I forgot I had done this video in 2019. It seems a lifetime ago. I have lost a little bit of weight since then, and do different exercises to what is in the video. I don't go to the gym anymore but I swim instead. Swings and roundabouts, in what life.
This morning I got up, hobbled to the bathroom, feeling a bit sorry for myself. Wishing I was younger and more able. Then I looked in the mirror and gave myself a pep talk. I've had 2 strokes, I have dementia and Polymyalgia and I'm still independent. I think I do bloody well 💖
Today I went swimming with a friend. I haven't swam for at least 20 years and I was worried that I might have forgotten how to with my
#dementia
How wrong was I? I took to it like a duck to water. Breast stroke and front crawl, I think. We swam for 3/4 hrs, then sauna.
#exercise
@jess_e_abad
I am getting my first one next year when I reach 50. It will be of a phoenix on my right shoulder. The phoenix is how I see myself. I was diagnosed with dementia when I was 45, so the phoenix represents me coming out of the ashes to fight a new life.
When i first retired as a nurse because of my dementia, i thought that was it in 2016. My life was over, that I was useless. How wrong was I. I have a lot of fingers in lots of pies, still help people in different ways, and feel proud of myself that I didn't give up & still going
Today is my 3rd year
#anniversary
since my dx of dementia. It's important for me to see this date as a milestone to survival. When i got my dx,I would never have envisioned that I would achieve so much to help others,to educate & bring awareness re
#dementia
I feel proud of me 😊
On Wed I saw my consultant who was pleased with my progress. He re did the memory test on me & I scored 29,last year I scored 25. The way I'm being proactive by giving talks, getting involved in training health professionals, playing word games,
#exercise
all helps.
#dementia
I just want to remind people this👇We are all individuals, no matter what is wrong with us. Someone upset me on here this morning by saying that in a few months time I probably won't be able to walk or do things on my own. I've had dementia for 6 yrs&still fighting👍
#positivity
In this photo I am 21, today I am 50. It's not been an easy journey of life, but I'm pleased to have survived 50 years. The next 50 years will hopefully be easier. We have longetivity in my family.
#birthday
#throwback
🎂🍷🍾
This is half my interview with Sky News for World Alzheimer's day, which was in September. The subject was about Stigma and Discrimination in
#Dementia
which might seem negative but sometimes we have to talk about negative stuff for people to change their perception on things. 😊
I always said that when I reached 50, I would have a tattoo. I wanted a phoenix in greens and purple colours. The phoenix represents me, Old life before the dementia, then new life afterwards. It's about being strong
#tattoo
#Phoenix
#tattooart
@Miss_Piggy00
@Ldybird246
Today is my 8th year anniversary since my dx of dementia. It's important for me to see this date as a milestone to survival. When i got my dx,I would never have envisioned that I would achieve so much to help others,to educate & bring awareness re dementia. I feel proud of me.😊
I saw Angela, my OT today. I always feel relieved when it's that time to see her. She is dementia trained and I feel that my dementia is getting worse in different ways, like using keys is sometimes complex. She is going to look into ways to help me so I can remain independent.
I have been feeling really low recently. I cry easily which is part of the dementia /stroke. I am full of cold, my family& friends won't come near me in case they catch it. So coming on Twitter actually cheers me up. Chatting through here to people helps me know I'm not alone.
'They asked for my bank details... they wanted me to give them my passcode. They rang about 20 times.' Tracey, who is living with dementia, shares her experience of confronting a scammer over the phone.
Read our tips on how to spot a scam and stay safe:
Its been two years today since my diagnosis of
#dementia
. I have done and achieved a lot, especially this year. In fact, strange as it sounds I probably have achieved more in one year, than I ever did in my years of nursing. Funny what
#life
dishes out for us 💖
#MyMentalHealthIs
not being ashamed of having bad days when all I want to do is sit and cry. I have dementia, I am in my 40's and I find it hard to be strong and positive all the time. Life is hard work sometimes. Every day I have to fight, and some days I don't want to 🤷♀️
Since being dx with dementia,invitations to go out with others dwindled to being non existence.Except for a few meals with my friends. I miss going out on staff dos,sometimes esp over Xmas so I was pleased to get invited out tonight to eat,drink & be merry. Feel like Cinderella😉
Having
#dementia
is not sweetness & light all the time. But it's about making the best of the situation. Most times I forget I have it. Then people remind me, by telling me that i can't do something because I have dementia. What poppycock!!We can achieve so much if we believe 😊
Today is my fourth year anniversary since my diagnosis of Posterior Cortical Atrophy which is a varient of Alzheimer's Disease. It affects my vision more than memory. In 4 years I've done really well, achieved a lot and still going strong. Power to me 😊
#anniversary
#dementia
This photo I took 8 years ago, it came up in my Facebook memories. I had forgotten I had taken it. The reflection of the clouds in the canal is quite spectacular.
Today is my 5th anniversary since getting my diagnosis of dementia,&5yrs since I had my first stroke. Its a date I like to remember as it means that I have fought for 5 years to remain me,& still help others in the process. This is a poem that I wrote 4yrs ago.
#dementia
#poetry
I finally had 7 hours of sleep last night, the first time since my fall. I woke up at 4am to take some paracetamol, but went straight back to sleep. My bruises are starting to fade. I look like a patchwork quilt 😂😂 I still need to go out for a walk without being nervous.
I was proud of myself yesterday as for the first time for ages, I managed to climb a step ladder and saw down some over hanging branches from a tree. My
#Balance
hasn't been good since being dx with
#dementia
but going to the gym and balance class is paying off.
#feelgood
Some days I really hate my dementia. Last night, I was so tired that I saw my first hallucinations for months. Hundreds of huge red spiders were crawling over the ceiling and walls. I knew that they weren't real but it's still scary when it happens.
#dementia
My beautiful garden. I love it. Its relaxing with the water trickling and wind chimes. I love gardening, its relaxing on the brain with my dementia.
#garden
#Dementia
I bought myself a new walking stick which has a light and an alarm on it, so I won't feel so vulnerable going out in the dark now.
#dementia
#Disability
#SafetyFirst
@KeithMoreland7
@jess_e_abad
Thank you. I have a lot of fingers in lots of pies. I am a dementia envoy for my local trust, I am involved in a project with Alzheimer's Society to do with sports, and the importance of exercise, and I'm always out and about. My consultant is proud of me 😊
I love giving talks about my
#dementia
, about my diagnosis, how I cope, all the things I get up to. Today, I was in Ashford speaking in a beautiful church. A man who lives with dementia came up to me afterwards&told me how much I helped him with what I said. I felt proud 😊
My first tattoo is on my arm and is of a phoenix. I akin myself to the Phoenix, as I had to let go of my last life before my stroke and dementia in order to get use to my new life. Like rising from the ashes to be stronger than I have ever been before.
I am lucky to have a health professional, an OT that I speak to every two weeks about my dementia,how I truly feel, she asks what I've been up to, my eating habits, how I sleep, my mood etc. She is my lifeline, I tell her things I don't tell anyone else.
#MentalHealthAwareness
#AlzChat
Hi everyone, I love gardening. I always forget I have dementia when I am in my garden. I try and go for lots of colours, different sensations, like Lambs Ear which has got a velvet leaf. I like water, so have a pond, bees, frogs and birds are encouraged. It's peaceful 😊
It was one of those indecisive days today. I wanted to go to Canterbury but some of the buses had been cancelled so popped into Folkestone briefly. But didn't stay long because of the buses again. Spotted this lovely knitted topper on a letterbox. I hope you have had a good day😊
I write a blog weekly and have done since I was diagnosed with dementia in the hopes that it may help others. This morning I received a message from someone thanking me. My words give him courage to live his life with his dementia. That's all we can do is help each other 😊
This picture came up on my memories on FB. In 2017, I won an award for being an inspiring person with dementia at the
#dementia
friendly Kent awards. I don't remember this event now. I don't think that category is around now. They focus more on organisations.
During lockdown, I learnt a new craft. Loom knitting - this is using a frame. To make numerous things. I am also doing a on line course - a diploma in English language and literature. It's hard but important to keep
#dementia
at bay
#ThursdayThoughts
#learning
#NeverGiveUp
I don't usually share a full length photo of me but my brother in law took a decent one of me with my sister and nephew. This is when we went to Rye for the day on Wednesday.
I have to share this with you, because I am still in awe that it happened and its never happened before. Yesterday, three of us spoke about living positively with
#dementia
to 80 policy holders in London, and we got a standing ovation afterwards. That was a goosebump moment 😍
Today I felt proud of myself as pushed myself to go out even though all I wanted to do is stay at home. I had my balance, stability and posture group today. I have missed it for two weeks, because of hosp. apps. So felt I had to go. Felt better afterwards. Do like
#exercise
😊
Someone bought me these lovely daffodils and I found this lovely art deco vase to put them in. I forgot I had it. The daffodils really do brighten up the day when the weather is wet.
#artdeco
#daffodils
My dad rang earlier& wanted to take me out to lunch if I was about so that was nice.Very impromptu. It was lovely.He wanted to take a photo which is hard at the moment because I'm on long term steroids which means I've bloated out like 10 ton Tessie 😂😂so look like a giantess 😂
In 2017, I wrote a book of poetry, some were dementia related and some werent. It was a way for me to get out how I was feeling after my diagnosis really. Since September is Dementia month, I would share the occasional poem from my book.
#poetry
#alzheimersmonth
#dementia
It's been a hard week this week,mentally. On Tuesday,I finally snapped & cried. Since having dementia I don't cry that often. I cried on Tuesday & Wednesday. I'm tired & fed up. Fed up with being strong all the time. Have no choice
#dementia
#mentalhealth
#MentalHealthMatters
I am becoming more aware that sometimes I may not respond appropriately to people's tweets. It's not that I am meaning to be like it, but with my
#dementia
it changes how I perceive things. When I was a nurse, life was easier and I just knew the right way to respond. Now I don't
The bus driver just told me how lovely I looked today 😁 That made my day. I don't often get compliments from total strangers. I do give them sometimes 🤷♀️
Sometimes there are some really odd people on here.I had to block someone the other day because he sent me a warning about some of the things I post or share. 🙄 Now someone has blocked me because I refused DMs.Thank goodness for the lovely people I do speak to on a daily basis.
I am fed up at the moment. I've got an infection and it's bringing me down. I keep crying, stupid things set me off. My WiFi is sparse today which means my phone /Internet isn't working properly. But my
#amaryllis
has flowered this am so that has cheered me up. Beautiful flowers.
@Johnnypapa64
@peterwright311
My great grandmother always said that "one should speak to a dustman the same way they would speak to a duchess" That's how I was taught too. Respect to everyone. 🙏 I hate snobbery.
@BigBearF1
Well said. I feel for the royal family. They do their walkabouts, thanking MOP for coming and waiting in line. Having to put up with phones in their faces taking photos, all the time whilst having to put on a brave face whilst grieving. They are doing a fabulous job in a sad time
@chickpee_
@demiswn
I was bullied at school in the 70's& 80's, at times really wanted to take my own life. Even poured tablets out on the bed when I was about 10 yrs old. I used to get verbal & physical abuse. I went to a school reunion when I was 35&laid a lot of hurt to rest. Letting go helped me
Today I treated my mum to lunch for her belated birthday,which was a couple of weeks ago now. I was poorly when it was her birthday. After lunch we went to the theatre to watch The Nutcracker Ballet. It was fabulous, I love Tchaikovsky's music so much. Photo is of my mum
#ballet
@_p_rittenhouse
Sometimes the most dangerous place is at home,where you are trying not to say or do anything that might upset the person you are with in case they lash out. It's a luxury for me to be in a place of safety,which is my house. No violence or negative behaviour because I am alone now
The one thing I hate more than anything is to be told by a person is "that I don't look and sound like someone who has
#dementia
so I can't really have it" 😳 Really!! 🤷♀️I shouldn't have to defend my diagnosis to anyone, then when I do, they then choose to ignore me instead!! 😡
Today I gave a talk to people recently diagnosed with dementia, told them that they are still the same person that they were before having dementia. To carry on doing their hobbies, to join groups and to be kind to themselves. Had lots of questions, and good feedback.
Just went out to water my plants by my front door and saw this small gift bag. It's from one of our local churches. They have been leaving small gift bags around the neighborhood. I thought how lovely. There was some chocolate and a candle in the bag.
#KindnessMatters
I couldn't do without my OT, Annemarie. She is dementia trained&my lifeline. Most importantly she is my sounding board. Having
#dementia
at my age,in my 40's, is a hard thing. She refers me to the right people if needed, tells my consultant if she is worried.
#WorldOTday
I have just spoken to my health professional about all my worries regarding my dementia& feel like a weight has been lifted until the next time. I don't like burdening my family or friends especially when I have bad days. Life& dementia can be frustrating
#MentalHealthSupport
@Richardtheseco2
My great grandmother used to say something similar. She used to say that "one should treat the dustman with as much respect and dignity, as one would treat a duchess" Manners don't cost anything
I would like to say 'thank you' to the young man who very kindly offered me his seat, on a jam packed train from London when no one else would. I was balancing on my two sticks, extremely tired. I sat in his seat, then cried as I do when I get tired, felt relief.
#Disability
Yesterday I wore a size 22 shorts&size 20 top. I haven't been those sizes for a few years,so hats off to me for persevering through the
#exercise
Gone are the 24/26 clothes. I've had a
#stroke
& mobility issues due to my
#dementia
& still fighting to keep fit. Exercise rules!!
This was the sky this morning at silly o clock when I don't usually get up in the winter. It's a struggle. In the summer, it's a different story. 😊 I'm in Deal today, giving a talk to people recently diagnosed with dementia and their family members. So bus, then train.
#Sunrise
I thought I would share with you my slice of heaven which is my garden. If you have the sound up, you can hear my water fountain going which is relaxing for me.
#Garden
#fountain
#FridayFeeling
Knitted this miniature Christmas stocking to give to someone with chocolate coins in as a surprise. It's my first one I've ever knitted. It's not turned out too bad.
#crafts
I had a fabulous time on Monday night with these amazing people. It was lovely feeling part of a team again. The food was excellent, and everyone chatted with me, and I actually forgot I had dementia.
#ChristmasParty
@alzheimerssoc
@smcfad21
@emmabould
Yesterday I went for a walk along the beach and really wanted to go paddling. My balance is not great even with my stick, on pebbles. But the need to paddle was greater than my anxiety of falling. So I duly went down and paddled.
#paddling
#Peace
#beach
#sea
#SaturdayVibes
Sometimes in order to remain independent,I have to accept help. Accepting help is really hard for me. At the moment,the help comes in the form of equipment that I need like walking stick,grab rails in the bathroom,an extra bannister&now a bath cushion. I love my
#OT
#Disability
My neuro physios told me that I would probably end up in a wheelchair as I was walking with two sticks after my stroke. I told her "no I won't" and fought back. Now 7 years later, I walk with a cane. I had a TIA in 2018. Saw speech therapist after TIA. But ok now
#WorldStrokeDay
@deathtospinach
People really need to stop picking holes in people. Becky, you do so much in educating others and trying to stop scammers. I don't think people realise how often it really happens. My mum's friend lost £1000's and her house as a result of romance fraud.Thank you for all you do 🙏🏼
Finally finished my latest macrame project. There are 4 hearts, big going towards small. It's for a friend who shares her house with 3 lots of generations of her family so lots of love there 😊
I don't have a Christmas tree as I feel it's stressful to get the things from the attic. I nearly fell from the steps last time trying to carry something and hold my balance. So I have a twig tree in my lounge and fairy lights round my conservatory window.
I love fairy lights, I love lights in the garden, I always think that's the girly part of me. If I could I would have lights all round the house!! 😂 🤷♀️I bought myself a twig tree and it's beautiful. I can't stop looking at it!!
I didn't ask to have dementia, if I had my choice I would still be working. There are two choices, I could either give up, let the dementia take over or fight each day&shut that dementia down which is what I choose to do.I was diagnosed at 45, I'm 54. Still fighting, not dying
@JustcarolGrani
@DrJessTaylor
Before I was diagnosed with dementia,I was told that I was just "stressed or depressed". Since having dementia, everything gets blamed on the dementia and I have to fight for other Investigations to take place. It's so frustrating.
@joystarburst
Years ago,I went on a blind date set up by my friend. Afterwards,the guy told my friend that unfortunately I just wasn't attractive enough to be seen out with him at all😳😂😂 I am going to tell you what I told myself that it's his loss. I have a great personality,so do you 🌻