Nina🧜🏽♀️
@NinaWil83565015
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Following
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317
Statuses
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Proud mom, acquired sense of humor, trying to figure out how to do this with laughter and I don’t have a clue what I’m doing, MTNBC 🤬🤢
Keller TX
Joined October 2018
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Back at chemo, 2nd week with the new meds. Switched to Todelvy because last therapy stopped working. Send me healing energy please 🙏🏾
@ThanksCancer
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Just a little procedure this morning. Bone biopsy. Smile it makes the world brighter
@ThanksCancer
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Today is chemo day. I don’t think I posted last week because the “grid” across the USA was down and I had no service
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Another Thursday another chemo appointment. I like this new treatment better it’s 3 weeks on 1 week off. Great schedule I think it’s the first one I get a break in since 2017
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Sorry haven’t been active lately. Have flu B and last night fell in the bathroom and dislocated and broke my ankle. I did a great job and am being admitted until ortho can do surgery and I can get to a rehab facility.
@ThanksCancer
when it rains it pours
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The all too familiar view for us. My body decided it was going to forget how to walk or talk yesterday at the oncology center then threw in a fall to be fancy
#breastcancer
@ThanksCancer
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Chemo today, gemcitabine and carboplatin today so we know in 72 hours I’m going down 😩
@ThanksCancer
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This is from radiation and biopsies. The skin is so tight and hard it has lifted my shoulder and shortened my range of motion. It’s never healed so I bleed from it constantly (over a year)
@ThanksCancer
#battlewounds
#metastatic
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I am the grandma to the handsomest sweet baby boy every
Such a love ❤️; a little under the weather right now but soon sweetheart
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It’s Thursday so that means I’m back in the chair 🪑 chemo time; well if the labs give me the green light 🚦
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At chemo waiting for approval week 4 with neutrophils low and my alkaline phosphate is high like in the 400’s.
My mom is in from Vegas to see me
@ThanksCancer
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Back for day 2! Hopefully my #’s are up that was the whole point of yesterday so fingers crossed. Good vibes, prayers, love and joy sent my way appreciated
@ThanksCancer
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My little gave me a make over for Mother’s Day. She wanted to add lashes but I said no, she is very good at it though
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At the weekly chemo. I eat the night before and morning of because the pre meds keep the nausea away for a good 24hrs
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Now I’m at the infusion room at the oncologist with my favorite nurses in the world!!! Ignore the indents from my glasses but do you see the shadow of fuzz growing on my head 😊😊😊
@ThanksCancer
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Didn’t want to jinx it, and needed to process, but my scan was good. Tumors gone, a couple spots need monitoring but they’re holding steady. So 3 months breathing so far. Still on chemo weekly but it’s working
@ThanksCancer
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I am so cold 🥶 I have my heat on 74, thick fuzzy socks on, I have blocked off doors not being used and am under the blankets with goosebumps, WTH? Is this chemo; blood thinners? I hate cancer!!!
#MTNBC
#breastcancer
#cancersux
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I don’t know how I feel. My tumor markers are climbing. We are really close to where we were last year when we started treatment. Onc had this one more spread out than last.
@ThanksCancer
I’m trying to mentally prepare myself for this
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My apartment is moved. I have to say thank you to a small church group that just heard a single mom with cancer needed help and showed up. They don’t know me and will never meet me but they packed and moved my whole place just because. If more “Christians “ behaved like this…
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Blood transfusion time! Hospital basement for me; but I have a great nurse 😊
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My daughter did a wig install, tomorrow we’ll silk press it (long bob) it’s so nice to have hair again even if it’s not mine
@ThanksCancer
sometimes Girls just wanna have fun!
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Start to another week, first day of Christmas vacation I get with my little and I have 2 drs appointments, WTH
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@KimComstock5
He ain’t lying cuz you know them girls is waiting and I bet he’s nice to his mama and grandma too
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Hidden cancer costs: I am extremely below the poverty threshold but I have groceries delivered and use Uber Eats. I hate paying the cost but illness means I can’t carry my groceries often and I have a child to feed whether sick or not.
@ThanksCancer
what are some of your costs?
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I am honestly happy & wish continued success on my fellow carcinomies when they are in remission. Part of me is jealous, I’ve never had a follow up scan be clean, doing weekly chemo for 2yrs straight currently, I know others have it worse but my body is tired
@ThanksCancer
#MBC
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PET scan results came back awesome. It actually reads, “Dramatic difference between scan performed August? 22 and current results.” Dramatic difference I didn’t know that was a medical term but aayyeee
@ThanksCancer
#BreastCancer
#metastaticbreastcancer
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Chemo day I find out my next treatment today. I have a friend coming with me. She has been my cancer buddy since 2020 driven me to test, appointments, chemo, took notes, fed me after. A few months ago she had to go back to work so she took today off to go with me
@ThanksCancer
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This is my break from
#Cancer
#MBC
I according to my little am on plant restriction for a while but it brings me peace.
@ThanksCancer
my escape what’s yours?
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My scan is more good than bad. We are trending in the right direction, still a few hotspots but nothing new blowing up and some responding well to new treatment so cheers 🥂 to good news
@ThanksCancer
until the next time 😮💨
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So I’m stage IV, I’ve been fighting since 2017 and every time I have a check up it’s been like well how are YOU feeling? I am convinced I have years because I have a mini me in 5th grade the others are grown
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Morning just got out of the hospital yesterday, unexpected stay. I got rather sick and my liver is not my friend at all these past couple weeks. And now I’m dealing with either a clot or cellulitis. Such is life
#TNMBC
#fuxcancer
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I so far have no major side effects with the new treatment. I’m tired, dizzy and off balance today but otherwise holding up
@ThanksCancer
for all the positive vibes
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Today is chemo day
@ThanksCancer
I’m nervous this one because we’re supposed to discuss my tumor markers climbing. I don’t like doing potentially bad things but my palliative care nurse is kind of insistent.
#scaredycat
#hatecancer
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I had chemo yesterday and of course labs and met w my dr for our monthly visit. She scheduled a scan before our next visit. The weird thing is she wants to refer me to a specialist in oncology in Dallas because my case is very complicated.
@ThanksCancer
🤷🏽♀️🤷🏽♀️🤷🏽♀️
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So no chemo today; damn numbers are killing me seriously so back next week. They are better than last week though 😊celebrating all wins large and small 🎉🥳🎊🥳🍾
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Today someone will ring the bell 🔔 this is my 5th treatment in a row of bell ringing. Mixed emotions but honestly happy for those lucky enough to experience this
@ThanksCancer
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I read of people losing weight during chemo. I’ve gained weight every time I’ve been sick. 1rst time especially with all the steroids ( 50pds) I should recognize it as an early warning sign. I think my body starts storing fat like a bear about to hibernate
@ThanksCancer
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Am I the only person who will read a tweet, all the responses just hearting away the ones that speak to me and not comment a thing?
@ThanksCancer
@CancerCanuck
@TheCancerSutra
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Today was chemo day. We have a Wednesday group we try to sit in the same section when we are there. Today we all were, even some old Wednesday’s stopped by. It’s a party! It makes time fly and nurses put scared newbie’s with us and we welcome them in
#cancerthings
@ThanksCancer
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I miss doing hair. I’m slowly giving my things away because I’ve collected a lot of things over the years. I just sent my niece a thing of bleach, bond booster, toner, direct dye, balayage and highlight brushes plus my peach and rainbow shimmer framar foils. I’m sad
#fckcancer
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I had to remind myself what I looked like with hair. And yes I have no fear of the pixie cut nor clippers. I love vibrant colors but sadly this is also why I had to shave early. It showed when I started losing hair
#notjusthair
#chemotherapy
#breastcancer
@ThanksCancer
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Thank you
@IAmPoliticsGirl
time to really speak out for these children. SHAME SHAME SHAME ON YOU GOP LEGISLATORS
There have already been 82 new anti-transgender laws introduced in 2021. These bills don’t address any actual problems but simply allow the far-right to score political points by sowing fear and hate at the expense of children.
#TransRightsAreHumanRights
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Sorry I have not been posting. Friday I committed a doozy of a fall and dislocated and broke my foot, on the side my arm doesn’t work. The emts were so impressed they asked if they could take pictures. Even er dr was impressed.
@ThanksCancer
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I am so tired 🥱 had my first day of my new regimen last Thursday, haven’t had a day to rest or even nap yet. Tomorrow is
#2
and Saturday will be my rest day if I make it that far. I’m so exhausted I feel delirious
@ThanksCancer
to all of us trying to hang in there I see you 🤗
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I got really sick last night. My mom got to see how chemo affects me which I don’t think she thought was like that. I think it was because my daughter was sick with a cold, I didn’t think I would feel like that. I was shivering so hard I almost got lock jaw
@ThanksCancer
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I am home in my own bed with my little beside me. I am one lucky mama. Trying to unpack and reorganize some of the things that were unpacked already lol 😂. But definitely excited to be on the first floor! It’s been a month
@ThanksCancer
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I have realized part of the depression of cancer is we stop doing what brings us joy because of side effects. Our inner child doesn’t get to play, our inner teenager is pouting in their room. We need to always do something that has ALWAYS brought us joy!
#childhoodmemories
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Chemo day yay 🎉🎉!! I’ll be out at 5 today but they are going to push the chemo fast to get me out, pre meds took 2 hours 🥴
#breastcancer
#metastatic
#triplenegative
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I’m done making others feel comfortable,the sh
@t
I do to make them believe I’m fine. My mom thinks I’m good and she’s watched 2 siblings and a good friend die since I’ve had cancer. Dropping strong for honest, I am not responsible for your emotional management
@ThanksCancer
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Due to a whole cluster fck of incidents I haven’t had chemo in over a month. Insurance is now making it worse. You would think I’d be up and running, maybe it’s weather related but I have no energy yet.
@ThanksCancer
has anyone else experienced this? I just want some energy
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I believe my hair is growing back
@ThanksCancer
it looks like it is. It’s super salt and pepper with the salt sticking straight out and the pepper growing normally. It’s thin and spotty but I rock it like it’s an 18 inch Brazilian
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Okay just kidding my labs are not good neutropenic and hemoglobin is low so debating blood transfusion or not
@ThanksCancer
so no chemo today
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What is a young cancer patient? I automatically think 20’s. I was diagnosed with breast cancer at 43, young in the treatment room but I wouldn’t call it young. Just curious as to what people think
@ThanksCancer
@ElephantsTea
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I think most of us have been here to some degree or another…
I’ve been here often and afraid every single time I will never leave
@ThanksCancer
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I think the chemo has reached the point of taking its toll. The side effects are coming in hot 🥵. I now have the ankle support for my foot. Put it on the wrong foot and didn’t figure it out until halfway to chemo, wore a left shoe on my right foot all day 🤷🏽♀️
@ThanksCancer
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Last night I finally felt well enough to reach my cell phone on the floor call a friend and make it to the hospital, fever is gone, rehydrated, blood pressure is still an issue though.
@ThanksCancer
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I said something to my sister about reading something someone posted about all they see is a woman dying of cancer, and I said that is how I feel when I look at pictures of myself. This hussy tells me well that’s okay cuz I see RuPaul 😂😂😂
@ThanksCancer
#siblings
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So just signed the lease on my first floor apartment. Same complex, same building, so that is wonderful. Have some amazing friends who are going to move me while I’m in here. I honestly feel very lucky because this was a big weight on my back
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I tried today and I can’t even stay awake long enough to read all the replies. I fell asleep typing this tweet twice let me go goodbye
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Today is my first day outside rehab. It’s for chemo but I can say I’m not ready yet. I most definitely need a cast, currently in a soft splint and the urge to balance with this foot is strong until I step on it 🤕.
@ThanksCancer
fam the encouragement and support is awesome 😎
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Has anyone experienced extremely dry skin? Like shedding and peeling. All over! My face is dry and I have a moisturizing cleanser and a $95 moisture rich night cream I’m using daily. I have every lotion, cream salve you can think of.
@ThanksCancer
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You have to have a premium account to message Twitter support. The irony of being censored over stage 4 TNMBC side effects you are being lighthearted about. This is why our community is so important, outsiders don’t understand how we handle this with humor.
@ThanksCancer
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Why yes that is the line from my port; yes I am home with a big old needle in my chest! Never did chemo today my labs came back too low and I’m a port draw. Three hours today was a series of it has to be me….
@ThanksCancer
@TNBCFoundation
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@wolf_ariadne
@Anastas17351725
@tweetraychang
For someone who was the student rep on the hiring panel yup 1 minority female the rest all older white married men most with kids in the state college system already
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Great afternoon/evening with my daughter and a friend. Decorated the tree, dropped my daughter off to a Christmas party and then we went quickly shopping, out to eat, wrapped presents and drank wine. Winning today
@ThanksCancer
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I am thankful for of course my children, grandchildren and siblings. But I have some amazing friends who showed up 3 hours early today to help me cook and after cleaned my whole kitchen. So thankful for them!
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How true this is for so many people in our community.
“The most frequent fear I hold is that my cancer will return. This thought is petrifying.” -Savannah Mason
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Seriously 😳 are they kidding? So you can’t say anything about the side effects of being a cancer patient? I don’t know how to appeal this
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Just had someone ring the bell 🔔, last time I was able to have treatment there was a bell ringer. I am happy for them but also annoyed for my life.
#mets
#breastcancer
#triplenegative
#RingTheBell
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Here we are, last week numbers were bad let’s see how this week goes
#fckcancer
#cancerthings
#chemoday
#stage4
#MBC
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I am still tagging
@ThanksCancer
; I know she is on a break. I don’t want to be exclusionary and I love the community. I meet new people and get to add new people to follow. The more open we are the more support and encouragement we receive. I ❤️ new perspectives and insights
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Chemo day again. This is the second to last one my friend will be driving me. She drove every day for my radiation last time (every day for 7 weeks) and this time to chemo. I appreciate her so much we have become such good friends
@ThanksCancer
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I spent the best weekend with my children! My son flew in and we went to Pipe Creek out in Hill Country. Another young couple came with us and they hiked, I did a cave with stairs equal to 9 flights of stairs with their help, fun was had
@ThanksCancer
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@ThanksCancer
I don’t mean to brag but my labs last week had the lowest level of tumor markers since February 2021, so I’m currently feeling like shiddd whilst celebrating 🙌! Totally
#cancerthings
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So today they are having a phone meeting with my sister about me and my life and to make an after plan for me, found out from my sister who lives multiple states away and is my emergency contact but has no power unless I lose all ability to function and am in final stage hospice
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I was just thinking about cyber bullying, nothing they say is worse than the sentence “you have cancer “for us incurable people we’ve heard the worst thing ever.
I should be like a non stick skillet , nothing any one says sticks.We stand up for each other
@ThanksCancer
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In light of the hidden cost of cancer thread, let’s do resources we use/know of that we can share with each other. I found a foundation called Infinite Strength to help with rent. They allot a certain amount for so many months. U.S. based
#MBC
@ThanksCancer
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So yesterday while attempting to chop broccoli I paper cut my finger with the knife. It’s the hand that has lymphedema so didn’t feel it and blood thinners so you can imagine. I got banned from using a knife 🤣🤣🤣 what do they think I do daily?
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Well said 👏👏👏👏👏👏
I don’t love cancer, but I sure do love the people who have come into my life because of it.
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Today the usual,
labs, drs, chemo. Shopped with my friend until we we were both full and headed back to my place to wrap up the last of the presents. As we pulled through the gate I realized that I had
left my phone at the restaurant 🤪🤪🤪too late tonight
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@LibbyMbc
When my son died I realized we wasted a lot of time saying the bills this month, we can’t afford that. Now that he’s gone I realized we couldn’t afford not to and I have regrets so now I fly by the seat of my pants and try to live like I matter
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I have to get moving, my little comes back from her dads today. I have an ex husband who is involved with her and gladly spends as much time as possible with her. When I go to pay for something wether school or outside activities it’s done, shout out to amazing co-parenting dads
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I have been sleeping my hinny off. They keep asking if I’m dizzy and need a blood transfusion, I keep telling them I’m not vertical long enough to get dizzy 😵💫 😂😂! I think they think I’m kidding; walking to the bathroom to pee is about how long I’m up
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I hate doing this when everyone is suffering and trying to survive, but I truly need help with my rent this month. Any amount would be appreciated, thank you
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@gjenkins55
Omgoodness I’m so sorry that happened to you. I have learned to not speak my full truth because society isn’t ready for complete truth of living with terminal cancer
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@peachesvermont
@ThanksCancer
@nytimes
I’m Nina age 49 metastatic triple negative breast cancer is my dx. I’m the mom of the most phenomenal little girl she’s 12. I recently discovered I like anime, new to it but like it so far.
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I feel seen
I want a life worth living. I want joy, not strength. I'm so tired of being strong.
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Scan day today, I’m almost strictly port access. Or at least my arm is about 95%+ shot for draws and IV’s.
@ThanksCancer
let the nervous Nellie’s and scanxiety begin
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I got so sick after chemo last week, today I received extra fluids. I am trying not to have a panic attack but… is there chemo after affects anxiety? Is this a new level of stress? Wth 🤦♀️
@ThanksCancer
#cancertreatment
#d
@mnchemo
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Just tired; absolutely stressed af and I think it’s seriously affecting my ability to function right now I am most definitely not okay. Just sleeping and stress cleaning A LOT!!! But it’ll be okay
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I don’t think people understand how cancer takes over your life. Chemo Wed, Thurs begin to get sick culminating Saturday with Sunday recovery and then the week starts again
#momswcancer
#singleparent
#cancer
@ThanksCancer
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Wednesday comes so fast! So chemo day again, somehow last week was chemo and immunotherapy, surprise! Each week is just taking more and I know I should be doing all the things right now
@ThanksCancer
but I think I have hit a wall I need a vacation
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Today is chemotherapy day. Took forever to get approval because my labs are not good, neutropenic just mildly. My little one is with me but they won’t let here back here; unhappy feet
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Great point; if the “battle “ cancer stereotype places blame on the patient. How would you say what we do? We do fight, we battle, we plan, we execute. What is your wording?
@ThanksCancer
@ElephantsTea
@EvolvePink
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I have the fuzz my hair is a 5 o’clock shadow on my head. This morning my daughter told me her long beautiful hair can count for both of us. Then she gently added curl cream to my hair and told me it was working and I had curls too
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Pushing physical therapy to the max, so I can get out of here, kudos to those who fight through. Some days my only motivation is I’m not quitting before this sweet lil old lady is; as she’s mopping the floor with me
@ThanksCancer
#rehab
#ouch
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