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PF Trust
@PFTrust
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The aim of the Pulmonary Fibrosis Trust is to provide personal support to people affected by Pulmonary Fibrosis, a very debilitating and life-limiting illness.
UK
Joined June 2013
Great News! We are pleased to announced that bookings are now open for our holiday home in Great Yarmouth. Please go to our website to download the application form or email us on info@pulmonaryfibrosistrust.org.
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New video featuring chair Peter Bryce and Patreon Alain Roux live on our Facebook page. #PFAM #EveryBreathEveryStory
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Welcome, to our new trustee Lynsey Conway: Lynsey has spent over 30 years working in the health sector providing communications and public affairs support. Lynsey lives with her husband, teenage son, and nutty Spaniel, Daisy. #PFAM #EveryBreathEveryStory
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A huge thank you to Helen Bridgeman in completing the GNR in aid of PFT. I managed to do it in 2 hours and 58 minutes, which was just under my goal of 3 hours. I can't thank you all enough for the donations, love and support I have been shown. #PFAM #EveryBreathEveryStory
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Meet one of our trustees Jessica Sharp: I became an Ambassador for the Pulmonary Fibrosis Trust in 2014 after losing my Uncle to IPF. Not having heard of PF before, I was determined to make it known by raising awareness. #PFAM #EveryBreathEveryStory
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Please join us in congratulating the Princess of Wales Hospital team for completing their run and raising an absolutely incredible £800 for far!! #PFAM #EveryBreathEveryStory
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I particularly liked the fact that the PFT helps patients & their families on a practical level & it really does make a difference. On another note when I'm not working or doing Trustee things you can find me reading, at the theatre, travelling or sometimes even swimming! #PFAM
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As shown in our patient and carer survey, an astonishing 9 out of 10 people had never heard of #pulmonaryfibrosis before they were diagnosed. With over 70,000 people living with IPF in the UK, more needs to be done. 💙💜 #PFAM #EveryBreathEveryStory
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Many people when first diagnosed have never heard of #PulmonaryFibrosis, or the devastating impact it can have on them or their family. With so many people diagnosed every year it's important to raise awareness so that more people know about PF and where to seek support. #PFAM
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Thank you to our GNR Heroes! Every step & mile you conquered brings us closer to improving the lives of those affected by Pulmonary Fibrosis. Thank you for being part of our mission. Your efforts make the difference. We couldn’t do this without you! #PFAM #EveryBreathEveryStory
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🚴♀️ In memory of her late husband, Susan Macleod is riding 980 miles from Land’s End to John O’Groats to raise funds for the PFT. ❤️ "Francis will be with me in spirit. With the support of family & friends, nothing is insurmountable." 💪 #PFAM #BabbleRideAcrossBritain
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