We are a patient-driven organization, dedicated to improving the life expectancy & quality of life for ALK-positive cancer patients worldwide.
#StrongerTogether
THIS photo says it so well! Women in Lung Cancer fighting together, fighting for ALL! Their fingers illustrate the number of years they have LIVED with Stage 4 Lung Cancer! Is this what you imagine lung cancer looks like?
16 years ago today, the very first article about non-small cell lung cancer (NSCLC) with an ALK-positive mutation was published in Nature by a team of doctors in Japan.
To read the official abstract from Nature, click below:
Today, this stage 4 lung cancer survivor met his first grandchild all because of comprehensive biomarker testing, access to targeted therapies and research! Every Minute Matters!
Last night the ALK community lost our fierce leader, former president of ALK Positive, Inc., and true force of nature- Gina Hollenbeck. Rest in peace dear friend. The privilege has truly been ours. Thank you
@GinaHollenbeck
, for all of it.
#mudorstars
#moreresearchmorelife
Saturday morning we lost a member of our
@ALKLungCancer
patient community. Andy Trahan was a seven year survivor, fierce advocate, proud father, and loved husband. Our thoughts are with Leslie and the children. We will miss you Andy.
@lestrahan
#ALKPositive
#LCSM
Brought to you by
#research
#biomarker
testing and targeted therapy! 5 Year
#lungcancer
#survivor
Brandi has gotten married and just gave birth to her second child ALL while battling Stage 4 Lung Cancer! THIS is possible!
#Living
with lung cancer! Help Share
#retweet
Happy International Day of Women & Girls in Science to my better half, Alice Tsang Shaw, MD PhD, Dir of Thoracic Oncology
@MGHCancerCenter
; Prof Medicine
@harvardmed
. She brings scientific excellence, grit, passion & humanity to pt care & research in targeted Rx for NSCLC
#lcsm
#ALKinthehouse
#ALKSummit2019
Can you tell who is the Stage 4 Lung Cancer in these photos? Hint: There is one in every photo! Still think Biomarker Testing and Targeted Therapies are not worth it?
#LCSM
Research Matters!
Excellent landmark study
@asco
by Dr
@bensolomon1
on CROWN on 1L Lorlatinib for ALK
#lungcancer
. Packed room w many turned away at
#ASCO
.
“Unprecedented improvement in outcomes.” Median survival not reached in 5 year follow up. Efficacy across poor prognostic biomarkers too.
#WomenWhoCurie
We celebrate the discovery of radiotherapy, advances in medicine, and women. Lung cancer is the leading cancer killer of women since 1987 and that 65% of new lung cancer diagnosis are among never and former smokers. Women need to unite! Women of Lung Cancer!
Candace was diagnosed with Stage 4
#lungcancer
at 39. For her, it was a shock: “I had the opinion that most of the time, lung cancer came from smoking or 2nd hand smoke. It’s not just a smokers' disease…” If you’ve been diagnosed, we’re here for you:
#WCLC2019
Lung Cancer Patients become Lung Cancer Activists! Patient Activists are not waiting for someone else to highlight the issues of lung cancer.
#Up2Us
We are
#grateful
and
#proud
to all the activists at
#WCLC19
with presentations, abstracts, and posters.
#LCSM
#lungcancer
We are sad to share that Clark Evans, ALK Positive Inc treasurer, died on Monday.
Clark was a great, active community & board member; a great example of making an impact while living w ALK cancer.
Our thoughts & prayers are w his family & loved ones. 💜
Congrats to this year’s recipients of the ALK Positive/
@LUNGevity
Research Awards: Trevor Bivona,
@BivonaLabUCSF
; Roberto Chiarle
@Chiarlelab
&
@AngelQinMD
.👏👏
We’re proud of the $1.75m raised by the ALK Positive Inc patient community for these grants!
We’re excited support the $9.1M Judith Tam ALK Lung Cancer Initiative w
@UMRogelCancer
. Patients attending
#ALKSummit24
, who consent, will take part in this unprecedented blood draw helping to understand various things from why ALK occurs to what to do about it.
#StrongerTogether
In partnership with Lungevity,
#ALKPositive
announces that we are funding THREE new, $200,000 research projects to benefit ALK patients and lung cancer research in general!! Whoop whoop!!! How exciting!
#LCSM
This is Amanda. She is a fantastic mom to her beautiful children. Can you believe that Amanda has lung cancer? Did you know that lung cancer takes more women's lives than breast cancer? No one is protected from lung cancer.
#tuesdayvibes
#TuesdayThoughts
#LCAM
ALK+
#lungcancer
: 50% are ⬇️50 yrs, 90% ➡️diagnosed at
#stage4
& often female.
Like Amanda, who was fit, active & diagnosed stage 4 in 2016.
Research allows Amanda to make family memories. But we need more - pls help 👉
#MoreResearchMoreLife
#LCAM
#LCSM
17 yrs ago today, Drs Soda, Mano, et al's paper in
@Nature
discovering ALK
#lungcancer
set the stage for the development of multiple generations of ALK TKIs, transforming lives of our community.
Grateful for this & all research.
#ResearchSavesLives
#LCSM
Many Lung cancer families choose to fight for the day when there is no shame in saying "I have lung cancer" or one has died from lung cancer! Valerie Harper fought a courageous battle with lung cancer that spread to her brain.
#noshame
#ValerieHarper
ALK Positive leadership was on a mission today at
#ASCO2022
in Chicago! Kicked off the day with a “Key Opinion Leader Breakfast” & then had several meetings with leaders in the industry. Stay tuned for more from this action-packed weekend.
#moreresearchmorelife
#StrongerTogether
Congratulations to Colleen Conner Ziegler, the 2023 recipient of the
@lcrf_org
Research Advocate award!
Congrats, Colleen, and we thank you for your dedication to patient advocacy!
#alkpositive
#advocacy
#lungcancer
It's
#WorldALKLungCancer
day.
15 years ago today, Dr Mano of Japan discovered
#ALKPositive
fusion
#lungcancer
- changing the life expectancy for hundreds of thousands of lung cancer patients.
We honor Dr Mano & all researchers since by funding research. Why not donate today?
Breaking news for our global ALK-positive
#cancer
patient and caregiver community:
Our 2023 ALK+ Summit will take place from July 21-23 in Philadelphia, PA, USA. Both in-person and virtual attendance will be possible.
Stay tuned for more info. 🤍💗🤍
#StrongerThanEver
#lcsm
Research is like sunshine: It represents what's possible today & the hope of a better tomorrow.
While the sun may not always shine, unless we check we will never know, says Dr Balazs Halmos. Research is a window on new opportunities.
#MoreResearchMoreLife
@DrSteveMartin
#LCAM
At LungCAN 2019
@JFreemanDaily
and
@KAdvocate_LCAM
presented on
@IASLC
STARS, a groundbreaking training program to understand the science of lung cancer advocacy. Well educated advocates are important for lung cancer! Congratulations to our colleagues!
Dear Medical Community,
@nitasfab5
Stage 4 Lung Cancer Survivor is celebrating 5 Years of LIVING! Do you know this is possible, do you know how to order comprehensive biomarker testing, read the assays, seen the results of targeted therapies. Educate!
That’s a wrap on ALK Positive Summit 2023! Please give a huge round of applause to our incredible speakers, ALK-positive patients and caregivers, and our generous sponsors for making this weekend possible.
Thank you for a great weekend! We are
#ALKStrong
.
We are thrilled to announce the launch of the inaugural ALK+ Cancer Awareness Month! Every June, we will bring new awareness and visibility to ALK-positive cancers.
To get involved with ALK+ Cancer Awareness Month, visit our website for more details.
We want to fund life-saving ALK Positive Research! Help us Retweet and Share this $1 Million Research Grant Opportunity. Patient Funded - Patient Selected. Apply Today!
We are excited to partner for the second time with patient-led group
@ALKLungCancer
to fund $1 million in research awards to support patient-driven research that has lifesaving potential ->
#lungcancer
#cancerresearch
Drs. Mark Awad and Roberto Chiarle are developing a therapeutic vaccine that could improve the survival rates for ALK-positive
#lungcancer
patients. Their project was funded by
@ALKLungCancer
with a 2018 LUNGevity research grant.
We are ultimately a patient-run & focused organisation. Fittingly, we closed our
#ALKSummit24
w an inspirational patient panel hosted by Board Member
@Yvonne_Diaz_
w Juli Posner,
@ImeUwe
, Matt Quirk & Jay Rosenbaum packed w advice. Grateful for our community 💙
#StrongerTogether
"Advocate for yourself. Get a doctor that believes in you and that you believe in. Get a team that wants you to live."
Wise words heard from
#ALKpositive
#PatientAdvocate
Kirk Smith at our ALK+ Summit last month in Denver.
#StrongerTogether2022
📣 We’re excited to announce that the Phase 2 portion of our ALKOVE-1 clinical trial of NVL-655 for patients with ALK-positive
#NSCLC
& other solid tumors is open and enrolling following alignment with the FDA on a recommended Phase 2 dose.
Learn more:
We wonder how many in the medical community are aware that THIS is what a Stage 4 Lung Cancer Survivor can do, if they receive biomarker testing that makes it possible to locate treatable mutations? If you know, are you educating others?
#WCLC19
#WCLC2019
A special moment at the
#ALKPositiveSummit2023
at the Philadelphia Hope Fence as patients, care partners, families, and physicians added their locks to the fence.
Thank you to everyone involved for being such a supportive member of our community. We are
#StrongerTogether
.
Just in case you had any doubt that anyone with lungs can get lung cancer, or that genetic testing is not necessary! Targeted therapies are a game changer!
"I was diagnosed in June with Stage 4 Lung Cancer. Nothing is stopping me!" Made possible by a medical team who knew how to diagnose, test, and treat NSCLC! Comprehensive Biomarker Testing Matters!
Dr Ken Culver, our Dir of Research & Clinical Affairs, is at
#ESMO23
advocating for our ALK+
#cancer
community. He’s meeting pharma, investigators & biotech, making sure they understand it’s important they develop drugs for ALK.
Much to be excited about➡️ ALINA & ADCs
#LCSM
👇
Can you imagine being a bodybuilder, choosing to live a healthy lifestyle, newly married, in the prime of your life and dying of lung cancer? Neither did Dave Miller! This is why we fight! Why we educate! Gone to soon! 1-11-2019
Gina Hollenbeck is in Washington DC today promoting the ALK Positive Biden Cancer Commitment for the importance of genetic testing and access to best available treatments! We are Living Proof!
"Advances in research and technology have allowed me to live a fairly normal life - even with stage IV lung cancer..." (Gina Hollenbeck, ALK Positive) Read more from
@ALKLungCancer
at:
There goes our very own
@amand12827
advocating for us all. 😍👊❤️
“Honored to speak
@genentech
HQ in San Francisco & continue my journey. The photo on the building of me is 3 yrs old. I remember another ALK+ lung cancer friend, not making his 3 year contract…
🧵1/2
My daughter
@kabensen
and I had a good day at the
@MayoClinic
in Rochester today as she continues treatment for Stage 4 non-smoking, non-small cell lung cancer. She remains strong, positive, and hopeful about the future.
#katiewins
We are 1,400 ALK Positive Lung Cancer patients and caregivers from all over the world (and growing) fighting for our lives! Connect with us on our Public Facebook Page ALK Positive Outreach
One way we connect in the social media world with our "family" is to communicate with a simple hashtag where there is even one of us representing ALK Positive, we are ALL represented
#ALKINTHEHOUSE
in the "Living" Room of
@GO2Foundation
advocating for ALL at LungCAN 2019
Our Research Acceleration Committee makes the case for focusing on ALK
#cancer
#research
.
Global ALK TKI market has sales of $2.5b & about 94k new dx globally each year.
Dr Ken Culver says, there is a science case, medical case and a business case.
#ALKSummit2023
#LCSM
Life saving cancer treatments are made by relentless research.
Professor Solange Peters(
@peters_solange
) believes that research fuels progress, challenging lung cancer’s grip on lives and healthcare.
#MoreResearchMoreLife
#LCAM
#lungcancer
ALK Positive Advocate Rhonda Meckstroth fights for what she knows! "My husband, Jeff, is living proof that biomarker testing and targeted therapies are a game changer. Three years after his stage 4 diagnosis, Jeff is still farming 600 acres!"
#Winning
Our social media presence is to educate the public and celebrate all battling
#LungCancer
. We have made great strides but Regina Dieker would unapologetically want us to remind the world, we are not there yet! We will continue our fight for you and all! RIP Regina!
#LCSM
Research is why many of us w/ ALK+
#lungcancer
are living well & longer.
Dr
@christine_lovly
believes in more patient-partnered teamwork in research. That's how we bring tomorrow's research advances today.
Afterall,
#MoreResearchMoreLife
.
#LCAM
The past decade has seen major strides in
#lungcancer
- thanks to research. But we need more.
It's why Dr Jamie Schneider believes
#MoreResearchMoreLife
.
Research is what helps us expand treatment options and develop novel life-saving therapies.
#LCAM
Chris Draft delivers an inspirational speech to end our first night at the political advocacy summit! "Be hopeful that we are moving!!!"
#LCSummit18
#SaveHerLungs
@LCAorg
@chrisdraft
Thank you, Chris!!