I miss: - sitting - standing - walking - showering - talking on the phone - reading - thinking - living #severeME

@AaronCa11 🫂🫂

@CiaraGlenville I'm not. Stomach wad reacting weirdly to a supplement which had a bunch of stuff including some b vitamins so I stopped it a few months ago. Just the b12 for the last many months out of the b vitamins.

@AmandaB55744931 Ah interesting. I surprisingly don't have MTHFR mutation. Don't know about the latter. 🙏🏼

@CiaraGlenville 🙏🏼 what's a good dose you think?. I take 1500mcg b12 on alternate days.

@Yrrepmot I usually give up when it gets too complicated for my brain 😭 there are so many contracting theories and protocols

@Naomi_D_Harvey I take magnesium regularly so that should be okay. But good shout on the b2. I'll check 🙏🏼

@ContactVVR Yep that's what I'm taking.

@Naomi_D_Harvey Considering I've been taking only b12 for months I'm assuming levels are up so folate should be good. But maybe i should test my b12 levels first (for whatever they're worth). What I really need to get started is b1. Maybe methylfolate first and then get into thiamine land

So fed up of collecting a constellation of illnesses and conditions that only have this shit to offer in terms of treatment (and the "supportive care" is inevitably some "bandaid on a gaping wound" form of physiotherapy)

RT @arianek: “The patient is guilty until proven innocent.” - @/chronically_keira on IG. This is so deeply true. In my case, I’m guilty e…

@3eyedlambs Candida? Ugh. How did they diagnose it?

RT @SFdirewolf: I just read an article deriding online activism saying that posting will not stop fascism. The author completely ignored ho…

RT @RenzPolster: acetyl-L-leucine (ALL) seems like a miracle amino acid – with possibly strong effects in Parkinson´s:

@ellbail I hear you. Probably the vagus nerve to blame there

@ellbail 🙏🏼

Well actually there's also abdominal discomfort and sometimes pain while/after urinating. So there's something going on but urine tests and kidney tests are always fine and this has been happening on and off for more than a year now.