VIA
@VasculitisIA
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Following
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Providing support and information for people with vasculitis, their carers and and interested health professionals in Ireland
NI/ROI
Joined March 2013
We are looking for 8-10 people to join our PPI team in this exciting new research project #vasculitis #autoimmune #PPI
#Patient and #public #involvement is at the heart of @PARADISE__AI #PPI 📢Would you like to help #autoimmune disease research?
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RT @MMUHPostgrad: Many thanks to Prof Mark Little @_ERNRITA @ukivas @VasculitisIA for interesting and highly thought-provoking talk at @Mat…
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RT @RareDiseasesIE: @naiireland Thank you - we are delighted to have so many excellent groups supporting the campaign @22Q11_Ireland @BUMBL…
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#MedSafetyWeek reporting side effects helps improve medicine development and keeps us and others safe. @VasculitisIA
All medicines may cause side effects. When you report side effects, you help us to monitor the safety of medicines and protect patients from harm. Please report any suspected side effects from medicines. Visit👉 #MedSafetyWeek
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RT @debaditya_roy: #BSR 2022 #Guidelines #Pregnancy 🔥Major Changes from 2016 : ✅RTX,IL6i,ILi,IL17,23i STOP @ conception ✅Mtx<=25mg/wk ✅Le…
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RT @dr_omerkaradag: Very important details from the expert of AAV @TerrierBen ! #euvas @eular_org #TurkishRheumatology
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What great work by the amazing @RosalineAuthor
Delighted to co-chairing a group discussing how to improve care for people affected by #amyloidosis locally. #RareDiseaseNI @RosalineAuthor #WorldAmyloidosisDay Spot the youngest RD researcher snippet attending their conference earlier this year 🤣😁 👇🏻
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RT @anzvasc: From desperation to effective evidence based care in #vasculitis. At the @EUVAS19 Vasculitis course, Prof Peter Merkel's excel…
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RT @EricTopol: A new outstanding review on the antibody response to #SARSCoV2 @NatImmunol and the path to variant-p…
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RT @RareDiseasesIE: Great speakers at #RDF2022 - the importance of patient involvement in research...
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RT @AvrilKennan: Living with a #RareDisease can be a lonely thing so please share if you can...
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RT @vasculitides: Clinical Features of ANCA-Associated Vasculitis in African American Patients in the United States: A Single-Center Medica…
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A lot of really fantastic work in Vasculitis squeezed into a week, great to be part of such teamwork.
Final event of @Vasculitis2022 week, which started with @HelicalItn symposium last Friday and ended with @fairvasc symposium, with a bit of a #Vasculitis22 conference in between. I need a breather!
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RT @IPPOSI: There are only two days left to apply to join our #CitizensJury so that you can have your say on the future use of #genomics in…
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RT @fairvasc: Patient organisation involvement is essential. We are the end-users of these projects and need to be involved in the design a…
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@GOFAIRofficial @rarediseaseday @gulcingumus1 @Michi_Onali @MarcoRoos @suzieannbakker Great to be involved in this group
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RT @Robsonjo4: #steroids #impact #patients please retweet if possible! @vascuk @RAIRDA_org @VersusArthritis @ukivas @BristolNASS @UKMyositi…
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