Michela Onali
@Michi_Onali
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Cross-cultural mediator, #GNEMyopathy and #RareDisease advocate. I dive into what is #Rare, unexpected and new to me. Share and be #FAIR
Joined April 2021
#ProDGNEMeeting2024 🗓️19-20 April Full list of speakers will be announced soon! We can't wait to welcome you in beautiful #Sardinia for an exciting🌍networking event on #GNEMyopathy #RareDiseases #PatientPartnership #EJPRD #JTC2020 #OpenScience #Trasnational #Collaboration
It's #RareDiseaseDay and we want to make it special by announcing the dates and place of our final ProDGNE meeting! 📌Mark your calendar & join us in #Cagliari🇮🇹 on 19-20 April for a networking event on #GNEMyopathy, Research, #PatientPartnership & collaboration in RareDiseases
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RT @jardin_EU_JA: ❓What are the European Reference Networks? 🔗You have all 24 reference networks together on the JARDIN website. 👁️Discover…
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RT @HorizonEU: Researchers & patients across Europe join forces to advance the fight against rare diseases. Here’s the full story ➡️ https:…
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RT @eurordis: Throwback to @Michi_Onali, our 2023 Volunteer Awardee, talking about why the Black pearl Awards mean so much to her and her u…
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RT @eurordis: Are you looking to learn more about rare disease research? We have co-developed several online courses with @EJPRareDiseases…
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RT @ProDGNE: We are back from a fantastic #EJPRD final conference in Bari! Thank you to the @EJPRareDiseases team and @FondazioneBenzi fo…
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RT @ProDGNE: Excited to be at the #EJPRD final conference next week to present: 🟣ProDGNE's experience with the @EatrisEric expert mentori…
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RT @ProDGNE: Thank you all for coming together for a fantastic #ProDGNEmeeting2024 in Cagliari and online! 📸Dive into some great pictures…
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RT @yurik00da: 何とか乗り切りました イタリアとオンラインで20分間発表 英語やらなきゃーといつも反省です でもオンライン上でも語りかけて���れる先生がいて すごく嬉しかったです 離れていても極東の力地からでも 患者としてお役に立つことがあればいいな 20 A…
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RT @ProDGNE: We are back for an exciting afternoon session! #ProDGNEmeeting2024 We are delighted to have with us David Wishart from the @…
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RT @ProDGNE: #ProDGNEmeeting2024 More talks from: Wenhua Zhu, Huashan Hospital, Fudan University 🇨🇳 presenting the mutational spectrum &…
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RT @ProDGNE: Great talks and discussions this morning in #Cagliari Still a filled agenda for the day and more research in #GNEMyopathy…
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RT @ProDGNE: #ProDGNEmeeting2024 Talks of the day: 👉Patient advocacy in Japan @yurik00da 👉Natural history of #GNEMyopathy and ManNAc stu…
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RT @ProDGNE: #ProDGNEmeeting2024 Talks following coffee break: 👉Sialic acid and research on #GNEMyopathy in the @Radboudumc #CDG Expertis…
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RT @ProDGNE: We kicked-off the #ProDGNE International meeting on #GNEMyopathy 🚀 Today's talks: 👉#PatientPartnership in #ProDGNE & #RareDi…
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RT @ProDGNE: #ProDGNEmeeting2024 More talks of the day: 👉Advocacy for #GNEMyopathy @wwgnem 👉Introduction to #GNEMyopathy @LochmullerLab…
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RT @euro_nmd: ➡️Our coordinator @TeresinhaEvange will present today: "#EuropeanReferenceNetworks: a European model of cross-border collabor…
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