Whitney Carter LaBar🎗👊, Chronically Awesome
@whitneywarriors
Followers
279
Following
2K
Statuses
555
Patient Advocate 🦋 | Incurably Optimistic | CNS Lupus | Epilepsy | CSF Leak | POTS | Depression | Autoimmune Autonomic Ganglionopathy | † |
Joined February 2019
RT @LAlupusLady: Happy Thanksgiving @LADAOrg for recognizing the value and importance of amplifying the #Lupus patient voice everyday of th…
0
1
0
RT @LADAOrg: Kudos to ROCKSTAR Advocate @whitneywarriors for keeping the focus on Pediatrics at #ACR2024 with her Involving Pediatric Patie…
0
2
0
RT @TrishaReads8: Cheered our own @whitneywarriors as she tells her pediatric rheumatology journey & the need for pediatric patient involve…
0
5
0
RT @CaringForLupus: Congratulations 🎊 👏 Miah!!! History was made at #ACR24 💜👏🦋 First Pediatric Rheumatology Patient Speaker at @ACRheum P…
0
11
0
Such a cool study on pediatric patients and their caregivers in Japan!
Awed by side by side patient poster presenters about the pediatric rheum experience. @japan_rheu_vas & @whitneywarriors teach us pediatric patients need a voice in their own care #ACR24 #StrongerTogether 🦋
0
0
0
RT @TrishaReads8: An emotional moment for our team today as @CaringForLupus & her daughter, Miah, a pediatric #lupus patient recount the ob…
0
7
0
Such an amazing session! Highly recommend watching the recording if you missed it #ACR2024
Large audience as patient panelists shared emotional stories about the cultural, financial & travel struggles to receive care for kids & their parents @ Cultural Humility for the Pediatric Rheumatologist. Loud cheers for Elizabeth @CaringForLupus & her daughter, Miah #ACR24 🦋💜
0
4
3
Honored to be here at the @LupusResearch Gala with LADA 💜
LADAorg is excited to sponsor the @LupusResearch Gala in honor of people with #lupus. Thank you to @Xtel007 @MilDiva81 @whitneywarriors @JaeMMonee
@NicoleHemmenway
@BNyquist_MPH @cashman_casey @Annezab @Dave_Arntsen @KathleenArntsen for elevating the #PatientVoice.
0
3
7
RT @LADAOrg: There’s still time to visit @LADAOrg #Lupus Community Booth #2713 at @ACR23 to meet our amazing #LupusWarriors and #Carepartne…
0
1
0
RT @LADAOrg: There’s still time to visit @LADAOrg #Lupus Community Booth #2713 at @ACR23 to meet our amazing #LupusWarriors and #Carepartne…
0
8
0
RT @LupusMI: We were proud to help represent the patient voice at #ACR23! @LADAOrg, @Lupus_Chat, @LupusNE, @LupusIL, @C_O_L_N & @IAFaccess…
0
7
0
@LaubeBrandy I do not receive IVIG for seizures. I get it for autoimmune, which is likely the root cause of my seizures, so that’s an interesting hypothesis as to why I’ve been seizure free for almost 4 years.🤷🏻♀️
1
0
1
RT @LADAOrg: Tuesday, May 10th is #WorldLupusDay, and there are 5 MILLION people living with #lupus, a disease that is difficult to diagnos…
0
50
0
RT @TiffanyAndLupus: #LupusFeelsLike loneliness. This disease can be so debilitating. After you lose body function due to fatigue, brain fo…
0
14
0
@Imani_Barbarin This is a definition taught in disability studies courses and is intended to protect people with disabilities because everyone claiming disability ends up being harmful to people experiencing discrimination & lack of access.
0
0
0