healthcare educator, Population Health, RN/RM/ MBA. Ex-runner, cyclist, Perpetual Eye Roll since Jan 2020. You might know me on other platforms
@TiredT
.bsky
Breaking my socials break coz where else can i rant!!
It Finally happened! Someone educated asked my why i was in a n95! A anaesthetist stopped me on my walk & said we wear those n95's in theatre.. why are you wearing it?
One of my
#LongCovid
long distance runner contacts from wave1 2020 who was mostly recovered has had a stroke post a slow 5km.
Left sided loss & Can’t speak.
Tell me how we have prepared for the long term aftermath of
#LivingWithCovid
The ignorance is staggering
LISTEN UP ‼️
My inflammatory markers are coming down‼️
Also my leukopenia & thrombocytopenia have improved ‼️
Could it be??? Recovering???
BRING IT ONNNNN
🔥🤞🤞🫶🏼
Sometimes i think back to my fresh-outta-Wuhan infection Jan 2020 & how i knew immediately when the fever & amnesia hit I had something very unusual & saw here on twitter in real time what was unfolding in wuhan & isolated myself for weeks in fear of infecting others.. 1/
It still blows my mind how so many people from every walk of life continue to believe in the-before-times of soldiering on/ pushing through/ push boundaries/ breakthrough thresholds when this pandemic has proven to debunk this narrative & causes incurable harms 🤷♀️
So apparently a
#LongCovid
clinic in
#CovidVic
is offering suffers “Music Therapy”.
Imagine fighting for your life, organs in trauma & using what minimal life force energy you have to get to a major hospital & leave with a literal “LongCovid Remix Tracklist”. 🫠
And now no one gives damn about infecting me or the complete desolation of my life & everything id built & every wonderful thing I had coming. Now no one cares who they harm, they think lockdowns & masks are the enemy, they cant even see past it too see their own SC2 damage 🤯/
Everyone wants to believe Covid is mild and
#LongCovid
is some minor irritating loss of taste and a bit of tiredness vs the reality of needing wheelchairs, having brain damage & dementia symptoms, fibrogen blood clots, heart & lung damage... you people are completely screwed
Tell me about the times you KNOWINGLY avoided infection despite close contact.. I need to life admin today in the petri dish & im scared... i have sick neighbour coughing & just heard neighbour upstairs talking about nurse visiting his mum..
I finally got reunited with the ocean today! It was magnificent!! The water was crystal clear & i saw heaps of star fish & fish!
Im kind of in shock.. I can't believe ive been
#LongCovid
invisible to the world for 4+ years 😭
Ive lost count how many times I've been met with disbelief that my
#LongCovid
health got worse over time (?degenerative) OR disbelief that Im only at around 50% pre Covid health. People almost think there must be 'something else' wrong with you for failing at being healthy🙄
Here me out here... but What IF all of us with
#LongCovid
are just the ones who developed symptomatic sequela due to Covid embedding into bone marrow quickly and that it may just take a whole lot longer for others infected to succumb to the same? 🤔🥴
World leading immunologist Professor Danny Altmann has declared the future burden of long COVID to be "so large as to be unfathomable".
He has published a scientific review of long COVID in Nature:
Listen to the full podcast here:
Im scared to say/type it out loud but ive had the most amazing
#LongCovid
day today.. my 2nd day on LDN & i hope this trend can continue because i might just reach a semi- reasonable QOL if it does
Dr. Fauci: "Put aside this nonsense of making masks be a political statement or not. We know it works. We know social distancing works. We know avoiding congregate setting works. For goodness sakes, let's all do it and you will see that that curve will come down."
Some of our best & longest
#LongCovid
advocates & educators are exhausted from screaming into the void & the professional moral injury that comes with watching the continued failure to be heard while human body counts climb. We don’t get paid. We want better.But we’re done
Thank you everyone for your support. I have to limit my social media interactions to maximise my chance of recovering- & practising medicine again! If you have a question, I request you to look at the
@Linktree_
in my bio first. I will update this regularly with new links 1/n
In RARE good news from me.. 48hours later & my vaccine has already improved my
#LongCovid
baseline health.
I can get some chores done today, maybe meal prep.. maybe do my nails 💅
#TreatYoSelf
#ViralPersistence
What hellscape is this??
LC Blues?? Seriously???
Ain't no one signing up for this rubbish as you so evidentially have zero clue. How embarrassing 🤦🏻♀️
Just here to say I feel terrible today
#LongCovid
is the absolute pits!
Microclotting
#LivedoReticularus
is back with a vengeance. I’m dizzy, I’m inflamed & arthritic, I’m so tired that moving is hard.
No one deserves this misery & suffering
#GetVaccinated
#CovidVic
@9NewsMelb
@9NewsAUS
@ChristineAhern
Disgraceful reporting again! People needing to hide identity from repulsive Australian media reporting. Stop it! Australians deserve better!!
Out of my
#LongCovid
closet because i no longer care about my David & Goliath fight against both old & new public health colleagues & pll in high places.. because 4.5 yrs into this it couldn't be clearer who is & continues to be a failure.
@SavingBooks
Sorry to hear Amy & thank you for bravely sharing this with us all. I hope they find treatments & in time improvement. Doesn’t help now though & the fear & the grief is very real. Go gently 💐💚💫
@daniel__b8
@criprights
There are a helluva lot more of us than there are of John Gerrard.
He’s a hack and a pseudoscientist who is desperate to hang onto his fiefdom.
We have an ever growing voice that echoes globally.
We will not be silenced.
We will not accept political propaganda.
One thing I’ve never see another
#LongHauler
mention or was it only me who for months continued to see shadows & movements out the corner of eye/ field of vision/ in peripheral vision. Creepy
#LongCovid
👻
Sick of coming down with COVID? It might be time for salad! 🥗
A new study has revealed vegans and vegetarians are less likely to catch COVID-19 than meat eaters.
HERE'S WHY:
#9News
I'll never forget being laughed at by an emergency Dr with a red purple Livedo Reticularis rash slowly taking over my entire body and lower collapsed lungs when I told her I had acute Covid 6months earlier in Jan 2020
One of the biggest failures in this pandemic has been in the way
#covidsurvivors
have been left to heal themselves.
#LongCovid
is disabling beyond what others can even fathom & we don’t recognition or at very least decent pain relief
#TreatLongCovid
Over 280 professions are struggling to find enough workers - from carers and cooks to electricians and early childhood educators. And Australians are feeling it.
Frankly, that's what happens when you cut funding for TAFE and apprenticeships for a decade.
I'm having an AWFUL time rn. Last night I seemed to get worse by the hour.. strange inflammation rapidly taking over various joints & tissues, perioral blisters spread to eyelids & swollen eyes, insomnia due to pain.. am I in a delayed cytokine storm? Virtual ED and 🙏🤞💫
Are many folk on LDN? I just reached my increase dose stage & although its still early & microdose days.. I've had energy gains & I'm slowly deflating my inflammation- Everything slowly coming
Cracking back into place?
I crack like a glow stick but im still not glowing 😅💫
Terrifying night last night, felt like my entire upper body was in a vice, SOB & 11/10 pain. Couldn’t lay down/ sleep. Nearly called an ambulance thinking I was having a cardiac issue (but HR was normal). It was a terrible relapse of
#LongCovid
Costochondritis 😫 so much pain
My longterm battle with tongue & mouth ulcers (a clinical signal of immune deficiency) is coming to an end... they have finally healed.
When you know... You know!
I couldn't be more relieved 🫶🏼
Just received news that our
#LongCovid
grassroots ngo was unsuccessful in securing some chump change gov funding. Honestly feels like a WAR against those of us trying to make any progress in LC in n AUS. Absolutely mind blowing stupid & devastating at the same time 😞
Felt well enough to take myself to the beach today 🏖 my 2nd beach trip in 2yrs as too sick with
#LongCovid
Unbelievable for me as I used to live bayside & live for the ocean. I only lasted 75mins but it was glorious. Life can certainly deals some blows 👊Sigh.
My new flex is making friends with mask wearing elderly & vulnerable ppl in my community, who seems genuinely shocked then delighted to see a young person in a n95. Probs glad to see not everyone wants to decease them.
Also WTF are we doing????
#CovidAus
Imagine thinking you're so special you can demand people stop using the term
#LongCovid
See how they want to disappear their accountability & appropriate action with saying LC is not new???
🎪🤡
What a coward clown
#QueenslandCHO
Gerrard is, he is either so narcissistic & sociopathic that he can't comprehend emerging medical evidence from more elite experts or he is doubling down on his incompetence
#Auspol
drain your swamp
#LongCovid
The "Icon Of The Seas" sets sail in January 2024. 5610 passengers, 2350 crew members, 5 times larger and heavier than the Titanic, 19 floors with more than 40 bars, restaurants and bowling alleys. What a monstrosity!
Told Ya!!
Been saying it since 2020… I could literally FEEL my biology altering & it was observable in how my body reacted post infection to medicines/ foods etc compared to pre infection.
What will Covid do en mass to human evolution????????
🤷♂️
“This particular finding is quite unique and has not been seen in other coronaviruses before. What we found here is a unique mechanism of SARS-CoV-2 that is associated with its severe impacts on human health.”
@drajm
Its why I scream about the cognitive dysfunction. I stopped driving & knew I was not capable of safely moving around the world let alone caring for others or making big decisions. In
#LongCovid
this can go on for a very long time.. life is about to get v dangerous
Has there been any connection between COVID and sepsis? I've now heard of a few people being hospitalized for sepsis after having
#COVID
, but their doctors are denying any connection
#medtwitter
South Australia is being hit with a triple whammy of viruses, which has health authorities increasingly concerned about the slow rates of vaccination.
Reported cases of RSV, flu and COVID are all on the rise.
@Dylanjohnsmith3
#9News
Wonder how they'll spin this now..
Viral persistence is nothing new... we have to live with it.. literally inside our bodies.. as it feasts upon your organs & disrupts your biology..
‼️ NEW
@TheLancet
: MORE EVIDENCE that COVID is chronic
@microbeminded2
says “the fact that every new COVID infection has the potential to become chronic is perhaps the single most concerning aspect of this virus.”
@NjbBari3
I saw an infuriating article pop up in my Apple News feed recently with almost anti mask headlines but wash your hands.
Turns out the study was with surgical masks- no mention of n95s.
Disgusting manipulation of prevention & facts
Its getting real hard to feel sorry for you..
1. Your not masking, 2. You haven't lobbied for you or you patients rights to clean air & safety from HIA & 3. You've reinforced CHO Gerrards delusions of grandeur that the pandemic is over. Perhaps you all need an industry change?
Fears for patient safety as 90% of doctors battle burnout. By Sarah Booth
"More than 9 in 10 junior Victorian doctors fear making a clinical error due to burnout and fatigue, a shocking new survey has found."
Source:
Abusive.
This entire timeline feels abusive. As optimistic as I've tried to stay since 2020.. i was lying to myself. It was dismissive & abusive then & its even worse and comes from every direction now.
Battered.
Professional & Human Moral Injury.
Dark Ages.
#LongCovid
Today is International Long Covid Awareness Day. Pandemic Resistance Inc. is committed to recognition of the experiences of those with Long Covid and aim to spread awareness of the risks so that fewer join the ranks of those suffering. We stand with you today, and everyday.
Sam bravely sharing the truth of what
#LongCovid
does. It's incredibly terrifying going from a full high functioning human to a losing your basic human functioning & ability to communicate.
Whats even more shocking is anyone claiming this is comparable to a flu ❤️🩹
Part of my
#LongCOVID
story: 4 mos into being sick I started to have speech issues. My husband recorded me speaking w/my mom so that we could share it w/doctors. It’s painful to watch this (April 2022). It’s taken ~2 yrs to share. This clip is P1.
@LCawarenessInt
@C19LH_Advocacy
@phyllis_fu
Oh Phyllis this is awful 😞 Take good care of yourself. I know it’s not going to take the hideousness away.. but Just know that most of us are doing all the right things & want the best for our healthcare system & its people 💚💫
Queensland GPs flooded with patients reporting heart problems after long COVID. By Jackie Sinnerton
“We are now seeing the impact of long COVID which makes it clear that Queenslanders should be more aware of taking precautions."
#COVID19
#LongCOVID
"Gerrard Could Not be reached for comment"
How is this Quack receiving a $300k + pa tax funded wage to HARM Australians (& Global) health & have the AUDACITY to take zero responsibility for his actions?????
#Auspol
#MedTwitter
#LongCovid
I actually find Australia's Covid denial one of the worst in the world... up there with USA.
Our media & politicians here deliberately told the public Covid was over & to live with it way earlier than other counties and made PCR tests hard to get. Must be so proud 🤢
Some Australian schools return to remote learning due to Covid.
"Covid is still very much with us and causing havoc at some Sydney schools. Braddock public school and Tongabbie East school have brought back online learning after a surge in covid cases."
Happy New Year tweeterino's! 🥳
My 1st matter of business for 2024 was locking my account to achieve only the best this platform has to offer having access to me...
So Congrats for making the Cut! 🎉💫😆
i know i have ALL the tools & knowledge to protect myself.. my x3 series Novavax should be covering me a bit longer yet. It's not getting infected & dying that scares me.. it's getting infected & surviving and resetting my
#LongCovid
hellscape all over again 🥹
Actress Salma Hayek revealed she had a life threatening case of COVID-19 (5/2020) & suffered from
#LongCOVID
.
“My doctor begged me to go to the hospital because it was so bad,” Hayek said. “I said, ‘No, thank you. I’d rather die at home.’”
#pwLC
#LC
🧵🧵🧵
@Gronnet
@CounsellingSam
I’d prob add its quite possible more
#LongHaulers
are actually the humans who can’t seroconvert & also can’t mount adequate effective immune responses and so therefore increase likelihood of viral persistence &
#LongCovid
just my 2c possible hypothesis for some of us
Thank you to the panelists and every person who tuned in to the long COVID hearing this week. This serious issue has not received the attention that it deserves from the medical community, from the media, and certainly not from Congress. It is past time that changes.
I'm having some very strange
#LongCovid
symptoms rn.. def inflammation is out of control.. but I have a very sore back of throat & mouth into molars each morning (? Reservoir). Back of ears, parts of head dull pain & some lymph activation. And random sudden onset joint inflam 🥹
Breaking news in
#CovidAus
aka the story NO ONE IS REPORTING
#MILD
#LongCovid
always was & always will be the mass disabling pandemic within the pandemic
BREAKING! U.S. NIH Study Shockingly Reveals SARS-CoV-2 Viral Persistence Throughout Human Body And In The Brain Even In Those Who Were Asymptomatic! - Thailand Medical News
I can't remember if i bothered with a xmas tree last year, i know Dec 2020 i was still stable enough to 🎄but the following yrs declining prob not.
This year I will have a tree & decorations & Christmas cookies. I imagine many in the
#LongCovid
community will have this
I noticed the people who screamed about the
#CovidAus
lockdowns causing mental health issues & suicide are completely silent on it happening amongst those living with
#LongCovid
and immunocompromised or otherwise vulnerable.. it’s so strange
Remember all those covid minimisers who made a big show of being concerned about cancer patients earlier in the pandemic?
They have gone extremely quiet on the removal of mitigations in hospitals which undoubtedly puts those same cancer patients at greater risk.
This is lowest of low points of this 4yr shizshow... grown azz men Drs in Australia happily pushing disease onto children by insisting on Mainstream media to gen population that theres no concern-go forth & get harmed & maybe make your parental concern even seem a bit crazy...