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Stacey Tinianov (she/her) MPH, BCPA
@coffeemommy
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Patient Advocacy & Engagement. Co-Creation & Community Building. π Coffee drinker. Gardener. Wife. Mom. Cancer π @AdvocateCollab Also @coffeemommy on BlueSky
Santa Cruz
Joined March 2009
I am a six and a half year cancer survivor. I am a patient advocate. I am a research advocate. I am a policy advocate. I am a voice for people who have had their voices cut short by cancer. I am a bridge builder and a needle mover like the others in these photos. #WorldCancerDay
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Today is #WorldCancerDay My story matters. And so do the stories of MILLIONS of others. In every country. Cancer is a global issue and requires a global strategy to reduce risk, lengthen life span, and improve quality-of-life. #UnitedByUnique #UnitedInUrgency
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RT @HillStirSci: It was so incredible to work with such a great group of experts to align on the output of this white paper. Regulatory fleβ¦
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@AshleyGWinter Congratulations to you and your whole family on the healthy little one. Sending humid thoughts and clean air vibes from NorCal down the coast to all of you π
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Donβt forget to register for our upcoming webinar on Dec 16 on Navigating the Evolving Landscape in Early Breast Cancer! Speakers: @maryam_lustberg, @hoperugo, @AndreasC466, and @coffeemommy Learn more or register: #SuppOnc #bcsm
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Twenty-one years for two-time cancer survivor, and amazing human, Dr. @barbarasegarra Congratulations, my friend (and thank you science) π #bcsm
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THIS! It's not simply about PFS or OS for many. QoL is a huge consideration. MUST be a dialogue #SABCS24
@drsarahsam Without OS or QOL improvement that PFS change is relatively meaningless, particularly in HR+ disease
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@MammaMiaMagazin @EnriqueSoto8 @OncoAlert TY both. Loving this dialogue b/c it illustrates that persons w/ a diagnosis are as heterogenous as the disease itself. Risk/benefit/impact MUST be discussed. And @EnriqueSoto8, thank you for always 'reading the fine print' & knowing it's not just OS or PFS, it's also QoL
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Spent 90 mins on the #SABCS24 stage yesterday, interjecting the advocacy perspective in "From the Trenches." My words but it was these voices, and so many others not pictured, that I channeled. Grateful to have them by my side literally & figuratively to learn with, and from. π
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@barbarasegarra @stage4kelly @JaniceTNBCmets Love you ladies, and thank you for the #SABCS24 support π
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@fumikochino @2 @JAMA_current @JAMAOnc @SABCSSanAntonio I'm all for rigjt-sizing but IMPORTANT for me to re-emphasize that surveillance data is young (2 year f/u) Will be more interested in these results as practice changing after longer f/u time period #SABCS24
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