'The Wrens' Duet' - a Masterclass by Gary as to how to use just 3 inks to create so much detail & shading. I think it's magical how he can work like this, the Wrens is one of my favourite prints.
Nearing the end of it's edition grab one while you can!
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The slightly eccentric looking woman who stopped the traffic on Aldi car park with her shopping trolley to rescue a tired Bumble Bee with the aid of a lettuce leaf and set it down onto a nice looking berberis shrub while talking to it all the time was in fact, me.🐝
Bugger. bugger. bugger. Hospital just phoned. Consultant wants to see me and Gary this Friday. She must have got the PET scan results back. All I can read into it is bad news which is terrifying. Gary saying it might not be, we'll have wait & see. Need all you good vibes chums x
Yesterday on a very rare trip to M&S food hall we had people really staring at us for being in masks. If someone is still wearing one there's a very good reason behind it, like lacking an immune system. Stop with the staring, it's rude.
I have decided to contact my brother, he fell out with me after our Mum's funeral which I'm convinced was my SIL influence. I've made contact with one of his sons as a light approach. Hope it's a good move, it's been on my mind for ages. Life is too short...
It's our WA today. We arrived at the, 'in sickness and in health' sooner than expected. We're cooking supper between us and I'm making petit pot au chocolat for pud. If you'd like to raise a glass or mug this evening we'd be delighted x
All the moaning neighbours who think we let things grow are sat under huge garden parasols on their sterile patios. While we have dappled shade from our lovely trees making pretty patterns on the grass. 😏
Still in hospital. It can be an awful place to be. Woman on left going home with weeks to live. Woman on other side given days. ICU nurses running in tandem with cancer nurses. Had the DNR talk. I'm concentrating on living. x
I've decided to try for Stem Cell Therapy to try & stop the cancer. There's lots of tests to see if my organs are up to it as it's very tough going. Have first biopsy next Wednesday so the ball is in play. Have to keep brain occupied o I get terrified with the enormity of it all.
Consult appt... cancer active so SCT is a no. However lots of positive talk, both York & Leeds consultants hatching ideas of how to get cancer back in it's box. Entails new drugs/chemo, I've offered myself up as a guinea pig. It'll be about living with cancer, not dying from it x
Tomorrow at 11 it's the big meet with Consultant re PET scan & best plans for halting cancer. I can't say I'm not terrified, I am. May be I get another shot at SC therapy or plan B. If you have a God, prayers, crystals, healing vibes or plain good wishes can you waft them here x
Very early start tomorrow and an all day stay at the hospital. I've managed to put on 12.5kg in 4 months. Let's see how quickly it drops off again. Will condition my hair tomorrow before it's all but a memory again. Let's go get this nasty old cancer and tell it it's not welcome.
..hoping it will swiftly check its tracks. Consultant was in 2 minds as to whether my crash was steroids or the disease rampaging. However I haven't felt so optimistic in over a year & the atmosphere in the room was so v. positive. So let's hoist the flag & let battle commence x
Neighbours cutting down the most beautiful twisted willow tree, to make room for half a dozen bags of gravel and some garden shade thing. The birds are hunkered in our garden while it all happens. Sometimes I get so very tired of it all.
Yesterday afternoon's drive home was magical, like I'd woken up in a whole new season. Blossom everywhere, daffs blooming on the City Walls, drifts of snowdrops, catkins waving from the branches. A tonic for the soul.
Woke up this morning to peace, cats & a cup of tea in bed x
If you've a garden full of dandelion clocks due to 'No Mow May' go out at dusk and take a look at them illuminated under a clear moon. It's like a whole galaxy has been suspended a foot over your garden. Magical.
I'm home! 9 days, 9 long, long days. But I'm well again and ready for next week's central line fitting and round 3 of salvage chemo. Who'd have thought I would be so busy.
#cancerdiaries
Back from Consultant appointment at hospital. Bloods all showing as normal, haven't had that for over a year! Now been started on search for a bone marrow donor, also have next cycle of new wonder chemo. Feel optimistic, though still a long road to travel.
Just back from hospital out patients. Had bloods checked, all heading in the right direction. They are giving me a couple of weeks off to get stronger then it'll be Leeds and SCT. Every fibre of my body is gearing up for winning this long thrust & parry match with cancer.
Meeting with Dr regarding SCT was scary to say the least. She started with all the eek - 1 in 20 die, treatment is mega horrid & still not guaranteed to get on it. Better news - I'm presently in remission, just got to keep that up & I'm on the right path. Living is preferred x
Slept well which is especially surprising with yesterday's news and that I'm sleeping on the sofa due to new central line being easily knocked when in bed. Woken by sunshine & cats gathering to sun puddle on window ledge, their fur catches sunbeams & shines with gold highlights.
Back from Haematology out patients appointment in York. Much more upbeat that yesterdays meeting. They've not had anyone die on their watch + my bloods are good and that's without any intervention. Onward and upwards.
..feels like I'm in a holding bay & the doors are sliding shut. We've done lots of swears today. I don't want to f**king die just yet. And we've made a conscious decision to not put off anything until tomorrow that we can do today. Life is for living & I need to make more art x
Home again! 10 hours on an IV drip makes for a long day. But there was a moment of unexpected nature when at 3.30 a mini murmuration of Starlings dropped from the sky onto the ledges under my window & then jiggled and pushed so all could roost under the length of the building. 💚
I'm being allowed home. Same doctor that sent me home on Saturday. We had a real laugh when he saw me again. He's the first to talk sense and said the shakes and temp spike is my way of dealing with 1st draft of chemo in my system. Someone who listens at last!
How I'd love to be walking up a hill to the promise of a long view. Walking to the kitchen and back feels epic just now. Never, ever overlook your good health it can be whipped away in a heartbeat x
Cancer update & it's a big one, will take a few tweets to fill you all in on the exciting news!
Hospital trust had only signed off consent on new drug this am. So I had to sign all consent forms at my end to proceed. My cancer is so rare it doesn't get a lot of research...1/-
It's our not Christmas Day today! No presents to each other, the idea of instead wrapping the cats, well, we'll draw a veil over that. Kitchen is spilling over with sprouts, parsnips, stuffing & mince pies.🎄
25th Dec I'll be glowing with chemo & steroids.
#Christmasbutearly
Bloods report back, all looking marvellous and climbing back to normal all under their own speed. Not had so many self made platelets in nearly a year. Shows how much chemo whacks out of you.
Not good news. Aggressive Cancer back. Choices, do nothing, live my best life, timeline 5 & half months. Or more chemo & if that slows C it's then stem cell which entails a mth in hospital in bed & several mths feeling crap & that might not work, may gives me 2 more years. 😧
Hi, just to let you all know yesterday's 10hr chemo hit me hard this time around. Feel like I've driven into a wall with a faulty airbag. Got home & went straight to bed and have only just got up. Thank you for all the messages, they really help. Cancer is an utter shit. x
Call from hospital this morning. Consultant wanting to see me before Monday when I'm in Leeds for Stem Cell Harvest. I knew as soon as I saw her face it was bad news, the worst kind of news. Once I've got my head round it I'll let you all know more.
My Dad died on this day over 10 years ago. Such a quiet, generous man his good heart taught me well. Miss his appreciation of a good biscuit and a decent pint. Happy I inherited his ice blue eyes and ability to appreciate even the little things. 💔
Thankfully climbing back out of the black hole that was the last fortnight. The mix of SC harvesting, medication & logistics led to me being very unwell, to the point one night I thought I might die. Started to feel brighter over the weekend, which is wonderful.
#CancerDiaries
Decided to take up the offer for Bone Marrow Transplant, it has 7 steps according to the weighty booklet I've been given to read. Day one starts today with District Nurse taking bloods including one to check my bone profile.
#SavingHeather
While terror stalks the halls here a small but beautiful thing has brightened my life. My non existed chemo bashed eyelashes have grown back as long, fluttery wonders, the likes I've never had before.
#flutters
Re momentous earlier tweet, my main emotion is bloody anger with it all and how it's upset my lovely Gary. And I don't want to die. I've way too much to do!
Behold my first lockdown stressy jumper all finished at long last. It's a lovely peat brown knitted in British sheep breeds undyed yarn. This wool is from the local Masham sheep and is so soft it's like a woolly hug.
I've not had alcohol for over a year. Gary just brought me a very weak Pimms to cheer my grump. It's wonderful so I'm celebrating the solstice with a cheery Summer tipple.
Post op cup of tea. Much better experience than last time. Have to be observed for an hour before I can be released back into the World. Central line no. 2 is go.
#CancerDiaries
Just had a call from the hospital, looks like they've got clearance for new chemo drugs so with some luck I'll be starting them on Friday.
#HeathertheHumanGuineaPig
Twitter Chums - here's some Friday Good News Joy!
Just been informed by my Consultant that I'm responding to the treatment. Baby steps but in the right direction.
That glass is definitely half full! 🤗
Caught Gary crying this morning. Sparked by something good happening in the next couple of months and the uncertainty of me and what the future holds. Breaks my heart, it's all so tough and cruel.
Back home with an arm full of chemo and steroids. CT scan next week. Central line booked in for later in the month, more chemo - another 10 hour session, ugh. Then with the all the luck it'll be next step Stem Cell Therapy.
As ever thank you for all your lovely messages xxx
8/10 day. Did a tiddly amount of admin, started some seed sprouting, dug out knitting, tried to knit avoiding central line with success and have managed a few rows. Finally have made sauce for pasta supper. I need a lapel badge for striving. 🏅
Had one of those glued to the floor terror moments this morning. I try really hard to bat them away but sometimes they take over and death looms large. I immediately talked with Gary and he hauled me back. We catch each other when we fall, arms outstretched.
Quick heads up chums. In hospital, not Leeds but York. Have had a couple of poorly days, so stem cell harvest put on hold. Not a problem, still on target. Onwards we go x
Back from meeting. Lots of positives regarding Bone Marrow Transplant. If this new chemo knocks cancer back it's very hopeful. Stats on morbidity scary but this is due to my cancer being so rare, few studies done & stats get lumped together, that's why I'm being the lab rat.🐀
Just reading about the new chemo drugs that'll be coursing through my veins this coming week. One contains alcohol and suggests not working heavy machinery. I'm hoping it comes with a tiny paper parasol and a maraschino cherry on a stick.
... my mind has kept me sane, I want to celebrate it with all the glitter confetti. I'm pissed but happy. Not forgetting Gary, my carer, a role he just walked into without a pause. I couldn't ask for a better mossy rock to lean on. So story so far. Go do something with gusto xxx
Cancer update - just back from Consultant. They've decided next course of action involves a new drug, oral chemo, just released on NHS books. Will need trust clearance on £££ but hopefully will be started on this next month. Until then I'll be bouncing about on steroids.. 1/2
Had a conversation about my Dad earlier today here and realised it's the anniversary of his death. If you've a glass in hand it would be lovely if you raised it to my Dad. He was a quiet kind man with a generous heart, much missed.
Super Gary sprung into action. I'd been overlooked this morning on Dr's rounds, how that could have I'll never know. Just seen my consultant & hopefully home tomorrow. Big news though is CT is looking fab SCT getting nearer!
Letter received from Consultant this am. Big meeting with her set for 14 Nov, that's when I should know if I've made the grade for stem cell treatment. Hopeful and terrified in equal measure. 😬
Both still lying in bed, me still recovering and Gary with creasing sciatica from pollarding a tree in the front garden and all the driving he's done all week.
Never lose your sense of humour chums, you never know when you'll need it. 🤡
PS. The cats are threatening to eat us.
Feeling melancholic for all the running, cycling and long fell walks that once made up my life. Spirit still willing, body now just muscle memory. Thank goodness mind kept files of past adventures to play back when needed most.
#CancerDiaries
Back home. Doctor took 5 biopsy samples, think he got trigger happy with his extraction gun! Dull pain now but all looks OK, I've got to rest for 24 hours. Nurse said I was brave as a lot of people react to the op. There's rock hard northern grit in these bones. 😉
Meds delivered to the door by local pharmacy. Physio has phoned and talked with Gary, everyone on the case to get him back mobile for me. They may be being hobbled every which way by those presently in power but the NHS is still utterly brilliant!
Day 4 of new chemo. No side affects to date and feel OK. Must have walked quarter of a mile yesterday, ended up an unglamourous stagger back to the car. Bought ice blonde hair treatment, now need to build courage to use it! If all else fails I can always chop it off.
Hurray! Gary is on a test drive to check out his sciatica, he's just phoned from the car wash to say all is OK with his leg so we are mobile once again. What a relief I've felt trapped for the last 4 weeks! Might just get to see some bluebells.
3/_ Now the big news... I'm getting a central line for Christmas! Having fitted a tunnelling line which is larger than normal as they are GOING TO START HARVESTING STEM CELLS. I'm on the programme for SCT! I nearly whooped at the news! So pleased I've got over another hurdle...
Big day at the hospital tomorrow. Lots of tests on lungs and heart to see if my body is up to being battered by stem cell therapy. It's like standing at the bar waiting to be swerved at the Last Chance Saloon.
Had a bad night, second one in 3 weeks. Gary sat up with me until I could sleep. Cancer lays claim to my body in loathsome ways, I hate it's confidence in making it's presence felt. So hope it get's blasted out of here soon. Be gone foul thing.
Was poorly in the night so Gary has gone into full Staff Nurse mode - apart from the uniform. He's taken my temperature, blood pressure & is keeping me hydrated with gallons of tea. Having a tanked immune system means we have to be on alert for any infections. Feeling better now.
False start. Bloods not good, they took 2nd test & it came back the same, low white cells & netrophil which means immune system is flatlining. If they gave me chemo it would likely bring on Sepsis which we all don't want! I've far more sick than I let on to be. I want to be well!
All the homeless people I knew on the streets of York didn't choose it as a life style choice. For the majority they fell through the cracks by loosing a job, then their home and then everything. How dare she be so glib about lives, I'm furious.
I know we had Christmas a fortnight ago but we can't sit here just twiddling our fingers so I'm made a trifle and got some sprouts in for tomorrow. And I've told Gary to unwrap one of his single malts tonight. We shall go to the ball even if we just sit on the stairs. 🎄🎁
Being in my situation I have realised that life is way to precious to continue ploughing through a book if you're not enjoying it. Toss towards the charity shop and move on.
I 've been on my feet for 2 hours today which is amazing if knackering. I've introduced the dried fruits to a very large brandy for the Christmas cake, made a fallen dark chocolate torte, baked olive ciabatta rolls and done the sauce for tonight's pasta supper.
*falls over*
4/_ Still on Salvage therapy but I may only need another 27 day cycle to then get whisked to Leeds Cancer centre for the SCT, maybe end of Jan or end of Feb. I can't stop beaming, good news at last. Raising a drink for me tonight xxx
Such utter frustration. Brain still as sharp as ever dragging around a useless body, not fit for much more than lying or sitting in my sofa fort of cushions and cats.
Oh to be rowing down a river on a warm Summer's day looking for flashes off a Kingfisher's wing.
#CancerSucks
From being someone who didn't own a single pair of pjs my wardrobe has totally tipped the scales the other way. Just treated myself to a Summer blouse in the hopes I get to wear it under a sunny sky with a light breeze to flutter the ruffled sleeves. Good to have future plans.
One of those days where we both had to remind ourselves how much things have changed, forever, and that living for the day is the only way forward. It sometimes creeps up and makes you hold on tight to what you've still got.
#CancerDiaries
Mon/Wed I spent over 12 hours in the car, had 6 injections in stomach & 10 hours on Stem Cell harvesting machine. Survived on 3 yoghurts & half a cheese toasty. Wed eve once home body went into free fall, pain everywhere due to new drugs, etc., just starting to recover. x