Haemophilia Society
@HaemoSocUK
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We are a community that makes each other feel stronger every day. Membership is completely free and everyone affected by a bleeding disorder is welcome.
United Kingdom
Joined March 2010
Places for our Medicine and Me event on Thursday 27 February are filling up so book now to be sure you don't miss out. It's free to attend and promises to be a fascinating look into the future of bleeding disorder care and treatment. Find out more here.
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As January seemingly disappeared in a flash, April will be here before we know it and that means one thing... It's time to start looking ahead to London Marathon 2025! With that in mind, meet Steve and Amy - our first two runners on #TeamTHS.
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As we wrap up our VWD Day content, hear from Hannah and Jo who head up our VWD working group on their plans moving forward. If you're interested in joining the group, find out how here
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Today is VWD Day VWD is caused by a deficiency or dysfunction of the von Willebrand factor, a protein that helps blood clot. For many the easiest way to describe it is it's 'like haemophilia'. This VWD Day, we want to raise awareness of the differences.
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Are you planning a trip and unsure of how to ensure you can access the support and cover you need? From travel insurance to finding local haemophilia centres, we look at how to ensure your adventures aren't limited by your bleeding disorder.
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The future of treatment for people with a genetic bleeding disorder is up for debate at this free event on 27 Feb. Hosted by @HaemSocUK & @RoySocMed, find out about the innovations and technologies which will shape the future of bleeding disorder care.
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We're excited to be able to offer two extra London Marathon places for this year's race! If you missed out on the ballot but still want to run this is your chance. Follow the link below to apply.
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Are you interested in helping to improve health and care research? Then this is your opportunity to help shape the design of a clinical trial for haemophilia in children! This opportunity is for 8 adults (aged 18 or over)
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Wishing you all a very merry Christmas from everyone at the Haemophilia Society. 🎄🎁🎅
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Our look back over 2024 moves into May when we welcomed 3 new YAs - Jack, Robyn and Ryan. They've since taken part in a training weekend, volunteered at Youth Camp and attended our Big Get-Together. We're excited to see what they'll achieve in 2025.
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Continuing our trip down 2024 memory lane, we're back in April again to give a shout out to our wonderful marathon runners. We're so grateful to Paula, Ross B, Wilson, Matt, Jamie, Hannah, Ross M, Eduard, Wayne, Oliver, Kate and Andy who between them raised £34,577.
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As the year gradually comes to a close, we wanted to re-share some of our favourite stories from 2024. Back in April, eight-year-old Jacob set off on a fundraising walk along the coast near Skegness for the second year running.
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Many will have seen that, two weeks ago, our LGBT Ambassador, Mark Ward published his fascinating memoir 'Bleeding Fabulous'. His his autobiography tells the full story of how a young boy with haemophilia went on to change the world. Find out more here
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Without our amazing supporters raising vitals funds, we can't do what we do. Find out about all the ways you could get involved.
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A year ago the government was forced by parliament to set up a compensation body for those infected and affected by contaminated blood. A year on, not enough has been achieved. Government must listen to the community and get the compensation scheme right.
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A huge congratulations to Steph Taylor who was named 'Physio of the Year' at our Big Get-Together for her "dedication and hard work" and for building positive relationships with and providing "outstanding" care to patients.
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It's just a few days until our annual carol service. Join us for what is always a special evening with performances from the wonderful St Botolph-without-Bishopsgate church choir, readings and a host of traditional carols. Book your tickets here.
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Our annual Christmas carol service is happening on Wednesday 4 December at 7pm. Join us for traditional carols, readings and amazing choral performances. Mince pieces and mulled wine are served afterwards. Buy your tickets here:
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Congratulations to the winners of our new Recognition Awards. Nominated by our members, these special awards let our community's clinicians know how much their hard work and knowledge are valued by their patients. Use the link to find out who won!
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🚨 Warning - This post contains wholesome and heart-warming content that may bring a tear to the eye 🚨 Poppy is officially my new hero!
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