Geoff
@Gebinh1
Followers
14,910
Following
12,481
Media
253
Statuses
12,738
MND WARRIOR. diagnosed with motor Neurone Disease Did love street food.😢 But loves to travel. Takeing one day with my amazing wife at time . SURPORTS NHS.
East, England
Joined February 2022
Don't wanna be here?
Send us removal request.
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So my twitter firends today is a sad day. I have been diagnosed with stage 2 motor neurone disease. What I thought 2 weeks ago was a sore throat. Was not. I actually lost my voice along with muscle wasting.. Its a wicked incurable diease. But I know you lot have got my back. 😊
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42 years as a plumber. 11 months unable to work diagnosed with MND Disabled No means tested benifits. After yesterday I feel so worthles My contribution to this country has meant nothing. Is it worth going on? Dragging my wife down with me.
The tories have done this. I'm broken
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This is my amazing wife And it's her birthday today🎂🎂🎂 without her amazing care and surport through this journey of MND. I doubt I would still be here. Please my twitter family could you wish her a wonderful birthday. And all carers .They so deserve so much more surport ❤️🙏❤️
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My new followers
I need to make you aware of one thing. As I had a tweet correcting my English. I apologise but I'm dyslexic and slightly autistic. This is why I chose to be a plumber 46 years ago as I'm good with my hands. So if I make a spelling or grammar mistake I apologise.
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That's it... No more more plumbing
Had to say goodbye to all my customers who I built up over the last 35 years. I was surprised how physically upset they were . My business has gone in the space of 3 months THANK YOU MOTOR NEURONE DISEASE. NOT.. 😢🙏❤️🙏
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So. My wonderful twitter family. The next step in my journey with motor neurone disease Diaphragm is getting weak. Night time for the moment. I'm hating every minute knowing there's no going back.
Please
#followback
before I run out of time. Awareness is paramount. Thanks 🙏❤️🙏
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#followbackfriday
. If you fancy following a old fart with motor neurone disease. And seeing updates in the progression of this evil diease. And detest this tory government and what they are doing to this country. Then I'm your man 😊😊
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Well it's only my birthday 64 🎂🎂 thought I post my beautiful birthday cake. Before my wonderful wife liquidizes my birthday cake into a milkshake.
F.... Motor neurone disease. ❤️🙏❤️ Have a lovely day my wonderful twitter family. 🙏❤️🙏🎂🎂🎂
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So Boris has potentially got another 3 fines pending but met police won't release details until after the local elections.
Unbelievable. Is this a stitch up. Me thinks yes...
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My wonderful twitter family. On the 28th of January 2023. I was officially diagnosed with MND.And given a DS1500 with a life expectancy of 6 months. I'm now comeing up to my first anniversary. I thought what better way to celebrate than do a tattoo.What do you think 🙏❤️🙏
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High my wonderful twitter family.
Just a update. Unfortunately M. N. D. is takeing a hold now over my muscles. So from a van three weeks ago. I'm now in my new wheels top speed 4mph.🤣🤣 . Least that's the end of speeding tickets 🤣🤣
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🫣🫣😰 Going into hospital early tomorrow (hopefully) to have 4 nerves burnt away in my back. To help with blood flow in my leg. Blood pressure is through the roof worrying about.. A few positive thoughts woukd be so helpful and reassuring. Thanks gang..
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A lady gave my wife a envelope and said please give this to your husband . She was a customer of mine 2years ago. Inside was a card and £100.
Inside was a message. I've heard your struggling financially. You were such a careing plumber that I want to give a little back.
F.. K MND
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Can I get to a hundred followers..... That would be a lovely surprise for my daughter. 🤣🤣 Who thinks I'm not capable because I'm to old. 😢😢😢
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TODAY IS MOTOR NEURONE DISEASE AWARENESS DAY.
It's been 6months since my diagnoses. And I'm struggling. 40years as a plumber and it's all gone. I Feel like a nobody. I can't express how I feel to my beautiful wife. As she is struggling in her own way So please spare a thought🙏
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Unfortunately Im dyslexic. Considering Im terminally ill, focusing my energy into spelling isnt my priority.
I find it upsetting that you feel the need to correct my spelling/grammar, when all Im trying to do is raise awareness of the disease.
You're welcome to unfollow 😊
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my wonderful twitter family. Unfortunately I lost a few followers. Pehaps it the reality of this evil diease (MND) theses pictures are 10 months apart. I'm lucky I'm still here many are not. If you fancy following or retweet my journey please
#followback
Awareness is paramount
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Why o why is there a media blackout on this. Democracy my arse......
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@WeAreCarers
My carer (wife) has just been refused her application by the carer unit (dwp) the reason given.... They do not believe she looks after me for 35 hours a week.!!!!!! I have mnd. I have nobody but my wife who dresses me. Washes me. Cleans my bum. Feeds me. Unbelievable DWP. 😢
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twitter family.A update to this journey suffering with MND had to accept through clenched teeth that this is my next stage in this disease. It's called the peg It's a feeding tube fought it for so long.But now struggling to swallow food
Please retweet and
#followbackfriday
🙏
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@SueSuezep
@adekela19
Thanks sue.. I been fighting since I become disabled. Contacted my mp. Fell on death ears. It's just a, struggle. You can only take so many knock backs before you realise that they don't give a flying fu.k...just a bad day. 🙏❤️🙏
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Hi my lovely twitter family.. Unfortunately I lost a few of you Perhaps its not nice to see what motor neurone disease does to your body.But awareness and understanding is paramount. The fasculations have spread to the thighs. If your interested please give me a
#followback
. 🙏♥️
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For all who like my post on my diagnoses of motor neurone disease. I will follow you back. The bigger the family the bigger the hug.
Thank you....
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Good morning my lovely family of twitters. In my journey of creating awareness of MOTOR NEURONE DISEASE. twitter has decided I'm in violation. UNBELIEVABLE.
Please bare with me. And I will follow back. All I wanted was to create awareness.. On this evil diease.. 😒😥❤️🙏❤️
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I can deal with dying. It's my wife I worry for. I love her so much. MND has taken away my voice but it will never take away my love and care for my wife. ❤️
@spicmaster73
One thing I can say is the last 15 years with my wife have been the happiest any man could want. Now it breaks my heart to see her cry and cry and cry. I love her so much. 🙏🙏🙏
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@RachelCurtis82
@Jeremy_Hunt
I wonder. It's a big ask but Could he cure my motor neurone disease.. I promise I will get a job if he can.. 🙏❤️🙏
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What a amazing warrior jhon was.. Another one of us slip away... You were one amazing man jhon. May you rest in peace.
May your family and firends have many wonderful memories of you for many years to come ❤️🙏❤️🙏❤️
I am sorry to inform you all our amazing dad passed away peacefully yesterday. He was a true warrior and inspiration to so many people we are so proud of him he made so many friends on this site so Thankyou everyone he will never be forgotten 💔💔
This was his favourite video 💔
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what have I learnt in the last year Being diagnosed with MND.
1. Do not rely on this government for surport.even though you paid your taxes for 42 years
2. Do not be married to a imigrant. for 16 years. You will be punished.
Thank you all so much for your surport. Happy 2024.
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Good morning all my wonderful followers.
This morning I woke up to a message from twitter i been put into twitter jail for three days for having to much activity on my account. Strange all I asked for was a few more followers. Bare with me when I'm released will follow back. 😊
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@robmcd85
. We are waiting on a decision for my wife. As I have terminal motor neurone disease. I'm unable to do a, spouse visa. I have no income now. My wife has lived here for 16 years but we are, waiting on a humanitarian visa for her. And we are so scared it going to be refused...
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M. N. D update. Yesterday morning I woke up and my right leg has stopped working 😥 it just stopped. No pain. Just stopped😡 Fasculations still running riot in my arms and legs..
This is all happening so quick. There so much I need to do..O la la
But still remain positive 🙏❤️🙏
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Hi my lovely twitter family. Been a while since my last update.. Motor neurone disease is doing it's thing😔 loads of sleep tests. Checking diaphragm. As this is affected by the motor neurones.And slowly stops the breathing muscles from working...Take care have a lovely day🙏♥️🙏
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I getting a few twats in my DM BOX. saying I'm lieing. 🤔 You will and are blocked.
Ooo. And please please don't get terminally ill. I really wouldn't like you to suffer.
@WeAreCarers
My carer (wife) has just been refused her application by the carer unit (dwp) the reason given.... They do not believe she looks after me for 35 hours a week.!!!!!! I have mnd. I have nobody but my wife who dresses me. Washes me. Cleans my bum. Feeds me. Unbelievable DWP. 😢
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To my amazing twitter family.
Thank you for all your surport. Your shares. And retweets. For helping to bring awareness to this awful diease MND. with your love and surport you have pulled me through some very dark holes. Please have a wonderful Christmas..love to you all. 🎄🤶
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Sorry my twitter firends. Even when your dying. Twitter imposes a follow back allowance 🤣🤣🤣 bare with me and I will follow back.... And thank you for all your kind messages and support it means so much to me and my wife 🙏🙏🙏🙏
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I would just like to say a massive thank you to all of you even the negative ones. For showing me that I am worth something. You are all my family In this journey of motor neurone disease. ❤️🙏❤️Please feel free to
#followbackfriday
42 years as a plumber. 11 months unable to work diagnosed with MND Disabled No means tested benifits. After yesterday I feel so worthles My contribution to this country has meant nothing. Is it worth going on? Dragging my wife down with me.
The tories have done this. I'm broken
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Hi everyone you have all been amazing I'm in shock... In a nice way.
Can't wait till Sunday when my daughter visits and sees all the lovely people who have chose to follow me thank you..
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We don't have a lot of hope
But guys this is just takeing the piss. You really don't care about the MND sufferers and there family's and firends
DO. YOU.
It's the only pill. That might give us a few months of extra life. 🙏
Let down again by this tory government.
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Just one amazing man. We the Motor neurone disease Comumity.. thank you so much.for the surport and care you show us all. Good luck.. 🙏❤️🙏
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A massive thank to all for the lovely birthday messages.. It really does mean so much. Let's hope they find a good drug for motor neurone disease ❤️🙏❤️
Well it's only my birthday 64 🎂🎂 thought I post my beautiful birthday cake. Before my wonderful wife liquidizes my birthday cake into a milkshake.
F.... Motor neurone disease. ❤️🙏❤️ Have a lovely day my wonderful twitter family. 🙏❤️🙏🎂🎂🎂
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Hi my wonderful twitter family. An update I have arrived in Vietnam. Starting tomorrow I'm trying a new plant based therapy patch. Which has shown signs on slowing the progression of motor neurone disease!! So nothing to lose. Will update as, we go through the week 🙏♥️🙏
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@Hepworthclare
Thank you clare.. Its just a bad day. Chest infection. Ear infection. And mnd.. And the constant red tape.. And this shit hole of a government. I will bounce back. Thank you for careing ❤️🙏❤️
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We have lost one amazing warrior Rob Burrows.😢😢
He worked tirelessly in bringing awareness to this evil diease MND.
Make he rest in peace and his wife and children have many wonderful memories of rob/dad for years to come...
Thank you Rob. For being there for us 🙏❤️🙏
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😢🤍🕊️🕊️🤍Another amazing MNDwarrior. Lee Farrar. Who was so neglected by the system has passed. shocking and sad. I tryed to fight for you Lee. But to no avail. Please rest in peace now🕊️🕊️ may your new life be a happy life 😢🤍🕊️🙏🤍
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Sorry guys I have removed my last post. At no point was I asking you for money. I was asking you if you knew any good charity's that might be able to help a dieing man.
Twitter has changed. It's not a nice place. Very judgemental. To which I know longer want to belong. 😢😢😢😢.
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@IAPonomarenko
I need to say this. A massive thank you for giveing the world a minute by minute account of what really is happening in ukraine. I thank you sir and pray for you and your fellow citizens and colleagues... 🙏🙏🙏
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@lindaleitchman
Sorry it's just not a good day.. Chest infection. Ear infection. Mnd I feel I'm such a burden to this system. And knowing that there's no comeing back from this evil diease it makes me think. The hurt and sadness in my wife's eyes breaks me. Knowing we not getting the surport. 🙏
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Please could you sign and retweet. As I am going through this process. Never claiming a benefit in my working life. I can't believe how insensitive the government are to terminally ill people. through no fault of there own... 😢😢😢 The process is so hard pleased sign. Thank you
@Gebinh1
hope your keeping well ,would you ask your followers to sign & re tweet as this affects us all & terminal means terminal.I need to get to 10k to get the government to respond
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What a man.... Your strength gives us are strength to fight to enjoy every day ..As motor neurone disease slowly takes are muscles away. And then are lives 😥😥
Thank you Kevin... Allways in are hearts. ❤️🙏❤️
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Sleepless night because of bastard jhonson.
So I made a decision. As a plumber Any jobs I go to and the customer SURPORTS Boris. They will be charged double rates. The extra money I earn will go to the local food banks.if you can afford to vote tories you can afford to pay double
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He lied to the people. He lied to the house of commons. He lied to the queen. What the hell do we have to do to get rid of him....
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Sorry but I need to say this. This guy is amazing and you my twitter family need to retweet the hell out of this.
This is where the awareness comes. Not from the government but from amazing people like Ian Marsden thank you. 🙏❤️🙏
#isitok
I’ve just handbike from Frankfurt covering 5 countries and finishing at the leopard rugby league stadium raising money for Rob burrows and MND
@TheLastLeg
@alex_brooker
@adamhillscomedy
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Update 😢everything was going so well. Chinese nerve burning brilliant. Chinese herbal teas brilliant. Saw a improvement in M. N. D fasculations.
AND THEN BOOM COVID.
Now no power. No smell no taste struggling to breath. 😭One step forward three steps back. I just want to cry..
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@gallagherj82
So a polite note on the windscreen stuck with superglue. Saying please do not park across my drive way
It will take ages to remove the note completely. If they ask why superglue answer you didn't want the wind to blow it away again like last time..... 😊
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@PippaPippapoppy
@TheStephenRalph
It's just so sad. Incurable and it takes away your voice. I had a brilliant life with my wife so worries about passing. But it's my wife I cry for. 😥 She's broken and can't stop crying it's so sad. 🙏🙏🙏
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😥😥So sorry to see this James. You deserve sympathy. As this is the reality of motor neurone disease. We as a community surport you in a speedy recovery.. Take care 🙏❤️🙏❤️🙏
Not posting for sympathy but for awareness of
#mnd
. Took a fall on Sat night. Fractured jaw and broken finger. Behind the fundraising is the reality of this disease.
@MNDoddie5
@mndassoc
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@spicmaster73
One thing I can say is the last 15 years with my wife have been the happiest any man could want. Now it breaks my heart to see her cry and cry and cry. I love her so much. 🙏🙏🙏
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Hi my wonderful family. Just a M. N. D. update muscles are slowly disappearing on the right side of my body. Everytime I use my arms they tire so quickly. The fatigue is unbelievable. But it's not a sleep fatigue . It's a body fatigue horrible feeling. Fasculations have spread 😥
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@thejustjane
Yesterday in ho chi minh Vietnam . Shopping centre we were wearing are masks with most properly 90% of the locals. There is no directive to wear a mask. People are doing it at there own free will.
Ie.. Being sensible...
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I would like yo ask my amazing twitter family if you would take time and follow this amazing person
@UnsungheroMark
. He is in the process of doing some amazing work in bringing the awareness to
@rishisunak
to the terminally ill people of this country..... 🙏♥️🙏
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Totally agree. This is a fix by the big boys in itv...
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Good morning my lovely twitter family.... Well I started the chinese herbal medicine one is a pungent tea For nerves. And the foot bath is a plant called mu chi fong to help with muscle cramps. Fasculations and foot drop..Later I start burning needle therapy wish me luck 🙏♥️🙏
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Finally a little bit of good news in the Essex area..we have a new mnd specialist nurse. Starting this week.. Why i hear you ask.
Because the rates of people being diagnosed with MND has increased so much it is now viable to employ a specialist mnd nurse.. This is scary. 🙏❤️🙏
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Disgusting... People who work for are amazing NHS Deserve better.... But they definitely aint going to get it with this government .
GENERAL ELECTION NOW. ❤️🙏❤️
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Every second. Every minute. Every day. Every month this is happening. Motor neurone disease it's not nice. There is no where to run. 6 months without any let up.. It gets you down. But it's
#followbackfriday
so if you want to see a old fart on this journey please follow back.
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Hi my amazing twitter family. A update in my progression of MND
The fasculations have now spread to my arms and hands 😢😢.
Please mircrofils release this data. And give us an answer. We are not asking for a lot... Are we??
To many of us are dieing while waiting in hope
🙏❤️🙏❤️
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@doctor_oxford
I have MND.. and I can assure you I will not allow my family to suffer At the point where I'm locked in. This is my decision backed by my family.. I know I'm dieing I rather go respectfully.. Than die unable to make that decision. I whole heartily surport assisted dieing. ❤️🙏❤️
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This is disgusting. I myself am terminally ill. With a DS1500 in place. At 63 I will never see my pension. 45years of contributions. Where will it go. In some fuc. ing torie pocket no doubt.
It needs to change now. 🙏❤️🙏
Just been told that Tammy Prescott has sadly died. Tammy and her husband Lintyn accompanied me to Downing Street in February. Tammy & I handing over a petition to Number 10 calling for changes to stop people like her dying in poverty.
Tammy had been undergoing intensive
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Hi my wonderful twitter family and new followers. It's such a shame a picture of a cute dog can get 60000 views but and old fart like me trying to bring awarenessto mnd can only get 1000 views and a handful of new followers. I can't afford a blue tick. But you guys can help. 🙏
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Happy Chinese New year to all my amazing firends who have surported me through this difficult year
M. N. D. WILL NOT BEAT ME.
THANKS TO MY AMAZING
CHINESE WIFE.
🙏❤️🙏
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No pictures of muscles wasting away. Just a beautiful Hat complements of
@ClubMerchandise
..
Please repost and spread the word
#followback
. The bigger the crowd the bigger the awareness we need hope we need drugs we need surport now.. Thank you all so much for following ❤️🙏❤️
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Hi my wonderful twitter family. Update started Chinese burning therapy. To stimulate the nerves. This is a full body process. Very painful in places. But they made my left foot twitch!!! amazing. An hour everyday. You never know... Will keep you updated. Let's beat MND ❤️🙏❤️
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Unbelievable 422 people died.. and no reports.
@danwootton
Do you know that 422 people died from Covid today? Over 41,000 people have Covid today. That's just with the scant amount of testing being done today. How many more people have it & are passing it around because we're not testing. And you're celebrating that.
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Apparently I reached my limit on who I can follow today. Please don't worry tomorrow I will resume following all of you who I have not been able to today.. Thank you all of you. You been so kind...
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So he is the deal I'm in twitter jail for three days. But I found out I can follow 1 person roughly every hour or send a tweet roughly every hour. And I can like as much as I like. Very very strange. So am I on a suspended sentence 🤣🤣🤣
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Got to love the ignorance of people who do not understand motor neurone disease. And how if affects us.. Wake up and do your research before you make these kind of comments. 🙏❤️🙏
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So.... I do not know what I done or said but over the last few days I have lost 300 followers 😢 I am very outspoken as regards to MND. As I belive we need to have a voice. So I will not stop confronting the issue we face on a daily basis.. And if it upsets you.. Tough.. ❤️🙏❤️
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Hi to all my firends on twitter. A update all when very well. Little proplem with blood. But I have a, warm foot and toes again😊😊😊 I'm so happy. Unfortunately just have to wait a further 15 months for the other leg. Staff were amazing thank you NHS your my celebrity's 😘😘😘
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SIR KEVIN.
Thank you so much. You and your team are amazing people. I thank you from the bottom of my heart..
I'm suffering with MND. and seeing you do these amazing things.
GIVES ME HOPE.. ❤️🙏❤️
Sleep well Kev, a little hug and thanks for all you do for your beautiful friends in the
@mndassoc
community xx
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So I bought my darling wife a beautiful expensive easter egg. ❤️ She didn't buy me one. 😥 Not a problem
But the sad thing is I just caught her in a darkened bedroom eating the easter egg as she did not want share🤣🤣 bless her. Why I love her so much.. ❤️❤️
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So it's OK to give loads of visa to Indians. But not to desperate Ukraine family's not to clever it minded refugees. Its, appalling I can't get me head around Boris's thinking pattern. And sorry to repeat but this is a country that SURPORTS RUSSIA..
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Unfortunately Pehaps not nice to see. But this is the reality of motor neurone disease. Not just for the suffer. But there family's and firends.. Please be aware.. 🙏❤️🙏
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Another warrior leaves us. And so young 😢😢😢 to many are passing.. Millions and millions of money but nothing. Everyday my hope gets smaller...... 😢😢 I just want to cry... Not die... ❤️🙏❤️
27-year-old Elena died yesterday of
#ALS
, 1 year after diagnosis, WITH NO CHANCE OF SURVIVAL
@DrCaliff_FDA
&
@FDACBER
Peter Marks, the hopelessness of families & blood of ALS are on your hands
#FDA
regulatory RIGIDITY has left ALL w
#100PercentFatal
ALS to die
#NurownWorks
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This amazing woman has been a inspiration in my journey with MND. Please give her a follow. Plus it's her birthday today. So let's make a good one for her..
Fuc. You MND.
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I know there are a few not very pleasant twitters out there. But I love my Vietnamese wife with all my heart we have been married for 16 years. I have never claimed a benifit. I have allways surported my wife and i. I did not choose to have motor neurone disease. But she is my
@robmcd85
. We are waiting on a decision for my wife. As I have terminal motor neurone disease. I'm unable to do a, spouse visa. I have no income now. My wife has lived here for 16 years but we are, waiting on a humanitarian visa for her. And we are so scared it going to be refused...
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@heartofthenorth
Thank you so much.. The consultant has put on a new drug called riluzole. Which hopefully can give me a month more of life..... But thank you for careing..... 🙏🙏🙏
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What a Amazing Man. Along with his family. They really put MND on the map... Rest in peace Rob ❤️🙏❤️
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Amazing powerful words....
Quite simply general election now.. Its gone to far.... My wife is not a criminal... ❤️🙏❤️
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Today is my wedding anniversary. And I woukd just like to say. I'm married to the most amazing woman. Nothing is a problem. Caring. affectionate. Understanding
And she deserves everything plus more.
Thank you for an amazing 15 years
❤️❤️❤️❤️😊💕🎉
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@RobservationsUK
Again this question shoukd not be raised. I am dyslexic struggle with spelling words. So rely on predictive text to help me. But at 62 I struggle with the grammar police correcting me. When they do not know my personal issues.
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These are the facts. And this is reality. I know some don't want to see it... But please remember it Coukd be you. Or a loved one. One day gets a devastating diagnosis... We all need surport. In horrible times. Don't you think!!!!!!🙏❤️🙏
IF YOU THINK THIS IS WRONG PLEASE RE TWEET TO
@RishiSunak
,BELOW SHOWS THAT TERMINALLY ILL PEOPLE THAT LIVE LONGER THAN 12 MONTHS ARE NOT ENTITLED TO FAST TRACKED BENEFITS BUT HAVE TO WAIT UPTO 14 WEEKS FOR THEIR CLAIMS TO BE PROCESSED.
PLEASE RT AS MANY TIMES
@SkewSmug
@Gebinh1
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One amazing man. Rest in peace Rob. 🙏❤️🙏
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To all you wonderful twitters out there. Yesterday was a day from hell. For many reasons. I was given a SR1 from my palliative care nurse.😥
I can't renew my wife's visa as I do not have a income.
We cannot claim benefits as my wife has no recourse to public funds even though
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@mikolmelo
@AnneLaird31
Sorry. Unfortunately I was born dyslexic. And slightly autistic. I rely to much on my auto correction. But sometimes it fails me... That's why I trained as a plumber 46 years ago. Because I was better with my hands than I was with my brain...
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