This was my final project for the culture equity and health class I took this semester. We had to pick a demographic and their health disparities. Any chance to talk about us I’ll take it 😊
Doctor went thru the results she ordered for me and while explaining one deficiency that causes muscle weakness, she said why that’s relevant since “you have myalgic encephalomyelitis” and no doctor has EVER said those words out loud to me or affirmed me that way before
@vagina_museum
The father of gynecology who cured vaginal fistulas did so by mutilating and providing zero pain meds or anesthesia to black women. Once he perfected his technique he only worked on white women and never fixed his mutilations on his slaves. He’s a racist sadist
I was hesitant to go to the gas station to get caffeine bc I was tired already. Did it anyways. The sweet man checking me out just goes “I should wear masks again.” I said I have so many extra and ran to my car to get him 10 KN95s I fortunately hadn’t even used yet. I’m so happy
POTS IS NOT A HEART CONDITION. POTS IS NOT A HEART CONDITION. POTS IS NOT A HEART CONDITION. MY HEART IS FINE MY CENTRAL AND AUTONOMIC NERVOUS SYSYEM IS FUCKED UP. POTS IS A FORM OF DYSAUTONOMIA. WE WILL GET NO WHERE UNLESS WE LEARN THE FACTS. POTS IS NOT A HEART CONDITION.
Y’all barely stayed inside for 3 months. And we’re still going pit every weekend. You know what fucked your 20s? Disability. This take is soo pathetic I’m sorry you can’t handle minimal change. You had BEST case scenario pandemic. Most lost loved ones w/ mass death and disability
everyone i know in their late 20s is having an existential crisis because we skipped our mid 20s in the pandemic. relationships fast-tracked, careers faltered, we lost those core identity-building years and now we feel like 23-year-old brains in bodies approaching 30
Doctors are literally trained to dissociate from their own body. Ignore your hunger cues and your tiredness. They not only don’t believe a human could recognize when something is wrong, they resent us for it. They are taught to suck it up so why doesn’t everyone else suffer too?
Can we please create some shock ads for covid? I want to print some and put them around my university with masks attached as well…. Lmk if you have any ideas to literally trigger ppl lol. Make them see it
Pharmacist recognized me as the girl who gave her some KN95 masks a few months back when she only had a surgical on. She was wearing prob one of the few I gave her then. I asked if she wanted more and she said she’d always take some! I had dark blue to match her scrubs :)
Justin Biebers canceled tour prob means long covid. I wish he’d have the guts to admit it and actually help other. But just like his ex, they will continue their life of luxury and be completely fine
@haworthes
Idk why these cuts feel so weird? Like added in last minute or even a voice over and they made their mouths move? Just feels off for some reason
It is hard not to conclude that the course of the pandemic is being directed by the ghosts of Hitler, Himmler, Goebbels, and Mengele. Human life is now accorded less value than the opportunity to dine in a restaurant. The masses have been seduced by the lure of brute selfishness.
Do you feel like you have to put on a performance when seeking medical care? Whether that’s a performance to get thru it, to get more help, to not get abused, as a defense mechanism. Whatever ur definition of performance is
Why do y’all tweet this? So you can be absolved of any guilt? If that’s how u feel then go ahead and live that way but stop making disabled people the villains for fucking telling you why that’s so dangerous. Disappointing as fuck
It’s just sad. Our supposed comrades fucking hate us and don’t care if we die or if we have a quality of life. It sucks. I hate having to read their nazi takes on one of the few platforms I can exist at all
@TheBachBabes
It’s so sad how they’ve become shame personified. Can’t imagine being their friend or their children. Hopefully they can go to therapy someday
He’s ALWAYS left disabled people out of the convo and even just recently he doesn’t know what ME/CFS means so he wasn’t gonna comment. So DONT comment. You’re just causing more “leftists” to tell us to die and shut up.
Just gave the pharmacist KN95s since she was just wearing a surgical. I’m the mask fairy and going to start passing them out like candy to any workers I encounter. I think they want/need them more than they’d say or show
@alitlstrawberry
Lol yup. Was as passive agressive as possible running into my partners med student classmates in the grocery store without masks. Just bc you’re smart doesn’t mean you can gaslight a virus? Honestly becoming disabled would make them better drs so I don’t care
@Coelasquid
Big Mouth is fucking fantastic, hilarious, crude and informative. If we’d have had HALF the humor and conversations they do we’d be saved from so much extra PTSD. The way they talk about sex and consent and shame and bodies and friendships is just incredible. Hate is unwarranted
I’ll never not be jealous of chronically ill celebrities who take cute photos of themselves getting copious treatments most of us could only dream of receiving and going into decades of debt for 😊
@loscharlos
@Bradgolf1216
@Imani_Barbarin
called it a year or so ago to get a documented positive covid test from that time or they can say it’s not long covid, you never had covid. Anything to keep sweeping us under the rug
I’ll never forget the guy that asks people’s rent amount and if he can come see their place just casually records a man saying “it doesn’t matter bc my wife has
#LC
and we can’t afford it” then he tours their house with no mask and the vid ends. Every comment was like wow me too
There doctor propaganda just like fucking copoganda. They will not save you. They will not fight for you and your health. They will not fight the system to diagnose you. It’s all lies and it’s sad esp now when people assume they will help when something is wrong and misunderstood
And those groupies who search hasans name to defend him: I don’t fucking care. He’s objectively wrong and I’m allowed to feel upset that will lead to more harassment. He should know his limits and again, he NEVER mentions disabled ppl so he shouldn’t talk on this at all
Please help me out—I'm writing a paper on COVID-19 Twitter and would love specific examples of creators or their tweets that have stuck out to you/bookmarked/come back to for info!! I want any kind of examples you have pretty please.
@1goodtern
Is it bc our brains are meant to forget horrible pain/trauma? Is this a natural biological response or brain damage? Or both? Anyway it sucks!
@swampflora
@Imani_Barbarin
taught me about Ugly Laws. Disabled/disfigured people were not legally allowed in public for many years in different cities.
@SillyPutty78
I’ve actually had the diagnosis for a long time but it’s never addressed by drs either out of ignorance or they don’t think it’s real! But this one actually said the word to me 🤭🥹and it was a metabolic test and specifically vitamin deficiencies like B and A and E!!
@siyyaninaas
Mom.uncharted is absolutely incredible and has been bringing awareness like this for so long. I do wish she’d name drop more but I understand she said she wants it to be more abt the whole issue not just individuals. There’s too many examples 🤢
And you and every other HCW should be masking in respirators to prevent the infection of airborne illness. It’s quite literally the easiest thing you can do.
@jamaraproducer
@vagina_museum
I’ve learned that unfortunately most if not all origins in medicine are racist sexist and sadistic. It needs to be shared more considering how much harm and racist drs medicine still perpetuates :/
First day of their first year in med school and a lot of students were very aware of EDS, MCAS, POTS! But again, why aren’t we masking? Why aren’t we teaching this incredibly important step that is AVOIDING INFECTION? I’m glad dysautonomia + is being acknowledged but fuck
@ChrisAlvino
I’m so sorry Chris. That is such a devestating and aggravating situation. I wish we could all house together in a perfect world and keep each other safe. I hope you are safe and get thru the next week as well as possible. We’re here for you and hear you. I’m sorry it’s so hard.
@thatssokeshaun
It’s not insane this is exactly how men treat their disabled wives and will always expect them to stay for their sickness but not in return. People hate disabled people.
And if I’m wrong and he somehow handled this conversation well, even tho the clickbait proves otherwise, lmk. But I’m not watching it and hearing u all sigh whenever disabled ppl talk
Was helped at self checkout and when leaving handed him a mask and said
“I’m not sure if you wear them but these have a great seal”
and he said “for the smoke?”
“Yes and for everything else! You face so many ppl a day, can’t hurt”
“Thank you so much! I will wear it :)”
:) :)
He said his peers asked incredibly thoughtful and kind questions. That they talked about how doctors dismiss patients feelings and experiences esp how shitty they can be to disabled patients. But they don’t mask or require masking. I wish they thought just a little further
Sucks you don’t know how to exist with yourself without outside distraction. Sucks you had to order takeout and couldn’t attend school in person. I fucking promise you’ll be fine but you won’t be after your 7th covid infection 💖
Stop being upset you don’t know how to ask for help or be in/understand your own body!!!! Stop taking it out on everyone else!!!!!! Get a different fucking job!!!
I’ve been sick a decade and it has never been consistent. It is never the same and you get better and you get worse. There’s no use in holding onto the day you’re having now. We are only promised impermanence. THAT is what we hold should onto.
It’s super cool and normal when people make statements like this that very much apply to disabled people then throw a fit when we bring it up. Wait until your 5th voluntary covid infection and you can’t stand anymore let alone make ur own food
@a_lil_bow
It’s okay!! I completely agree but there was little stuff to make it even better and I’ll take it tbh. I was expecting a B maybe low A lol!!!
The person who asked for my help in handling their new POTS diagnosis never responded and has been posting themselves in bars and traveling europe unmasked over the last year. First thing I fucking said was DONT get covid AGAIN.
When I first got sick I was told I was “copying my sister” but was still prescribed fludrocortisone. MECFS/MCAS/POTS/EDS ETC are absolutely genetic and covid, or any virus for that matter, does a good job at making it worse or bringing it to the surface in families.