University of Virginia Pulmonary Fibrosis Group
@UVAILD
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UVA lung doctors devoted to excellence in patient care & scientific research. Dedicated to individuals with Interstitial Lung Disease aka Pulmonary Fibrosis.
Charlottesville, VA
Joined November 2018
UVA pulmonary docs Tessy Paul MD and @CathyBonham MD discuss the challenges of treating and living with #pulmonaryfibrosis for the #UVA Healthy Balance Blog:
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Don't let wearing #oxygen limit visits to family & friends! Here's a great tip sheet on how to travel with oxygen safely: @LungAssociation @3LakesPartners @PFFORG #pulmonaryfibrosis #COPD #lung #respiratoryhealth
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Our #IPFNurses are worth their weight in gold! Happy holidays to all nurses and providers caring for #pulmonaryfibrosis!
We need to fight for more #IPFNurses – they are an integral part of #IPF multi-disciplinary care #IPFCare
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We are not proud that #Virginia is the worst state in the union for increased progressive massive #pulmonaryfibrosis, the most serious & often fatal form of #blacklung in #coal miners. Calling #Senators @timkaine @MarkWarner #USCongress elect @DenverRiggleman. VA can do better!
RT @AnnalsATS: Progressive Massive Fibrosis Resurgence Identified in U.S. Coal Miners Filing for Black Lung Benefits, 1970–2016
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Happy holidays! Planning is underway for the next UVA support group in Charlottesville in January. All are welcome!
The holiday season can be especially stressful. Don’t forget that support groups can be a great resource to patients and caregivers. Find a support group or join PFF Voices on 12/20.
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Important science alert! Telomere mutations: not just for #IPF patients anymore, but in fact present in many patients and families with #PulmonaryFibrosis. Is the field ready for wider genetic screening and personalized counseling?
Regulator of telomere length 1 (RTEL1) mutations are associated with heterogeneous pulmonary and extra-pulmonary phenotypes
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Wondering how to talk about #IPF with your family? Here's a great resource from the Pulmonary Fibrosis Foundation @pfforg for patients
Are you looking for a quick and efficient way to tell your friends and family about pulmonary fibrosis? Our new microsite will help you spread the word that #NotEveryoneBreathesEasy. ➡️
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@UVA pulmonary faculty Tessy Paul MD and @CathyBonham MD discuss popcorn lung, a rare form of #pulmonaryfibrosis caused by inhaling food flavoring, and its implications for #e-cigs and #vaping. #respiratory #lung #ild @uvahealthnews
When eight people who had worked at a Missouri popcorn factory developed breathing popcorns, the culprit turned out to be diacetyl, a buttery-tasting chemical @BlueRidgePoison
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