From mountain hiking, OCR, open water swimming, gym, getting up at 5am to get into the office for 7am on a Sunday (the day after returning home from holiday) because I loved my work so much to … barely functioning. Don’t ever think it can’t happen to you 😷
This. We’re not terrified of covid, we just don’t want it. Just like we protect ourselves from lots of other things. Still wearing seatbelts, still washing hands after prepping raw chicken, still wearing a mask to prevent covid. It’s not difficult to understand is it?
This will be my 5th infection … twice in past two months. This week I have isolated from family, worn mask in house, HEPA, different bedroom/bathroom. For someone with housebound LC this is a big deal. Please read the literature. Please advocate for clean air in schools 🙏🏼
Fitness professionals masking 🙌 It makes zero sense to be smashing the gym & eating all the wholefoods if you’re out & about huffing SARS-COV2 all day. More of this please 😍👏🏼
#yallmasking
I teach Pilates in my N95 because staying healthy is not just about exercise and diet. I'm so grateful for those of you still wearing a mask (if you can)
Never smoked, don’t drink, eat wholefoods, exercised daily (cardio & weight training), daily yoga/meditation, BMI always been under 22 yet I am one of these people now waiting for cardiac testing due to repeat covid infections, along with a million others.
It’s covid. Say so.
We are in the grip of a heart care crisis. Our hearts need and deserve more💔
Today we've launched a call to all political parties to prioritise heart disease as we head towards a general election.
Add your voice here👇
This is what I don’t understand - how can people not understand what’s going on?! You’re being asked not to test not because it’s not necessary but because they don’t want you linking your new health problems to covid. Wake up!!!
No one is looking out for staff. It’s not for your convenience that you don’t ‘have’ to test anymore. It means you cannot claim against your work for your health being destroyed overnight.
This 👇🏼 it’s not ‘brain fog’, it’s brain damage. It’s been over 3 years since my neuro issues began. They are only getting worse as time passes, not better. All the things mentioned below feel very familiar. And more. Comparing it to perimenopause (what we’re told) - what a joke
Today I learned that I have completely underestimated and misunderstood brain-fog post COVID - and it is terrifying.
In my mind I kind of had this impression that COVID brain-fog was just feeling a little bit forgetful or feeling very tired, and my god I was very, very wrong.
I was pro assisted dying. Like most I was naive & though it would be relief for the terminally ill. If you aren’t considering why the sudden rush globally after covid is disabling on mass, while politicians clamp down on disability benefits, you’re seeing what you want to see.
#AssistedDying
affects disabled people more than any other group. Yet our voices are rarely heard. We strongly support
@thelizcarr
in her campaign to prevent euthenasia of old, sick and disabled people.
When people tell us we’re isolating from society because we’re antisocial (& mentally ill 🙄). Nope. We want to be an active part of society, we want to contribute. We long for caring communities like this. Even our families won’t do this for us 🤯
Another amazing experience to share.
#YallMasking
This group of moms would move the world to keep our children safe, happy & healthy - masking is one of the easier sacrifices 🤷🏻♀️ Mom’s Midsummer Mocktails (tested, spaced while drinking 🍹 & masked 😷 when close)
Kudos to this guy who was probably the only one in a packed stadium wearing a respirator. We all know hard it is to do this when (it feels like) the rest of the world has moved on. I hope it kept him safe today🤞🏼What an intelligent & self-assured guy 😍😷
Layered defence is important. I also appreciate some people, especially teens might feel too self-conscious to continue masking alone at school. Our kids have had no days off school (& no symptoms) since incorporating these oral & nasal sprays into our morning routine.
When people say ‘oh don’t worry I’ve just had covid, I can’t get it again for a while’ as an excuse for not masking 😑
Oh yeah, so which variant did you have??
Them: ‘what??’
Me: ‘well there’s more than one’
Them: ‘what??’
Me: 😵💫
Yeah the ‘your healthy lifestyle will save you from covid complications’ narrative needs to get in the bin. It’s simply untrue … ask the people suffering most.
Healthy lifestyles will not save you from long Covid. I was weightlifting in the gym two days a week and in the dojo for martial arts three days a week that was in 2022 and I’m still not back anywhere close to where I was.
Paris Olympics: Volunteers resign due to the lack of Covid-19 measures
".. we are more and more worried at the lack of any actions from the organizers to address the epidemic of Covid-19 that is still going on across Europe and the world."
Le Club
So some good news today. Had to go to my GP surgery today for bloods. Sign on entry ‘masks must be worn’, masks provided, all staff & all patients wearing masks. See, it can be done. This ‘patients won’t wear them’ is nonsense, they will if you tell them why.
For all the ‘you’re bonkers’ I received pre-Christmas from family that I refused to see, they’re all now ill. Myself & my immediate family have had our first ‘well’ Christmas in 3 years & had a lovely time at home, just the 4 of us. If this is bonkers, I’m cool with it.
Washing your hands with soap and water is one of the easiest ways to protect yourself and others from viruses like norovirus, flu and COVID-19 - and it helps reduce pressures on healthcare services.
➡️
“The importance of ventilation and filtration is not lost on our lords and masters. Parliament now has a sophisticated air filter system, they ensure airborne viruses and bacteria are “kept to an absolute minimum within the space”.
STILL not in schools!
“An antiviral RCT for
#LongCOVID
by the Icahn School of Medicine, David
@PutrinoLab
,
@polybioRF
and Yale University has been registered on ClinicalTrials this week.”
“Two repurposed HIV antivirals (TDF and Maraviroc) will be tested.”
Fingers🤞🏻
#AirborneAIDS
#SARSCoV2kills
@DaniBeckman
As an ex-clinical virologist myself, this is one of the main things I try to make people understand.
Most are intellectually stuck at “it’s just a really bad cold and as long as I am relatively healthy, I will be ok.”
I show them this…
Told a doctor yesterday we are entering another wave. They said ‘yes I know, our care homes are full of it’. I asked if their practice would reintroduce masking. Met with a very aggressive ‘No!’. This behaviour is not normal folks. Do HCWs genuinely believe covid is like flu??
England, latest official ONS COVID report. Clear uptick like we’re at the beginning of another wave.
Which is surprising given we’re into year 5 and surely there’s widespread and robust population immunity by now!
⚠️ sarcasm ⚠️
I hate what public health has done
Public health HAS DESTROYED relationships, families, children, healthy people, the vulnerable.
I so want to rage! The sheer miscommunication, disinformation, misinformation is ruining our health, families and society
@UKHSA
@WHO
@CDCGOV
It’s probably not a good idea to keep smashing highly skilled, professional, working age folk (healthcare workers/teachers etc more at risk) with SARS-CoV2 if you’d like a functioning economy.
#maskup
There are more adults ages 35-49 living with
#LongCOVID
than any other age group.
Long COVID can impact everyone, regardless of age or health status. The only way to not get Long COVID is to not get COVID.
Learn more about Long COVID:
Was in two minds whether to go to Trent Bridge today (never go anywhere!) but actually we need to be seen. FFP3, nasal spray, oral spray, mouthwash, sunglasses. Bisoprolol, Vitassium, painkillers. Front row seat 👍🏼 As safe as it can be. C’mon England! 🏏
#YallMasking
Of course!
For those that think you can’t catch covid outdoors … I caught the infection that triggered my Dysautonomia on Christmas Eve 2022 from a rugby game. By 29th December I was bed-bound & couldn’t even sit up to eat.
@SammieFMc
@thismorning
@DrZoeWilliams
@AlisonHammond
My 12 yr old daughter caught Covid at school in Jan. We suspect it weakened her immune system - in Feb she had Strep. She was in hospital 4 10 days in March - unable to walk. She hasn’t been to school for 4 months and now has to use a wheelchair 😢 - she also has
#Pans
#Pandas
It's
#WorldBrainDay
There is a lot you can do for a healthy brain 🧠:
🏃♂️ Keep physically active
🍌 Eat a healthy diet
😴 Get enough sleep
🧩 Stimulate your mind
💟 Look after your heart
⛑️ Wear a helmet
I used to give blood 🩸 I am no longer allowed due to Long Covid. So many people still don’t know that that’s the case. Does it sound ‘psychological’ to you?
Repeat infections, more Long Covid, where’s that going to leave blood donation?
#WorldBloodDonationDay2024
#worldbloodday
- reminder for those who need it that I can’t give blood because I have ME (myalgic encephalomyelitis), fair enough, so don’t EVER suggest that ME is “in my head”, can be treated with CBT/mindfulness/brain training etc. It’s PHYSIOLOGICAL!
#mecfs
#millionsmissing
I had a Long Covid clinic appointment today. I was expecting to be discharged. Instead I had the most amazingly knowledgeable, compassionate, curious clinician & an extremely validating experience. I think it’s important to recognise a good consult done incredibly well 😍🙌🏻❤️
The ongoing pandemic you mean? Something has gone wrong, yes - unmitigated spread of an airborne virus that has turned tens of thousands of highly qualified, highly skilled professionals into the ‘economically inactive’. This will continue indefinitely if covid is not addressed.
'Since the pandemic, something has gone wrong'
Rishi Sunak says 850,000 more people are now economically inactive in the UK since Covid - and not calling out this 'worrying trend' for 'fear of causing offence' would be unjust
Now get them in ALL hospitals. And if staff could not just wear them under their chins, we’d be grateful. Rates are higher in England now than they were in January. There are people who had covid in Jan just contacting their GPs about Long Covid. Don’t let it be you in 6 months.
I should say I’ve been isolating to protect myself as two of my household have been positive since Saturday. There was nothing more I could do except move out of my house. When schools had masks, we had zero covid in our house despite my husband being a GP. Schools are a problem.
I was a regular blood donor. Now I have Long Covid my blood can’t be used. I’m just glad I’m aware of my LC & therefore won’t harm anyone unknowingly. How many people donating have LC but don’t even know because doctors aren’t asking the right Qs?
🚨
@GiveBloodNHS
need your help to keep providing lifesaving blood to the NHS this summer☀️
They urgently need more blood from their O negative & B negative donors. 🩸
Giving blood is one of the most rewarding things I’ve done. Please book your next appointment here
Do doctors not care about their professional reputation anymore? Do any actually train to do the job or are they just training to use the letters to get TV jobs? This is purposeful misinformation (blatant lies!) that will cause harm. We’re keeping receipts.
"Covid is now, on a case by case basis, less dangerous than the flu simply because so many people have had it".
@xandvt
on the updated list of Covid symptoms and his advice if you can't afford a test
#MorningLive
So I posted something about long covid on Instagram this morning & the number of messages I’ve received - ‘why don’t we know about this?’ ‘Why isn’t this on the news?’. People honestly have no idea what covid is doing to their bodies. Absolutely clueless! Public health???
Hi 👋 Never smoked, don’t drink alcohol, never taken drugs, wholefood keto diet, yoga/mindfulness teacher, personal trainer, well hydrated, didn’t access healthcare. Health was my life. Covid obliterated the lot, left me disabled with diagnoses mounting up.
We’d like clean air.
It’s my birthday. It’s also my two year anniversary since I tested positive for the covid infection that set all the bad stuff in motion. This was me then. My life is very different today. Covid is still killing & disabling. It doesn’t have to be this way.
Not really tricky at all. If your child is ill, they should be off school. Let’s not pretend this is about children’s health or education - it’s about getting parents in work & dumping their sick kids (to infect everyone else’s).
It can be tricky deciding whether or not to keep your child off school when they are unwell.
Follow this advice on when to keep your child home:
#BackToSchool
“I choose to share this with you today, because the reality is: my chance to recover significantly depends on the collective choices we’ll make about preventing further cases, accurately measuring the disease burden, and finally learning to heal post-viral sequelae” …
'The loud noise exposure would spike my tinnitus so bad to the point where, if I was sitting here right now, talking to you guys, I wouldn't be able to hear you.'
Caris Lount’s tinnitus got worse when she was at University & at points she wouldn't leave her bedroom because of
No one is looking out for staff. It’s not for your convenience that you don’t ‘have’ to test anymore. It means you cannot claim against your work for your health being destroyed overnight.
“vigilance is important given the constant fear of infections and Covid incidents in the village. But she assures them there are mental health leads, psychologists, doctors and physios ready to help”
Sorry, to help with what exactly?? 🤪
Every covid reinfection I get, I end up on another specialist referral; started at Long Covid clinic, then respiratory, cardio, endocrinology, rheumatology & now neurology. I’m just one person … this is happening to millions! Never attended GP pre-covid. Please start listening.
Today's figures reveal that NHS waiting lists grew again in June to 7.62 million.
14 years of Conservative neglect left the NHS broken, waiting lists rising, and patients failed.
Never again should the Conservatives be trusted with our health service.
Eldest off school last week with covid. Had a day at school and now off with D & V so another 48 hrs minimum. He’s in his GCSE year. Never had time off school pre-covid. This is not sustainable. Covid is wrecking immune systems.
Good to see Mark Foster on BBC talking about covid and Adam Peaty. Mark had covid two weeks ago with a headache etc & commented he felt short of breath whilst just walking so absolutely covid would’ve impacted Peaty’s performance.
The first person I’ve seen not play it down 👏🏼
Seeing a big spike in Covid cases in the hospital
This one looks more transmissible and may well cause major disruption in hospitals and care homes
Only a few with lung problems, but for most it’s still knocking the stuffing out of them.
Maybe time to think about boosters?
My sister had RA diagnosis after covid infection. No prior health problems & no family history. She’s waiting for double hip replacement. Can’t walk & in constant pain. Mid-40s. Just a cold 😑
Are you for real?? You know it’s probably covid. You’ve said cases are rising. Encourage masking & you’d maybe stop more babies & kids dying from whooping cough & measles while you’re at it. Long Covid in kids doubled in a year. Despicable.
#maskup
#covidisnotover
Is it a cold or hay fever? It can be hard to tell 🤧
Recent studies suggest that some types of pollen & other allergens could be released earlier in the year and for longer.
So my dads cancer is back. Had a scan over 4 weeks ago & results came yesterday. He sat alone with it for 24 hrs before he told anyone. He’s had SARS-CoV2 at least twice since his last op & is on immunotherapy. I think I’m the only one in the family that isn’t shocked.
Up with chest infection, again, got it last year in Denver with ferocious U.S. air conditioning/temperature changes. French pharmacy staff were lovely helping with a bucket load of drugs yesterday but hard on a hot, absolutely crammed tube 4x a day. So excuse the crackly voice🤪
Never thought a letter like this would be cause to celebrate 🎉 but grateful to have a cardiologist who takes chest pain post-covid seriously. Bypassed an echo & straight to cardiac stress MRI (🤢). Microvascular angina not uncommon after covid & women in particular being missed.
My sister (40s) is in surgery now for a total hip replacement after covid infections caused her bones to simply crumble. I’m worried about her, especially as we’re in a covid wave, staff aren’t masking, hospitals are struggling & there’s a junior doctor strike at end of week.
There are people walking around the UK at the moment with their mild ‘colds’ who will wake up a few months down the line with new (often debilitating) health issues that will have no idea it’s a result of their current covid infection. Test. Test again. Isolate. Wear a 😷
While I talked about hospitalization in the previous tweet, I want to make it clear that most people with Long Covid had mild COVID-19.
In fact, 90% of people with Long Covid had mild
COVID-19.
Good grief. How many people in the UK are like this at the moment?
@UKLabour
@wesstreeting
it is now your responsibility to properly inform the public that covid is here, it never went away & it continues to kill & disable in every wave & that they need to stop spreading it!
WATCH: Brit shocked at getting Covid in July 2024 while attending super spreader events for the Euro Soccer Finals (in which England lost anyway) after wrongly believing they had immunity to the virus because they'd 'only had it once before'...
I have a 'really tight chest' ...
This has caught my family off guard too … if you’re someone who regularly suffers from hay fever you might not think to test but it’s prob covid atm. One of my sons thought he’d developed new onset hay fever, that was our cue to test.
People think this only happened to doctors working in 2020 and the risk has decreased now. Quite the opposite. It’s happening more NOW. How many doctors can afford to not work? Who’s going to pay the mortgage?! Mind-blowing they’re not protecting themselves & they trust the gov!
Around 1 in 50 people have Covid in England.
So how many politicians are trying to hide their infections? How many are still out canvassing and infected others, who may be more vulnerable, on the doorstep?
Boris Johnson looked particularly ill in a video I saw of him recently.
Urgent call for Covid-safe ventilation in schools - BBC News
This was 2 years ago! How many children have long covid as a consequence of inaction? How many children have brought home covid & disabled/killed their parents/grandparents since?
My only wish is that people would believe that people like this 👇🏼 exist. They do. Not everyone is striving to make money. Not everyone wants to be famous. Not everyone acts to serve their own purpose. Some people genuinely just want to see other people
#thrive
💕
#giftoflove
@fillthewhole
@HandInHand123
If more Headteachers mask, it might give teachers and students the confidence to mask too.
If any Headteachers want free advice and support with masking, get in touch.
Lying about an airborne virus (putting up Perspex screens 😩 in restaurants to get people back spending while saying omicron was mild 😡) might have something to do with ‘sick note culture’. Working age people have been obliterated by multi systemic Long Covid 🧠 ❤️ 🫁 etc etc.
Rishi Sunak is set to call for an end to what he described as the 'sick note culture' in Britain. The Prime Minister is due to say that the default needs to be what work can you do? Not what you can't do.
Everyone I know with covid is experiencing hay fever symptoms; sneezing, runny nose, sore eyes
Please let us know your symptoms if you or anyone you know has covid right now …
KP.2, KP.3, and LB.1 are dominant
#Covid19
variants now.
Common symptoms;
Fever
Shivering
Cough
Sore Throat
Loss/Change in Taste or Smell
Loss of appetite
Nausea & Vomiting
Diarrhea
Shortness of breath
Fatigue
Body aches
Headache
Runny Nose.
Due to lifestyle changes 🫠 My own sister (in her 40s), no issues previous to covid is waiting for a double hip replacement because her bones are literally crumbling away & she’s bed-bound & in agony. A new RA diagnosis too. Enough!
A significant reduction in bone mineral density was found in young adults in this study compared to before the pandemic
Authors conclude that it might be due to 'lifestyle changes' infection with
#SARSCoV2
not taken into consideration
#LongCovid
David Putrino is presenting his keynote lecture "The Use of Technology in Rehabilitation." 🧠💻
David, a physical therapist with a PhD in Neuroscience, is the Director of Rehabilitation Innovation at Mount Sinai and works with elite athletes.
#ISPRM2024
@JDaviesPhD
Cut out all processed foods (paleo), including no alcohol. Within 3 months was off antidepressants (which I’d been cycling on/off 15 yrs) & physical/mental transformation. I became more curious (& critical). Began yoga/meditation & morning sunlight. 8 yrs on now so sustainable.
It’s mind-blowing that people would rather be ill over & over (not just with covid) rather than simply wearing a respirator in crowded places. Even wilder that they need to hear it from our government to know what to do 🤷🏼♀️
On declining a family Xmas invite …
Them: ‘but you’re safe with us’
Me: ‘Actually it’s the least safe space for all of us’
A group of about 12 who don’t take precautions, don’t test, won’t isolate for the 3 day indoor gathering, at the worst time of the year. Hard pass 🦠
@urbanmel
This could’ve happened to me over Christmas. Family ‘well we’ll test on the day’. No thanks. Guess what? 3 families who met up over Christmas/NY now all have covid & still suffering today. That would’ve been my family 💯 if I hadn’t have held my nerve & said ‘No’
The irony that I was a Personal Trainer, Yoga Teacher, ate wholefood keto, ran every day with my dog at 6am, was doing my PhD in mindfulness and now can’t walk around my village since having long covid. These idiots can fuck right off!
I’d be interested to know how many people who are too unwell to work are well enough to join a running club. 🤔
#Disability
#ME
Life coaches and running clubs to help get people back to work
For those who don’t have access to the BMJ. It’s not really a Q is it? We know we’ve been in a summer wave since the start of June yet only now are doctors being told about it & recommendations being made. Masks in healthcare would’ve helped reduce this wave. How much LC to come?
Hearing lots of positive covid tests over the last month and that’s just the people who still test (& take more precautions than most). Long Covid in children numbers in England have nearly doubled in a year. Kids can’t consent to this. Where is the rage???
Told a doctor yesterday we are entering another wave. They said ‘yes I know, our care homes are full of it’. I asked if their practice would reintroduce masking. Met with a very aggressive ‘No!’. This behaviour is not normal folks. Do HCWs genuinely believe covid is like flu??
UK covid safer kit because UKHSA are fully invested in the ‘you do you’ style of Public Health
@birminghambio
Norizyte nasal spray & oral spray
@SmartairUk
@SmartAirFilters
CO2 monitor & QT3 personal HEPA
Luvbiotics oral biome health
Dentyl CPC mouthwash
3M Aura
Flowflex test
There's no such thing as a 'sick note culture' - but there is a broken NHS, a meteoric rise in food banks, falling life expectancy, rising infant mortality, kids too hungry to learn, endemic poverty.
Thanks
@mattfrei
for having me on to discuss this vindictive tripe from Sunak.
@PlsMASKthankyou
I am so incredibly sorry to read this. I am also grateful that even at this awful time you’ve shared this. More people need to see what is going on around us.
Kids are persistently absent from school currently due to illness, driven by covid! My child in his GCSE year has taken 5 days off in 11 yrs. Since covid began he’s been off in the months between Sept-March for up to 4 days every 3/4 weeks! He loves school, covid is harming kids!
The Government is ramping up a campaign to cut down the number of pupils regularly missing school - after figures show that 1 in 5 students are persistently absent.
But, is it the parent's responsibility to make sure kids go to school everyday?
Wholefood/paleo eater, daily exerciser, countryside dweller, never smoked, don’t drink, meditator etc etc - was thriving at 40. SARS-CoV2 has (& continues to) obliterate my health; can’t work, can’t exercise, struggle to drive, struggle to cook. Ignore this pandemic at your peril
Latest health & benefits stats are sobering. Britain is sick and fed up. No point scapegoating NHS. We must address underlying causes of booming disease burden.
💨 Dirty air
🍔 Junk food
💩 Internet filth
☠️ Toxic workplaces
🦠 Mouldy homes
🚬 Killer fags
#HealthyBritain
🇬🇧
I'm not young. I've never seen this in my entire life at any Olympic event. Not even close.
This cannot become normalized. The Olympics should not become a last-person-standing from illness event.
In BMJ this week - So why aren’t our HCPs masking for patients (& themselves)? Hospital acquired covid was 74% in Wales last month. Obviously we don’t know about England because they’ve got no data 🙃
I’ve had a couple of good Long Covid symptom days so we decided to go to the beach today. Not living in fear, still doing the things I love … the only difference is I don’t eat out, I take my own food & mask if I go into public loos (or am near another person). Not a big deal 🤷🏼♀️
Clean the air like you do in government departments & watch the absences decrease. Parents are starting to realise the damage that covid is causing to their children (& the spreading from the children to themselves). We will not send our children to school to spread this disease.
Time in the classroom is important and even small moments in a school day make a real difference to children's lives. Increases in persistent absence have been reported as a post-pandemic challenge in schools around the world.
1/5 🧵 Here’s how we're improving school attendance
@1goodtern
Friends toddler blue lighted in unresponsive. Mum was covid positive week earlier so had tested child too (also positive). On arriving at hospital mum told staff child was covid positive, they were annoyed she’d tested 🤷🏼♀️ We need staff to speak out about what their orders are.
For people that think you need to have severe acute covid infection or think if you are fine after your 1st, 2nd, 3rd infection you won’t get long covid, you’re mistaken. These are our kids people 👇🏼
@CovidSolidarit1
I often wonder whether it would make a difference if people knew how many people they as an individual had disabled or killed. Whenever I say that to people they laugh or eye roll. I’m not sure why it’s funny?
Ok, so due an MRI soon. Wondering what peoples experiences of using MRI safe respirators has been? Any resistance or refusal to let you wear them due to not being convinced they’re MRI safe for example?
The number of young kids (toddler age) with hacking coughs getting dragged around the beach in July 😭… what are people doing to their kids?!!!!! This is not normal.
People are totally oblivious to this. Not putting these problems down to covid at all. I’ve lost two teeth so far (no problems previous). Awful TMJ pain & clicking & since infection 4 weeks ago my son is complaining of stiff, painful jaw 😞
Most waves seem to cause teeth and gum and jaw problems, but this wave seems to be one of the ones that is causing *more* teeth and gum and jaw problems. 😔
I don’t have FB so can’t comment on engagement there but, I’ve started raising covid awareness on IG stories (after unblocking lots of people - yes they now lurk on every post 👀) & I’ve starting getting DMs for more info on covid & how to prevent it. Keep speaking out!
Dianna decided to shave her head to make it easier on herself for her journey with
#LongCovid
and
#MECFS
. Many people struggling with this disease choose to do this if bed-bound for extended periods of time, like Dianna has been.
Hopefully she can avoid crashes, and reduce the