Adriel Rose
@adriel_rose
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homecare worker. writer. social work student. threads/ig: @thisfeygirl / bsky: @aerose
Pennsylvania, USA
Joined May 2010
#covidconscious Friends! I wanna use this space to share people's work so we can all support each other in some way. If you're an author, an artist, a musician, have anything you make, sell, share, do as a way to support yourself, please feel free to comment & tell us about it!.
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I think MyChart should have a section where the patient gets to put notes in about every appointment they have with a provider too.
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Are you comfortable with cops being tasked to decide whether you or someone else has a legitimate medical reason to be wearing a mask? . No? . Then you should be paying attention to the mask bans that are being put in place around the country and should be speaking up about them.
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My husband & I keep saying that even if the pandemic was suddenly over & we could be w/ more people again, how could we? There are so many people we don’t trust anymore: family, friends, churches, etc. I guess we could meet new people but it would still be difficult.
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So, if Covid tests aren't being updated to pick up on new variants & most people aren't testing or if they are they're getting negative tests bc of the poor quality of tests, then of course that makes it easier to pretend that it's "just a cold" or "just some random virus".
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Something so bizarre about Americans: we're not taught (or refuse to learn bc of our hubris) correct ways of dealing with any kind of communicable illness (flus, colds, viruses, etc.), so when we are thrown into a global pandemic & are forced to *try* to learn, we act like 1/3.
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Me to the ENT & nurse: Could you please put on a mask, especially if I’m going to need to take mine off?.ENT: Oh of course. Is there an immune issue or are you on an immune suppressant?.Me (only in their office bc I have a cancerous thyroid nodule): 😐.
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Haven’t asked for awhile, but curious, who is still taking COVID seriously & what country are you in?.
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I keep seeing the phrase “it’s not sustainable” in response to people calling for continued COVID precautions in society. Usually from someone who hasn’t sacrificed much at all in this pandemic. The thing is, it would be “sustainable” if we weren’t ableist & selfish. .
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If you still take Covid seriously, specifically by masking in public spaces & have concerns about indoor air quality please comment below. I'd like to follow you if I'm not already. I feel like we need to see & encourage more of each other here! #CovidIsNotOver #COVIDisAirborne.
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Surgeon (when asked about masking policies for post surgery): “Is there an immune issue you’re concerned about? Or are you just anxious in general about getting COVID?”.Me: No. I’m just having a cancerous nodule removed & I would like to not get COVID when trying to recover.
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Seeing a lot of people who still take COVID seriously saying they’re at their breaking point lately. First, I know how you feel, I tend to go through cycles of feeling completely crushed & abandoned. At times even knowing how dangerous it would be, to say “f*ck it!” 1/3.
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It's interesting to see climate activists who aren't taking Covid seriously complaining about people not taking the climate crisis seriously. It's all connected; climate justice, disability justice, racial justice, etc. But so many don't seem to be cognizant of that reality.
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Slowly but surely filling my Twitter feed with people who are still taking Covid seriously. It's cool to see people from all over the world on here.
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I’ve been seeing a disturbing trend of partners or family members of vulnerable people either stopping taking the precautions to keep their loved ones safe or straight up lying to their vulnerable loved one about taking precautions. I understand it’s been hard w/societies +.
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means "living in fear". We could have taken this all in stride, connecting the knowledge to other things that we needlessly spread like the flu & continued to save thousands of lives. But no, we decided to be even more pigheaded & demand that ignorance be returned to us. 3/3.
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it's some huge thing to wear a mask, wash our hands, not cough on each other, recognize that illness can travel through the air so more people don't die. & instead of internalizing these very easy things, we decide that to understand the absolute basics of these things 2/3.
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If you are a hcw who still masks at work (& elsewhere), mind telling me what your position is & why you still mask? It’s pretty depressing as a patient seeing so many ignoring the continued risks of COVID.
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Anyone know how we can make public comment on this asinine push that the CDC is making to reduce COVID quarantine??.
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One of the things I keep thinking about is not only does dropping mask mandates in healthcare settings put patients & hcw at risk for COVID, but it also puts patients at risk for retaliation & receiving worse care when they ask for something as 1/2.
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One thing I've done through this whole pandemic, from the moment we started hearing about Covid 19, is listen to disabled & chronically ill people. They've been right every step of the way. I would strongly recommend that we all do this & continue to do so if have been already.
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I'm finding people who say "stay home if you don't want Covid" don't understand how much everyday risk there is, esp for immunocompromised people. What are some everyday, "normal" things that are more risky for you bc people refuse to mask &/or stay home when they're sick?.
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Why do I always feel like shit after I’ve stood up for myself or set a boundary?.
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I’d heard of many different kinds of things happening as a result of COVID infections but I hadn’t heard of people needing amputations until taking my Godmother to a podiatrist appt yesterday. .
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I mean I’m glad they were amenable, but uh…the disconnect was astounding.
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COVID conscious friends, what keeps you going in the midst of societal pressure to “go back to normal”? What are some things or people that have encouraged you lately? #CovidIsntOver.
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I also think that it should be legal in all 50 states for pts to record their appts no matter whether the provider knows or not.
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Healthcare workers who don’t mask are contributing to the death and disabling of their patients and their patient’s families. The same goes for homecare workers, social workers, & service coordinators. If you refuse to take simple precautions around people when IT’S YOUR JOB,.
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It really hurts when people you thought had certain values and morals and who you thought cared about others turn out to be totally different. That’s one of the many things this pandemic has revealed and continues to reveal. 1/2.
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Of course I don’t, for various reasons. But the weight of it all, along w/everything else going on in the world is just too much. I don’t necessarily have advice on how to keep going, but I do want to encourage to let yourself grieve however you need. We’ve lost so much. 2/3.
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It’s not a badge of honor to get sick over & over again, to push through that sickness day in & day out to get to school/work/out with friends. And it’s not a badge of honor to spread that sickness to every other person in your life. Like why do we think living like this is ok?.
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How do we have healthy relationships w/people who thought/think it’s fine to spread a deadly virus & leave a significant population of vulnerable people to fend for themselves?.
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If you’re part of the #covidconcious community, but you are unwilling to learn about disability justice from disabled people, please realize you are contributing to the systems you claim to hate by refusing to learn. There’s still time to course correct. We need humility.
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I’d donate regularly if I knew I’d be kept safe from contracting COVID & other viruses from the phlebotomists. @RedCross it’s time to institute permanent mask mandates for workers & donors.
Take this as your reminder to make an appointment to donate blood! 👇🏼
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& Keep reaching out to people here & on other platforms who understand. There are still so many of us across the globe, it’s just hard to see “out there”. I obviously don’t know the future, but I do believe that we are still growing as people even in the midst of this. 3/3.
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Nobody wants COVID to be over more than the #covidconcious right now. We just can’t afford to pretend with the rest of you all. 🤷♀️.
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People who blame the handling of COVID only on “systems” & “gov’t” better be consistent. You can’t call people out on racism, sexism, homophobia, etc. bc they’re systemic too if you’re going to whine about people calling individuals out on their ableism around COVID.
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People still wearing masks in crowded spaces (as we all should), what are reasons other than COVID that people should still mask up?.
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“Funny” how people who still take COVID seriously are also already prepared to deal with the air quality issues w/these wildfires.
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pushing for a total acceptance of “back to normal”, but I don’t understand the ability to commit that level of betrayal when they say they love the person. Have we lost the ability to do what’s right in the face of public pressure? Or did we just not ever truly have it?.
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Was finally able to finish this cross stitch that I had started last summer. Love black kitties!
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I've been trying to figure out how to articulate this well, but this tweet will probably still be clumsy. On the whole "We just need to move on with our lives" thing that people keep pushing w/Covid: but what does that mean? 1/6.
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Been really stuck lately on how quickly everyone has forgotten about immune compromised people. Like, for maybe a month in 2020, once the general public learned about what immune compromised means, they did some things to keep others safe. 🧵.
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or a disabled person. Dropping mask mandates adds another heavy load to the weight of an already unbearable medical experience for so so many people. & it should not be that way. 3/3.
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The moment we decided that it was “only” the elderly were vulnerable to COVID & the elderly weren’t that important to care for, every country embraced eugenics (not to mention the many who had already done so many years ago). That’s why we see the absolute deranged denial now.
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aware of risks like amputations, they’d take it more seriously. Wish that were true but it just affirms my choice to avoid COVID as much as possible over and again.
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reasonable & easy as a hcw putting on a mask around the patient. Now I’m a mostly able bodied white woman w/employer health ins. So I know that even w/my vulnerabilities as a woman, I’m not as vulnerable as someone on medical assistance, a Black or Brown person, 2/3.
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When did “it’s fine to catch every ‘cold’, flu, virus out there, in fact it’s *good* for us to do so!” start? When workers finally got some rights? Bc it strikes me as a lie that only benefits bosses.
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The podiatrist was saying (& we very much agreed) how horrible public health messaging has been on COVID this whole time & that he’s had multiple patients who’ve needed amputations of toes, feet, some even legs & other appendages. He believes that if people were more +.
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& still, still! People will not stay home or mask if they have to go out while sick. They'll send their kids to school, or take them on vacays sick. They'll go to church sick. They'll go to work sick. We could have changed so much, but we choose to remain ignorant.
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I came to learning about disability justice after years of having started learning about white supremacy & racial justice. & I’m noticing similarities b/w how white people react to being told something is racist & how abled people respond to being told something is ableist. .
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It was interesting (sarcasm) today, hearing a social worker try to tell someone who is severely immunocompromised that COVID isn’t really a problem anymore.
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I feel so sad for people who are like “well I’m immune compromised & I’m out living my life” in response to others calling for protection for immunocompromised people w/Covid etc. Their docs are clearly not up on the latest research & they are not advising their pts well.
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I personally don't want to "get on w/ life" if that means leaving people behind. Most of the people I am closest to are vulnerable to Covid. So I should just stop relating to them, find new people, & what? Play pretend? Live a vapid life that will only be all surface? 3/6.
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I think, as much as I hate the feeling of being rejected, avoided, ostracized over & over again, I’d still rather be hated for speaking the truth than loved for making people comfortable about the lies they tell themselves & those around them.
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So I'm still processing the news myself, but officially the biopsy I got shows that the thyroid nodule is cancerous. Next step is a consult with an ENT. Really hoping they can get me in asap. 1/2.
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If we had societies that actually value life instead of using people to make more $$, we would have systems that make taking care of our health completely sustainable. But instead of focusing on that & doing what they can now, like mask & improve indoor air quality +.
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There’s a stark limit to how much people are willing to care about how their actions affect others. And they’ll feign ignorance but aren’t willing to take the time to actually pay attention in the first place. And it’s absolutely crushing. 2/2.
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I somehow forgot to say precautions to keep loved ones safe from contracting COVID. 🤦♀️ #CovidIsNotOver #covidisairborne #covidconciou.
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Does that mean going back to being a good capitalist? Filling our days w/event after event, spending $$, so we're too busy to think about anything real again? Does that mean we've actually learned something from our time in this global pandemic? 2/6.
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The general public just want to continue being good consumers, assuaging their consciences w/“well everyone else I see out here is doing it & I can’t be expected to care about others forever”. God forbid we actually learn how to change ourselves & our societies.
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Really fun getting “happy birthday” texts from family who are pretending everything’s cool & they haven’t completely disrespected my husband & I, & abandoned us to fend for ourselves in the middle of a pandemic that is still raging on. & also feeling like I have to somehow 1/2.
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FYI: I know masks should be worn in indoor spaces. I’m asking this question for other reasons to wear masks because I think it’s good to normalize masking for other reasons too.
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@BigMeat99999 He basically said he can’t compel anyone to wear a mask. That they’d been doing it “for 3 years”. As if wearing a thin surgical mask for 3 years was such a hardship.
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I just want to say thank you to everyone who is still masking for the sake of keeping vulnerable people safe. I know that the pressures of life w/this ongoing pandemic are crushing, I see you & I'm glad you're still with us & still looking out for others.
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@rallykate It’s deeply sad & troubling that you say “real world” when that cuts people like myself & those I love out of that world. Immune compromised people & people w/Long COVID & other severely limiting illnesses live in reality, but we are constantly being shown by people like you +.
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So tired of “during the pandemic”. It’s not over. And I’m disappointed in hosts of podcasts, etc. who purport to believe the pandemic is still ongoing but who don’t correct their guests who use “during the pandemic” as if it’s in the past.
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As a home care worker I still mask bc I know the risks of me taking any illness to my severely immunocompromised Godmother whom I care for. I masked before the pandemic & will continue to. (& I know the risks of getting COVID to my own health).
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FYI: I don’t tolerate COVID deniers or people who downplay the continuing risk. I immediately hide comments & block so if that’s you, don’t bother commenting.
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Fellow #covidsafe people, what is bringing you joy in the midst of everything shitty going on lately?.
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I will not fall in & "move on" bc that's what the many say I should do. It's hard & painful (only bc so many have chosen to go the way of ignoring the vulnerable), but what's the point of life if there is no real meaning? 6/6.
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Has very medical facility dropping mask mandates completely blocked out the reality that there are ASYMPTOMATIC cases of COVID? And that their hcws & patients can be contracting COVID & passing it around that way too??.
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@ghostonthstereo Yeah I’ve definitely noticed recycled notes from one visit to the next in my chart from some specialists.
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@ElizaEmTM Exactly that. And I reiterated later that I’m not “just anxious” but I have immune compromised people in my life that I care for (bc apparently my own diagnosis isn’t a good enough reason).
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AND the wider American culture & just make certain people invisible? Bc the one thing they seem to agree on is ableism & eugenics. No thank you. I want to learn how to cultivate life in a way that does not leave people behind. I'm not perfect & I won't do it perfectly, but 5/6.
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@x3r0gxx WTF. Um. No words. I’m so sorry you had/have to deal with that bs. Like do these people truly believe that our body parts are not connected?.
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I need my life to have meaning & my guiding principle in life is Jesus' parable of the sheep & goats: "However you treat those who have been overlooked or ignored, you've treated me. " So what? I should fall in w/both the American Christian culture 4/6.
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I am in no way absolving Biden of his horrendous treatment of this pandemic, but I often wonder how people would have responded to Covid from the beginning had we not just been through 4 years of chaos & trauma of the Trump presidency.
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I would appreciate all good thoughts & prayers as my husband & I navigate this new territory. I've never had cancer before so it's. yeah. hard. But honestly all of your care & well wishes so far have been so so encouraging. This community is amazing. Thank you! 2/2.
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I can’t remember, was there a COVID conscious pen pal community set up at some point? Or would others be interested in that if there isn’t one yet?.
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So I’m curious, disabled &/or chronically ill friends, if you could give an abled partner any advice on how to be a good partner, what would it be?.
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What is something you thought was important pre-Covid19 pandemic that you don't care about now &/or something you think is important now after the pandemic started (we're still in it) that you didn't before?.
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I give my cat one blueberry from my breakfast a few days ago &now she’s begging me for blueberries every morning & trying to stick her paw in the bowl to steal them.
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#YallMasking ? (This is an older selfie from last year & am in a Happy Mask rather than my usual Aura bc I wasn’t out in public)
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Does anyone know if there are any books, articles, podcasts, etc. on why disability justice is often ignored by social justice minded people?.
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@flowermusickids Yeah I know. But it’s a little hard to communicate all of that in the moment & while needing to have a scope stuck up your nose & down your throat.
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@votesocialist24 You would gain a whole swath of votes if you actually masked & communicated accurately about COVID & COVID mitigation. There are thousands of people disillusioned by Biden & the Dems bc of their mishandling of COVID. You could sweep them up if you listened.
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Another holiday meant to be spent with family or friends, but spent just the two of us because of choices made by gov’t & individuals to not value health & safety of all communities. It’s depressing, especially after this year of cancer, surgery, & treatment. But I hope +.
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@TsaiMeLemoni This happens to me often. Esp bc I impulse like before reading a whole tweet. 🤦♀️.
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@Imani_Barbarin Every adult I know who was diagnosed with ADHD or Autism later so wishes we could have been diagnosed as a kid. The internet is saving so many kids from what we went through.
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@gydaarber This is something a friend of mine & I have been talking about lately, how different social justice minded people can be committed to justice in all the other areas but totally miss disability justice. Wondering why that is. Any feedback would be greatly appreciated!.
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This isn't the most cheery question, but I was wondering how couples have been preparing for the possibility of a spouse/partner either being disabled by Covid (short-term or long-term) or killed by it, & what kinds of practical things you've put into place?.
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Got my first letter from a new #covidconscious pen pal yesterday & she sent me this super cute jewelry! Here’s her Etsy for those interested:
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You know what really pisses me off? Partners who leave their chronically ill &/or disabled person. Also partners who continually put their person at risk of catching COVID. The utter selfishness is just entirely disgusting.
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One of the things that I've been struggling w/is I'm usually someone who is very happy for other people when they have good things happen to them & they get to do things. But w/the pandemic, having people move on w/o the rest of us, I've become very cynical/bitter in that area.
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@katimcf True! There are definitely groups of people who already knew how to deal with this even before it started, but society decided they'd rather rush headlong into oblivion instead of listen to their wisdom.
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Reading The Future Is Disabled has given me more motivation to imagine what could be cultivated for good to help others. So I’m curious, #covidconscious friends, what would a new normal look like to you (rather than “back to normal) w/the realities of COVID now in our lives?.
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Heading to the ER. Something going on w/my throat/thyroid after that biopsy. Not happy about the pain/difficulty but even less happy about possible exposure to COVID while I’m there. 😕.
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