ALK Positive
@ALKPositiveinc
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We are a patient-driven organization, dedicated to improving the life expectancy & quality of life for ALK-positive cancer patients worldwide. #StrongerTogether
United States
Joined May 2018
THIS photo says it so well! Women in Lung Cancer fighting together, fighting for ALL! Their fingers illustrate the number of years they have LIVED with Stage 4 Lung Cancer! Is this what you imagine lung cancer looks like?
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Our member -@1111linno Linnea Olson passed away on November 15th. She was a fierce advocate and trailblazer for #clinicaltrials. She left her stamp on all of our ❤️❤️❤️ She will be dearly missed. #alkpositive #LCAM #LCSM @ALKLungCancer
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16 years ago today, the very first article about non-small cell lung cancer (NSCLC) with an ALK-positive mutation was published in Nature by a team of doctors in Japan. To read the official abstract from Nature, click below:
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Photo of the day! Three young, vibrant, women who all have stage 4 lung cancer! Research Matters!
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Sequenced ALK inhibitors with mOS 89.6 months!!! It's great progress but NOT our ultimate end point. #hope #ResearchMatters #ResearchSavesLives @IASLC #LCSM #WCLC20
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Today, this stage 4 lung cancer survivor met his first grandchild all because of comprehensive biomarker testing, access to targeted therapies and research! Every Minute Matters!
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Last night the ALK community lost our fierce leader, former president of ALK Positive, Inc., and true force of nature- Gina Hollenbeck. Rest in peace dear friend. The privilege has truly been ours. Thank you @GinaHollenbeck , for all of it. #mudorstars #moreresearchmorelife
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Saturday morning we lost a member of our @ALKLungCancer patient community. Andy Trahan was a seven year survivor, fierce advocate, proud father, and loved husband. Our thoughts are with Leslie and the children. We will miss you Andy. @lestrahan #ALKPositive #LCSM
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Brought to you by #research #biomarker testing and targeted therapy! 5 Year #lungcancer #survivor Brandi has gotten married and just gave birth to her second child ALL while battling Stage 4 Lung Cancer! THIS is possible! #Living with lung cancer! Help Share #retweet
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Our family is so grateful for this amazing woman! One of a kind!.
Happy International Day of Women & Girls in Science to my better half, Alice Tsang Shaw, MD PhD, Dir of Thoracic Oncology @MGHCancerCenter; Prof Medicine @harvardmed. She brings scientific excellence, grit, passion & humanity to pt care & research in targeted Rx for NSCLC #lcsm
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#ALKinthehouse #ALKSummit2019 Can you tell who is the Stage 4 Lung Cancer in these photos? Hint: There is one in every photo! Still think Biomarker Testing and Targeted Therapies are not worth it? #LCSM Research Matters!
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#ALKSUMMIT2019 Highlight! Dr. Alice Shaw and @1111linno sharing their powerful relationship with over 200 ALK Patients in @CityofAtlanta! #lcsm #alkqueen #alkbadass
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Excellent landmark study @asco by Dr @bensolomon1 on CROWN on 1L Lorlatinib for ALK #lungcancer. Packed room w many turned away at #ASCO. “Unprecedented improvement in outcomes.” Median survival not reached in 5 year follow up. Efficacy across poor prognostic biomarkers too.
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Dr @JessicaJLinMD’s message pinned to the @PHLHopeFence captured the hearts and minds of our ALK+ #cancer community:. Cure ALK+ #Lungcancer. We couldn’t say it better ourselves. Thanks Dr Lin for being such a supportive member of our community. #ALKSummit2023 #StrongerTogether
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They are lung cancer survivors, lung cancer activists, and friends! They choose to do the "work" to improve the landscape of lung cancer! #LCSM #powerfulwomen #cancerFIERCE #WCLC19
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#CelebrateEverything! Especially a 3 year cancerversary! Congrats @LungCancerDude. Survivors around to see their babies grow up - #priceless #ResearchMatters #lungcancer #alklungcancer #LCSM
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Our #ALKPositive #cancer and #lungcancer targeted therapies are not only helping us live longer, but better lives. This group here, all with ALK+ cancer more than 5 years, is living proof of how #MedicalResearch is making a difference. #ResearchSavesLives #StrongerTogether #LCSM
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#SundayTODAY Would you please give a shout out to all the families impacted by lung cancer. November is Lung Cancer Awareness Month! Help us educate!
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Great to see this esteemed group of doctors & #PatientAdvocates highlighting that anyone with lungs can get #LungCancer. What better place then the @IASLC #WCLC22 in Vienna? Thank you all including @StephenVLiu @NarjustFlorezMD @TerriConneran @TheWRP4LC #LCSM
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Thinking of all the cancer #survivors and their families today. #patients #hope #ResearchMatters #LCSM
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We KNOW the importance of Biomarker Testing and Targeted Therapies! We need the Best in lung cancer to join us to make sure all who can benefit are tested! @DCarboneMD @EdKimMDLCI @BrendonStilesMD @LeciaSequist @BidenCancer
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#WomenWhoCurie We celebrate the discovery of radiotherapy, advances in medicine, and women. Lung cancer is the leading cancer killer of women since 1987 and that 65% of new lung cancer diagnosis are among never and former smokers. Women need to unite! Women of Lung Cancer!
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Thank you @AmericanCancer @AmerCancerCEO @RichWender @NLCRTnews @ellakaz for using your voice to update the public message of lung cancer. We are proud to partner and recognize we have to work together to save lives. Telling our story is important! #LCAM #MondayMotivation.
Candace was diagnosed with Stage 4 #lungcancer at 39. For her, it was a shock: “I had the opinion that most of the time, lung cancer came from smoking or 2nd hand smoke. It’s not just a smokers' disease…” If you’ve been diagnosed, we’re here for you:
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Fantastic to see so many friends and respected clinicians, researchers and partners here at #ASCO24. #StrongerTogether #ResearchSavesLives
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Trial for #EGFR & #alkpositive Pts. post TKIs of Pembrolizumab + Carboplatin + Pemetrexed. Data from @JustinGainor. Disappointing data for ALK positive #patients with rapid progression on trial. OS EGFR 22.2 months ALK 2.9 months @IASLC #WCLC21 #LCSM
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Raising awareness that anyone with lungs can get #lungcancer is vital. Thank you Pierre & @heidi_onda from the @TheWRP4LC & @chrisdraft for supporting us at the #ALKPositive Summit in Denver. We loved seeing those white ribbons going to so many homes. #TogetherStronger2022 #LCSM
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We are sad to share that Clark Evans, ALK Positive Inc treasurer, died on Monday. Clark was a great, active community & board member; a great example of making an impact while living w ALK cancer. Our thoughts & prayers are w his family & loved ones. 💜
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Congrats to this year’s recipients of the ALK Positive/@LUNGevity Research Awards: Trevor Bivona, @BivonaLabUCSF; Roberto Chiarle @Chiarlelab & @AngelQinMD.👏👏. We’re proud of the $1.75m raised by the ALK Positive Inc patient community for these grants!.
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We’re excited support the $9.1M Judith Tam ALK Lung Cancer Initiative w @UMRogelCancer. Patients attending #ALKSummit24, who consent, will take part in this unprecedented blood draw helping to understand various things from why ALK occurs to what to do about it. #StrongerTogether
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Let's not contribute to the stigma of #lungcancer. "Consider the language you use with advocacy." Impactful speech by our own former president of @ALKLungCancer @GinaHollenbeck @IASLC #alkpositive #WCLC21 #LCSM
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In partnership with Lungevity, #ALKPositive announces that we are funding THREE new, $200,000 research projects to benefit ALK patients and lung cancer research in general!! Whoop whoop!!! How exciting! #LCSM.
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A little behind the scenes of our #ALKSummit24 photo before the official one comes out. Hoping next years photo is even bigger . #StrongerTogether #LCSM #lungcancer
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Thank you @thehuffproject @LungCancerDude for your $25,000 donation to @ALKLungCancer toward the 1st ever ALK vaccine with @DrMarkAwad! See here: Patient Driven Research. #ResearchSavesLives #ResearchMatters #alkpositive #LCSM.
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Over 700 people are registered for our Virtual #ALKSummit21 THIS WEEKEND! Come hear experts @christine_lovly @DrewMoghanaki @BrendonStilesMD @vincentlamMD @DrMarkAwad @lpetrillz Tasneem Ahmed and many more! Register here: #LCSM
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Significant advances in #lungcancer treatment bring hope. As Dr @StephenVLiu acknowledges, we know how to treat many newer forms of lung cancer, like ALK+, because of research. But we have much more work to do. It's why he believes #MoreResearchMoreLife. #LCAM #LCSM #LCAM23
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Carl was diagnosed w/ #stage4 #ALKPositive #lungcancer 5 years ago. Only 10 years ago, survival for ALK+ cancer was measured in months. Today, with research, it is measured in years. We believe #MoreResearchMoreLife. No donation is too big or 🤏🏽: . #LCAM
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November 14th @jillfeldman4 will be on @TODAYshow and November 23rd @1111linno will be doing @TEDx in Boston! Thank you ladies for representing us all on the big stage! There is so much the public needs to know! @MSNBC @WillieGeist @cnnbrk @foxnewsalert @GMA @NorahODonnell #LCAM
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This is Amanda. She is a fantastic mom to her beautiful children. Can you believe that Amanda has lung cancer? Did you know that lung cancer takes more women's lives than breast cancer? No one is protected from lung cancer. #tuesdayvibes #TuesdayThoughts #LCAM
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Until 2007, about 1 in 20 #lungcancer patients had 1 thing in common but didn't know it: an alteration of the ALK gene. Thanks to #research, we know about #ALKPositive #lungcancer & can treat it for a longer life expectancy. Dr Ross Camidge believes #MoreResearchMoreLife. #LCAM
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ALK+ #lungcancer: 50% are ⬇️50 yrs, 90% ➡️diagnosed at #stage4 & often female. Like Amanda, who was fit, active & diagnosed stage 4 in 2016. Research allows Amanda to make family memories. But we need more - pls help 👉 #MoreResearchMoreLife #LCAM #LCSM
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We held the first ever ALK+ Summit in Louisville this weekend. And there were a whole lot of reasons to be feeling positive :) #lcsm
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17 yrs ago today, Drs Soda, Mano, et al's paper in @Nature discovering ALK #lungcancer set the stage for the development of multiple generations of ALK TKIs, transforming lives of our community. Grateful for this & all research. #ResearchSavesLives. #LCSM
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Many Lung cancer families choose to fight for the day when there is no shame in saying "I have lung cancer" or one has died from lung cancer! Valerie Harper fought a courageous battle with lung cancer that spread to her brain. #noshame #ValerieHarper.
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ALK Positive leadership was on a mission today at #ASCO2022 in Chicago! Kicked off the day with a “Key Opinion Leader Breakfast” & then had several meetings with leaders in the industry. Stay tuned for more from this action-packed weekend. #moreresearchmorelife #StrongerTogether
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Congratulations to Colleen Conner Ziegler, the 2023 recipient of the @lcrf_org Research Advocate award! . Congrats, Colleen, and we thank you for your dedication to patient advocacy! . #alkpositive #advocacy #lungcancer
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It's #WorldALKLungCancer day. 15 years ago today, Dr Mano of Japan discovered #ALKPositive fusion #lungcancer - changing the life expectancy for hundreds of thousands of lung cancer patients. We honor Dr Mano & all researchers since by funding research. Why not donate today?
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Breaking news for our global ALK-positive #cancer patient and caregiver community: . Our 2023 ALK+ Summit will take place from July 21-23 in Philadelphia, PA, USA. Both in-person and virtual attendance will be possible. Stay tuned for more info. 🤍💗🤍 . #StrongerThanEver #lcsm
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Research is like sunshine: It represents what's possible today & the hope of a better tomorrow. While the sun may not always shine, unless we check we will never know, says Dr Balazs Halmos. Research is a window on new opportunities. #MoreResearchMoreLife @DrSteveMartin . #LCAM
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At LungCAN 2019 @JFreemanDaily and @KAdvocate_LCAM presented on @IASLC STARS, a groundbreaking training program to understand the science of lung cancer advocacy. Well educated advocates are important for lung cancer! Congratulations to our colleagues!
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Dear Medical Community, @nitasfab5 Stage 4 Lung Cancer Survivor is celebrating 5 Years of LIVING! Do you know this is possible, do you know how to order comprehensive biomarker testing, read the assays, seen the results of targeted therapies. Educate!
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What are my choices if I experience progression?. Leading key opinion leader panel provides top insights, including Drs @HosseinBorghaei Thomas Stinchcombe @DukeCancer @JessicaJLinMD @AngelQinMD @ShirishGadgeel @VincentLamMD w Dr Ken Culver. #StrongerTogether #ALKSummit2023
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That’s a wrap on ALK Positive Summit 2023! Please give a huge round of applause to our incredible speakers, ALK-positive patients and caregivers, and our generous sponsors for making this weekend possible. Thank you for a great weekend! We are #ALKStrong.
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We are thrilled to announce the launch of the inaugural ALK+ Cancer Awareness Month! Every June, we will bring new awareness and visibility to ALK-positive cancers. . To get involved with ALK+ Cancer Awareness Month, visit our website for more details.
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We want to fund life-saving ALK Positive Research! Help us Retweet and Share this $1 Million Research Grant Opportunity. Patient Funded - Patient Selected. Apply Today!.
We are excited to partner for the second time with patient-led group @ALKLungCancer to fund $1 million in research awards to support patient-driven research that has lifesaving potential -> #lungcancer #cancerresearch.
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Why is this significant? Because our lung cancer family has to fundraise for research for ALK lung cancer to save our own lives! #MondayMotivation #mondaythoughts #MondayMood #LCAM.
Drs. Mark Awad and Roberto Chiarle are developing a therapeutic vaccine that could improve the survival rates for ALK-positive #lungcancer patients. Their project was funded by @ALKLungCancer with a 2018 LUNGevity research grant.
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We are ultimately a patient-run & focused organisation. Fittingly, we closed our #ALKSummit24 w an inspirational patient panel hosted by Board Member @Yvonne_Diaz_ w Juli Posner, @ImeUwe, Matt Quirk & Jay Rosenbaum packed w advice. Grateful for our community 💙#StrongerTogether
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"Advocate for yourself. Get a doctor that believes in you and that you believe in. Get a team that wants you to live.". Wise words heard from #ALKpositive #PatientAdvocate Kirk Smith at our ALK+ Summit last month in Denver. #StrongerTogether2022
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Our ALK+ #lungcancer & #cancer community welcomes the opening of phase 2 of the @nuvalent NVL-655 #clinicaltrial. We are grateful to the amazing people in our patient community taking part. Good luck to all those waiting to join too. #ResearchSavesLives #LCSM.
📣 We’re excited to announce that the Phase 2 portion of our ALKOVE-1 clinical trial of NVL-655 for patients with ALK-positive #NSCLC & other solid tumors is open and enrolling following alignment with the FDA on a recommended Phase 2 dose. Learn more:
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#ASCO19 To ALL who test, diagnose, treat, or lead #research for #lungcancer patients - WE ARE #grateful #ThankfulThursday @IASLC @DCarboneMD @EdKimMDLCI @christine_lovly @LeciaSequist @geoff_oxnard @BrendonStilesMD @JackWestMD @DrewMoghanaki @GuardantHealth @FoundationATCG.
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#ALKSUMMIT2019 #ALKinthehouse Patients driving their own care, funding their own research, and building collaborations to fight lung cancer! #LCSM
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A special moment at the #ALKPositiveSummit2023 at the Philadelphia Hope Fence as patients, care partners, families, and physicians added their locks to the fence. Thank you to everyone involved for being such a supportive member of our community. We are #StrongerTogether.
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Just in case you had any doubt that anyone with lungs can get lung cancer, or that genetic testing is not necessary! Targeted therapies are a game changer!
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Hopeful presentation by @JessicaJLinMD from @MGHCancerCenter possible experimental 4th generation #alkpositive TKI TPX-0131 coming to Phase 1 #clinicaltrials later this year. @IASLC #ResearchSavesLives #TTLC21 #LCSM
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"I was diagnosed in June with Stage 4 Lung Cancer. Nothing is stopping me!" Made possible by a medical team who knew how to diagnose, test, and treat NSCLC! Comprehensive Biomarker Testing Matters!
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Can you imagine being a bodybuilder, choosing to live a healthy lifestyle, newly married, in the prime of your life and dying of lung cancer? Neither did Dave Miller! This is why we fight! Why we educate! Gone to soon! 1-11-2019
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Gina Hollenbeck is in Washington DC today promoting the ALK Positive Biden Cancer Commitment for the importance of genetic testing and access to best available treatments! We are Living Proof!.
"Advances in research and technology have allowed me to live a fairly normal life - even with stage IV lung cancer. " (Gina Hollenbeck, ALK Positive) Read more from @ALKLungCancer at:
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Why do people get ALK+ #lungcancer? Why do some respond well to treatments, others less so?. Dr @AngelQinMD thinks research can unlock these questions. It's why she's part of the Judith Tam ALK Research Project @UMRogelCancer. Also why she believes #MoreResearchMoreLife. #LCAM
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As an active, young doctor, Sydney never expected to hear ‘you have stage 4 #ALKPositive #lungcancer.’. Thanks to medical research, Sydney's doing the things she loves today. But we need your help to fund more life. #MoreResearchMoreLife #LCAM @YolaOLO17
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There goes our very own @amand12827 advocating for us all. 😍👊❤️. “Honored to speak @genentech HQ in San Francisco & continue my journey. The photo on the building of me is 3 yrs old. I remember another ALK+ lung cancer friend, not making his 3 year contract…. 🧵1/2
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Today @UKALK1 @EgfrUk @chrisdraft are joining forces to educate Parliament about #lungcancer #teamwork
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They will never hear your voice until they have a chance to know your story! @AmericanCancer and @ALKLungCancer Education is the key to ending the ignorance! #ALKinthehouse #ALKSUMMIT2019
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Over the last 20 years, while #lungcancer rates have fallen for men, they have increased in women. Dr @NarjustFlorezMD believes research needs to play a role in stopping this. It's why Dr Florez believes: #MoreResearchMoreLife. #LCAM #LCSM #LCAM23
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My daughter @kabensen and I had a good day at the @MayoClinic in Rochester today as she continues treatment for Stage 4 non-smoking, non-small cell lung cancer. She remains strong, positive, and hopeful about the future. #katiewins
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We are building a Biden Commitment dream team! Fighting for All! Collaborations Matter! Join Us! You inspire us @chrisdraft @BidenCancer @BrendonStilesMD @DrewMoghanaki @christine_lovly @EdKimMDLCI @DCarboneMD @LeciaSequist @arbmckee.
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#NLCRT2019 Exciting to be in a room with almost 300 professionals dedicated to ensuring that lung cancer is a strategic priority! Thank you @ellakaz and @RichWender @AmericanCancer and @NLCRTnews for your work
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We are 1,400 ALK Positive Lung Cancer patients and caregivers from all over the world (and growing) fighting for our lives! Connect with us on our Public Facebook Page ALK Positive Outreach.
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To reach the #CancerMoonshot goals, we need to invest more in the number one #cancer killer: #lungcancer. Learn the facts👇. #ResearchSavesLives #LCSM
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LungCAN 2019 at @GO2Foundation #ALKINTHEHOUSE First Patient Support Group to join LungCAN and @NLCRTnews @AmericanCancer @LUNGevity We are proud of our commitment to partnerships in fighting for all #lungcancer families!
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Oncogenes Uniting! We are Powerful Together! A @ros1cancer An @EGFRResisters and an @ALKLungCancer fighting for all lung cancer! Biomarker Testing Matters! 100% @BidenCancer @NLCRTnews @RichWender @FoundationATCG @GuardantHealth @AmericanCancer @IASLC @NCCNnews #lungcancer #lcsm
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Fantastic line up at the #ALKSummit24. Virtual registration is free of charge. Don’t miss it 🤠👢 👉 Big thanks to our generous sponsors @genentech @pfizer @takedaoncology @nuvalent @roche @FoundationATCG @GuardantHealth. #StrongerTogether #LCSM
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Did you know that lung cancer is the leading cause of cancer deaths in the US, more than breast, prostate, and colon combined? Carly learned the hard way that anyone with lungs can get lung cancer #FridayFeeling #fridaymorning #FridayThoughts #LungCancerAwarenessMonth
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One way we connect in the social media world with our "family" is to communicate with a simple hashtag where there is even one of us representing ALK Positive, we are ALL represented #ALKINTHEHOUSE in the "Living" Room of @GO2Foundation advocating for ALL at LungCAN 2019
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Our Research Acceleration Committee makes the case for focusing on ALK #cancer #research. Global ALK TKI market has sales of $2.5b & about 94k new dx globally each year. Dr Ken Culver says, there is a science case, medical case and a business case. #ALKSummit2023 #LCSM
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#Research is the key to new discoveries in #lungcancer. As Dr @TejasPatilMD says, research helps drive innovation so patients with lung cancer can live longer and better. It's why he believes, #MoreResearchMoreLife. #LCAM
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Life saving cancer treatments are made by relentless research. Professor Solange Peters(@peters_solange) believes that research fuels progress, challenging lung cancer’s grip on lives and healthcare. #MoreResearchMoreLife #LCAM #lungcancer
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ALK Positive Advocate Rhonda Meckstroth fights for what she knows! "My husband, Jeff, is living proof that biomarker testing and targeted therapies are a game changer. Three years after his stage 4 diagnosis, Jeff is still farming 600 acres!" #Winning.
Our cofounder @chrisdraft @StanfordAlumni joined @ALKLungCancer advocates @RhondaMeckstro1 & Erica (@NDFootball fans) in South Bend, IN last night. #tacklinglungcancer #ItTakesATeam #LCSM
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Our social media presence is to educate the public and celebrate all battling #LungCancer. We have made great strides but Regina Dieker would unapologetically want us to remind the world, we are not there yet! We will continue our fight for you and all! RIP Regina! #LCSM
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To improve lung cancer outcomes we need to work together. Fantastic to see a strong ALK+ #lungcancer community at @GO2forLungCancr #VoicesSummit calling for more US Federal funding for lung cancer research. We truly are #StrongerTogether. The time for funding is now. #LCSM
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Research is why many of us w/ ALK+ #lungcancer are living well & longer. Dr @christine_lovly believes in more patient-partnered teamwork in research. That's how we bring tomorrow's research advances today. Afterall, #MoreResearchMoreLife. #LCAM
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Karla, a mom & pediatric anesthesiologist, sensed bad news when she found a swollen lymph gland in her collar bone. She never suspected stage 4 #ALKPositive #lungcancer. #LungCancerAwarenessMonth kicks off on Tues. Help us advocate for more research. #MoreResearchMoreLife. #LCAM
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#alkinthehouse #ASCO19 @GinaHollenbeck @RhondaMeckstro1 @nitasfab5 @ZieglerColleen are representing ALK Positive #lungcancer in Chicago @ASCO
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The past decade has seen major strides in #lungcancer - thanks to research. But we need more. It's why Dr Jamie Schneider believes #MoreResearchMoreLife. Research is what helps us expand treatment options and develop novel life-saving therapies. #LCAM
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Chris Draft delivers an inspirational speech to end our first night at the political advocacy summit! "Be hopeful that we are moving!!!" #LCSummit18 #SaveHerLungs @LCAorg @chrisdraft Thank you, Chris!!
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