PSC Partners Canada
@PSCPartnersCa
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Mission: to drive research to identify treatments and a cure for PSC, while providing education and support for those impacted by this rare disease.
Canada
Joined January 2017
Support & Community available for those affected by #PSC in two @PSCPartners Facebook Groups! Find out more at Join the conversation and welcome to the best family we wish you didn't need.
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RT @JesusMBanales: 20 Years International Research Experience in PSC: What Have We Learn? 👉International Collaborations matters & make the…
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RT @cziscience: Community-driven research is critical to advance scientific discovery Science in Society meeting attendees share posters o…
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Last call to register: Sat Paeds PSC Day webinar for patients & families w amazing expert speakers Gideon Hirschfield, @amandaricciuto, @MacparlandSonya, @garybader1, Sarah Kohut, Amrita Mundh, & Albert Fung fr @UHN @UofTGastroH @SickKidsNews @TVASurg
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RT @PSCSupportUK: People with #PSC can experience an infection of the bile ducts (called “PSC flare” or “cholangitis attack”). If you're a…
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Help us reach paediatric PSC families w news of Canadian Paediatric PSC Day on June 1 @ Toronto. Full day educational programming & peer support. Register @ @CASLupdates @amandaricciuto @MacparlandSonya @BinitaKamath @DrSimonLing @AASLDtweets @NASPGHAN
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Patients & families: Today & Tomorrow: Event for paeds autoimmune liver @ Center for Autoimmune Liver Disease at Cincinnati Children's Hospital & ALiNK. Reg open through noon tomorrow for online attendance. 1.Register: .. 2: instructions to join online
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RT @TrilliumGift: Tonight, the @TourCNTower will be lit green to kick off National Organ and Tissue Donation Awareness Week (#NOTDAW). Reme…
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Stephanie Azzarello is 39, she lives in Toronto and works at the University of Toronto in the art history department as a researcher and lecturer. She also has PSC and is on the transplant wait list hoping to find a living donor. Read her full story here:
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2024 Canadian Paediatric PSC Day for patient families! Registration is open for this June 1 event to be held in Toronto, Ontario. Full information at @PSCPartners #PSCAware
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PSC Partners Canada is happy to announce that registration is NOW OPEN for the first Canadian Paediatric PSC Day happening June 1 at the Arts and Letters Club in Toronto. Register here 👇 @PSCPartners #PaediatricPSCday #pscaware
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Save the date for the first ever Canadian Paediatric #PSC Day on June 1st at the Arts & Letters club in Toronto, Ontario, Canada! Registration will open in March and travelships will be available on a first come first serve basis. Stay tuned for updates! #pscaware @pscpartners
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This cost-free research program is open to #PSC'ers in Canada and US! Check it out!
🎉 New Year, New You! 🌟 Kick off 2024 with our 12-week Online Wellness Program tailored for adults managing chronic conditions. 💪💙 Empower your journey with wellness, mind-body connection, & a supportive community. Click
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RT @MacparlandSonya: Rare liver disease research made possible through teamwork, collaboration, open science with the patient experience an…
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Teamwork Science! New publication with insights on what is going on at a cellular level in #PSC. So grateful for this team and the CIHR funding making this type of discovery possible! @PSCPartners
Thrilled to share our team's newest paper examining the cellular ecosystem of Primary Sclerosing Cholangitis, a rare liver disease that has no current treatments, a fact that we hope to change with our single cell, single nuc and spatial atlasing efforts!
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Patients, families, clinicians, & scientists gathered for #PSC @PSCPartners What the Cell?! Toronto event. Videos at News release at @MbD_UofT @UHNTransplant @MacparlandSonya @amandaricciuto @DianaNakib @garybader1 @AutoImmuneLiver
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The Quality of Life in PSC conversation w liver experts from Australia, Belgium, and UK for this global #pscaware day.
Extraordinary ELPA High-Level Roundtable Discussion on this #GlobalPSCDay Unlock the Secrets of PSC Symptoms, Treatment & Life with Leaders like Sindee Weinbaum, Mary Pressley Vyas, Prof. Dr. Doug Thorburn, Dr. Kate Lynch, and Prof. Dr. Thomas Vanwolleghem
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RT @EuropeLiver: Primary Sclerosing Cholangitis (PSC): A #RareLiverDisease That Needs Our Attention! Do you know what PSC is? It's a rare…
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@sjhatch_joanne @amandaricciuto @AutoImmuneLiver @PSCPartners @PSCSupportUK @pscsupportau @EuropeLiver @AASLDtweets Yes! The videos will be posted as soon as possible. Please stay tuned! Thank you to all of the amazing speakers providing much needed #hope based on science & #support based on human connection and access to information. #grateful #PSCAware
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