Long COVID Foundation
@LongCFoundation
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Following
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USA based 501(c)(3) non-profit focused on supporting those with Long COVID & others affected by the COVID Pandemic. Chronic illness & chronic-viral advocates.
Joined September 2023
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Pinned Tweet
LCF &
@LongCovidAP
are excited to announce a chance for the community to fundraise & help validate a Long Covid Biomarkers test capable of FDA approval for clinical use & trials.
#LongCOVID
#pwLC
#LC
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Actress Christina Applegate revealed she’s suffered from
#LongCOVID
.
She in turn contracted a chest infection & had wild heart problems. Her heart was speeding up on her. She experienced dizziness & had trouble eating.
🧵🧵🧵
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434
2K
Actor Colin Farrell suffered from
#LongCOVID
for at least 6 months.
He decided to go running a week after his 1st
#COVID
infection & he felt that fueled his Long COVID.
After his 2nd COVID infection he decided to lay low.
#pwLC
#LC
#YoureNotAlone
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Actress Salma Hayek revealed she had a life threatening case of COVID-19 (5/2020) & suffered from
#LongCOVID
.
“My doctor begged me to go to the hospital because it was so bad,” Hayek said. “I said, ‘No, thank you. I’d rather die at home.’”
#pwLC
#LC
🧵🧵🧵
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Tron star, Jeff Bridges, contracted COVID in January of 2021 at the facility where he was receiving chemotherapy treatment.
Soon thereafter he & his wife were both hospitalized due to COVID, her for 5 days & him for 5 weeks.
#LongCOVID
#pwLC
🧵🧵🧵
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Jeff Bridges on his battle with COVID & Cancer:
#LongCOVID
#pwLC
#LC
#TreatLongCOVID
#COVID
#COVIDIsNotOver
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Actress Alyssa Milano was still sick at least 2 years after getting
#COVID
. She felt like she was dying from
#LongCOVID
experiencing symptoms such as shortness of breath, loss of smell, hair loss, tingling in hands & feet, forgetfulness, & heart palpitations.
🧵🧵🧵
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Jim Inhofe, now former United States Senator from Oklahoma, had to retire from the Senate due to his
#LongCOVID
.
His activities day to day were too affected for him to continue in office he stated.
#pwLC
#LC
🧵🧵🧵
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Dave Navarro, guitarist from Jane's Addiction & RHCP, is another that's made the list of notable COVID Long Haulers.
He caught COVID 12/2021. Navarro explained on Instagram "So yeah, I'm one of the ones who came down with the 'Long Haul COVID.'"
#LongCOVID
#pwLC
#LC
🧵🧵🧵
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Dianna Cowern, known as “Physics Girl”, has suffered from severe
#LongCOVID
since July of 2022.
She was hospitalized for same in March of 2023.
Dianna has faced tremendous difficulties with being able to think, not even being able to use her phone to text at times.
🧵🧵🧵
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668
Actress & business woman, Gwyneth Paltrow, is another notable COVID Long Hauler.
Her struggles started early in 2020. She felt continued fatigue & brain fog from LC.
Tests performed about a year later showed she had really high levels of inflammation.
#LongCOVID
#pwLC
🧵🧵🧵
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Author Derek Draper was hospitalized with
#COVID
3/2020. He was in critical condition for weeks & put into an induced coma. He remained in the hospital for more than a year.
He struggled to speak after contracting SC2 & required around the clock care.
#LongCOVID
#pwLC
🧵🧵🧵
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Karl Anthony-Towns, Minnesota T-Wolves Star 🏀, has had one of the toughest experiences with COVID we have ever heard.
Karl contracted long term COVID starting 1/15/21 & missed 13 games. He was extremely sick at times & very scared.
#LongCOVID
#pwLC
🧵🧵🧵
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Actress Anna Camp, seen in Pitch Perfect & True Blood, came down with
#LongCOVID
in the summer of 2020.
She stated she forewent wearing a mask one time & ended up getting
#COVID
.
She’s concerned about long term damage & how it will affect her immune system.
🧵🧵🧵
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Billie Eilish said she battled acute COVID starting in 8/21 for nearly 2 months.
“I wasn't going to die, but that does not take away from how miserable it was. I mean, it was terrible. I still have side effects (stated this 4 months after initial infection).”
#LongCOVID
🧵🧵🧵
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Jeff said, “My dance with COVID makes my cancer look like a piece of cake 🍰.”
Months later he was still working on strengthening his lung capacity & trying to get off of supplemental oxygen that he had been relying on since his COVID diagnosis.
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@weeklyshowpod
#LongCOVID
is the biggest threat to health that’s not being talked about.
We need more voices to speak up about it. Cancer rising, tuberculosis rising, chronic illness through the roof, people need help.
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Actor Bryan Cranston suffered from symptoms of COVID-19 for months after his initial infection in March of 2020.
6 months after his acute infection he still had reduced/altered sense of taste & smell.
#LongCOVID
#pwLC
#LC
#YoureNotAlone
🧵🧵🧵
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Who else would like to know why “Long COVID” is being erased from Long COVID Bills? It’s being replaced with terms such as Infection Associated Chronic Conditions.
You can see the removal of
#LongCOVID
in this California BIll
#AB3119
.
🧵🧵🧵
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David Lindsey, guitarist of the band El Rayo-X, passed away due to
#LongCOVID
complications.
He contracted COVID in 2020 & developed Long COVID. He battled chronic kidney damage & opportunistic infections because of his Long COVID.
#pwLC
#LC
🧵🧵🧵
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Prior to revealing her Long COVID struggles she stated she was suffering from MS, which started a few months before her announcement of it in August of 2021. She is now seen walking with a cane.
Could COVID have been an unknown contributing factor?
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A CT revealed her small blood vessels in her lungs were operating at 30% capacity.
You can find the Long COVID Foundation’s list of athletes & other notable people who have had Long COVID below:
#LongCOVID
#pwLC
#LC
#YoureNotAlone
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Actor Emilio Estevez, featured in movies such as The Mighty Ducks, The Outsiders, & The Breakfast Club, contracted COVID in March of 2020.
He stated he suffered from
#LongCOVID
at least into the fall of 2020.
🧵🧵🧵
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She needed supplemental oxygen at one point during her illness & ended up needing to spend around seven weeks quarantining in one room of her home, away from her husband & their 13-year-old daughter. Hayek spent the majority of 2020 recovering from the virus.
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The Long COVID Foundation is happy to be in charge of the “Athletes, Entertainers, & Other Notable People Who Get Long COVID+” List.
It currently features 200 notable Long Haulers, filled with details.
Link is below. You’re not alone.
#LongCOVID
#pwLC
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You can find the Long COVID Foundation’s list of athletes & other notable people who have had Long COVID below:
#LongCOVID
#pwLC
#LC
#Actress
#Famous
#YoureNotAlone
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Hayek has yet to return to her previous energy levels (of 5/2021). Hayek said she is grateful that her filming schedule is light, given how much more easily she gets fatigued. “I had started doing Zooms at one point, but I could only do so many because I would get so tired”.
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You can find the Long COVID Foundation’s list of athletes & other notable people who have had Long COVID below:
#LongCOVID
#pwLC
#LC
#YoureNotAlone
#MS
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You can find the Long COVID Foundation’s list of athletes & other notable people who have had Long COVID below:
#LongCOVID
#pwLC
#LC
#Actor
#YoureNotAlone
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It's July. It's 2024. That means Olympics. Unfortunately, it's during a peak in
#COVID
cases.
Olympians, aspiring Olympians, & former Olympians are not immune to
#LongCOVID
. Here is a list of Olympic Long Haulers.
#pwLC
#Olympics
(PART 1/3)
🧵🧵🧵
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It's time for the Paris Olympics, but COVID is still raging on despite what some suggest.
LCF has created a sheet of Olympians who have been sidelined due to SARS-CoV-2 Infections, Long COVID, or due to the Pandemic in general. Plus more!
#LongCOVID
#pwLC
#LC
#Olympics
🧵🧵🧵
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Lewis Hamilton, Formula 1 driver, revealed he was suffering with Long COVID after he required medical attention in the wake of the Hungarian Grand Prix (race was on 8/21/21).
Hamilton was visibly struggling after the 70-lap race.
#LongCOVID
#pwLC
#LC
🧵🧵🧵
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He passed away at age 56 due to Cardiac Arrest from COVID complications on January 3, 2024.
May he rest in peace.
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Full body PET/CT Scan showing Long Hauler’s T cell activation in the link below.
His T Cells are extra activated all over his body indicating his immune system is heightened, possibly due to persistent infection.
#LongCOVID
#pwLC
#LC
#TreatChronicCOVID
#PETScan
🧵🧵🧵
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You can find the Long COVID Foundation’s list of athletes & other notable people who have had Long COVID below:
#LongCOVID
#pwLC
#LC
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Jim suggested there were 5 or 6 others like him in office that had Long COVID, but wouldn’t admit it.
You have to wonder how many people out in the world, notable or otherwise, are just not admitting they have Long COVID.
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Chris Cuomo, journalist for CNN at the time, contracted SARS-CoV-2 in April of 2020 & came down with
#LongCOVID
.
He dealt with brain fog that just wouldn’t go away for several months (at a minimum). He was also unable to recover from trying to workout.
🧵🧵🧵
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Professional basketball player, at the time, Michael Ojo passed away at age 27. He died from a heart attack during basketball practice after he collapsed on August 7, 2020.
It is believed SARS-CoV-2 (6/2020) & Pneumonia may have impacted his heart.
#LongCOVID
#pwLC
#LC
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He was especially scared because his mother died due to COVID. She was placed on a vent, put into an induced coma, & passed at age 58.
Additionally, KAT lost 7 other family members to COVID!
Karl stated he received special treatment that he wishes was available to more people.
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South Carolina member of Congress, Nancy Mace, is a COVID Long Hauler & suffered from COVID Vaccine Injury as well.
“I, along with many Americans, have long-term effects from COVID,” Nancy said.
#LongCOVID
#pwLC
#COVIDVaccineInjury
🧵🧵🧵
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Eduardo Rodriguez, Major League Baseball pitcher, was diagnosed with Myocarditis due to COVID-19 & couldn’t play the entire 2020 season.
Additionally, he would vomit after eating, lost his sense of taste & smell, & could only hold down water or juice.
#LongCOVID
#pwLC
🧵🧵🧵
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This list is surely incomplete, but there are at least 90 Olympic Athletes that were unable to compete in an Olympics due to the COVID Pandemic (61 due to contracting COVID or Long COVID directly).
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We’re at
#LCDC
. What an event so far!
Long Haulers making our voices heard for
#LongCOVID
. This is just amazing!
#pwLC
#LC
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What pathogen reactivations have been mentioned due to having
#LongCOVID
or Chronic SARS-CoV-2?
- Shingles
- HSV1
- EBV
- Lyme
- Babesia
- Bartonella
- Staph
- Candidiasis
- Mold
- Tuberculosis
- HHV6
- CMV
- Liver Flukes
- E. Coli
- Hep B
++++++
#pwLC
#LC
#LongCOVIDIsUnique
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You can find the Long COVID Foundation’s list of athletes & other notable people who have had Long COVID below:
#LongCOVID
#pwLC
#LC
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She’s faced struggles being able to move as well, along with unrelenting fatigue.
More than 1.5 years later she’s bed bound laying in a dark room avoiding all stimulants.
@thephysicsgirl
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You can find the Long COVID Foundation’s list of athletes & other notable people who have had Long COVID below:
#LongCOVID
#pwLC
#LC
#LongCOVIDKills
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Al Roker, USA’s favorite weatherman, was off air for two months due to being hospitalized with deep vein thrombosis (blood clots).
The clots developed after a fall 2022 bout of COVID-19.
#LongCOVID
#pwLC
#LC
🧵🧵🧵
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We spoke with Evan Low’s office regarding AB3119 again & have an update on the bill’s language, which is a Long COVID Bill that had LC removed from it by Long COVID Orgs. Specifically Lisa McCorkell of Patient Led & Angela Vazquez of Body Politic+.
#LongCOVID
#pwLC
#LC
🧵🧵🧵
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Mr. Linsanity, professional basketball player, Jermey Lin lost 20 pounds after contracting COVID & suffering with Long COVID. Lin returned to active competition eventually with the Beijing Ducks after a 10 month absence.
@JLin7
#LongCOVID
#pwLC
#LC
#Basketball
#NBA
#Linsanity
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Jon Bon Jovi, you know him, has stated he's suffered from Long Haul COVID. There are not many details about his
#LC
.
Almost 10 years ago, his vocal cords started atrophying (as of 2024).
#LongCOVID
#pwLC
#LC
#YoureNotAlone
🧵🧵
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Jonathan Toews', Chicago Blackhawks Hockey Player, chronic illness journey started in February of 2020.
He missed the entire 2020-21 season due to illness & revealed he had “chronic immune response syndrome."
#LongCOVID
#pwLC
#LC
🧵🧵🧵
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@FromExes
We are just pointing out that famous people get Long COVID too, since so many are unaware this is going on.
This has nothing to do with division. This is to try to accomplish the opposite. For people & the government to come together to realize how much of a problem this is.
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Thanks
@LCAPCure
for bringing this to our attention.
We are appalled at the attempted erasure of Long COVID.
This has been one of the biggest concerns for LCF. That Long COVID will be pushed into vagueness, renamed, & repackaged … not for the patients’ benefit.
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Body builder, & veteran, Cedric McMillan died at age 44 from a heart attack in 2022.
He contracted SARS-CoV-2 3/2020. He had long term heart effects thereafter & also had trouble breathing.
#LongCOVID
He stated he almost died from his heart problems in July of 2021.
🧵🧵🧵
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You can find the Long COVID Foundation’s list of athletes & other notable people who have had Long COVID below:
#LongCOVID
#pwLC
#LC
#NBA
#Basketball
#YoureNotAlone
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If you care about
#LongCOVID
, this fundraiser is for you.
We need
#LC
Biomarkers & this fundraiser is to help get validation for a promising test that 91.7% of the time can detect a COVID Long Hauler.
Donate, support, & share!
#pwlC
#LCBiomarkersNow
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You can find the Long COVID Foundation’s list of athletes & other notable people who have had Long COVID below:
#LongCOVID
#pwLC
#LC
#LongCOVIDKills
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We are at $11,766 in funds raised (with matching funds pledged) for further validation of transcriptomic testing for
#LongCOVID
! The goal is $150,000. Please donate what you can & share share share. Long Haulers need biomarkers!
#pwLC
#LCBiomarkersNow
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You can find the Long COVID Foundation’s list of athletes & other notable people who have had Long COVID below:
#LongCOVID
#pwLC
#LC
#YoureNotAlone
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There are 21 with Long COVID. This is with the Paris games just getting underway.
The COVID protocols for Paris are basically non-existent compared to just 3 years ago when the protocol were very stringent.
#LongCOVID
#pwLC
#LC
#COVID
#Olympics
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UFC fighter Khamzat Chimaev contracted COVID in the fall of 2020.
Manager Majdi Shammas said that Chimaev ‘thought he was going to die’ following an incident in which symptoms resulted in him having to go to the hospital.
#LongCOVID
#pwLC
#LC
#UFC
🧵🧵🧵
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@EnnnDeee
She does seem to mask at least part of the time, but you’d think she would be ultra careful being what state she’s in currently.
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Bethany Frankel, TV personality & business tycoon, stated she’s had a worsening of her autoimmune condition POTS since her COVID.
She also believes her COVID Vaccine made her condition worse as well.
#LongCOVID
#pwLC
🧵🧵🧵
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We are very pleased to announce the official beginning of the “Long COVID Foundation” (LCF), a non-profit 501(c)(3), & release of its’ website .
You can also find us on Instagram as well at longcovfoundation.
🧵🧵🧵
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"Been sick since December and supposedly will be back to my old self in… nobody knows how long." (Article was published 5/31/22)
"If there are any of you who are still suffering … I'm just saying you aren't alone," he wrote.
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Anna lost much of her sense of smell & taste & experienced dizziness, extreme fatigue, upset stomach, nausea, vomiting, fever, & sinus issues.
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@EssjSongoku
There is lots of EBV reactivation with COVID/Long COVID and that has been linked to MS. You’re right. Hence I wonder if COVID could be involved at all.
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Olympians, aspiring Olympians, & former Olympians are not immune to
#LongCOVID
.
Below is the third & final part of the Olympic Long Haulers list. (More LHers to come after Paris Games surely).
#pwLC
#LC
#LongCOVIDIsUnique
#Olympics
(PART 3/3)
🧵🧵🧵
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@solarface77
She got sick in April of 2020, so definitely not due to that since it was not available.
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We are calling on those with
#LongCOVID
to fill out our treatment survey. It was a real long labor “of love” due to all the information put in it & the slowness of Google Forms when you input a certain level of data, but it’s finally ready.
The survey results will be provided
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You can find the Long COVID Foundation’s list of athletes & other notable people who have had Long COVID below:
#LongCOVID
#pwLC
#LC
#Senator
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She’s been working with a functional doctor to improve. Alcohol & sugar had to be cut out of her diet.
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Major League Baseball Player, Jared Walsh, first came down with COVID mid-2020, but caught it at least 2 other times as well.
He was then robbed of baseball for a year, but also robbed of being able to sleep.
#LongCOVID
#pwLC
🧵🧵🧵
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You can call Evan Low’s office to voice your concerns with the removal of “Long COVID” from a Long COVID Bill 3119.
Call 916-319-2026.
LCF is here to protect those with Long COVID, not water it down or erase it.
That’s why we already called. You should call too!
#LongCOVID
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In less than a week the “Help Validate Long COVID Biomarkers” fundraising campaign to benefit the
#LongCVID
Community has raised $10,825 x 2, matching funds pledged = $21,650.
Please donate, support, &/or share! This is vital for
#pwLC
.
#LCBiomarkersNow
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37
56
LCF &
@LongCovidAP
have raised $31,907 (with pledged matching funds) so far for validating a
#LongCOVID
test & accompanying biomarkers. There is more to go though.
Please donate, share, & support this vital campaign! 💚
#pwLC
#LC
#LCBiomarkersNow
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Long COVID Foundation Founder, Devin Russell, gave a speech on
#LongCOVID
at
#LCDC
, here it is:
“Hello everyone, nice to see you here at the Lincoln Memorial for such a worthy cause. I can't help but feel a sense of camaraderie, knowing that we're all in this together,
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Please call to ask for $28 billion/year for
#LongCOVID
.
Call by May 7th to demand an adequate starting point for
#pwLC
& the funding they desperately need.
We understand people may not have the spoons to call everyone, so here’s who you can prioritize:
- Bernie Sanders
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This is where people never receive proper testing & treatments. Where mitigation doesn’t become an important focus because well, Long COVID is nothing new. It’s just one of those IACCs & post viral.
Unfortunately, it is unique. We have to fight for it to be treated as such.
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Breaking!: Research published today in Science Translational Medicine and supported by PolyBio Research Foundation shows that the
#SARS
-CoV-2 virus can chronically persist in the gut of patients with long COVID for over 2 years:
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Great work everyone who called Evan Low’s office! They heard Long Haulers loud & clear & will work to get Long COVID back in AB3119, a Long COVID Bill, after advocates from Patient Led & Body Politic+ had it removed.
#LongCOVID
#pwLC
#LC
#KeepLongCOVIDInLongCOVID
#PatientsFirst
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Our
#LongCOVID
treatment survey is still open & submissions keep coming in. Thank you for everyone that’s filled it out so far
#pwLC
. If you haven’t yet, here is the link.
Time for some interim results that you can see in the thread below.
⬇️⬇️⬇️⬇️⬇️
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NIH Director states that COVID is chronic and persists in multiple areas of the body.
This is huge news! It’s been difficult for the health agencies to say this with such certainty, but now they have.
What does it mean for
#LongCOVID
? It means we need antivirals developed and
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The Long COVID Foundation non-profit is pleased to announce that we are a 501(c)(3).
And away we go …
#LongCOVID
#pwLC
#LC
#NotRecovered
#Advocacy
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We are close to the $30K mark (with pledged matching funds) in order to validate a test for Long COVID.
July 31st is when the matching ends, so donate, share, & support this vital thing for the
#LongCOVID
Community.
#pwLC
#LC
#LCBiomarkersNow
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You can find the Long COVID Foundation’s list of athletes & other notable people who have had Long COVID below:
#LongCOVID
#pwLC
#LC
#YoureNotAlone
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You can find the Long COVID Foundation’s list of athletes & other notable people who have had Long COVID below:
#LongCOVID
#pwLC
#LC
0
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There is concerted push for the language surrounding Long COVID to go in a direction of vagueness, for whatever reason, & that is harmful to COVID Long Haulers.
Language & details regarding implementation matter a lot.
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Olympians, aspiring Olympians, & former Olympians are not immune to
#LongCOVID
. Here is another thread of Olympic Long Haulers.
#pwLC
#LC
#LongCOVIDIsUnique
#Olympics
🧵🧵🧵
(PART 2/3)
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@s33ker_truth
If you’re referring to the vaccine, he got sick in March 2020, long before a vaccine for COVID.
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"The fatigue and isolation is pretty awful but try to spend your time with the ones you love and stay creative. That's how I'm trying to get through this thing. Also lots of spiritual practices, meditation and yoga have been very helpful. I'll be OK, just don't know when."
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The Long COVID Foundation has gone into detail regarding our thoughts on the NASEM Long COVID definition. Our pros, cons, & hmms are listed below. The link will provide more detail for our reasoning.
Let us know what you think.
#LongCOVID
#pwLC
#LC
#NASEM
#Definition
5
17
41
Today is the day! It’s action time!
LCF, in conjunction with
@LongCovidAP
, call upon the
#LongCOVID
&
#COVID
conscious community to email their local school districts to ascertain their COVID mitigation procedures.
Below is the template to work from.
🧵🧵🧵
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Here is the amended text showing the removal of Long COVID throughout
#AB3119
in California.
The question is who is working to erase Long COVID? The politicians didn’t come up with the idea to replace it with IACC.
#LongCOVID
#pwLC
#LC
#PutPatientsFirst
4
22
43
It’s horrible what some, even in our own Long COVID Community, due to erase Long COVID. Repeating history is far too dangerous, especially in this instance.
We urge you to push back against this harmful approach, that’s dangerous for tens of millions of people in the USA.
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The “Help Validate Long COVID Biomarkers” campaign is almost at $20,000 in just a few days!
The GFM is at $9,691, & when you add in the pledged dollar for dollar matching funds, that brings the amount to $19,382!
We are more than 1/10th the way there!
#LongCOVID
#pwLC
🧵🧵🧵
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We wish people were more helpful with this important campaign to get
#LongCOVID
Biomarkers, but we expected road blocks because This Is X (TIX).
@jcb_31416
has written a post people want us to respond to. Can see the screenshots of his post below.
🧵🧵🧵
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