project-paladin
@eu_paladin
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PaLaDIn is an ambitious Innovative Health Initiative (IHI) funded initiative, that will develop and implement an innovative data collection platform.
Joined January 2024
RT @TREAT_NMD: Join TREAT-NMD® at the @MDAorg Clinical & Scientific Conference 2025 as our CEO David Allison discusses @eu_paladin , an inn…
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PaLaDIn beneficiaries are meeting in Newcastle to discuss some of the key aspects around consent and permissions for the PaLaDIn Interactium. Our newsletter will launch in Jan and we will give an update about the workshop. To get our newsletter, sign-up:
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📣PaLaDIn job opportunity available! @TREAT_NMD are looking for a skilled and motivated Project Manager to work on PaLaDIn. If you would like more information, see post below.
Join the TREAT-NMD Team as a Project Manager We’re looking for a skilled and motivated Project Manager to lead TREAT-NMD’s European IHI-funded project PaLaDIn @eu_paladin . This hybrid role is based in Newcastle upon Tyne and offers the opportunity to work with international stakeholders on an impactful initiative. If you have a strong background in project management, experience with Innovate UK or European Commission-funded projects, and excellent organisational skills, we’d love to hear from you. 📅 Application deadline: 5 January 2025 📍 Expected start date: 20 January 2025 Find out more and apply here: #ProjectManager #JobOpportunity #HybridWork
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We will be launching our first PaLaDIn newsletter in the New Year! To keep up to date with our progress and to find out how you can get involved, sign-up for our newsletter here:
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PaLaDIn beneficiary and scientific coordinator @TREAT_NMD's latest newsletter is out now! In this edition, they give an update on their work within PaLaDIn to the TREAT-NMD network. Find out more here:
📰 The latest edition of TREAT-NMD’s newsletter is now live! Stay informed with updates on research, events, and key developments from the neuromuscular community. 📩 Want to keep up-to-date? Sign up here: #Neuromuscular #Newsletter #ResearchUpdates #GlobalHealth #TREATNMD
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During @Parent_Project recent meeting in Siracusa, the local DMD and Becker patients' community participated in the patient survey designed to help inform the development of the PaLaDIn Interactium. If you would like to complete the survey, click here:
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We would like to introduce you to PaLaDIn beneficiary @DuchenneUK! Find out more about their work and why they are involved in PaLaDIn here:
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We are hiring! PaLaDIn beneficiary @jwmdrc are looking for a Technical Project Manager to develop innovative and validated tools for an integrated IT platform for PaLaDIn. For more information, click here:
We have an exciting opportunity to join our project team as a Technical Project Manager! To find out more and apply:
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PaLaDIn beneficiaries @jwmdrc and @FSHDSociety are here at #WODC! Come and speak to Joanne at our poster to find out more about PaLaDIn and how you can help us design the Interactium data platform. If you are not at @orphan_drugs, you can still help here:
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Are you attending #WMS2024? Come and visit Becca Leary at poster 615P to hear all about PaLaDIn and how you can help us to design the PaLaDIn data platform - the Interactium. If you're not attending @WorldMuscleSoc congress, you can still help us here:
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Are you curious to learn more about @IHIEurope project PaLaDIn? Sign up to our newsletter to find out about our progress, future plans and to be the first to hear about opportunities to get involved! You can sign-up here:
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We would like to introduce you to PaLaDIn beneficiary @FSHDSociety! The FSHD Society are the world’s largest research and patient advocacy organization dedicated to FSHD. Find out about their work and why they are involved in PaLaDIn here:
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On World Duchenne Awareness Day #WDAD2024, PaLaDIn partners @DuchenneUK have released a new policy report. This report provides a complete picture of what it is like to live with DMD in the United Kingdom in 2024. View the report here:
We've launched a report for World Duchenne Awareness Day #WDAD2024 which outlines how people with DMD are not getting the care, treatment or assistive technology they need. It includes our recommendations on how to improve the treatment and support for people with DMD.
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PaLaDIn funder, @IHIEurope , will be hosting a webinar to introduce participants to practical tools and resources to help share data with confidence when working in collaborative consortia. See below for more information and to register:
😕Need to share data but don't know where to start? 🛑Are data sharing difficulties holding up your project? 👩🏫Join us on 4 Sept for a masterclass that will help you unlock the potential of data sharing in projects! 👉 #IHITransformingHealth #HorizonEU
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Today is World FSHD day! PaLaDIn partner @FSHDSociety shares with us why this day is so important. Find out about the work PaLaDIn partners will do to achieve our goal of accelerating the development of treatments for all patients living with a NMD here:
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@IHIEurope's latest newsletter includes and introduction to project PaLaDIn and its goal to implement a patient centric, data platform to accelerate the development of effective treatments and care for neuromuscular and other rare diseases. Find out more:
Just published: the latest IHI newsletter at 🖊️Registration for the #IHICallDays 💡How projects set up non-profits to continue their legacy ✅ Plus news from our projects on #RheumatoidArthritis #lupus #RareDiseases #AntimicrobialResistance
#HorizonEU
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Sign the #ECRD2024 Open Letter! ✍️ Join @eurordis and the many other signatories in addressing the future leaders of Europe and calling on them to address the urgent needs of the rare disease population. #ActRare2024 Read the full letter and sign now!
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RT @Parent_Project: 👋 Vi presentiamo il nostro nuovo progetto @IHIEurope, @eu_paladin! L'obiettivo è quello di sviluppare una piattaforma c…
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RT @IHIEurope: 👋 Say hello to our new IHI project, PaLaDIn! Their goal is to develop a platform that collects innovative, real-world data #…
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PaLaDIn partners will begin weekly design meetings to explore the user personas, confirm architecture choices and begin to bring the Interactium data platform vision to life. To keep up to date, sign up to our newsletter here:
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