun and
#JumpforFD
Today!
#BoxJumpChallenge
was launched by Stevie Schwartzberg's family to support the mental health program established in his memory at the Dysautonomia Center at NYU Langone.
#FamilialDysautonomia
#Ashkenazi
#Jewish
0
1
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Register today for this amazing course! "Demystifying Entrepreneurship For Youth with Disabilities"
The purpose of this
#course
is to break down barriers to entrepreneurship for
#youth
with self-identified
#disabilities
and/or
#mentalhealth
conditions.
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Online Auction ENDS SOON!
Bid Now:
Proceeds benefit the FD Foundation
#FamilialDysautonomia
#community
#rarediseases
#scientificresearch
#ngo
#healthcare
#Ashkenazi
#support
#love
#phoenix
#home
#garden
#phghometour
#hometour
#events
#luxury
#auction
0
1
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We are so excited to share our Fall 2022
#Newsletter
with you!
We hope you will enjoy reading many interesting stories about the activities of the FD Foundation & our amazing FD
#community
.
Read Now:
#raredisease
#fun
#run
#marathon
#reading
#art
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0
0
Are you interested in learning more about
#planned
giving?
Join Forever Devoted today!
Simply include language in your will/trust specifying that a gift be made to
@FamDys
as part of your estate plan.
To learn more contact us at 212.279.1066; info
@famdys
.org
#makeawillmonth
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#DidYouKNow
?
The Dysautonomia Center is the only facility in the USA dedicated to treating
#FamilialDysautonomia
(FD). This is made possible thanks to the long-standing support of
@FamDys
#WednesdayMotivation
#RareDisease
#jewish
#Ashkenazi
#jewishnews
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.
@TheJewishMuseum
: Access Family Workshop
Visitors with intellectual or developmental
#disabilities
and their families are invited to explore the
#exhibition
May 28, 2023
10:30 am – 4 pm ET
All Access Prog are free of charge & require reservation
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Recently, our very own Keshi Taryan-Kigel participated in a virtual production of Shakespeare’s Twelfth Night. Keshi contributed her personal artwork & acting talents as the priest/servant. Mazel tov Keshi on a wonderful performance! View the performance
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.
@FamDys
is the primary funder of the Dysautonomia Center at NYU Langone Medical Center, the world's premier FD treatment & research center.
To learn more visit
#jumpforfd
#jewish
#boxjumpchallenge
#ashkenazi
#familialdysautonomia
#sensory
#nervoussystem
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Taking advantage of Amazon Prime deals today? You can support the FD Foundation while you shop! It’s easy!
-Go to
-Choose the Dysautonomia Foundation, Inc.
-Shop!
A portion of your purchases will benefit the Foundation & those living w/ FD
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We’re excited to share that we have earned a 2022 Platinum Seal of Transparency with Candid! Now, you can support our work with trust & confidence by viewing our
#NonprofitProfile
:
#jewish
#raredisease
#candid
#guidestar
#tuesdaymotivations
@CandidDotOrg
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If you missed
#FDday2022
on June 12, or wish to re-watch any part of this dynamic and engaging program, recordings of the sessions are now available at:
#scientists
#community
#FamilialDysautonomia
#RareDisease
#advocate
#tuesdayvibe
#TuesdayMotivaton
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Join our Photo Booth at the FD Day platform
#FDday
- A Day When Families, Healthcare Providers and Researchers Come Together!
#scientists
#community
#FamilialDysautonomia
#RareDisease
#jewish
#art
#FDday2022
#Ashkenazi
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#FDday2022
is tomorrow - Sunday, June, 12 at 11am EDT!
Don't Forget to Register:
#community
#FamilialDysautonomia
#RareDisease
#jewish
#art
#Ashkenazi
#FDday
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FD Foundation works for the benefit of all people afflicted with FD, by supporting medical care and scientific research, as well as conducting social service and public awareness programs.
To learn more visit
#jewish
#ashkenazi
#autonomic
#raredisease
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For Rare Disease Day, the Foundation will be sharing facts to enhance awareness about familial dysautonomia. Fact 1: Approximately 1 in 30 Ashkenazi Jews are carriers for FD
How are you showing your stripes today? Let us know in the comments below!
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Help Us Finish The Year Strong!
As you make your year-end gifts to your favorite charities, we hope you'll think of the FD Foundation. Visit
#Ashkenazi
#jewish
#nervoussystems
#research
#clinicalcare
#raredisease
#donate
#scientificresearch
#medicalcare
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