RT @RenegadeRes: Exciting news this Giving Tuesday! We’re excited to announce that our nonprofit, Renegade Research, has been awarded a gr…

@homebird_rebel @CiaraGlenville How did you find the experience of transitioning back to physio using weights? I've noticed my legs respond better than arms, arms seem to cause crashes from even the lightest weights

RT @CleanAirIE: Happy International Clean Air Day! We are parents, teachers, health workers, students & individuals who care about improvin…

RT @SenSanders: For too long, millions of Americans suffering from long COVID have had their symptoms dismissed or ignored – by the medical…

@mildTin @CiaraGlenville @WorldBollard @onionweigher These are both gas accounts thank you 😂

@CiaraGlenville Doing alright thank you :) trying to use socials less for mental health, but I check in on people like yourselves every now and again. Really glad Enoxaparin worked so well for you, I really hope the improvements stick!

@CiaraGlenville @Naomi_D_Harvey @cfs_jo @OnlyEnnui Strongly recommend the CGM, it's 70 quid for about 2 weeks but it provides such an insight about how your body is processing your foods. You may be very surprised, I was. Had these symptoms too. Also check out glucose goddess' content, her latest book has good tips to manage it

@AndrewG76201347 @patientled I'd love to see this data and see how you did it, have you a way to share it currently?

RT @Michaeltikus: Please nominate @sheffieldmefm for £5000 (anyone can do it)! It's my local #MECFS #LongCovid group.

RT @Michaeltikus: @JimBethell @ONS @JimBethell FOI from the Derby/Derbyshire ICB PCNs indicates there is huge disparity in referral behavio…

@kirstler31 @doc4care I really didnt consider it at all until a sleep in an unfamiliar bed put me into a much longer crash than I was used to. I switched to a ergonomic memory foam one. If I lie in certain unsupportive/strained positions I can bring on brain fog - pillow relieves this

@kirstler31 @doc4care LK + metformin + LDN I believe has helped me. LDN and Metformin each took about a month. LDN made the most difference to my general thinking capacity. Followed by a realization that my symptoms were better with good supportive neck pillow. Bad neck support cranked up brain fog

RT @BenShindel: Doesn’t get better than this

RT @tomwalshphotos: This is what we are up against #longcovid #hiddenillness #healthcareheroes #disability #gaslighting #ignorance @Simon…

RT @LCAIreland: Oireachtas Joint Committee Hearing on #LongCovid is now available to watch in full 9:30am-11:00am Long Covid Advocacy Irela…

RT @LCAIreland: "My whole life has been destroyed. I'm stuck in this life, like we were in lockdown. I haven't left that life. I've lost fr…

RT @IrishMECFSAssoc: Congratulations to Long Covid Advocacy Ireland for getting some media coverage today in advance of their presentation…

@doc4care Some are having success treating LC with MCA, single dose. Resolution within days Ineffective on latest strains. But lays out a complete symptom cascade hypothesis. So reduce inflamm + antiviral/MCA could work while we wait for more targeted treatment