Josephine Esisa
@Jo_siiey
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Strategist. Co-founder @digimark_uganda |SickleCell Warrior| Intentionally changing your perspective on Sickle Cell Disease | Follow @WarriorsClub5
Kampala, Uganda
Joined July 2013
An opportunity to be part of a public health policy table 🕯️.
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Sickle Cell really sucks the joy out of you. Here I am, on my birthday, in a painful crisis 🙄😭.
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Stay in your parents home for as long as possible; I don't think you are ready to fight a rat & cockroach.
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I'm officially curious, what do newly weds, talk about during their first dance.
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I carried my breakfast but forgot the laptop. PRIORITIES!.
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So many startups are going to lose opportunity for funding/ grants, coz who would want to invest in a business located in a country with this much political instability & insecurity. Heck no room for innovation or growth!.
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Check yourself if you think sexual assault stops at rape!!.
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Being strong and healthy;being able to go through each day without a worry of whether you’ll still be okay the next minute! Being able to plan for anything without worry that your body will fail you!.
What is a privilege that people act as if it isn't?.
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This year's #sicklecellawarenessmonth theme is Sickle Cell Matters, what better way is there to show that a warrior matters than to give back, let's raise 30M in the next 30 days to improve on the lifestyle of a warrior. #30in30 #sicklecellmatters #ourvoicesmatter
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Getting a #Sicklecellcrisis for a month or more, is the norm for most of us. In this episode Don shares with us his last experience.
Hey all, it's been a minute! Hope you're ready for another episode of #SickConversations. Join us in a heartfelt conversation with @don_magezi, who courageously shares his hospitalization experience. In this segment, he opens up about the challenges, fears, and profound insights
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How to show you care about a #SickleCell warrior in this weather!!.1. Cute but warm sweaters, jackets and jumpers. 2. Hot water bottles .3. Socks .4. Tea mugs. 5. Banange call and remind us to stay warm,we know it but we are big headed. 6. If things go south BE THERE!.
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I was heading home and then I looked at my outfit, the streets will see me tonight!.
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#ValentinesDay presents for a #Sicklecellwarrior.1. Hot Water Bottle ( To manage pain) .2. A cute Water bottle ( to encourage rehydration) .3. Nice sweaters, Jackets, Jackets ( to keep him/her warm) .4. Painkillers ( the good kind, like Gofen, Dynaper) .5. MONEY.
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We shouldn’t normalize pain. Pain is not supposed to bearable!.
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I'm tired of being strong.
4. Did you discover anything new about yourself this year?.
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I brought homecare health services to Sickle Cell Warriors under my organisation!.
EVERYONE INCLUDED :: Please brag to me about a thing you did in 2022 that you’re proud of.
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Sis, I'm going to tell you something, It 100% worked for me!! All you have to do is be brave and use ᵂᶦᵗᶜʰᶜʳᵃᶠᵗ 🤣.
How do women approach guys they're interested in?.
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@perolajanice @rachel___ayg Ahhh, I feel so seen, I'm constantly asking questions to understand, to analyse perspectives but somehow that's misunderstood!.
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Those close to me have seen how #SickleCell interferes with my life. And those who aren't can see how passionate I am when it comes to improving the lives of those living with #SickleCell. Help me make that possible this month through the #30in30 campaign.
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My true calling is to make the lives of Sickle Cell Warriors a little easier. Please like my project so I'm closer to making that come true.
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Ok people when someone tells you they have #SickleCell disease they are not looking for data on how many people have lost their lives due to #SickleCell . This "I had a friend that died coz of #SickleCell " needs to stop! It's not encouraging, we do not like to hear it!.
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My dad stepped out of his comfort zone and started something new. His farm produces these sweet watermelons and paw paws, ready to buy. Please retweet,he could be a supplier to someone on your TL
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Tried this today with my person, it's the Cafesserie for local food. 👌🏾.
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Try being an understanding girlfriend!.
Any weight loss recommendations that don’t involve workouts? Those things you’ve tried and they worked. Help.
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Doctors who ask so how long have you had Sickle Cell? 🚩🚩🚩🚩🚩🚩🚩🚩🚩.
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If you see me today, thank the lord that you did, I'm very beautiful.
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I aspire to become the rich girl that my friends think I am.
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I haven't refilled my gas cylinder since March last year! My water bill is as low as 4k; Am I an ant?!.
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September has been one humbling month. For starters I'd like to thank everyone that contributed to our #30in30 campaign,and much as we didn't reach our goal, the money raised is only the beginning to number of things we'll be doing to ease the life of a #Sicklecellwarrior.
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Guys the work we are about to do if we reach our #30in30 goal ☺️ . Sickle Cell Warriors will not know what neglect feels like ever again. #SickleCellAwarenessMonth #SickleCellMatters
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I was really made for the soft life. Any inconvenience stress!.
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#TheResident season 4 episode 7 did a great job representing patients with #Sicklecelldisease. If you ever want a simple way to understand our pain and what we go through, watch it!.
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As someone with the same condition, this right here is where it's at, the physical support is very important and she'll never take it for granted. Every warrior needs someone like you in their corner.
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@ImaniMulungi I was kind of an overachiever this week, completed a course in fostering change in health systems, recognised as a woman making impact in sicklecell advocacy on a global scale, interviewed by the nextmedia team! I survived the week too!!
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Me! Date a full time entrepreneur ☠️ Am I mad?.
Date people in your career. 😭🤌🏾 I promise you it’s nice.
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I don't know if I need a sugar daddy or I need to rob a bank 😭.
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We should all fear for the next generation of doctors! This constant need to shame their patients on social media as opposed to treating them, is only going to hurt the patients in the long run. What happened to patient - doctor confidentiality , more so empathy!.
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After this week's work, I now know that I just want to be rich housewife, I can't do this for the rest of my life.
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Almost got a car accident coz my #crisis found me driving; I got a sharp pain from the waist down and for a second I let go of the break! . On the bright side my nails are always pretty for a cannula☺️. #SickleCell .#sicklecelldisease .#SCDUnpredictability .#Sicklecellisreal
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What they don't tell you is that running a company involves asking yourself on a daily " Who asked you to do it? " You were fine under employment, but you thought ohh I can start something & be great at it 🤣. Emotional damage!!.
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I admire people who can sleep through the rain, rain for me, means my anxiety is going up! I start worrying about how I'm most likely going to get a pain crisis. I start thinking about the right clothes to put on, to keep the pain away, then it just becomes a cycle.
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Oftentimes, people aren’t interested in educating themselves about things that don’t directly affect them. #Sicklecell #Sicklecelldisease.
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Let's not get started on what happens when you disclose to someone you like that you have #SickleCell. But there are those out there willing to go the long way @don_magezi & @NicoleMagabo share what dating & sickle cell is like! .
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When dealing with SCD the patient’s voice is the most important one, no one understands what the patient is feeling but the patient! It’s important for medical practitioners to listen to understand not to listen to respond!.
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Humbled, I made it to this list!! Me to be recognised amongst these bountiful women from across the globe for something I'm very passionate about. 😭❤️.
Happy International Women’s Day. Today, we celebrate all women across the globe but most especially, the trailblazing women who are making significant impact in sickle cell advocacy.
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Can I say our dreams are slowly coming true 💃🏽.
We are delighted to announce our partnership with @BanzMedCare. We'll be working with Banz Medcare to provide home care health services tailored to the needs of warriors.
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For the past few months we've been working back and forth to create an informative and educational resource for #SicklecellWarriors. I didn't see what better day than #WorldSickleCellDay for the big reveal . #S4SickleCellLive.
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I am excited to speak at the @HA_Summit second International Virtual Summit for young adults with chronic and rare conditions about Sickle Cell Disease. This event is hosted on August 7-8, 2021 Register here:
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I asked for a girlcation or baecation, I got both, what more can a girl ask for 🥰
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Use the next 42 days to view our stories, to understand a #SickleCellWarrior , and to learn how to manage #SickleCellDisease . Visit #WorldSickleCellDay #worldsicklecellawarenessday #S4SickleCellLive
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👏🏽👏🏽 I keep saying, especially those people who keep asking why you opted for certain things, like as though it was their money 🙄.
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I've just read this " when someone says they are better alone, or feel good alone, it means they feel really unsafe with people " And I-.
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I met @kanyindo @rudende @missdeedan today. Is this the part where I say I've made it in life !! #30in30.
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💃💃 Honestly this has been my year.
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Kigali giving me the clarity and peace of mind I didn't know I needed.
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If your friend is a #SickleCellWarrior and you see him /her not as active as usual, he /she is not a buzz kill, he/she is battling with unseen pain and they are taking it easy so as not to make it worse !.
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The number one treatment for #Sicklecelldisease is a great support system. One that hears you, cares for you, and understands you. I'm so glad I get to experience this, in this lifetime!.
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Ngl a pain crisis makes you suicidal. Anything to not feel this!.
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I could caption this with an inspirational quote like "When Women come together with a collective intention, magic happens" by Phylicia Rashad, but I won't do that coz you can follow @UgWomen4Women to find out what this picture represents! 😊
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The worst part after a great night out for a #sicklecellwarrior is the anxiety & fear that comes after; wondering what's going to come next, or rather when does the crisis kick in! . Nwe it's public health week perhaps add an act of kindness to a warrior near you.
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Sickle cell fatigue is so horrible, heart palpitations, headache, body ache, extreme tiredness, small small walking and its like I've been running, then the high temperature! . Heh and napping doesn't help !.
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"Men never apologize for success, and women should learn not to. You’re not bossy; you’re the boss. You’re not arrogant; you’re in charge. It’s okay to be successful; you don’t need to say “I’m sorry” about anything.".
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Do yourself a favour, find yourself a kind, listening and understanding partner.
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More food for me, yeeeyyy!!!.
A husband rejects your food over a little misunderstanding and go to bed hungry ,as a good wife what will you do ?.
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But you people who keep questioning us on why we don't want children? Mbu, how can you live without seeing little you 🙄 why you can't you live without seeing little you? Do we question you on your choice, why is ours the one that's off the scale. Y'all just like scripted lives🤷🏽♀️.
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Ohh wow, honestly it's not necessary to attack some of us this way.
Lonely people take longer, hotter showers or baths to replace the warmth they're lacking socially or emotionally. 🚿
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It's very easy to say take the painkiller & you'll be fine. It's more than pain. It's life Interrupted!!!
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Elijah will finally be able to get a Bone Marrow Transplant and live a sickle cell free life. Thank you to everyone that contributed.
The #SaveElijah drive has officially ended. Thank you so much for standing with us. Let's wait for his surgery which is scheduled for April. May God bless you 💜🙏
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Can't believe I've given up my long time crush coz I have a boyfriend!!! 🤡🤡🤡🤡.
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Did you give the babe in red breakfast?!.
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His exact words were "I never want to be seen with a girl who's dying so take your sickly self elsewhere."
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Bringing this back coz it's my friends birthday 🤩 watch this episode coz it's on #SickleCell & friendships. Also @Bwomono's only wish this year is that you help me reach my #30in30 goal.
Caregiving is a significant public health issue affecting millions of individuals' quality of life. Caregivers play a crucial role in a person’s social or health needs. In this upcoming episode of #SickConversations, we explore what it's like to be a warrior's friend. #WTS
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This chick offered to take my picture. She took 10 photos of this, with confidence, honestly why? 😤
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The mental, physical and emotional strain #SickleCellDisease comes with, I can't begin to fathom.
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I started a #SickleCellAwareness platform, that got positive feedback, and grew at a rate I didn't expect. Most of all it's gotten support from places and people I never expected. cc @WarriorsClub5.
13. What wins & achievements are you proud of this year?.
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But with all these looks, how have I failed to attract a sugar daddy 😕.
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