Embrace Autism ✨
@EmbraceAutism__
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Research-based information & empowerment for & by autistics 🦋 Founded by Dr. Engelbrecht ND RP & @EvaSilvertant ☞ Tweets by Eva, Chris Wynn & Jade Mehlberg
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The e-book of ‘The Ultimate Guide to Autistic Burnout’ will be launched tomorrow!
Researched & written by 4 autistic authors. 277 pages! Full of statistics, diagnostic criteria, 2 autistic burnout tests, recovery strategies, personal stories from autistics + extra materials!
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Since about 70% of autistic people have ADHD as well, it seems the predominant neurotype is actually AuDHD; autism without ADHD is a much rarer occurrence.
This fact concerns me quite a bit with respect to the research literature.
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I think this is the difference between autism and AuDHD.
Autism: Need for routine and predictability
ADHD: Need for novelty; shows more impulsivity
AuDHD: Need for routine, but can change it
It’s still really disruptive for me if plans get changed unexpectedly though.
Or even apparently autistics who can do so many things last minute? HOW?!
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Parents of autistic kids self-diagnosing is not worrying; autism is genetic, so if your child is autistic, there is a high probability you or your partner are autistic as well.
And there is no need to pursue a formal diagnosis if you don’t think it will benefit you.
@WorkPsychol
Social contagion. The adults self-diagnosing online, sometimes because their kids have been diagnosed, are very worrying. I know a few.
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I mean, what are researchers actually exploring when they almost never control for ADHD as a variable and properly distinguish between autism and AuDHD?
And what about the diagnostic criteria? What are the chances there isn’t some diagnostic conflation between autism and AuDHD?
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It’s the same problem with alexithymia. 50–70% of autistic people have alexithymia, and we know that some aspects of alexithymia have been misattributed to autism because of the high co-occurrence.
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I heard some really bizarre reasons medical professionals presented to their clients for why they thought their clients couldn’t be autistic:
- You’re too intelligent
- You’ve been married
- You can hold a job
- You’re too hygienic
- You don’t live in the gutter
To other autistic people, what’s the most bizarre reason someone has given as to why you “can’t be autistic”?
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I’m wondering something...
Autistic burnout occurs when for an extended time, the demands put on you outweigh your resources and capabilities.
So is “pathological demand avoidance” not just the consequence of autistic burnout?
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“Because autistic people are less susceptible to social influence, as employees they are more likely to take action when they witness an operational inefficiency or an ethical problem in the organization.”
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To give an example:
I tell a friend I will come by at 6 pm. But I end up procrastinating and show up at 6:30 pm. I’m okay with that.
When roles are reversed, I’m okay with a friend showing up late; more time to myself! But if they show up early, it can feel quite disruptive.
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Most autistic people experience something called ‘autistic inertia’—the technical term for experiencing difficulties moving from one state to another.
Here is a thread on autistic inertia and its two subcategories: inertial rest & inertial motion.
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It’s my birthday! So I figured I would dress up as a present with a bow. 😆
I’m 35 now, so I think that means I’m no longer a spring chicken; I’m a summer chicken now! 😃
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Being late diagnosed as autistic is finally finding the language to understand yourself better. It’s not trendy, it’s life-saving.
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If a friend shows up early, it conflicts with my plans, which can be quite upsetting. I was expecting you at 6 pm! You can’t show up at 5:45 pm!
But if they’re late, I can adjust; I will just continue doing whatever I was doing before 6 pm.
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We’re about to publish an article on autistic burnout, and my age will be mentioned in it.
But I don’t know what age I should put! I’m technically 34, but I will be 35 in two days. So I’m closer to being 35.
But in terms of discrete numbers, I would be lying if I put 35!
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Autism fact of the day! 🌟
Autistics were found to have increased auditory perceptual capacity, with auditory superiorities such as heightened pitch detection and the ability to pick up more subtle sounds.
#EmbraceAutism
#Autism
#AutismAwareness
Autism fact of the day! 🌟
Synesthesia is when multiple senses are perceived simultaneously. A 2013 study indicated synesthesia occurs in 18.9% of autistic people, versus 2–4% in neurotypicals.
Read more:
#EmbraceAutism
#Autism
#AutismAwareness
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1. ADHD is real, and you have offered no counter-argument for why it’s not.
2. ADHD does show up on brain scans; MRIs can identify it, and distinguish between subtypes.
3. I have been using Concerta for 4 years; I’ve never had to increase my dosage once I found the correct dose.
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Ahhh our book is finally done!
Ironically I really battled with burnout during the last 2 months of designing/formatting the book and adding references/links and such. But we did it!
We still need to figure out how to create the epub version. Soon available for pre-order.
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For those who are in autistic burnout, I think I can offer some hope! 🌞
Next week, we will release a digital booklet on autistic burnout—a comprehensive guide for autistics and clinicians.
It will cover the fundamentals, the latest research, causes, treatment options, etc.
This really resonates.
I was in burnout for so long, I thought I was fundamentally broken and would never recover again.
If you are in this position, you should know there is a way out! I’m still mildly burned out, but doing way better than before.
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Self-diagnosis is valid. Autistic people are autistic irrespective of whether a diagnostician declares it so.
If you don’t need accommodations, access to specialized treatment, or insights you might gain through a formal diagnosis, self-diagnosis will be sufficient.
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Autism fact of the day! 🌟
Autistic people tend to be better at detecting a target sound within a group of sounds, and notice (irrelevant) background information more readily.
Autism fact of the day! 🌟
Autistics were found to have increased auditory perceptual capacity, with auditory superiorities such as heightened pitch detection and the ability to pick up more subtle sounds.
#EmbraceAutism
#Autism
#AutismAwareness
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1. That there is an end to autistic burnout. I thought I would never get out of it, but I did! Mostly. Still making progress.
2. That sensory sensitivity/overwhelm can diminish. Not sure how, but it did for me. I no longer get violently ill from fluorescent lights in stores!
What’s the most important thing you’ve learnt this year about being
#ActuallyAutistic
?
#AskingAutistics
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I’m further along in my transition now, and my hairstyle changed a lot. So I figured it was about time I updated my Embrace Autism character!
What do you think?
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“At 31, I find out I am autistic and have ADHD. I’m also probably dyspraxic. So the question is how did I get missed?”
@AutisticGirls_
trustee Warda highlights the experience of autism in Black girls and women in this great piece:
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This really resonates.
I was in burnout for so long, I thought I was fundamentally broken and would never recover again.
If you are in this position, you should know there is a way out! I’m still mildly burned out, but doing way better than before.
Autistic burnout + untreated ADHD =
impulse control issues + inability to force yourself to do anything + drained by no ability to function
Lots of walking pass a mess unable to make yourself clean it, then blame yourself for it.
Distracted, can't focus enough to do fun things
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The idea that autism gets systematically overdiagnosed is kinda funny considering research shows that 80% of autistic women at age 18 are underdiagnosed.
And to add to AutisticPB’s point on the correct diagnostic rate, what is supposedly the correct autism prevalence?
We get told that autism is overdiagnosed, we get told that ADHD is overdiagnosed, we get told that anything that constitutes being neurodivergent is overdiagnosed... from the very people who have no idea what the correct diagnosis rates should be. /1
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“Loneliness is something that I and many other autistic people...are all too familiar with. You may be wondering: why?” Great piece on loneliness by
@AutisticCallum_
! Thank you for sharing your experience.
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This could point to the intersection of autism and ADHD!
I think as autistic people, we tend to have rich internal worlds. Immersive and maladaptive daydreaming are also associated with autism.
And ADHD comes with associative thinking and the ability to generate lots of ideas.
as an autistic person, do you have this wild imagination where you fantasize about things and have all of these ideas?sometimes i do. this very inward thinking. this world of my own. and i wonder if that is related to autism or something else.
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A lot of
#autistics
are more interested in assessing truth than making moral judgments because making judgments prevent us from really understanding something. It’s a beautiful mindset that allows us to be more open-minded than others, but it makes us vulnerable, too.
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Wow, this table on traumatic life events in autistic people vs. neurotypicals by Rumball et al. (2021) is both fascinating and upsetting.
Why do autistic people experience way more physical and sexual assaults?!
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I love this meme!
But also, autism was clinically observed & documented even before 1930:
• Autism level 3: described by John Langdon Down in 1887
• The autism construct was expanded by Eugen Bleuler in 1908
• Autism level 1: observed & documented by Grunya Sukhareva in 1925
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We’re very close to releasing a book(let) on autistic burnout!
After that, we plan on writing a booklet on camouflaging—covering the social camouflaging model, the prevalence, consequences, and strategies on how to unmask safely and when the time is right.
Masking is one of three subtypes of camouflaging, and arguably isn’t the most insidious of the three. In this post, I explore the research on camouflaging and autism.
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I’m definitely both. It should also be noted that approximately 70% of autistic people have ADHD as well.
Being AuDHD, I work at night because it’s dark, quiet, and no social stuff going on; but day-to-day, I also crave a lot of stimulation.
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Happy
#TransDayOfVisibility
!
For well over a decade, I avoided mirrors and was ashamed to show myself online.
But today, I generally like what I see in the mirror, and I’m no longer ashamed to show myself! Fellow trans people, I hope you all get to be visible!
#TDoV
#TDOV2024
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Haha so cute to see autism in action. 😆
I had to learn lessons like this the hard way as well.
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I’m curious, can you share a photo that shows you’re autistic?
I will start. Here is my MAC lipstick collection:
• Top: gradient from magenta to purple
• Middle: pinks on the left; frost lipsticks from pink to dark red on the right
• Bottom: gradient from nudes to dark red
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I—like many other autistic people—am puzzled by the realization that people, in general, don’t seem all that concerned with truth. Why is that, and why are autistic people more concerned with it?
#Autism
#AutismAwareness
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Autistic imposter syndrome is common in late-diagnosed adults: The fear that you are not
#actuallyautistic
or you are “faking it.” There are a number of reasons why autistic imposter syndrome is so prevalent—so let’s talk about some of them! 🧵
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It shocks me that some medical professionals somehow keep holding on to old ideas on autism.
I spoke with a therapist last week who still believed in refrigerator mother theory—thinking that autism is caused by trauma and insecure attachment. 😬
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Me, autistic, wanting things to be minimalist and organized to experience equilibrium and internal peace.
vs.
Me, ADHDer, leaving all my makeup out on my desk, because why store it away when I need it again tomorrow?
You, ADHDer, leaving things out conspicuously so they'll catch your attention and you'll remember to do the thing
vs
Me, autistic, compulsively tidying things away if they catch my attention because they're distracting
FIGHT
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I’m really curious, how do other autistic people use insults, if at all? Do you use them to humiliate or hurt?
I use silly insults to indicate someone is being dumb, but I don’t want to cause actual hurt. So I mostly use these insults:
- You silly goose
- You absolute pancake
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Dr. Natalie Engelbrecht ND RP: I am autistic. Fifteen therapists missed it, as well as my medical doctor. Heck, I even missed it myself, and I am a psychotherapist!
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Friendly reminder to those who need to hear it: Stimming isn't cringy, embarrassing, or disruptive. It’s an important tool for self-regulation and expression.
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“You don’t have real autism” and “Everyone thinks they are on the spectrum now” is what many female autistics frequently hear. Why is our autism often denied?
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Have you experienced autistic inertia? Check out this informative graphic from
@ItsEmilyKaty
! 👇
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During my early transition in 2022, I focused heavily on being as authentic as possible—which was liberating, after years of suppressing who I truly am.
My New Year’s resolution is to shed another layer of masking; I want to be as silly and carefree as I feel like being. 👿😜
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For those who need to hear this:
I was in a burnout for 2 years—thinking I was never going to be my old self again.
& True—I will never be who I was; but I’m very happy to report that I got out of my burnout last year! I hope this offers some encouragement. Healing is possible!
It sure isn’t easy to rebuild yourself after late dx, burnout, trauma, and chronic illness.
I keep thinking, “what’s it going to take to get back to myself again?”
I worry I won’t.
#ActuallyAutistic
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With 50-70% of autistics also having ADHD, it’s likely that many autistics also experience RSD (a commonly recognized trait of ADHD). This graphic provides a lot of great insight into what RSD is!
Rejection sensitive dysphoria, a type of pain so difficult to describe.
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As a little kid, adults would often ask me, “Why are you angry? You look angry!”
It would happen so frequently that it thoroughly agitated me to have to deny emotions I wasn’t experiencing all the time, so ironically I would angrily respond, “I’m not angry! You’re angry!” 😆
I've lost count of the number of times my partner has asked if I'm okay because I look annoyed or angry. Nah, that's just my face.
Who else here has R.A.F.?
#AutismAcceptance
#AutismAcceptanceMonth
#RestingAutisticFace
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@AutieAdorableMC
That's my mom. She almost seemed offended when I suggested she might be autistic, but prides herself in being a highly sensitive person.
But to be fair, high sensitivity also seems to be associated with ADHD and BPD.
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We just discovered something morbid about Autism Speaks that you most likely don’t know yet. I think you will be surprised! Let me offer a bit of context first.
Our social media manager is looking into how to create more backlinks, meaning links from other websites to ours. /1
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Pattern Recognition
Strong pattern recognition abilities are one of the core characteristics of autistic thinking. Explore more about how autistic individuals use pattern-matching to produce insights.
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A link has been found between autism, high intelligence, and giftedness. Consequently, some came to call
#autism
a “disorder of high intelligence”.
#AutismAwareness
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Speaking of which, we’re still working hard on our Autistic Burnout Guide!
We had planned to release it about two weeks ago, but writing the layman version and doing the layout and graphics is taking much longer than expected.
But it will be available soon! 100+ pages!
I feel like I’m in a social burnout—still working, but not being able to handle much in-person social contact, or being able to respond to direct messages and even comments.
I guess this perfectly illustrates the difference between occupational and autistic burnout.
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One thing that makes it worse is that autistic people tend to look people in the eyes (when they do) "incorrectly"; a lot of us stare right into the pupils, which makes eyes look threatening and predatory. Better to look at the iris.
Or better yet, the bridge of their nose. 🤭
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Wow, I love finding out about standpoint epistemology! It really resonates as an autistic and trans person.
“[Marginalized] individuals are placed in a unique position to point to patterns of behavior that those immersed in the dominant group culture are unable to recognize.”
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I was refining an old cat design I did for Embrace Autism a few years ago before I thought, “You know what, I think the cats could use an upgrade—with more anatomically correct heads.”
So here is the result! The bottom cats are new. What do you think? 😺
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I’m so sleep-deprived. But when it’s night, I still stay up way longer than I should.
The night is tranquil. Low sensory stimulation. Virtually no demands. No social expectations. It’s wonderful!
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@AutieAdorableMC
But you're right—a lot of people use the label because they can't accept they are autistic.
It's not entirely their fault though; autism is so severely stigmatized in many circles, that even autistic people don’t necessarily see themselves in the public descriptions of autism.
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When people are afraid, they release chemicals that act as a contagion, making others afraid as well. Autistic people, however, have a different response.
#Autism
#AutismAwareness
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Autism fact of the day! ✍️
Autistic people can have extraordinary vision; with better visual hypersensitivity, pattern recognition and attention to details, autistic people can see visual details that non-autistics don’t tend to register.
#Embrace
#Autism
#AutismAwareness
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One thing many autistics frequently do is use a conversation style called cooperative overlap. You might call it an enthusiastic (autistic) way of interrupting!
#Autism
#AutismAwareness
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For a number of reasons, autistic people are at risk of entering into unhealthy or even abusive relationships. In this post, we outline a few things to look out for and things to remember when it comes to recognizing an abusive or unhealthy relationship.
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If you think you’re autistic, but don’t see a path toward an official diagnosis any time soon (because of your parents, finances, access to affirming healthcare, stigma, executive dysfunction, etc.), know this: Your experiences aren’t any less valid. You are welcome here. 💙
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@Autistic_Lia
True. I think there is a significant correlation between Twitter and people who are desperate to have a voice, which correlates with trauma and oppression; and those two things often correlate with pent-up anger. That anger often gets displaced onto people who don’t deserve it.
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A 2022 study found that 80% of autistic adults find it difficult to go to the doctor when they need to. This article by
@ItsEmilyKaty
really helps illustrate why:
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Did you know: Researchers have found that 85% of autistic children see colors with greater intensity than neurotypical children. For these children, red appears nearly fluorescent—vibrating with intensity. For more on heightened sensory perceptions:
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So... someone criticized me for posting content like this, which makes me wonder...
I figure why not show more of myself as an autistic person and the silly things that keep me occupied, but maybe I should stick to just autism content?
What’s your opinion?
Experimenting with ways to capture the glitter I always put on my cheek on a phone camera. 95% still doesn’t show!
But I found that by using larger glitter (second picture), I can get some of it to show better. This particular large glitter is meh though; looks kinda grey.
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Happy Pride Month! 🏳️🌈
I’m back with statistics—this time on the prevalence of LGBTQ identities in autistics vs. neurotypicals.
This will be an extensive thread to cover some of the assumptions and methods used in creating the diagrams.
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This isn’t related to autism per se, but I just had to share these spectacular pictures.
Nemophila Harmony is one of the most popular flower events in Japan—held annually at Hitachi Seaside Park.
Millions of flowering Nemophila (Baby blue eyes)!
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I’m not a visual thinker myself (maybe curious given that I’m an artist/designer; I think in terms of concepts, and develop the ideas visually externally), but I resonate with everything else.
I like highlighting/celebrating our positives! What resonates with you?
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PSA: It is a damaging myth that autistic people lack empathy. The truth is that some of us are EXTREMELY empathetic and some of us experience empathy but may not always communicate it in a way that is “appropriate” to neurotypicals.
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I—like many other autistic people—am puzzled by the realization that people, in general, don’t seem all that concerned with truth. Why is that, and why are autistic people more concerned with it?
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#AutismMyth
: Autustic people lack empathy.
#AutismTruth
: Some of us do, but it's not due to autism but co-occurring alexithymia!
(I am writing an alexithymia & autism guide with a lot of cool research-based information which will be published later today.)
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Anyone else still don’t know how to respond to people asking you how you’re doing as a greeting? In the Netherlands, if people ask how you’re doing, it’s always a genuine question.
But here in Canada, I’m still not sure if I should say, “Good, thanks” or return the question.
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As an autistic person, where do you fall on the spectrum of punctuality? Are you usually early, late, or exactly on time for your commitments?
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@spacedoutsmiles
I’m not actually sure; I go by what Natalie told me and haven’t checked the sources myself. But in the ‘PDA & Autism’ section of the article below, Debra references two papers that indicate an autism/ADHD co-occurrence of 59–61%.
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Depression & suicidality aren’t inherent to autism. They’re the product of moving through a world that is unwelcoming, unaccommodating, and unsafe for autistic people. If you’ve made it this far—if you’re still here—we're proud of you.
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For more information on autism and alexithymia, have a look at this comprehensive guide I wrote based on a significant amount of the research literature on alexithymia and its co-occurrence with autism up to 2020:
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It’s ironic, because a significant number of autistics pursue a career in (psycho)therapy and excel in the field.
I think it’s quite aligned with our own journey of self-discovery. Plus, our high affective empathy and hyper-systemizing can be great assets as a therapist.
@ask_aubry
I can’t count how many times I’ve been told I can’t be autistic because I used to be a therapist. I hate how pervasive the idea is that autistics can’t be empathic and that we have zero social skills.
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One thing many autistics frequently do is use a conversation style called cooperative overlap. You might call it an enthusiastic (autistic) way of interrupting!
#Autism
#AutismAwareness
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A group of Somali medical professionals, autistic people, and parents in Minnesota have come together to create a term for autism in the Somali language. The term they coined is maangaar. 'Maan' which is mind, and 'gaar' which is unique. A unique mind!
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I’ve never been able to flirt (or lacked the courage), but I was also bad at recognizing flirtation.
Several times, I didn’t realize someone was flirting with me until years later.
A badge saying, ‘Doesn’t pick up on flirtation; please be explicit’ would have been super useful.
Advice for Autistic Flirting:
Wear something revealing ... like this:
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I’m curious, what’s one interesting fact you can tell me about your special interest?
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Getting really close to finishing our book, ‘The Ultimate Guide to Autistic Burnout’!
I just finished illustrating these autistic burnout-themed matchboxes that will accompany the autistic burnout stories (personal accounts of autistic people).
Which is your favorite?
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For 32 years, I lived as Martin. That has been my name, but it’s not who I am.
At 8, I started having fantasies about being female. Now finally on hormones, I have never felt happier and more like myself!
So I want to officially introduce myself. Hello! My name is Eva. 🥰
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Indeed, alexithymia works as a protective shield, cutting us off from our emotions to diminish our distress.
But note that alexithymia develops through childhood trauma and dismissal. What was once a protection mechanism can become redundant and an obstacle in adulthood.
Alexithymia in
#ActuallyAutistic
humans might be more than just difficulty in identifying feelings; it could be a protective shield.
Given the intensity of emotions we often experience, this could be our mind's way of buffering overwhelming sensations.
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I don’t imagine I would like driving a car, no.
Now 35 years old, I still haven’t attempted it; and I have no plans to. I rather walk, use public transport, or call an Uber. Both my parents and at least 2 of my siblings drive though.
Anyone else who can’t imagine driving?
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70% of autistic people have ADHD, but many may not know it (I only found out when I was 30 myself, compared to discovering I’m autistic when I was 19); so I think this contributes to some conflation between the two neurotypes as people generalize their own experiences to either.
On social media, I keep seeing typically autistic traits being attributed to ADHD.
I find it really confusing as to me - an autistic ADHDer - they are very different.
Can anyone explain this?
/genuine question
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@BecauseIMatter
Yeah, I find it quite confusing with respect to ‘stimulation’. For instance, I stay up at night because the quiet & lack of light reduces sensory stimulation; yet I crave a lot of cognitive stimulation. E.g., I watch online videos at 125% speed because otherwise I get impatient.
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Autistic people are at a higher risk of social manipulation. Combined with alexithymia, we become particularly vulnerable. Read more to find out how alexithymia can make us walk into the lion’s den.
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Exactly. We need more quality information about autism, better diagnostic processes, and less stigma & stereotyping. To put it plainly, this is why we do what we do at Embrace Autism.
“If you were really autistic, you would have been diagnosed sooner”.
No, because autism awareness is limited, the diagnostic criteria do not appreciate the breadth of autism, there are discrimination related barriers to diagnosis, and many autists mask their traits to survive.
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👇 This!
Many Autists are “sensory seeking” meaning that we seek out sensory rich experiences.
And yes, in line with the many paradoxes of Autism you can be both sensory seeking and become overwhelmed by too much sensory stimuli.
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Autism fact of the day! 🌟
Some autistics show superiority in memorizing picture–pitch associations, detecting pitch changes in melodies, and some even experience absolute pitch (the ability to play or sing musical notes without a former guiding tone).
#Autism
#AutismAwareness
Autism fact of the day! 🌟
Autistic people tend to be better at detecting a target sound within a group of sounds, and notice (irrelevant) background information more readily.
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Autistic people are significantly more affected by sleep problems. Read our series to learn how common they are, and what you can do to prevent them.
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Love & Acceptance
❤️🧡💛💚💙💜
I hope that the LGBTQ+ people among you find love and acceptance; that you surround yourself with people who readily love and accept you as you are! You deserve it!
Happy Pride Month! 🏳️🌈
I’m back with statistics—this time on the prevalence of LGBTQ identities in autistics vs. neurotypicals.
This will be an extensive thread to cover some of the assumptions and methods used in creating the diagrams.
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@v_novem
I think ADHD accounts for this. My autism necessitates things being routine and predictable for me; but my ADHD contributes to my impulsivity, which allows me to change my plans along the way.
It’s still really disruptive for me if plans get changed unexpectedly though.
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Happy International Women’s Day!
Research from 2022 shows that 80% of autistic females remain undiagnosed at age 18, which has serious consequences for the mental health of young women. We need to make an effort to remedy that!
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@Autistic_Lia
Not tired usually, but it doesn’t have much of an effect on me unless I drink a couple of cappuccinos along with taking my Concerta.
I think the effect you’re describing can be attributed to ADHD/AuDHD, rather than autism itself.
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