PCD Australia
@PCDAustralia
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Primary ciliary dyskinesia (PCD), also known as immotile ciliary syndrome or Kartagener Syndrome , is a rare, ciliopathic, autosomal recessive genetic disease.
Melbourne, Victoria
Joined February 2013
During PCD Awareness Month, we're highlighting the complex journey to a PCD diagnosis. Many remain undiagnosed due to low awareness. Here's a map of what it can look like. Contact us for info and support! #PCD #ChronicIllness #InvisibleIllness #DiagnosisJourney"
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RT @beatpcd: The PCD patient conference 2024 will take place online on Friday, November 29, 2024 from 2:00 to 6:00 pm (CET). Registration a…
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RT @ProfJDChalmers: Really looking forward to this. Don't forget October is PCD awareness month so follow @beatpcd for more updates
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Join us in raising global awareness for Primary Ciliary Dyskinesia (PCD)! Check out the new film by ADCP with real patient stories. PCD affects the cilia, causing respiratory issues and sometimes organ inversion (situs inversus). Watch here:
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Handwashing is vital for those with Primary Ciliary Dyskinesia (PCD) to reduce the risk of respiratory infections. Since clearing mucus is harder with PCD, regular handwashing helps keep germs away. Stay safe, stay clean! 🧼🤲 #PCDAwareness #Handwashing #PCDLife #StayHealthy"
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Cilia are tiny hair-like structures that help move reproductive cells. In people with PCD, the cilia don't work properly, making it harder for sperm and eggs to move, which can cause fertility issues. #PCD #Awareness
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🎉 We're excited to share our first video on the importance of airway clearance for PCD! It's a helpful guide for parents and patients to manage respiratory health. Watch now! 👇 💨 #PCD #AirwayClearance #RespiratoryHealth #PatientEducation
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Primary ciliary dyskinesia (PCD) is a genetic disorder where cilia in the lungs don’t work, leading to mucus buildup & frequent infections. Kartagener syndrome, a type of PCD, can also flip organ placement. PCD is usually inherited from both parents. #PCD #RareDisease
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RT @TriniLpezFernn1: @dcpes_org acaba de asistir a un importantísimo encuentro en Londres de toda la comunidad DCP internacional @PCDAustr…
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RT @pcdmum: Delighted to have been asked to attend the first Global PCD Advocacy Summit - lots of great ideas on how to collaborate and how…
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🚴♂️ 🏃♀️🏊🏼2 DAYS TO GO until 55KM challenge 2024 kicks off across Australia! 🚴♂️ 🏃♀️🏊🏼 On October 1st, we will st art our month-long challenge and ride ,walk , swim or run for those kids and adults who live with PCD . ❤️
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Happy World Pharmacist Day to all the amazing pharmacists! PCD Australia celebrate your dedication to keeping the Patients with PCD , healthy and safe. Thank you for your hard work, compassion, & expertise. You truly are the heart of healthcare. #WorldPharmacistDay 💊🎉
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🚴♂️ 🏃♀️🏊🏼7 DAYS TO GO until 55KM challenge 2024 kicks off across Australia! 🚴♂️ 🏃♀️🏊🏼 On October 1st, we will st art our month-long challenge and ride ,walk , swim or run for those kids and adults who live with PCD . ❤️
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MONASH UNIVERSITY -MEDIA RELEASE Fed Govt has announced that it will implement a total legislative ban on the use of genetic test results in life insurance. A report by Monash Uni.'s Dr J Tiller & Prof P Lacaze. #GeneticTesting #LifeInsurance
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PCD Australia reflect on our collective commitment to ensuring that every patient receives the safest and most effective care possible. Educate Yourself: Learn about safety measures and best practices. #WorldPatientSafetyDay #PatientSafety #Healthcare #SafeCare #HealthForAll
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We’re launching a fundraising campaign to raise vital funds for research, support and awareness. Running , walking, riding or swimming 55km or simply sharing our message, every effort counts! 💪 How far will you go? 💪 #PCDawareness #Fundraising
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RT @Lena_Group4Resp: #BeatPCD2024 🚀 🌟 A heartfelt thank you to all the endorsing societies and industry supporters for their invaluable sup…
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RT @beatpcd: @ErnLung @Shoemelia @mgoutaki @mathieu_bottier @_Claire_Jackson @Leonie_Schreck @horaniLab Thanks to our partners for their su…
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