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Stacey Tinianov (she/her) MPH, BCPA Profile
Stacey Tinianov (she/her) MPH, BCPA

@coffeemommy

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Patient Advocacy & Engagement. Co-Creation & Community Building. πŸ’— Coffee drinker. Gardener. Wife. Mom. Cancer πŸ™ƒ @AdvocateCollab Also @coffeemommy on BlueSky

Santa Cruz
Joined March 2009
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@coffeemommy
Stacey Tinianov (she/her) MPH, BCPA
5 years
I am a six and a half year cancer survivor. I am a patient advocate. I am a research advocate. I am a policy advocate. I am a voice for people who have had their voices cut short by cancer. I am a bridge builder and a needle mover like the others in these photos. #WorldCancerDay
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Stacey Tinianov (she/her) MPH, BCPA
4 days
Look who I "found" at #PMWC25! It's @KRASKickers founder @TerriConneran at the @KPMG booth #lcsm
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Stacey Tinianov (she/her) MPH, BCPA
4 days
Yesterday, I was honored to share the stage at #PMWC25 with these phenomenal women (who aren't on social) to discuss innovative ways to measure tumor aggressiveness. Kicked off panel with the message of uniqueness from World Cancer Day and focused on patient experiences. #pmwc25
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Stacey Tinianov (she/her) MPH, BCPA
6 days
Today is #WorldCancerDay My story matters. And so do the stories of MILLIONS of others. In every country. Cancer is a global issue and requires a global strategy to reduce risk, lengthen life span, and improve quality-of-life. #UnitedByUnique #UnitedInUrgency
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Stacey Tinianov (she/her) MPH, BCPA
6 days
RT @HillStirSci: It was so incredible to work with such a great group of experts to align on the output of this white paper. Regulatory fle…
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@coffeemommy
Stacey Tinianov (she/her) MPH, BCPA
27 days
@PriscaGithuka2 @pinkheartcancer Congratulations, Prisca!
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@coffeemommy
Stacey Tinianov (she/her) MPH, BCPA
27 days
Still not quite ready to get back to the world outside my little home.
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Stacey Tinianov (she/her) MPH, BCPA
1 month
@AshleyGWinter Congratulations to you and your whole family on the healthy little one. Sending humid thoughts and clean air vibes from NorCal down the coast to all of you πŸ’—
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@coffeemommy
Stacey Tinianov (she/her) MPH, BCPA
1 month
In December 2018, instead of reading, working, or sleeping on a flight, I engaged in conversation with a stranger. Sharlene & I learned we lived on opposite sides of the country but had a lot in common. We became friends. Today, she called me to tell me she's entered hospice πŸ’”
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Stacey Tinianov (she/her) MPH, BCPA
1 month
We did not eat them! #familyhike
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Stacey Tinianov (she/her) MPH, BCPA
2 months
@JJSingleton1 Sending you good energy, JJ πŸ’—
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Stacey Tinianov (she/her) MPH, BCPA
2 months
Happening now! #SuppOnc #SurvOnc
@CancerCareMASCC
MASCC
2 months
Don’t forget to register for our upcoming webinar on Dec 16 on Navigating the Evolving Landscape in Early Breast Cancer! Speakers: @maryam_lustberg, @hoperugo, @AndreasC466, and @coffeemommy Learn more or register: #SuppOnc #bcsm
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Stacey Tinianov (she/her) MPH, BCPA
2 months
Twenty-one years for two-time cancer survivor, and amazing human, Dr. @barbarasegarra Congratulations, my friend (and thank you science) πŸ’— #bcsm
@barbarasegarra
Barbara Segarra
2 months
21 years and counting
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Stacey Tinianov (she/her) MPH, BCPA
2 months
@barbarasegarra Thank you for being there, Barbara
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Stacey Tinianov (she/her) MPH, BCPA
2 months
@stage4kelly Thank you for being there, Kelly πŸ’•
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Stacey Tinianov (she/her) MPH, BCPA
2 months
@annmcbrien_ Thank you, Ann
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Stacey Tinianov (she/her) MPH, BCPA
2 months
THIS! It's not simply about PFS or OS for many. QoL is a huge consideration. MUST be a dialogue #SABCS24
@EnriqueSoto8
Enrique Soto
2 months
@drsarahsam Without OS or QOL improvement that PFS change is relatively meaningless, particularly in HR+ disease
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Stacey Tinianov (she/her) MPH, BCPA
2 months
@MammaMiaMagazin @EnriqueSoto8 @OncoAlert TY both. Loving this dialogue b/c it illustrates that persons w/ a diagnosis are as heterogenous as the disease itself. Risk/benefit/impact MUST be discussed. And @EnriqueSoto8, thank you for always 'reading the fine print' & knowing it's not just OS or PFS, it's also QoL
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Stacey Tinianov (she/her) MPH, BCPA
2 months
Spent 90 mins on the #SABCS24 stage yesterday, interjecting the advocacy perspective in "From the Trenches." My words but it was these voices, and so many others not pictured, that I channeled. Grateful to have them by my side literally & figuratively to learn with, and from. πŸ’—
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Stacey Tinianov (she/her) MPH, BCPA
2 months
@barbarasegarra @stage4kelly @JaniceTNBCmets Love you ladies, and thank you for the #SABCS24 support πŸ’•
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Stacey Tinianov (she/her) MPH, BCPA
2 months
@fumikochino @2 @JAMA_current @JAMAOnc @SABCSSanAntonio I'm all for rigjt-sizing but IMPORTANT for me to re-emphasize that surveillance data is young (2 year f/u) Will be more interested in these results as practice changing after longer f/u time period #SABCS24
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