What does having a #BleedingDisorder mean? Learn more about inherited bleeding disorders and how the WFH is making an impact in patients:

The WFH and @ATHNnews are partnering to advance global gene therapy research! ATHN will contribute U.S. hemophilia gene therapy data to the WFH Gene Therapy Registry, helping to shape the future of care worldwide. Learn more: #GeneTherapy

The WFH Twins @MBDSociety & @HaemoSocUK wrapped up their first year in the Twinning program, completing activities such as workshops and a fundraising event. They look forward to continue strengthening #hemophilia care in Malta as they embark their second year.

WFH joins over 20 non-state actors in a constituency statement at WHO #EB156, urging WHO and member states to promote health equity and ensure uninterrupted access to essential medical supplies in crisis-affected areas. Read the full statement:

WGBDs are often underdiagnosed or misdiagnosed, as many symptoms—such as heavy menstrual bleeding, iron deficiency, and excessive bleeding after childbirth—are mistaken for other conditions. Register for our upcoming webinar: #WHD2025 #IWD2025

WFH joins RDI and other organizations in a joint statement at the WHO Executive Board meeting (#EB156) in support for a WHA Resolution on Rare Diseases as part of commitment to achieve Universal Health Coverage. Stay tuned for more from #EB156 this week:

🌍 The WFH is at #EAHAD2025! Today, Donna Coffin and Mayss Naccache presented 3 impactful posters on advocacy indicators for hemophilia care in Africa, data governance in the WFH Gene Therapy Registry and guidelines for AAV #GeneTherapy in hemophilia.

RT @ATHNnews: Big news! @wfhemophilia @TSingMD

WFH joined Global Health Council and over 20 other organizations in a constituency statement presented on Monday at the WHO #EB156 calling for stronger involvement of the Non-State Actors in WHO’s Governing Bodies. Read the full statement:

RT @CathyAH1980: The early bird rate might have finished but if you're enjoying #EAHAD2025 or missed out on the Congress in Milan, why not…

🌟 Join the WFH 2025 CCS this April! Explore cutting-edge care with 90+ experts in medical, MSK, and PWBD tracks. Highlights include panels on transplant & #GeneTherapy, advanced #MSK care, and novel VWD treatment. View the full program: #wfhCCS

🩸 New study highlights the impact of assay discrepancies in diagnosing and assessing #hemophilia A severity in females. Accurate testing is critical for proper care. Learn more about the study: #WomenBleedToo #BleedingDisorders

Tatiana shares her journey of raising a daughter with severe factor VII deficiency—facing challenges, finding strength, and advocating for better care. Let’s give girls with #Bleedingdisorders the care they deserve: 💪 #WHD2025 #WeBleedToo

The WFH celebrated 20 years of partnership with the Hemophilia Treatment Centre Collaborative Network of China at their 14th annual conference in #Shanghai, showcasing the impact of the PACT Program, on care for people with #BleedingDisorders. More:

🩸 Today is European #VonWillebrandDisease Awareness Day! Did you know that many people with #VWD might not realize they have it? The #wfhCCS program features insightful sessions on VWD to improve treatment and care: #beVWDaware

🚨 Last chance! The early bird rate for the WFH 2025 Comprehensive Care Summit ends today! Don’t wait—register now and save 25% when you book your hotel in the official housing block. Secure your spot before it’s too late:

🔬 A new study offers a clinical prediction model to estimate ITI success in severe #hemophilia A with inhibitors. With 4 key predictors, this model supports shared decision-making for families and clinicians. Read the study:

The 2023 Annual Global Survey reveals that identified individuals with other rare #BleedingDisorders have now surpassed 83,000, a 5% increase from 2022. Learn more insights in the AGS: #RareDiseases

Planning for childbirth with a #BleedingDisorder requires careful consideration for both mom and baby. It is important to test the mom's factor levels in the third trimester, and baby's after birth, to decrease the risk of bleeding. Learn more: 🌟#WHD2025

🌍 New study highlights global disparities in #Hemophilia care: while 90% of severe cases in high-income countries receive prophylaxis, only 47% in low-income countries do. Advocating for equitable access to treatment is key. Read more: #TreatmentForAll