It's Childhood Cancer Awareness Month! 👦👧
This September, we’re sharing patient stories, providing information, and offering support so that no family has to face bone cancer alone 🧡
Find out more:
#CCAM
#UntilTheresACure
In April 2021, Phoebe was diagnosed with osteosarcoma in her leg. On February 3rd 2022, Phoebe rang the end of treatment bell.
Phoebe's mum, Gemma, has shared their story to offer comfort and support to others 🧡
Find out more here:
#UntilTheresACure
Inspirational teenager Arden recently completed Britain's hardest backpacking trail in memory of her brother, Frodi, in what she described as her "marathon of hope" 🧡
To find out more, visit:
#SarcomaAwarenessMonth
#Fundraising
#UntilTheresACure
BREAKING NEWS 📣
We're excited to share that we've awarded new funding of £1 million to expand the ICONIC clinical trial for osteosarcoma patients, led by Professor Sandra Strauss of
@uclmedsci
&
@uclh
🧪
Find out more:
#Research
#UntilTheresACure
We’re (not) horsing around! 🐎
Saddle up and ride 100, 200 or 300KM with your horse and Canter for a Cure this September!
Join our herd and earn yourself fantastic rewards along the way! 🏅
Sign up now:
#CanterForACure
#Horseriding
#UntilTheresACure
At just 19 years old, Jade was diagnosed with osteosarcoma in her leg, which sadly resulted in an amputation.
Jade has kindly shared her story with
@MetroUK
to help raise vital awareness 🗞️
You can read it here:
#Awareness
#UntilTheresACure
We are truly saddened by the news that
@IsobelBall5
passed away on Sunday, 4th December 2022 while undergoing treatment for osteosarcoma. Our thoughts are with Isobel's daughter
@Liz_ORiordan
and her other family & friends at this time 🧡
Be like Tom and achieve your own personal best, become a
#TeamBones
hero! 🧡
We have had a few spaces open up for the
@londonmarathon
! 🏃🏅
Take on the world’s greatest marathon and apply now:
#LondonMarathon
In April 2021, Evelyn was diagnosed with metastatic Ewing sarcoma when she was 10 years old.
Evelyn's mum, Lisa, is helping raise awareness this
#ChildhoodCancerAwarenessMonth
by sharing her daughter's inspirational story 🧡
#Awareness
#UntilTheresACure
When David started to experience double vision in December 2020, he put this down to excess screen time.
Find out how a visit to his local
@Specsavers
marked the beginning of a life-saving journey 💚
Learn more:
#RareDiseaseDay
#StoriesBehindTheStats
This December, we share Bethany's story to raise awareness of Giant Cell Tumour of the Bone.
After her shock diagnosis following a spontaneous knee fracture, Bethany shares how she is adjusting to her new life.
Learn more:
#Awareness
#UntilTheresACure
So much happened during
#BoneCancerAwarenessWeek
& it was all made possible because of YOU! 🤩 We’re so privileged to have such a wonderful community that helps make the biggest impact during
#BoneCancerAwarenessWeek
& all year round. From everyone at
#TeamBones
HQ, THANK YOU 🧡
Calling all researchers 📣
We are delighted to share that our joint funding call with
@sarcoma_uk
is now OPEN!
Up to £500,000 is available for projects that look to improve the diagnosis & detection of bone and soft tissue sarcomas.
Apply here:
Abbie was diagnosed with osteosarcoma in 2022 and, after gruelling chemotherapy, she underwent hip disarticulation surgery to remove her whole leg.
With your help we can ensure more patients like Abbie survive and thrive beyond bone cancer 🧡
Visit:
Sylwia was diagnosed with chondrosarcoma in 2021 and had to undergo life-altering surgery.
With your help we can ensure more patients like Sylwia survive and thrive after primary bone cancer 🧡
Find out how to get involved:
#SurvivingThriving
Announcing our year-long awareness campaign... More Patients Surviving & Thriving 📣
This campaign puts bone cancer & bone tumour patients & all those affected up front & central. If you would like to be part of our campaign by sharing your story, visit:
This
#SarcomaAwarenessMonth
, we'd like you to meet Dr Sally Fletcher, one of our incredible chondrosarcoma researchers 🔬
Based at
@unibirmingham
, Sally is dedicated to finding new ways to tackle this cruel disease 🧡
Find out more:
#UntilTheresACure
Meet Anne-Marie, a Giant Cell Tumour of the Bone patient 👋
Following her diagnosis, Anne-Marie is helping future patients access better treatments through our Patient and Public Involvement Panel (PPIP).
Find out more:
#Research
#UntilTheresACure
Arianna was five when diagnosed with osteosarcoma and her father, Dr Apostolos Tsiachrista, found there hadn't been advancements in treatments for decades.
They joined the ICONIC study to progress more promising treatments.
/
#BCAW
Katelyn was 13 years old when she was diagnosed with osteosarcoma during the coronavirus pandemic.
Katelyn's mum, Caroline, is helping to raise awareness this
#ChildhoodCancerAwarenessMonth
by sharing her daughter's story 🧡
#Awareness
#UntilTheresACure
#OrangeWednesday
is HERE! 🍊
#TeamBones
would like to wish all our fabulous supporters a very Happy Orange Wednesday! 🤩🧡
We'd love to see how you are going orange during
#BoneCancerAwarenessWeek
, make sure to tag us in your photos 📸
This
#SarcomaAwareness
Month, please like and RT our symptoms awareness video and help save lives!
If you're concerned about symptoms, speak to your doctor. For more information, contact our Support & Information Line:
📞 0800 111 4855 (Mon-Fri 9am-5pm)
📧 support
@bcrt
.org.uk
Camile, from the USA, was diagnosed with adamantinoma in her right leg following a sports injury.
For
#WorldCancerDay
, she shares her story to help raise awareness and provide support to other patients 🧡
#Support
#UntilTheresACure
New year, new research announcement 🔬✨
We are proud to welcome 2024 with a brand-new research project by Dr Huang
@ICR_London
.
Thanks to funding from
@BCRT
,
@LPTrustUK
&
@CCLG_UK
, he hopes to identify patients likely to respond to specific treatments.
Adam’s family set up the Adam Hassall Tribute Fund in his memory. They have raised nearly £40,000 to support BCRT, fund research “until there’s a cure” and to improve the outcome for others.
Read Adam’s story:
#Fundraising
#UntilTheresACure
This
#ChildhoodCancerAwarenessMonth
, we would like you to meet Darren.
His daughter, Liberty, passed away from Ewing sarcoma when she was just 14.
Today, he fundraises for vital research through
@LibertysLegacy3
, as was Liberty's wish 🦋
#TeamLibs
Exciting news, everyone... our much-anticipated healthcare information survey results are in! 🚀
To find out more about our community's healthcare experiences and knowledge, visit:
#Information
#Support
#UntilTheresACure
Meet Sherralyn, a true adventurer and Giant Cell Tumour of the Bone patient who is not just surviving... she's thriving! 🧗♀️
At the
#BoneCancerConference
, Sherralyn shared how a positive mindset and rehabilitation help.
#Awareness
#UntilTheresACure
It’s the time you’ve all been waiting for... We're delighted to reveal our shortlisted nominees for The Bone Idols 2024: 👏
Celebrate with us on Saturday 3rd February 2024 in Leeds at our awards evening. Get your tickets at:
Big Announcement Alert 📢
We are delighted to welcome Will Burchell as our new CEO 🤝
With over twenty years of experience in the charity sector, we can't wait for the positive impact he will have here at
#TeamBones
🧡
Find out more:
#UntilTheresACure
It's
#NationalAstronautDay
so we wanted to share a BIG
#shoutout
to bone cancer survivor
@ArceneauxHayley
! She is the first bone cancer survivor to become an astronaut & the first person with a prosthetic body part to visit space!🌌 Good luck Hayley & the
@inspiration4x
team🚀🧡
📣BREAKING NEWS📣 This
#WorldCancerDay
we're excited to share we're funding research in the UK and Italy to develop new treatment for osteosarcoma patients 🧬 To find out more about this pioneering project, visit:
#Research
#Collaboration
#UntilTheresACure
Frodi’s Phoenix Fund was set up in his memory after he passed away from osteosarcoma on 31st October 2022, just a few weeks before his 10th birthday.
To find out more about Frodi’s Phoenix Fund visit:
#Fundraising
#Osteosarcoma
#UntilTheresACure
On your marks, get set, Cycle the Distance! 🚴🏽
Take on a 200, 350, or 500KM cycling challenge this September to support bone cancer patients.
Sign up now to receive your FREE snood! 🧡
Join now:
#CycleTheDistance
#Fundraising
#UntilTheresACure
Our Information for healthcare professionals: Ewing sarcoma booklet is available to download.
This gives healthcare professionals more information about Ewing sarcoma, its presentation and treatments.
For additional resources, please visit:
#Information
For
#ChildhoodCancerAwarenessMonth
, help raise awareness of the symptoms of bone cancer by sharing our graphic.
If you're concerned about symptoms, please seek medical advice. You can also contact us for more info:
0800 111 4855 (Mon-Fri 9am-5pm) 📞
support
@bcrt
.org.uk 📧
After being diagnosed with osteosarcoma for the first time when she was just 13 years old, Mel has since suffered two recurrences of the disease.
Find out more about her journey this
#BoneCancerAwarenessWeek
by visiting:
#Awareness
#UntilTheresACure
It's Teenage and Young Adult Cancer Awareness Month!
Each year in the UK around 88 young people are diagnosed with bone cancer.
Let’s raise awareness, share their stories, and help these patients feel confident & informed 🧡
#TYACAM
#UntilTheresACure
Our updated Ewing sarcoma webpage is particularly useful for people who are looking for more detailed information about Ewing sarcoma online:
For additional resources, please visit:
#Information
On his 14th birthday, Callum Flynn was diagnosed with osteosarcoma in his right knee. In the face of adversity, he went on to become captain of the
@englandcricket
Physical Disability team 🏏
Find out more this
#SarcomaAwarenessMonth
:
#UntilTheresACure
Ximena (Mena) Howell was 17 years old when she was diagnosed with Ewing sarcoma. In her honour, friends and family created Menafest, a music festival she created.
An incredible £41,286 has been raised so far 🧡
Read more:
#UntilTheresACure
This
#WorldCancerDay
, we would like you to meet Jeremy & Lesley 👋
Their daughter, Liz, was diagnosed with adamantinoma aged 12.
For World Cancer Day, they share why fundraising was so important to Liz in her final years 🧡
Watch the full video:
Breaking news on World Cancer Day 📣
We have awarded £100,000 to support pioneering studies into adamantinoma 🧪
The project, led by Professor Bovée
@UniLeidenNews
, will explore the interaction between key components of the tumours.
#UntilTheresACure
Get your Bone Idols 2024 tickets now! ⭐
We're delighted to be joined by Dr
@Liz_ORiordan
as our host. Liz has a very personal connection to the charity' after her mum, Isobel, was diagnosed with osteosarcoma in 2022🧡
Purchase them today:
#TheBoneIdols
Sam's family set up Fitzy’s Fund in his memory, with the hope that future Ewing's patients have quicker diagnoses and kinder treatments.
They have raised £297,759 towards our vital work 🧡
Read more about Fitzy’s Fund:
#FitzysFund
#UntilTheresACure
Join
#TeamBones
at the 2023
@RoyalParksHalf
! 🙌
Not only will you achieve your personal bests, but you'll also be helping to save lives🏃♂️🏃♀️
We’ll also send you a FREE welcome pack and running top! 🎽🤩
Sign up now:
#RoyalParksHalf
#Fundraising
Can you Cycle the Distance for a great cause this September? 🚴🏽
Take on a 200, 350 or 500KM cycling challenge and make a difference to the lives of bone cancer patients.
Sign up now to receive your FREE snood!
#CycleTheDistance
#Fundraising
Our updated 'Key points about Ewing sarcoma' leaflet is available as a printed copy or to download.
If you’re newly diagnosed, this short leaflet will give you clear information about Ewing sarcoma 🧡
For additional resources, please visit:
#Information
For
#ChildhoodCancerAwarenessMonth
, Evelyn has bravely shared her journey with Ewing sarcoma.
Alongside her mum, Lisa, she talks openly about her diagnosis and the precious moments they shared in hospital 🧡
Watch the full video:
#CCAM23
We're delighted to announce the relaunch of our Ewing sarcoma resources, which have been created to provide trustworthy information and support through a difficult diagnosis 🧡
Find out more and get your printed copies:
#Information
#UntilTheresACure
Our research in numbers 🧡
Since our last impact report we have progressed and developed our research strategy, doubling our investment to over £8 million.
Read more in our new impact report:
#BoneCancerAwarenessWeek
#UntilTheresACure
On this
#ThursdayThankYou
we’d like to say a huge congratulations to the cycling champions who took on our Cycle the Distance challenge this September. Your unwavering enthusiasm and incredible fundraising efforts have raised an amazing £12,336.
Thank you 🧡
#CycleTheDistance
Your guide to Ewing sarcoma booklet is available as a printed copy or to download.
If you're looking for more detailed information about Ewing sarcoma, this booklet will be helpful as guidance 🧡
For additional resources, please visit:
#Information
On
@WomenScienceDay
meet Dr Lucia Cottone, our first Early Career Fellow & Rising Research Star winner at The Bone Idols! ⭐
In 2022, Lucia was awarded £500,000 to investigate osteosarcoma resistance to chemotherapy.
#WomenInScience
#WomenInSarcoma
“Thank you for all your help today! I was really anxious before but it was good to have a chat.”
Our Support & Information Team are here for you. To get in touch, contact us on:
0800 111 48 55 📞
support
@bcrt
.org.uk 📧
💻
#CCAM
#UntilTheresACure
🎗
After four visits to her GP, Abbie was eventually diagnosed with osteosarcoma. Get involved with our new campaign like Abbie & make a difference.
Help show that bone cancer patients deserve better as we work towards early diagnosis & kinder treatments.
✨ Special announcement ✨ This April, we’re proud to work with our partner charities to launch the first-ever Teenage and Young Adult Cancer Awareness Month 💛 To find out more, please visit 👉
#TYACAM
#TYACancer
#Awareness
#UntilTheresACure
On the International Day of Women & Girls in Science, we're sharing the inspiring female scientists involved in our life-saving research 🧪 Meet our first Early Career Fellow, Dr Lucia Cottone at
@ucl
. Find out more:
#IDWGIS2023
#Research
#UntilTheresACure
In 2019, Jade was diagnosed with osteosarcoma in her left leg. She visited her GP up to seven times before a correct diagnosis was made.
If you feel empowered to share your own story, please visit:
#TYACAM
#TYACancer
#Support
#UntilTheresACure
Over 90% of primary bone cancer tumours diagnosed in patients under 19 are osteosarcoma or Ewing sarcoma.
For our dedicated information resources on all forms of primary bone cancer, please visit:
#CCAM
#CCAM23
#ChildhoodCancer
#UntilTheresACure
Happy International Day of Women & Girls in Science✨ Today, we are celebrating the incredible female scientists carrying out our life-saving research👩🔬 First up is Dr Tyler Barr at
@UniversityLeeds
🧪 Find out more:
#IDWGIS2023
#Research
#UntilTheresACure
Did you know that primary bone cancer accounts for 4% of all childhood cancers in the UK... and its prevalence increases with age 👶👧🧑
Find out how it affects the different age groups in children this
#ChildhoodCancerAwarenessMonth
👇
#CCAM
Today is the International Day of Women & Girls in Science! 🧫 👩🔬 Dr Sally Fletcher at
@unibirmingham
shares what inspired her path into bone cancer research. To find out more about our funding opportunities, visit:
#Research
#UntilTheresACure
Did you hear the news? We are teaming up with
@chiefchemopony
to fund research into osteosarcoma!🤝🐴
Through this collaboration it is hoped that kinder, more effective treatment options will become available for patients like Hannah 🧡
Find out more:
🍊 Go orange on 14th July for
#SarcomaAwareness
Month!
Go 🍊 at work, 🍊 at school, 🍊 at home, go 🍊 anywhere!
From wearing your brightest 🍊 clothes to baking tasty 🍊 cupcakes… Anything goes as long as it’s 🍊!
Get your free fundraising pack now:
Get your votes in for ‘Allied Health Professional of the Year Award’ ✔ 🏆
Celebrate a physiotherapist, radiographer, play specialist, social worker, prosthetist or orthotist who has impacted the lives of patients 🧡
Nominate now :
#TheBoneIdols
The Bone Idols marks the weekend of
#WorldCancerDay
2024, bringing together 400 people for an evening of awards ⭐
Become a corporate sponsor and recognise those who go above and beyond for primary bone cancer care and research.
#Sponsorship
📣 BREAKING NEWS 📣
@BCRT
trustee Dr Darrell Green at
@uniofeastanglia
has identified a new drug that works against all of the main types of primary bone cancer 🔬 Find out more about this promising discovery by visiting 👉
#Research
#UntilTheresACure
Who deserves the Bone Idols 'Team of the Year Award'? 🏆
This prestigious award is for a medical team who always goes above and beyond for the care and treatment of primary bone cancer patients 🧡
Nominations close Sunday 6th August:
#TheBoneIdols
#BoneCancerAwarenessWeek
is from 9-15 October, and we want to reach as many people as we can to raise the profile of primary bone cancer.
Find out how you can get involved:
#UntilTheresACure
Isobel Ball was passionate about raising awareness of bone cancer and set up her Special Fund,
#BeMoreIsobel
, whilst she was alive so she could help make a difference for others 🧡 To find out more please visit:
#Awareness
#Fundraising
#UntilTheresACure
Today is
#WorldCancerDay
and we're asking YOU to help us show the importance of international research
#collaboration
🌍 Like and retweet our breaking research news to help us reach as many people as possible 🔬🧡 Find out more at:
#UntilTheresACure
Have you ever wondered what life is like as a scientist?🤔
We caught up with Dr Mark Morris
@wlv_uni
, a leading adamantinoma researcher. Here he shares his hope for future treatments that could lead to better patient outcomes 💊
Watch the full interview:
In December 2020, Stephen was diagnosed with chondrosarcoma in his lower leg. For
#WorldCancerDay
, he has kindly shared his story to help raise vital awareness and offer support to other patients 👇🌎
#Awareness
#Support
#UntilTheresACure
Vote now for The Bone Idols ‘Primary Care Award’ ✔ 🏆
This award recognises a nurse, GP or consultant who has shown dedication for the care of primary bone cancer patients in a primary care setting 🧡
Anyone can vote for their idol at:
#TheBoneIdols
The ‘Clinician of the Year Award’ recognises the outstanding contribution of an oncologist, radiologist, clinical nurse specialist or other primary bone cancer clinician.
Who are you going to vote for in the Bone Idols? ⭐
Nominate now:
#TheBoneIdols
For
#MondayMotivation
we’d like to say a huge congratulations and thank you to the epic equestrians who took on our Canter for a Cure challenge this September.
Their unwavering enthusiasm and incredible fundraising efforts have raised a phenomenal £194,695! 🧡
#CanterForACure
For
#BoneCancerAwarenessWeek
, we have put some of the brightest minds in the hotseat with our Researcher Q&A 💡
From clinical concepts and barriers in research to immunotherapy and future priorities, tune in to discover new insights from our experts 👉
On the International Day of Women and Girls in Science, we are proud to be celebrating women in sarcoma.
From lab coats to leadership roles, meet the women who are spearheading advances in sarcoma treatment and care 👩🔬
Stay tuned throughout the day to find out more!
#IDWGS
The winner of The Bone Idol Research Innovation Award is... Prof Lee Jeys! 🏆 Lee's innovative approach to driving forward computer navigation-assisted surgery for pelvic chondrosarcoma resulted in survival rates increasing from 53% to 76%. Congratulations Lee 👏
#TheBoneIdols
SAVE THE DATE and get ready for the CARNIVAL!! 🧡💃🌴🍹
The
#BoneCancerBall
2024 is coming on 6th July 2024 at Elland Road, Leeds
You can book your tickets from Friday 1st December!
We have more exciting announcements so make sure you're following us 👀
#Fundraising