Fiona Copeland BEM
@pcdmum
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Mum to adult sons with rare genetic lung condition, Primary Ciliary Dyskinesia. Also interested in running, watching Rugby and F1.
Milton Keynes UK
Joined June 2011
RT @CiliaAlliance: Great video showing what it is like to live with PCD from the French PCD Group with English Subtitles. #pcd #raredisease…
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Delighted to have been asked to attend the first Global PCD Advocacy Summit - lots of great ideas on how to collaborate and how to encourage people to take part in research. Even managed a swift pint in an English pub! @PCD_UK @PCDAustralia @PCDAustralia
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RT @JoepopProds: EastEnders heartache for Whitney Dean as daughter diagnosed with rare condition
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RT @MargaritaMsb: My daughter is one of the 640 people in the UK to have the rare disease BBS. She’s studying politics at University & does…
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RT @DHSCgovuk: 🧬 On #RareDiseaseDay, we're taking further action to improve the lives of people with rare conditions. This includes: 🧬 res…
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RT @GeneticAll_UK: The third England Action plan has launched today! At today's Rare Disease Day reception at Westminster the Rt Hon Andre…
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RT @CiliaAlliance: Good to meet up with our Ciliopathy Support Groups on Rare Disease Day! Thanks @GeneticAll_UK for inviting us. #alstrom…
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RT @BiofilmHorton: I’m cycling 100 miles in May to raise funds for @PCD_UK 🫁 🚴♀️ Please check out my fundraising story and donate here…
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RT @beatpcd: The @EuroRespSoc Webinar 'Nasal nitric oxide measurement in children for the diagnosis of primary ciliary dyskinesia: a Europe…
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