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FND Portal - this account is no longer monitored Profile
FND Portal - this account is no longer monitored

@FndPortal

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Following
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A person with Functional Neurological Disorder. Disability advocate. Patient advisor to research, clinical, + policy teams at FNDS, AAN, UCL, KCL, NHNN.

da brain
Joined November 2018
Don't wanna be here? Send us removal request.
@FndPortal
FND Portal - this account is no longer monitored
2 months
Thank you for everything, friends - the community here was remarkable while it lasted. But Elon has destroyed this place. So I’m out. See you on other platforms.
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@FndPortal
FND Portal - this account is no longer monitored
2 months
@sarah277283 I hear what you’re saying but I’ve maintained a growing block list for years and have reached the tipping point with all the toxicity, scams, AI, engagement bait. Best wishes 👋
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@FndPortal
FND Portal - this account is no longer monitored
2 months
@KH118118 See ya there!
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@FndPortal
FND Portal - this account is no longer monitored
2 months
@DrAnnieHickox 🫡🫡
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@FndPortal
FND Portal - this account is no longer monitored
2 months
@gar_mcguigan Very much likewise, friend! ❤️ I look forward to the moment
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@FndPortal
FND Portal - this account is no longer monitored
2 months
@SarahFPoetry Bluesky and insta! See you there? 👀
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@FndPortal
FND Portal - this account is no longer monitored
2 months
@thepeacepoet99 I can’t imagine what a miserable person you must be to spend this life - the only one you’ll ever get - doing this! Just know that contributing to the oppression of vulnerable people will never gain you the acceptance you so pathetically seek.
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@FndPortal
FND Portal - this account is no longer monitored
2 months
@ivy_cardinal @thepeacepoet99 That’s not what it means. But clearly you know a lot about this - by all means don’t let me get in the way of your bigotry!
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@FndPortal
FND Portal - this account is no longer monitored
2 months
RT @APAPubJournals: Patients with functional neurological disorder have altered neural activations during cardiac interoception, highlighti…
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@FndPortal
FND Portal - this account is no longer monitored
2 months
RT @leafs_s: eLife When abstract becomes concrete, naturalistic encoding of concepts in the brain
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@FndPortal
FND Portal - this account is no longer monitored
2 months
@SarahFPoetry I don’t know, considering many top people in the Trump orbit talk around rounding up and jailing / killing those that disagree with them, I think “Lana, how do your values square with that?” is a reasonable question. Many of us grapple w this in our own social circles
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@FndPortal
FND Portal - this account is no longer monitored
2 months
@Z3R0Gravitas Hope this isn’t presumptuous. I’m rooting for you. 🙏
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@FndPortal
FND Portal - this account is no longer monitored
2 months
@Z3R0Gravitas You are not a wuss. This sounds hard! Please allow yourself some compassion. This would suck for anyone.
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@FndPortal
FND Portal - this account is no longer monitored
2 months
@mdonnino @CollinRugg @greygnome That’s the elephant in the room on this issue. Don’t know Mangione’s med history but the overall success rate of “surgery to fix back pain” is grim. Interoceptive inference potentially relevant too - anxiety not always required for CNS to perpetuate pain after injury.
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@FndPortal
FND Portal - this account is no longer monitored
2 months
@the_jono_brand And if you’d like to connect w folks, there are small but vibrant FND groups + communities on most social platforms (although a bit of an exodus from X lately). Recommend @FNDHopeUK @FNDAction as great first follows if you’re interested. Best wishes 🙏
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