🐸 Froglet
@froglet80
Followers
3,342
Following
1,835
Media
2,418
Statuses
52,148
long covid 2020 / immune deficiency from SARS-CoV-2 2021 / no govt assistance or treatments #pwlc #fblc
Houston, TX
Joined November 2022
Don't wanna be here?
Send us removal request.
Explore trending content on Musk Viewer
Sonic
• 307201 Tweets
Shadow
• 277407 Tweets
الفتح
• 233989 Tweets
Colapinto
• 127429 Tweets
Galatasaray
• 119043 Tweets
Jack Smith
• 91678 Tweets
Logan
• 78345 Tweets
Young Boys
• 68476 Tweets
Ferdi
• 67461 Tweets
Sterling
• 67297 Tweets
Sancho
• 66639 Tweets
Olmo
• 62272 Tweets
#GSvYB
• 61593 Tweets
Rayo
• 61588 Tweets
#325days
• 52145 Tweets
Okan
• 51923 Tweets
#النصر_الفيحاء
• 44874 Tweets
Yolun
• 39176 Tweets
Keith Lee
• 27675 Tweets
Ferran
• 22934 Tweets
Kerem
• 19883 Tweets
Pedri
• 19444 Tweets
Muslera
• 16019 Tweets
野人転生
• 12880 Tweets
Ter Stegen
• 11636 Tweets
تاليسكا
• 11401 Tweets
Ziyech
• 11014 Tweets
#KohLanta
• 10742 Tweets
Pinned Tweet
#TwoForTuesday
#CommunityCare
#challenge
quote tweet two (or more!)
#MutualAid
requests today!
🗨️ COMMENT with your links
❤️ LIKE thread & comments
🔄 RT thread & comments
💲DONATE to someone in need, if able
#FrogletAid
#MutualAidBoost
#HelpFolksLive2024
#LongCovidAid
#MutualAidMonday
This is a
#FrogletAid
#CommunityCare
thread, for boosting
#MutualAidRequest
.
🗨️ COMMENT with your links
❤️ LIKE thread & comments
🔄 RT thread & comments
💲DONATE to someone in need, if able
#MutualAidBoost
#HelpFolksLive2024
#LongCovidAid
#MutualAid
46
50
41
8
6
6
most of y'all have never read any of the research published during the firs 5 years of the AIDS crisis and it shows in so many ways
15
689
6K
ten reasons SARS-CoV-2 should be more feared than hiv
(warning: i learned to count from
@1goodtern
)
47
903
4K
I have a literal acquired immune deficiency, yes actually the exact same issue best known for being caused by HIV, except mine was caused by SARS-coV-2. This is officially documented in my medical records and is being treated by a medical doctor.
🧵
44
613
3K
I would just like to remind everyone who is so excited about reactivated EBV and CMV that those were the most common early presentations of people living with AIDS in the eighties.
17
541
2K
someone really needs to examine how exactly measles is occurring in fully vaccinated people post-covid, because unlike the covid jabs the one for measles provides sterilizing and durable immunity. Or used to. What changed? None of the possibilities are good.
I'm usually pretty stoic about the threat of a COVID infection. I wear my mask and mostly stay home.
But this surge has me shook. The cumulative damage to people's immune systems is causing measles in the fully vaccinated. There are new tuberculosis outbreaks every week.
14
1K
6K
76
440
2K
i was today years old when i learned the virus that causes chickenpox and establishes lifelong latency ... INFECTS FUCKING T CELLS... and they knew that AT LEAST as early as 1989
44
318
2K
exhibit a of why you should be wary when the cdc minimizes a novel virus
14
644
2K
Measles, mumps, rubella, roseola, hand-foot-mouth disease, chickenpox, and "mono" are often refered to as "innocent childhood illnesses," but there's one little detail you probably didnt know - every one of those viruses infects t cells 🧵
8
495
2K
"We are in the midst of the longest, saddest, most excruciating 'I told you so' in the history of the world"
76
269
2K
this thread is a collection of interesting published research that no one wants to talk about
16
323
1K
My dr masks 100% of the time in patient areas whether a patient is there or not. He hands earloop black kn95's to any who try to enter exam area beyond waiting area without one and explains as a physician why its necessary for their safety and others. We need more like him.
40
106
1K
@ShabanaMir1
@rashaabdulhadi
its literally what we feed our military - and what is given to civilians here after natural disasters. And they are all expired - the manufacturer puts the date for liability issues, but they are good and used by military for 25 years. There are a lot of things screwed up about
10
21
1K
I would just like to remind everyone who is so excited about reactivated EBV and CMV that those were the most common early presentations of people living with AIDS in the eighties.
17
218
962
starting with, had you read it, you wouldnt have a knee jerk reaction against folks who try to point out the similarities in pathology and outcomes
2
23
866
@PenGwenWithLC
its not that they dont believe you, its that neurotypical people have a pathogenic ability to pretend not to believe things that challenge their worldview
9
40
842
wait so now that they told everyone the pandemic is over they're actually going to address the pandemic?
23
212
819
but also, you'd realize that using the name of a virus and the illness it causes interchangeably is a bad idea that only sows confusion
1
24
793
both kill t cells and cause immune deficiency, but there are treatments for hiv to prevent disease progression AND transmission, allowing those living with it to lead full lives
2
57
781
hiv cannot be transmitted thru casual contact. SARS-CoV-2 is primarily transmitted thru casual contact.
1
48
781
"the hardest thing about living with this is never knowing how you will feel from one day to the next"
"i've had a fever for 128 days but they don't know whats causing it"
"i sleep 19 hours a day and i'm still so tired all the time"
i regret that i dont remember their names 🥺
3
30
768
So if a passenger is allergic to SARS-CoV-2, does that mean the airline has to ensure it isn't served on the flight? Because that would be amazing.
42
90
766
i have a really bad feeling about year five for those of us that got sick early in the pandemic. because what im seeing in so many posts right now looks a helluva lot like a story i saw once before, and it didnt fucking end well
28
91
746
hiv is recognized by the social security administration for disability purposes. SARS-CoV-2 is not, even though many of the effects of chronic infection are indistinguishable without treatment.
1
48
746
hundreds of people on a local fb page blaming all their ailments on "pollen" so i left this note (intentionally worded to not come across as covid preaching, im in texas, they wont listen if i do that... and this just might get em to mask up)
21
79
745
2 injections per year can completely prevent infection & transmision of hiv.
the best covid jabs only reduce the risk of hospitalization, and protection wanes after a few months.
3
40
683
The pandemic is not over. An estimated 1 in 30 have SARS-coV-2 in the united states right now, and half of them do not know it yet - but are still contagious.
2
72
587
while both can be passed from parent to child during pregnancy, this can be prevented in hiv by treating the pregnant person with medications that are safe to take during pregnancy. No such thing exists for SARS-CoV-2.
1
32
584
you damn sure wouldn't believe that diet, exercise, pacing, or supplements could get us out of this mess
1
9
571
thats because SARS-CoV-2 is transmitted thru the air when people cough, sneeze, talk, sing, or even just breath.
HIV cannot be transmitted thru the air, or thru saliva, or any other way except direct blood to blood contact, unprotected sex, or breast milk (and u=u prevents
1
49
553
SARS-CoV-2 infects cells in your bone marrow.
so does HIV, but there are treatments for that virus.
2
43
546
I developed persistent cd4 lymphocytopenia following SARS-CoV-2 infection (before vaccines existed) & I'm homeless as a result of long covid. I know my story makes people uncomfortable - thats why I share it. If you find this info helpful, please help me keep fighting.
1
98
540
SARS-CoV-2 infects cells in your brain.
so does HIV, but there are treatments for that virus.
2
36
536
In case you missed the point let me make this really clear.
HIV is nothing to actually fear at all anymore.
Its not good thing to live with & a long way still to go in that regard.
But its very hard to get - and you can actually LIVE with it.
not true of SARS-CoV-2
4
50
528
💬There’s no viral load test for SARS2.
There is for HIV. With treatment you could have nearly undetectable viral loads and live a normal life.💬
((thank you
@erincandy
))
3
29
526
@erincandy
when SARS-CoV-2 results in a t cell count of 84, and pneumocystis pneumonia, and cmv & candidiasis.... the cdc just ignores it. even though we know the cause.
1
34
521
Violet Affleck, you don't know me, I am just a homeless long covid patient in Houston impatiently waiting for help, but I want you to know how much your speech meant to me. You are one of very few in this nation that bothers to care about anyone, least of all folks like me.
Dear Violet Affleck. You don’t know me, I am just a Covid-conscious mom of two boys (17 & 19) in Sweden but I want to let you know that your activism means the world to me. I know the ridicule is hard, but don’t give up. You are not alone. They do the same to us every day. ❤️🫂
29
156
1K
8
73
520
Most of y'all have also never watched any documentaries with interviews of patients in those early years and it shows even more
4
10
518
@k1llstreakz
@Walmart
i am not in any way suggesting this could ever be justified - but am curious as to the context of their reasoning for doing this ....
4
1
492
when HIV did that, even before we knew of the virus, the cdc wrote a whole report on it and the whole world paid attention.
2
21
489
i hate people who lie to me about precautions
and make me pay the price
201
32
480
and this whole cure thing. using that word interchangeably with treatment. LOOKING FOR A QUICK FIX. your priorities are all fucking confused.
1
11
472
you'd definitely still be big mad about the 12 symptoms, but - *cringe* - you'd find early definitions very interesting.
1
7
455
This shit makes me furious. Your sick kid that has a stomach or respiratory virus that is actually a threat to other students does not belong in the classroom, full stop. And the "back to school at any cost" maga fuckwits are the exact same assholes that a few decades ago
“Kids with diarrhea should show up to class as long as they’re able to make it to the bathroom in time to avoid an accident. A kid up at night vomiting is welcome back to school, provided they stopped throwing up some time during the night”
W👏🏻T👏🏻F
427
1K
5K
8
60
449
Tuberculosis, mycoplasma pneumoniae, RSV, and influenza are also spread via aerosols, and are also currently at high levels in Houston and other communities throughout the nation and globally.
1
39
440
Everyone likes to talk about Larry Kramer, ACT UP, and other early activism but most know next to nothing about that either and it shows, too.
1
10
408
Long Covid is real, and at least in my case it has been proven to be the result of a chronic SARS-coV-2 infection. Actual medical doctors don't know exactly what to do for us yet, but I have a team that reads the most current research and is trying their best.
1
42
407
thats why our community appears lily white, despite the fact that black and latino communities in the US have been disproportionately affected by SARS-CoV-2 AND the fat that Long Covid is a global issue
2
17
401
thats why we don't have any real community care happening, for one thing.
1
11
391
Y'all.
@NukitToBeSure
paid for my propane. Thru a third party in NYC who then hired this person to do it for me. They feared it was a scam. AND THEN gave me the extra money that had been paid for their time and gas. SO if you're in Houston & need sonething moved? USE THEM!
13
73
392
It is unsafe for me to use public transit or go to crowded indoor places such as soup kitchens or drop in centers or homeless shelters where even the most basic of infection control mitigations
2
33
387
thats why we're talking about moonshit instead of helping each other get antivirals that already exist. thats why there are so many of us on the streets or close to being there. thats why when the one person we should be listening to was attacked, very few stood up for them.
5
11
386
@birgitomo
@starbroken1980
i love this. i just really wish black and brown baby dolls were easier to find 😥
72
2
346
Since repurposing
#Truvada
for
#LongCovid
is the fad of the week, here's what you need to know. Truvada is no approved for use in Long Covid - but it is approved for
#PrEP
(pre exposure prophylaxis) to prevent
#HIV
& is a major tool in the fight to
#StopHIVTogether
🧵
5
76
350
It is also unsafe for me to change my medication routine. Vitamins cannot cure immune deficiency and supplements lack the pharmacological testing data to know how they might interact with my complex medical issues and prescribed medications I am taking to manage them.
1
30
339
If you have a chronic illness, are disabled, or are a member of a marginalized group and crowdfund to survive, you are welcome to post your mutual aid requests here.
I will boost as many as I can so they get included.
@threadreaderapp
unroll
11
25
339
- such as requiring masks to be used and testing, isolating, and treating persons with these highly communicable and potentially deadly pathogens - are not being used.
1
29
336
thats why our online community demographics don't at all match the real world reality of our illness, for another.
1
8
331
thats why we're shitpiling researchers who stand up against media misinterpretation instead of the media that misinterpreted the data. thats why patient led groups led the nih to believe we're more worried about fatigue and sex drive than not dying.
1
11
328
both viruses were initially blamed. Also makes ng that list later was HHV6 (that harmless childhood virus that some MECFS advocates love to point to was ironically first isolated from patients with AIDS in the quest to find a cause).
2
21
321
One out of every six SARS-coV-2 infections overall causes long covid. The risk increases with repeat infections as damage done to the body is cumulative.
2
52
307
So if you find yourself still ill several months or longer after acute infection by a virus also known to infect cd4 t cells (which SARS-coV-2 is) and known to cause lymphocytopenia (yup that too) - reactivated EBV or CMV may not be the wonderful explanation you were led to think
1
29
307
Vaccines can reduce the risk of severe acute infection for some people, but do not prevent infection or forward transmission. They do not prevent long covid. They are not appropriate for everyone, and vaccinated people can be infected and infect those who cannot be vaccinated.
3
38
303
Both CMV and EBV can reactivate due to major stressors to the immune system - the most common reason being other serious illness. They have both been documented to do so in SARS-coV-2; in the context of HIV these reactivations predict faster progression to AIDS & poor prognosis
2
39
301
My symptoms can fluctuate unpredictably, and often make it difficult if not impossible for me to complete even the most basic of necessary daily activities. Even when my symptoms are less, it is unsafe for me to be around other people who are not taking appropriate precautions.
2
25
297
But for realz I did a whole thread on how to get antivirals right now. Most of y'al didn't read it, either, and it shows.
Since repurposing
#Truvada
for
#LongCovid
is the fad of the week, here's what you need to know. Truvada is no approved for use in Long Covid - but it is approved for
#PrEP
(pre exposure prophylaxis) to prevent
#HIV
& is a major tool in the fight to
#StopHIVTogether
🧵
5
76
350
4
26
297
HHV6 is actually a really fun one because almost everyone had it by the time they entered kindergaryen. It was a mild acute illness that your parents likely dont even recall specifically. What everyone forgot to tell you is it lives in your t cells. forever. integrated in dna
1
20
296
But lets talk more about EBV and CMV. Did you know two viruses can cause the same illness or syndrome? These two are the classic example. Both cause what we call mononucleosis (aka glandular fever). Both viruses establish latent viral persistence and remain for life.
1
27
296
🌟5/13 🧵 open to all🌟
Please help me reach my fundraising goal before I run out of lifesaving medications. I was disabled by SARS-CoV-2 in 2020, now homeless with immune deficiency from long covid & zero gov't assistance. Eugenics policies make it unsafe
32
391
288
The blood that saved her life in 1980 killed her five years later. She was fine,until she wasn't. Once the symptoms appeared, it was too late. I think about her a lot.
3
30
292
thats why there are only three people in our community that are openly living with hiv also, despite THEIR community being disproportionately affected as well (never mind that one doesnt even have LC and puts up with this bullshit to try to help us)
1
6
280
For one thing, it could very likely indicate your immune system is struggling. Have you had a lymphocyte subset panel? If your values were "in range" but you had no baseline comparison, have you had a second one 3 months later to see changes?
1
23
283
@DaniBeckman
@InTime_49
By default folks that look a slices of brains under a microscope all day - most of which that probably come from dead people - would have to have pretty damn thick skin. And they definitely are used to seeing some fukt up things on those slides, because no one is routinely
2
16
266
thats why you're all asking me about Dallas Buyers Club but fail to realize you could get antivirals right now - let alone that asking the members of our community that were there would be more productive than me trying to relay what they experienced.
🤷♀️
1
7
257
Have you had shingles yet? Or a mysterious rash that dr said can't be shingles because it doesn't fit their textbook image? Lets talk about VZV. The virus that causes chickenpox.
1
21
256
Viruses can persist. Ee know that. EBV and CMV do, and if they've reactivated then treatment can definitely improve quality of life. But we have to look at why they were able to reactivate, and address that too. Because SARS-coV-2 could also persist. Evidence suggests it is.
9
18
252
First we got long covid, then it made us homeless - as
@elizabethics
@rollingstone
so aptly wrote in this February 2022 article featuring Amanda Finley, myself, and several other
#PwLC
(article here: )
We're still
#homeless
, and we still need help. So
41
141
242
@dreamsofskies
mostly sugar is relative. its still a fairly tiny amount per serving and if it ALSO contains vitamins and minerals your body needs that you arent getting elsewhere for whatever reason, it might be a worthwhile trade. people need to stop shaming what works for others.
1
0
240
viral persistence in lung immune cells in non human primates at 18 months - with subjects testing negative from upper respiratory tract by day 21.
3
107
156
if you find my threads helpful please consider a tip to help me stay alive to keep doing them. i will NEVER charge for the info i share but i do have to ask for donations if you are able & stable because of my situation. Thank you.
4
92
230
thats why grandma needs a shingles vax before you let her watch your toddler. toddler's chickenpox wont hurt grandma, but grandma's shingles can give the kid chickenpox if they havent had the vax (ir infection) yet. its the same virus, and reactivated, is contagious
2
20
233
#YallMasking
?
'Cause I feel a lil' lonely out here. Maybe you do, too - and I hope this helps you see *how many* intelligent & hot people think masks are cool. I love this trend 'cause I damn sure aint claiming either title 😂 - SARS-CoV-2 broke my brain & well lets just say my
3
22
229
@1goodtern
All too often, what actually happens is the nurse might grudgingly put on a baggy blue, and then notes in the patients chart that they are difficult and anxious. and by the time the coughing dr arrives they don't have energy left to go thru it all again. three days later they
3
7
221
@hawillisdc
you really should report that to the health department if he is just gonna patch over it. non mycologists that dont have proof to break their lease die from that shit
0
3
222
They're all pretty bad, actually. Multiple sclerosis, non Hodgkin's lymphoma, CMV retinitis, nueralgia, etc. And synergistic effect on t cells with cd4 depleting viruses that hastens their decline to what would be considered AIDS if the virus were HIV. Not really a goal folks.
1
22
221
Fear drives stigma and both drive denial. Litterally hundreds of studies show viral persistence following SARS-coV-2 infection - for whatever longest time point the study looks at, at least in a percentage of patients. Our virus is airborn. HIV never was a casual threat. oops
2
24
218
@CityCynthia
if a school feels that is the only option for any student then clearly that campus isn't able to meet that childs needs. When is it going to be ok to suggest that one size fits all education is failing most, and maybe we need to figure out how to have safe, appropriate, complete
4
10
216