Pheo Para Alliance
@PheoPara
Followers
2K
Following
6K
Statuses
10K
Investing in research and supporting #pheochromocytoma and #paraganglioma patients globally. "Stronger United" #NETCancer #RareDisease #pheo #para
Joined October 2016
We've added some new faces to our #PHearless #pheo #para #PPGL team. Learn more about our team of volunteers & staff who advocate tirelessly on behalf of those affected by this #RareDisease. 📣🙌
0
0
0
Yes, even eye doctors can encounter #pheo #para #PPGL in their practices. Thanks for pointing that out! 👓😎🥸👁️👁️
@PheoPara @escardio @SCC_CCS @ACCinTouch @VascularSVS @ASALifeline Absolutely!! Both should be well versed in pheos. Another important follow up I believe should be with an optometrist. Damage to eyes can be significant with high blood pressure and with high and low blood sugar.
0
0
0
RT @APheipas: 🔥 Descubre nuestro gran panel de ponentes para el V SYMPOSIUM que celebraremos el 14/febrero en @HospitalLaFe ✔️5 ponencias…
0
8
0
PPA is proud to announce that “Patient-reported burden associated with #pheochromocytoma/ #paraganglioma diagnosis” was published in Endocrine-Related Cancer 2024 Vol. 31, issue 6. View article 👉
0
0
1
🗓️SAVE THE DATE! September 18-20, 2025 Centre hospitalier de L’Universite de Montreal (CHUM) Montreal, Quebec, Canada 🇨🇦
0
0
1
#pheo #para #PPGL is not just for #endocrinologists. Grateful for experienced & knowledgeable #cardiologists & #anesthesiologists who deal with this #RareDisease. 🙌 @escardio @SCC_CCS @ACCinTouch @VascularSVS @ASALifeline
The Year in Cardiothoracic and Vascular Anesthesia: Selected Highlights from 2024. These highlights focus on key updates on a variety of topics, leading to improvement in perioperative outcomes for patients with cardiothoracic and vascular disease.
1
0
3
RT @camraredisease: Have you booked your Rare-I-Tea party place yet to celebrate #RareDiseaseDay with us? Book here
0
1
0
Outstanding work advocating for patient voice in the research process, Dr. Halfdanarson @OncoThor & #INCA! 🙌📣🔬 #LetsTalkAboutNets #NETs #pheo #para #PPGL #NENCinicalTrials
👉“Patients are indeed the major stakeholders in cancer research” - watch the video with Dr. Thorvardur Halfdanarson to find out how NEN patients can be involved in research: #LetsTalkAboutNETs #NENClinicalTrials #OncTwitter #MedEd
0
0
2
Hooray for a #PPGL session at #ESE2025! 🙌🎉 @EuroSPE
#pheo #para @croendoyoung @EsePresident @EYEScientists @ENSAT_news
Check out the live programme for the Joint Congress of @EuroSPE and ESE 2025! The programme is divided in Plenary sessions, Working Groups, Meet the Expert sessions, Award sessions, Educational symposia, Industry symposia, and more. All details at
0
0
0
Due to the complexity & rarity of #pheo #para #PPGL disease, a team of experts is definitely required. Check out our Centers of Excellence program to find an experienced team near you. CoE list👉 #LetsTalkAboutNets #NETs #RareDisease
NEN patients need a multidisciplinary team involved in their treatment and care. 📌We help HCPs to learn at a glance about NEN specifics with #NETInfo in 11 languages: #LetsTalkAboutNETs #MedTwitter #MedEd #GITwitter #OncTwitter #OncoTwitter #LungTwitter
0
0
2