After years of advocating & lobbying for medical marijuana oil to be a viable option for my son & his horrific seizures, and so many others who are suffering, it finally became a reality for us today & my heart is bursting w/joy!
It’s a great day in Louisiana!
#lalege
#lagov
💚
I’ve read posts about the need for choice if the baby has life altering diagnoses. Like a knife in my heart. God chose this soul for me. And I choose him. His worthy, beautiful life has purpose and dignity. In him I see Christ and am reminded this broken world is not our home.
A “Catholic kit” for Aaron to take to college from one of the sweet ladies from church who adores him. Raising my boys in the church with the same people over the past 17 years is such a blessing.
🧵Seventeen years ago today I was crying out to God asking: why. Why allow my son to be born with these insurmountable trials when we did everything right? Why make him suffer?
Like Jesus in the garden of Gethsemane, I asked God to let this cup pass from him…
Years ago Connor and I were sitting in the lobby of the pediatrician’s office when he began seizing. A mom sitting nearby spoke to me after. I told her about his diagnosis. She said “Well, I would have asked for an abortion.” I simply replied “Well, thank God I’m his mother.”
Our beloved priest at St. Helena Catholic Church in Amite, Father Mark Beard, was killed in a car accident today. He saved many souls and brought them closer to God during his 13 years with us. A huge, huge loss to our community. Please pray for the repose of his soul.
I read Dead Man Walking in 2002 & was compelled to learn more. I’ve advocated for ending the death penalty ever since all bc
@helenprejean
ignited that fire in me. What an honor it was meeting her today at the Capitol as she spoke on the dignity & sacredness of all lives!
We teachers should have seen the destroy teachers & public school movement coming when parents began scolding us in parent-teachers conferences instead of their child for wrongdoings. Lord, have mercy on teachers. 🙏
I brought the lineman on my road some pralines yesterday. This morning one flagged me down as I passed them asking for the recipe to bring home to his wife. He said “Those pecan puddles you brought us yesterday are worse than crack.” 😂 he’s not wrong.
My friend’s daughter Aubrey took a liking to
@__dc4__
while watching
@LSUbaseball
and repeatedly said DYLAN CREWS! Aubs has autism and is nonverbal. This is huge.
Today she got to meet her favorite player, and he is just as great off the field as on. LEGIT, y’all.
#geauxtigers
My kids school sent an email about Hurricane Ida recovery and when they’ll be returning to school. It ended with this “We are not all in the same boat. We are in the same storm. Some have yachts, some have canoes, and some are drowning. Just be kind and help whoever you can.” 💙
The amount of out of state people invading Congressman-Elect Letlow’s Twitter mentions by bashing him is horrifying.
A man died. His wife will have to raise their two young children without their father.
Every life has dignity, and deserves respect especially in death. 🙏
@vallerii
@MichelleKinney
@TheMarkPantano
I’m a former SPED teacher and mom to a kid w/a disability...
Trump flagrantly mocked a person’s disability, continues to “degrade” others by associating them w/mental health conditions, & hired someone who does not look out for special education students to run the Dept of Ed.
If you’re gonna talk about the importance of mental health, then fund it. Fund mental health services, fund more counselors in schools, fund case management, fund all these things policymakers cut over the past 15 years.
#MentalHealthAwarenessMonth
#lalege
#lagov
Opinions of the sort, especially in front of children, need not be said. I pray for this woman every time I am reminded of this interaction. 🙏
I can’t imagine not having him. And the light he brings to this dark world.
Seventeen years, never did I think we’d see this day. Praise be to God!
“The end for which we are created invites us to walk a road that is surely sown with a lot of thorns, but it is not sad; through even the sorrow, it is illuminated by joy.” -Blessed Pier Giorgio Frassati
My 91 year old grandmother contracted polio as a toddler. She spent her life with a partially paralyzed leg and arm, and when the vaccine was available she cried tears of joy as her 7 children received theirs.
Praise God for life saving vaccines.
We Have Done This Before . Get Ready to take the Vaccine. Stop The BullShit ! We Fly On Planes , Drive Cars , Eat Cooked Food Made By People we don’t Know , let’s not make this about some political statement . Protect Yourself/others . And Wear Ya Damn Mask and Stay Ya Ass Home .
My ten year old just read The Lion, the Witch, and the Wardrobe for the first time and he comes out of his room with this “Mom, do you think Peter is named Peter bc of THE PETER? I can’t handle this right now. My brain is blowing up.”
Last summer I asked you all to pray for 4 year old Kallie at her brain cancer diagnosis. A recent MRI explained her severe decline in the last month; the cancer is progressing. They have started hospice, but not given up hope. Please continue to pray for this young family. 🙏
My dear friend April is currently fighting for her life. Anyone who knows her knows what a phenomenal disability advocate she is and her passion for equality for all. Please pray with me for our warrior as she battles this awful virus. 🙏
#LaGov
#LaLege
#covid19
and it is precisely in these moments that we became our strongest, we learned to depend on God.
Caring for Connor over the past 17 years has been the highest blessing we could receive.
God created him perfectly according to His will..
This is my friend’s daughter, Kallie. She is currently at
@CHNOLA
and was just diagnosed with an aggressive cancerous brain tumor. Please add her to your prayer list. We are praying for a miracle. 🙏
Reminder to all admin, teachers, parents: as the new school year approaches please remember that students with exceptionalities have a right to be included, capable of more than you know, & want to be treated like everyone else. Go the extra mile for all kids. They are worth it.
After so many near death experiences when he was younger, never in a million years did I imagine Connor would live to see the day where he looks like a man. But here we are. And I could not be more thankful for every single day I have with him.
Happy almost Friday, y’all. 🩵
His mischievous personality, those bright eyes, huge smile, and his ability to draw others close to our Savior all without speaking a word.
Connor’s life has allowed us to see life differently, to use our voices for change, to embrace diversity, to fight injustices,..
About 10 yrs. ago Russell J. Ledet, top right, was working as a security guard at Baton Rouge General Medical Center when, on slow day at work, he asked a doctor if he could shadow him- that doctor said yes. What a difference a random gesture of kindness makes. 📸 Chris Granger
Newly ordained Father Ajani K. Gibson celebrating in the most New Orleans way ever!
Thank you Father for your JOYFUL YES! ✨
*video by Antoinette Guillory*
to advocate for those who cannot advocate for themselves, to freely and fiercely cling to Christ in every trial we face.
Every day I wake up and jump to his bedside to see if he’s made it to another day with us on this earth as I’ve witnessed just how fragile his life is..
Who would I have been without you? I ask myself this question often. I know I’ve changed in every way since you were born. I became who you needed, your voice, and your forever advocate. What a privilege it is to love and care for you, my boy.
#connorman
on too many occasions. And over the years, I’ve mourned with my friends over losing their precious sons and daughters. There is nothing I dread more, yet I know it will come one day so until then I praise God with every breath I have for every moment Connor John is here with us..
Their ‘bachelor weekend’ came to an end today. The house was still intact, no broken items, & they were all smiles.
I’m not sure what we did or didn’t do in raising our boys that has made them love & care for Connor so freely & openly, but I know I’m blessed more than I deserve.
But I didn’t share in his final words until later.
Through prayer and our beloved Father Mark, I finally came to understand: “Yet, not as I will, but as you will.”
Watching my precious son endure trial after trial was excruciating and reminded me I wasn’t in control,..
I finally went through the box of things from Aaron’s car. As I cleaned off each item I said a prayer of gratitude - not only for God’s protection over him during his crash, but also that these are the things my nearly 17 year old keeps in his car. What a gift
Day 12 since covid entered our home. It has made its rounds, but by the grace of God (and momma’s neurotic tendencies) Connor continues to be spared. He continues to test negative and is showing no symptoms whatsoever. 🙏
Thank you, Jesus.
This is from the doctor who built Connor’s immune system from the ground up, stopped his annual PICU stays in its tracks, and is our go to for info on vaccines.
He’s an intelligent, compassionate physician, husband, and father. Please read his words.
#COVID19
My sweet, joyful Connor broke his femur during a routine change today. His bones are fragile & any sudden pressure can cause a fracture. I splinted his thigh w/a orthotic insole & ace bandage. His nurse and I secured his leg in his chair & drove to CHNOLA praying for my boy.
Aaron said “Mom, if you or dad end up with the virus I’ll be good to go in a few days to takeover caring for Connor so don’t worry about that, ok?”
My 17 year old never ceases to amaze me. My gift from God.
Covid is in my home.
My oldest came home from school not feeling well. Thanks to a very special person I have some at home tests - he tested positive within seconds. He’s isolated & feeling ok.
However please pray Connor is spared. He’s vaccinated but extremely vulnerable.
Today my precious friend kissed her daughter for the last time on earth. Kallie battled diffuse midline glioma for the past 11 months. And today she met Jesus.
Please pray for this sweet soul, her mom, dad, and little sister Kora. They are so broken.
Today was Connor’s first day of school as a 9th grader. He won’t be reading To Kill a Mockingbird, he won’t be struggling with Algebra I, he won’t be learning Civics from a coach, he won’t be mispronouncing words in Spanish.
1/4
“What is it you want to change? Your hair, your face, your body? Why? For God is in love with all those things and he might weep when they are gone.”
—Saint Catherine of Siena
Our son was one when we divorced. The first few years were rough, but as we matured we learned the importance of putting our child’s well-being & security first. He knows he has four parents equally committed to his success who love him unconditionally.
And this is a huge gift.
Lord, make me an instrument of your peace:
where there is hatred, let me sow love;
where there is injury, pardon;
where there is doubt, faith;
where there is despair, hope;
where there is darkness, light;
where there is sadness, joy.
Connor is on his 18th tonic seizure in the past hour. I fear this means an illness is on the horizon. Please pray his seizures subside and whatever is causing this isn’t too hard on him. Thanks, y’all.
Connor man is out of surgery.
His gallbladder was severely inflamed with multiple adhesions which really complicated his surgery. It ruptured and broke in pieces causing him to lose blood and bile. They spent a good bit of time cleaning and washing it all out. And praise God it
Connor man has a gallstone lodged in his bile duct that first has to be cleared through an endoscopic retrograde cholangiopancreatography (ERCP). His GI doctor will perform this first, then the general surgeon will go in and remove his gallbladder. We are praying it can all be
Choice. What school choice will the vast majority of these students have? They’ll watch classmates leave to other schools that refuse them and we’ll have public schools full of students with the least amount of resources. If this were about the betterment of all students then we
I have no idea how my home fared, nor our cows/property, but my husband & loved ones are safe and well. That’s all that matters. We are spending the day watching local news online, praying for our neighbors, and thanking God we can be here to care for Connor. 🙏
#ida
#connorman
After three years of Connor taking miracle medical marijuana oil: 95% seizure reduction, increased stamina and muscle tone, regulated sleeping patterns, more vocal, more alert, more health, more life - all because of this plant. Forever grateful.
#lagov
#lalege
#advocacyworks
After years of advocating & lobbying for medical marijuana oil to be a viable option for my son & his horrific seizures, and so many others who are suffering, it finally became a reality for us today & my heart is bursting w/joy!
It’s a great day in Louisiana!
#lalege
#lagov
💚
After 7 months of appealing insurance denials, Connor’s new wheelchair has been approved. Mind blowing, I know.
Can winning insurance battles be a skill or accomplishment on resumes?
We began attending mass at a different parish for a few unique reasons & the priest mentioned he was in need of altar servers. This dude was excited to step up. He’s been serving every Sunday for almost 5 months now & it’s wonderful to watch his faith grow deeper with each mass.
People with comorbidities are not disposable - stop discriminating against them in your covid-19 conversations on which cases/deaths are acceptable. They are people with worth and dignity made in the image of God. They should be treated with respect, not disdain.
#prolife
May your week be as blessed as my 8 year old in his bedsheet cassock lifting his bible while singing the Divine Mercy chaplet on EWTN. A total
@FrHarrison
wannabe, and I’m digging it. 🙏
#catholictwitter
#proudmomma
My sister was a recipient of
@LouisianaGov
’s Medicaid expansion. In her final days on Earth we were so thankful for her medical coverage so she could receive the care she deserved. Thank you JBE!
#LAGovDebate
This dude’s 24 hr EEG in 2015 showed roughly 150 seizures.
His 24 hr EEG yesterday showed 6.
It’s a lost cause, they said.
Move to Colorado, they said.
It’ll never help, they said.
God had different plans. And the medical marijuana oil is doing its job. TY, Jesus!
#lalege
Today my friend Karibeth was laid to rest. She was only 32. She was a wife, mom to a 7 and almost 2 year old, an RN, and the most comforting soul to everyone she met. Her death was sudden and unexpected. Please pray for her husband, kids, and family. Unimaginable grief.
The new location is seconds away from the ICU. Seconds.
The previous location was hundreds of feet and stories away from the ICU.
I know this bc I’ve walked that route with my kid who was flown in.
My new followers, hi. I’m Katie. I advocate for the unborn, disabled, mentally ill, least among us. I overshare my life bc it’s unique. I’m not an R or D, I’m Catholic. I’m not political, I support people & sound policies. I have friends on both sides. Hope you stick around! ☺️
Today my first born turns 18 years old. It was just he and I in that first pic. Us against the world. Sometimes it still feels like that. This life of ours has molded him into an incredible man and I thank God for him every day. My precious gift, my Aaron.
He’s known most often recognized as Katie’s husband or Connor’s dad - but he’s also Coye the Army Ranger, protective services Sergeant, beef cattle farmer, and faithful Catholic. And he’s the best human I know. 💙
Happy Birthday, to my love!
Coop overheard the parents at HW committee saying making kids wear masks is child abuse and he said “Obviously they haven’t experienced real child abuse. Why are they are so unreasonable?”
It’s something how my 10 year old gets it and so many adults don’t.
Life not abiding by political party ideologies on twitter is fun.
Post about being prolife - lose some of my democrat friends. Post about social justice issues - lose some of my republican friends.
Thankful for the ones who can handle it all & stick around.☺️
Businesses: If you have stairs, please have a ramp. If you have a parking lot, please let it be concrete not gravel.
Before Connor I never noticed how inaccessible places were bc it didn’t affect me. Now it does and I’ll never stop talking about the importance of accessibility.
The first time Connor met Fr. Mark will forever be etched into my mind. He was unlike any other priest we had met at that time. He wanted to know all about him, he embraced all his sounds in mass citing them as Connor preaching the gospel…
1/3
My good friend & fellow
#lalege
advocate Kodi’s son Braden is in OLOL PICU w/covid. He fights on a daily basis, but is in the fight of his life now.
Braden is immensely loved & cared for by his beautiful family. Please pray for them as they enter the unknown.
#highriskcovid19
🙏
Today is
#RareDiseaseDay2022
for the rest of the world but it’s every day for this guy. Too many rare diseases, too many close calls, too many why hims. But in return we have so many smiles, so many core memories, and so many thank you God moments. Life w/my rare dude is blessed.
In your charity would you all pray for my Uncle Louis? He has numerous conditions and has covid. He’s on day 7 and just began struggling to keep his oxygen saturation at adequate levels. I’d appreciate it friends. 🙏
The day our family has been waiting for is finally here - the caboose to our herd immunity!
With the approval and encouragement of multiple doctors, Coop received his first dose of the covid-19 vaccine today to protect himself, “the elderly, Connor, and people like him.”
He started putting his arms through his shirt on his own when we dress him lately. And if you give him your hand he’ll grab it and use it to pull himself up.
It’s the little things most take for granted that are the biggest things for families like mine. And I’m thankful.
Something about that momma’s gut instinct.. It’s truly a gift from God!
Connor man’s gallbladder is either infected or no longer works. The way it’s affecting his enzymes means it has to addressed tonight. So now we’re waiting for him to be transported to CHNOLA. Good thing we
My grandma made the best vegetable beef soup. She said her secret ingredient was speaking kind words and stirring softly. According to my boys, I nailed it.
I don’t know of anyone who gets more excited and giggly at the consecration of the Eucharist than this guy. Plumb tuckered out!
*four weeks of receiving the Eucharist consecutively - thanks be to God!
First Christmas in 6 years he’s been able to find the tree, much less mess with the tree.
Medical marijuana oil means less seizures. Less seizures means more cognitive and physical development. More development means more LIFE!
Praise God for these blessings. 🙏
#lalege
🧵Don't let the smile, kick in my step, or bright eyes fool you.
Depression & anxiety aren’t always dark rooms, crying, or severe panic attacks. Sometimes it's getting up, going to work, smiling all day, & then coming home to sit quietly doing little to nothing until bedtime.
Instead of watching the VP debate, I prayed a Rosary for those in Southwest Louisiana and for Hurricane Delta to dissipate and change course. This is the last thing they need. Lord, hear our prayers. 🙏