This #RareDiseaseDay (Fri, Feb 28), join the global movement to raise awareness and drive progress in rare disease research, policy, and care. Wear stripes, start conversations, and take action by attending an event this month! @RareDiseases Events Happening This Month: • Feb 11 – Community Conversation: The Living Rare Study • Feb 12 – Rare Disease Centers of Excellence Grand Rounds • Feb 18 – Grassroots Advocacy Webinar on rare disease policy Click here for more event info: #RareDiseaseResearch #ShowYourStripes

February is National #CancerPrevention month, and RRP's mission is to #PreventCancer in RUNX1-FPD patients. This month is dedicated to raising awareness around leading healthier lives in order to lower the risk of developing cancer. Join us this month in quitting an unhealthy habit and adopting a healthier one! What habit will you change? Share in the comments below to inspire someone else to join! Click here to learn more about how you can prevent cancer:

Tune in on Thurs, Feb 20th at 9 a.m. PT for a webinar with Dr. Moon Ley Tung (@IowaMed), Dr. Sioban Keel (@uwmedicine), and Dr. Ilene Weitz (@KECKSchool_USC) to explore the genetic underpinnings of cytopenias. Followed by a live Q&A. Register now:

RT @LabAgarwal: Thanks to our RUNX1-FPD patient community for sharing precious samples, collaborators, NIH team, & Mona for extraordinary e…

Inflammation plays a key role in RUNX1-FPD pathogenesis. @LabAgarwal and her team found targeting CD74 signaling, mTOR & JAK1/2 pathways could prevent disease progression. Incredible work by an RRP-Edward P. Evans Foundation FIRE grant recipient! 

✨Happy New Year From RRP!✨ As we welcome 2025, we’re grateful for our incredible community. Thank you for your support, generosity & dedication to advancing RUNX1-FPD research and advocacy. Here’s to a year of hope, progress and meaningful impact for patients and families!

📢 𝗗𝗲𝗰𝗲𝗺𝗯𝗲𝗿 𝟮𝟬𝟮𝟰 𝗡𝗲𝘄𝘀𝗹𝗲𝘁𝘁𝗲𝗿 𝗛𝗶𝗴𝗵𝗹𝗶𝗴𝗵𝘁𝘀: • 𝗥𝗨𝗡𝗫𝟭 𝗣𝗮𝘁𝗶𝗲𝗻𝘁 𝗗𝗮𝘁𝗮 𝗛𝘂𝗯 relaunches on a new platform. • 𝗦𝘁𝗲𝗺 𝗖𝗲𝗹𝗹 𝗛𝗮𝗿𝘃𝗲𝘀𝘁𝗶𝗻𝗴 & 𝗕𝗮𝗻𝗸𝗶𝗻𝗴 𝗧𝗿𝗶𝗮𝗹 expands to @ChildrensPhila - register for Dr. Olson’s webinar on Jan 29th discussing the study at this new location! • 𝗦𝗶𝗿𝗼𝗹𝗶𝗺𝘂𝘀 𝗣𝗶𝗹𝗼𝘁 𝗦𝘁𝘂𝗱𝘆 adds telemedicine options. • 𝗥𝗥𝗣’𝘀 𝗦𝗰𝗶𝗲𝗻𝘁𝗶𝗳𝗶𝗰 𝗔𝗱𝘃𝗶𝘀𝗼𝗿𝘆 𝗕𝗼𝗮𝗿𝗱 identifies top research priorities for 2025-2027 funding. Click here for more details:

Join @DrTimOlson for a webinar on key aspects of the Stem Cell Harvesting & Banking Trial sponsored by RRP. Dr. Olson, PI for the new second trial location at @ChildrensPhila, will share its goals, procedures and patient requirements. Register:

Each year, @redwoodlgistics holds the Redwood Games, an event where employees compete to raise funds for causes close to their hearts. In total, the 2024 Redwood Games raised an impressive $𝟯𝟬𝟬,𝟬𝟬𝟬 𝗳𝗼𝗿 𝟭𝟱 𝗰𝗵𝗼𝘀𝗲𝗻 𝗻𝗼𝗻𝗽𝗿𝗼𝗳𝗶𝘁𝘀, supporting important causes locally and globally. We were honored to be one of the nonprofits chosen for this year's games, thanks to an employee whose fiancée and her family are impacted by #RUNX1FPD. Through the dedication of their fundraising team, and a generous matching donation from Redwood Logistics, they raised an incredible $𝟯𝟮,𝟱𝟬𝟬 𝗳𝗼𝗿 𝗥𝗥𝗣. We are deeply grateful to Taylore, D.J., team "Cash Us If You Can," Redwood Logistics and everyone who contributed. Your generosity has made a meaningful impact on our work and the families we serve! Thank you! 🙏❤️

RT @LabAgarwal: Don’t miss to attend an amazing workshop #ASH24 on Germline predisposition to hematopoietic malignancies and bone marrow fa…

There are 𝗼𝗻𝗹𝘆 𝘁𝘄𝗼 𝘄𝗲𝗲𝗸𝘀 left to apply for the RRP-@AlexsLemonade Early Career Investigator Grant! This grant funds research aimed at preventing the transition from pre-leukemia to #leukemia in #RUNX1FPD patients. Apply today:

Today is #GivingTuesday! Please help us continue the fight to prevent #bloodcancer for RUNX1-FPD patients with a gift of any size. Every gift makes a difference--together we can make an impact! 💙 Donate today:

𝗛𝗮𝗽𝗽𝘆 𝗧𝗵𝗮𝗻𝗸𝘀𝗴𝗶𝘃𝗶𝗻𝗴 𝗳𝗿𝗼𝗺 𝗮𝗹𝗹 𝗼𝗳 𝘂𝘀 𝗮𝘁 𝗥𝗥𝗣! 🍁🦃 This year, we're especially grateful for our dedicated community, the progress we've made together, and the hope that guides us every day. Thank you for being a part of this amazing journey. Wishing you a day filled with warmth and joy with those you cherish most! #Thanksgiving2024

Congratulations to Dr. @XimeJordan! RRP's 2024 RUNX1 Award of X-Cellence: Clinician of the Year.

Congratulations to Dr. Lucio Castilla! Winner of RRP's 2024 RUNX1 Award of X-Cellence: Scientist of the Year.

@LabAgarwal @LabSpeck @leonard_zon @SteidlUli @FrancoIzzo85 @DrDavidJYoung @bloodgenes @AlexBickMDPhD @KellyLBolton @GYeretssian @LucioCastilla @PapapetrouMDPhD @XimeJordan @anacatmenezes @drwenbin_xiao @nataliedeuitch @ShimamuraLab @yash_pershad @alyssa_c_parker @AbbyeNormalMD

🌟 It’s #GeneticCounselorAwarenessDay! 🌟 A huge thank you to genetic counselors for their vital role in patient care—helping individuals understand genetic conditions, interpret results, and make empowered health decisions. Your work changes lives! 🧬💙 #GCChat #HealthcareHeroes

RRP and @AlexsLemonade are accepting applications for the Early Career Investigator Grant through Thurs, Dec 19th. The grant supports research to prevent #preleukemia from progressing to #leukemia in #RUNX1FPD patients. Apply today: