Suzie Siegel
@SuzieSiegel
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Newspaper reporter & editor b4 metastatic leiomyosarcoma. Master's in women's studies. Board member emerita of Sarcoma Alliance. urostomy colostomy
Tampa, FL, USA
Joined September 2012
Some people still think clinical trials are the last resort. Not true! It would be great if lurbinectedin is proved just as effective with a lower dose of doxorubicin than standard therapy. #leiomyosarcoma #sarcoma
SaLudo: a randomized phase IIb/III study of lurbinectedin plus doxorubicin as first-line treatment in leiomyosarcoma #sarcoma #leiomyosarcoma
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@charvarnes11 @GCCougars Lovely story. @SarcomaAlliance chose yellow & sunflowers to represent sarcoma many years ago. Purple is the color for leiomyosarcoma.
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@whedonesque I'm eBaying some Firefly & Serenity stuff that may interest other fans. Got to pay my rent.
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This study is a reminder that women diagnosed with rare gynecologic cancers should get a second opinion on the pathology of their tumors. I can't access the full article, but I wonder what happened with the myxoid leiomyosarcoma. #sarcoma #gyncsm
THE RARE GYNECOLOGIC SARCOMA (REGYS) STUDY. MOLECULAR AND CLINICOPATHOLOGICAL RESULTS OF A PROJECT ON 379 UTERINE SARCOMAS #sarcoma #leiomyosarcoma
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RT @jcontraelcancer: Vamos a participar en la Eleccion-Coronación de la Reina Biónica comparte en tus redes sociales. @SolcaGuayaquil @So…
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RT @OncLive: Breelyn Wilky, MD, discusses the importance of disease screening and early diagnosis in the treatment of patients with sarcoma…
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RT @DrCeSarcoma: 🧐Willing to stay tuned for the latest advances and upcoming efforts in #ClinicalTrials in #Sarcomas? Check this review ni…
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RT @GladdyLab: Strategic planning for Toronto sarcoma patients multidisciplinary care, education,🌎fellows, clinical trials&discovery @pmc…
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For anyone interested in this post: Some major sarcoma centers in the U.S. will review the records of people in other countries (for a fee) & give a second opinion without the patient coming to the U.S.
I spent my 30th birthday desperately seeking help for my mom's liver Leiomyosarcoma. On that day, I reached out some of the open embassies in Caracas because I had ran out of options. Germany was one of the embassies I reached out to — I said why not because I was desperate and Germany was like 'refugees welcome' and all that, so it was worth a shot, I guess. They rapidly said to me, via email, that due to German law they could not provide help to non-Germans, which, yeah, sure, it is how consular matters usually work — but you can see where I'm going with this. Not like it would've mattered, since she passed away 3 months later. I have not forgotten about that. There are other countries on that list too.
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Here is the clinical trial link for this study on using ctDNA to see if leiomyosarcoma patients are responding to chemo: ctDNA is DNA from the tumor that is circulating in the blood. #sarcoma
Exciting News: @COBLH has enrolled its first patient in the LMS Biomarker Clinical Study! The study focuses on patients with unresectable or metastatic leiomyosarcoma (LMS) undergoing first-line chemotherapy. Learn more about our research: #Research
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Dr. Pedro Antonio Hermida de Viveiros will discuss the phase 2 trial of zanzalintinib for leiomyosarcoma patients at @NorthwesternMed in a free webinar 7 pm EST Feb. 12. Register here: This is presented by & open to everyone.
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Not only is this a great tribute to Emily Logan, but it's also a reminder that sarcoma, including leiomyosarcoma, can arise in people who exercise, eat healthy, etc.
RIP Age 51 Died after a year-long battle with leiomyosarcoma. Long Time Greenfield-Central Girls Swimming Coach Emily Logan Dies via @NewsNowUK
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@exosome Yes, I'm glad for COPD research, but I was thinking of leiomyosarcoma research because we have so few (any?) well-known champions.
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@exosome @bt57414527 @Against___COPD I'm not sure if the original post was wondering where the research is for leiomyosarcoma, or if you were only addressing COPD. But survivors always hope that people with lots of followers will raise $$ for research. Doctors/scientists have proposals, but we need funding.
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@martinebran @NiallHarbison I also was thinking that it might be a sarcoma. But there's always a chance that surgery can be curative.
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A person with leiomyosarcoma got a response from botensilimab!
Very excited to see this in print! Such promising outcomes for immune cold #sarcomas with Botensilimab Plus Balstilimab @Agenus_Bio @CUCancerCenter
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RT @reininsarcoma: Are you or a loved one recently diagnosed with LMS? Check out this great resource: Leiomyosarcoma Support & Research Fo…
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RT @WFLA: POLICE CHASE CAUGHT ON CAM: New video shows Tampa police chase deadly hit-and-run suspect on I-275 Sunday night
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Leiomyosarcoma survivors: In case you missed this webinar on Genomic Profiling of Your Tumor, you can watch it online: The passcode is 6dD@d^57
LMSDR will host a free webinar on Genomic Profiling of Your Tumor with Carol Quayle, PhD, of @carisls 10am PT / 11am MT / 12pm CT / 1pm ET Jan. 25. Register here: #leiomyosarcoma #sarcoma
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