Bilge Cetin
@CetinBilge
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dad, network engineer, M.E. since 2019, realist, rational, yet optimist, expat in NL, old (still) Turk, new Dutch
Joined May 2011
My first production. Summarises #GreatestMEdicalScandal from my eyes. Influenced from the #pwME as well as an awful CBT experience. I will publish it in parts starting from the last. With every previous part, the story will be more nuanced. /1 via @YouTube
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RT @riendebock: Minister Agema sprak met PAIS patiëntenalliantie en hoopt dat die vereniging tot meer erkenning leidt. Lekker gratuit, ze d…
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I generally find the projections of ArkInvest too optimistic and ambitious but apart from the timings, it is exciting times that we are in in terms of tech. If you are pwME or PAIS or chronically ill and loosing hope, watching this could boost it. There are a lot of reasons to be hopeful for the coming years🤞
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RT @DrAndrewGWood: To my psych colleagues - pls be mindful. The BioPsychoSocial model has a horrendous reputation in the chronically ill…
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RT @PunkyBrewstuh: I have survived cancer twice—Non-Hodgkin’s Lymphoma and Kidney Cancer. I know fear, pain, and the weight of a diagnosis.…
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RT @dysclinic: More evidence that #MECFS is a brain disease. This is also a good study to review for those who continue to say that MECFS i…
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They didnt believe and respect the experience of the patients over decades. After one epidemic (covid) within 5 years patient base grew x8 to 100s of millions globally. They still didnt believe. My problem is how the world believes in these clowns. How could they be so influencial? The system is rigged
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RT @MECentraal: De 2e video van #MEWetenschapCentraal staat online! Hierin beantwoordt NMCB-consortiumleider Jos Bosch weer verschillende…
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@cstroeckw Spot on. I preferred not to talk about it till my 4th year. It is a matter of internalising it. I just did not want to own it, and make it a part of my ID. but eventually became a bitch of it🤷🏻♂️
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RT @guustweet: That is why we always try to include all the different #IACC/#PAIS in our activism. We believe you can’t talk about #LongCov…
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RT @guustweet: “They might benefit from it in the future!” is often said about #IACC/ #PAIS in the context of #LongCovid research or Long C…
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@TilmanAndris Bedankt. Het was in een emailgesprek:
Ik heb gevraagd aan VRA over ME bahndeling en een antwoord gekregen. Ze zeggen dat ze al in 2018 gestopt zijn. Wat mijn behandelaar zegt beneden is verwarrend. Ik begrijp niet waarom een revalidatiearts mij in 2023 heeft gedwongen om een CBT te ondergaan met valse beweringen.
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