I am overwhelmed by the response I've had to my book
#NeurodiversityInTheWorkplace
. This review reminds me exactly why I wrote it. Together by highlighting how
#inclusion
can be approached differently in workplaces, we can achieve change.
Buy here 👉
Since redundancy, I’ve had to visit a job centre to access the benefits system & claim Jobseeker’s Allowance for the first time in years. I have many thoughts. Job centre person said: “There’s nothing I can do for you. But you still have to come once a fortnight to chat to me.”
The dwp plan is still focusing on work, nothing on supporting those who can’t work.
Nothing on:
- Fairer assessments
- getting rid of conditionality and sanctions.
Feels like it’ll be very much the same as the Tory “Back to work” plan
A PIP assessment is one of the most traumatic things I have been through. Mine pays for the ADHD tax of forgetting to cancel a subscription/free trial, taxis when I'm fatigued/lost & sometimes therapy. There's no way I'd want the indignity & forced disclosure of using vouchers.
The whole system needs to change, as my impromptu interview with the advisor demonstrates. The staff who work there just don’t know what to do & lack the capacity to meet peoples needs.
I need to stop accidentally interviewing people. Journalism training comes in handy again…
ADHD meds have changed my life for the better. I wish I had them sooner. There’s still off days of course, but they are becoming fewer than before. Everyday is now not an off day, that’s the difference.
If it wasn’t for my ADHD meds, I don’t think I would’ve been able to stay motivated working during this pandemic. It also helps that I have a good manager
The appointments aren’t to support people with finding work, but to check up on people. Reiterating sanctions whenever possible. There is zero understanding of disability. I have to apply for “any job in my ability” if I don’t get a job in a month. Who is judging what I can do?
And this is my experience, as someone with the privilege of education who can, and wants to work. For disabled people who can’t work, the stigma and trauma of accessing a system that is meant to support (but does the opposite) is, I imagine so much worse.
There is something special/amusing about a zoom meeting with another ADHD colleague.
“Wait, give me a moment it’s just escaped my brain”
“No, totally gone”
“Ooh is that a cat behind you, can I meet the cat?”
“Two secs, I’ll just write it down or I’ll forget”
“Oh I do that too.”
She then went onto tell me they have no private rooms, as they’re only allowed one security guard. So if someone got overwhelmed or struggled with the sensory overload of a job centre, they have no where to go. So you stay in an open room sharing intimate details of your life.
I asked what training they get. She said a three day mental health training. And then there are disability advisors, who apparently have a quick 10 minute chat with them if someone has a disability they need to be aware of. What learning on inclusion can happen in 10 minutes?!
She then proceeded to tell me that they work with a wide spectrum of people right from professionals like me who have a career plan through to people who struggle with literacy or access to technology. Saying they don’t have the training or time to appropriately support people.
Love that so many people have realised that they have/might have ADHD during this pandemic. I wonder whether the world ‘slowing’ down had an impact on this
Today a 12 year old who had never met anyone “like him” before, asked me if he “had the good or bad kind of dyspraxia” I told him, there’s no bad, we just do things a bit differently and that’s okay. In tears about this on a train now. I hope I helped. His mum seemed grateful.
Have you ever gone through your teens & 20’s with undiagnosed ADHD? Have you ever been through an adult ADHD assesment at the age of 31 in the middle of a pandemic? If so, you’ll know that people wouldn’t put themselves through that unless they really thought they had ADHD ⬇️
The amount of stigma I’ve encountered about shortly trying ADHD medication really is quite something. There really is nowt wrong with taking meds to help your brain function better, and to quieten the noise. I wish more people would get that.
The best message to wake up to is from a parent who’s son has dyspraxia & I supported through his teenage years, telling me he got into his first choice uni and thanking me for all of the support. Despite a helping of mental health, bullying & time in a PRU. I am so very proud.
Applied for a Media and Communications Officer role, and I got the job!!! Quite overwhelming. But lovely end to an otherwise difficult week. Yay Friday.
I often see trauma/my flavour of neurodiversity/stage of diagnosis top trumps.
We all have different experiences, whether we are diagnosed as kids, as adults or self diagnosed. Competition of trauma in ND circles is really sad to see, when everyone’s difficulties are valid.
Okay Twitter! I’ve just had a very last minute phone call from BBC radio London, asking me to speak about the late diagnosis on ADHD in Women. Will be on at 11.30 today. Anything you would like me to say and flag?
#adhdtwitter
#ADHDWomen
#joinin
is really a very lovely thing. It’s times like this when I realise the loveliness of twitter. I’ve been surprisingly ok today, although there’s been times in the last few months when I’ve felt more lonely than ever. I hope those who need support are able to find it today.
THIS. I’ve realised this more recently after starting a new job & not having to ask for anything or apply for access to work because they just do everything anyway. This is what the world should be like. A proper inclusive environment, without feeling like you’re different.
I feel like a lot of ADHD accommodations at work and at school are just basic things employers and institutions should do to support individuals to thrive in that environment and to also feel included. Like it’s minimum human decency
@ADHDBea
More recognition of how ADHD presents in girls. I’m terms of more practical things, tasks written down & verbal instructions reinforced/ broken down, plenty of breaks, more open discussion about ADHD and Neurodiversity, so that I didn’t feel so odd, & I could accept myself more.
Very pleased to be able to officially announce that I have now started my new role as their North East Regional Coordinator
@TimetoChange
, working with young people to challenge mental health stigma. So excited for the next year! Thanks for all the support getting here.
Having shared care refused at the worst time in my life possible is not fun. Tips to functioning without ADHD medication would be grand right now, other than lying in bed in tears in an unmedicated mess…
Sometimes I really wish I wasn’t hundreds on miles away from a friend.
Ran the
#GNR40
The massive grin says it all. So pleased & broken. Thank you all for the support & good luck messages. You are all the best, as was the stranger who shouted “Alice you are amazing” at me through a mega phone. So pleased to have been able to support
@GhdYouthCouncil
Doing a live radio gig on Monday, chatting about dyspraxia, ADHD and the support I’ve found in running. BBC Radio Sheffield, about 12pm if anyone was vaguely interested. Might share the link after if I come across okay....
Hello Monday Morning Twitter!
Before Christmas whilst self isolating with Covid, I accidentally wrote a supporting neurodivergence at work guide, for employers to create more inclusive workplaces for everyone. And for ND folk to prompt to conversations.
For years I wondered why my brain wouldn’t shut up, and why I couldn’t just get stuff done, as much as I wanted to. Really pleased to see the BBC covering the impact of undiagnosed ADHD on women. Now can we make diagnosis and medication more accessible?
Note to anyone who needs to hear it; most grieving people really do want and appreciate phone calls from their friends. Not getting in touch and assuming they don’t want you to call is the worst.
So yesterday, after months of soul searching and trying to understand myself better, I was diagnosed with ADHD (alongside my dyspraxia.) I’ve finally been able to put into words something I haven’t been able to explain for years;
I’m in this months edition of
@PositiveNewsUK
discussing all things neurodiversity and dyspraxia, written by the fab
@Saba_Salman
. There’s also one page that is just a GIANT photo of me...
After anxiety attacks, tears and being convinced I’ll never be able to leave the house again. I went for my first proper run since lockdown began. I plodded all the way to say hi to to Paddington. Hurrah!
I’ve said this before, and I’ll say it again given what is currently being discussed on BBC1 - it is very dangerous to suddenly come off antidepressants without proper medical advice - please don’t do that.
🎉BOOK NEWS🎉
March means 8 weeks until publication day! I'm delighted (& overwhelmed) to share that my book “
#Neurodiversity
in the workplace: how to create a safe and inclusive environment” is out on the 25th April 2024. More to come soon on how to get a copy. Excited face! 🤪
A year ago today I was diagnosed with ADHD; since then I have ran a half marathon, got the job to manage the media and communications for the charity I work for, spoke on live radio about the impact of late diagnosis of ADHD in women and started ADHD medication. What a year…
Thank you for all the support and messages re
@Emmabarnett
show on
@bbc5live
. Lovely chatting to and hearing from
@RavWilding
. I’ve decided that I quite like doing live things, quite a step up from a dyspraxia podcast a few years ago. Actually buzzing so going for a run.
Utterly baltic out there tonight, but I still wanted to stop for a photo outside the illuminated building, because this is what turning 33 looks like. Amazing birthday afternoon seeing Bonnie and Fanny’s Christmas show
@LiveTheatre
. Go see it if you’re local!
#BonnieFannyXmas
.
For lots of complicated reasons I have never really gone out socially with people I work with, but tonight I did and had a cracking time. I’m starting to feel very much part of a team now :)
Hello Twitter! I’m going to be on Radio 5 Live this morning discussing late ADHD diagnosis. Will be on between 10 and 11, but haven’t got exact time yet. Anything I should mention?
#adhdtwitter
#askADHD
so medicated ADHD people I’m off work this week on holiday but still taking meds as I like it when my brain works. But because I haven’t had any work on I’ve found myself hyperfocusing on other things, more specifically walking. I’ve walked around for miles today.
On Friday I was officially notified of redundancy. Last working day 14th Feb & if it wasn’t for Covid I’d escape somewhere. So if anyone needs a multi skilled northerner for youth work/participation/mental health campaigning or charity comms, remote ideally, send ideas my way…
@thebodycoach
You’re a PE teacher who got famous in lockdown. You’re not a clinician/ADHD expert. Yes, good diet is important for everyone, no need to bring ADHD into it. The real issue is that ADHD has been underdiagnosed, especially in women & girls & those who don’t fit the ADHD stereotype.
“You were instrumental in giving my son confidence knowing he’s not the only one with dyspraxia. He has grown into a lovely young man. You supported me too!”
Comment from parent of young person I used to work with, now thriving at uni.
Excuse me while I’m in bits on the floor.
For anyone who needs some ADHD love tonight, have a Biscuit. Your diagnosis is valid. You are valid. You do belong. Biscuit says so! And cats are wise…
For the girl who was once told I couldn’t join the school athletics club because I wasn’t good enough. Running 11 miles is quite something. Working out a way to process that.
Tomorrow 8th August, I'm on the radio. Radio 5 Live, 11am, Emma Barnett Show. Chatting about dyspraxia. Just a normal Thursday then, but do listen if you want.
Today I did a thing that I didn’t believe I’d ever be able to do. More later but thanks to
@redkiterunners
for the amazing support and encouragement. And apparently this is photographic evidence to prove that you can run and come out smiling....
Similarly no one would put themselves through the dehumanising process of applying for PIP unless they really need it. Extra time in exams isn’t some kind of perk, and most kids would rather not have it and struggle, than look “different” ⬇️
I love that my twitter is full of music thanks to
@folkonfoot
#FrontRoomFest
. It makes a nice change from politics, but I should probably check in with what friends are up to soon too. Getting up to speed with the news can wait, staying in this bubble for a while longer is wise.
I’m at
@warwickfolkfest
this weekend;
@OHooleyandTidow
- “We dedicate this song to anyone else out there who is neurodivergent.” YES. What a brilliant start to a folk festival :)
Constantly jumping between: “It must be a lie or massive mistake. I can’t have ADHD, the Dr diagnosed me wrong.” To: “This is how much of my life was eaten because it went undiagnosed for so long.”
These feelings better go away soon, because it’s exhausting.
Here’s a beach:
Just because someone appears quieter than usual or distant in one meeting doesn’t necessarily mean there’s something VERY wrong. And prying may not always help. We don’t all have to be bouncy and chatty ALL OF THE TIME. We’re not all conditioned this way. Pass it on.
I have been open about being dyspraxic for years now, done lots of things. Brought a group of young people together who are now young adults & remain a brill support for each other. But despite all this, I still feel mixed about disclosure. Especially on the eve of live radio.
For years I always thought I had to gear up to a “special conversation” about my ADHD & dyspraxia when I start a new job or even just meeting new people. That was a lie. Since learning what inclusion actually means at the age of 33, I’ve written about it.
About 10 years ago I set up a support group for dyspraxic young people & their families. Tonight I met up that group who are now in their 20’s doing brill things. One of the parents said: “Alice, we’ll always be your fan club.” It’s very special knowing how much impact I’ve had.
My contribution to dyspraxia awareness week is a Facebook Live Q&A with Chair Sophie Kayani, over on the Dyspraxia Foundation Facebook page on Thursday at 8pm.
I could also tell you a story of determination. Might write about that one day.
Today I have done a load of housework, been for a 7K walk, finished a book, baked some brownies and now I’m just about to start making some lemon cake or banana bread (haven’t quite decided yet..) Safe to say Elvanse is actually magic.
Just had my first proper teary moment in the realisation that I’ve been dealing with an undiagnosed and untreated condition for years, and I’m finally going to get proper support that I’ve needed for far too long. 2020: you are wild.
Practicing what I preach is so very hard, but after banging on about the importance of self care and wellbeing at both the youth event and now the adult conference, I’m going to ensure “mission have a weekend of nice things for me” becomes more of a reality...
#dyspraxicadult
Two years ago I was diagnosed with ADHD, since then I ran a half marathon, started meds, fought my GP for shared care & got my MP involved (won after 10 months!), spoken on radio about late diagnosis in women, got through two bereavements & changed jobs. Think I need a lie down.
Met a (insert appropriate adjective) pharmacist today who muttered something about private prescriptions & then shouted at me in front of a long & busy queue “You must sign here because it’s A CONTROLLED DRUG”This doesn’t help the stigma or make accessing of ADHD meds any easier.
In the last year I have; started my first full time office job, adjusted to home working again, experienced continued online bullying & trolling, had several family health scares, transformed from youth worker to crisis worker & got diagnosed with ADHD.
No wonder I’m exhausted.
Now all young people I work with, colleagues, friends & family know. I can now officially announce I start a new role
@DartingtonSDL
as Digital & Communications Officer in July. So excited to be joining an organisation with young peoples needs at the heart of everything they do.
Hugs to everyone who is utterly terrified right now. I honestly don’t know how I can ever face or have feelings for anyone who has voted to do this to our country again (and that means most of my extended family...) Those of you who wanted a better society, I love you even more.
After explaining that some of my problems stem from emotional consequences of dyspraxia & being asked “But you know you have dyspraxia?” Shouldn’t be a therapists response. Slowly reaching end of the road with IAPT services, as many don’t meet the needs of ND people. That’s sad.
Accessing medication is a battle (see meds shortage), they won’t prescribe stimulants if you don’t have ADHD. Many NHS GP’s stigmatise ADHD & the meds we take to function.
Articles like this are damaging.
Please stop with the misinformation.
I may have Covid on turning 34 today. But nowt will stop me wearing a sparkly top, basking in fairy lights & dancing to ridiculous music, even if it is just for myself in my isolation four walls…
Appropriate t-shirt for vaccine day!
Now home & resting with a sore arm, and post teary anxiety attack. Not because I’m particularly worried about injections, but because how much a big deal this is suddenly dawned on me as I arrived
Nurses were lovely & gave me a quiet room.
I now own a giant towel you can wear. I didn’t know they sell these in adult sizes but they do. They should totally market these as a dyspraxia friendly beach towel..
Last weekend I was in tears about starting ADHD meds, and had to put it off until the next day. Today I don’t know why I had that much anxiety, and pleased I have supportive friends as I go through this process.
This is terrifying. Waiting this long to understand your brain will put so many people at risk. I’ve been on the NHS waiting list for about 4 years so far, and if I wasn’t in the position to get diagnosed & meds privately, I’d be even more broken than I currently am.
@Lili_Snowdon
That’s awful! Hope you’re okay (as can be.) Judging by her comments, you have more right to be here than someone with that much ignorance.
Three years ago this week I set up a group for young people with dyspraxia. We had a meeting today & I was told how much I'm appreciated. I'm now helping to proof read personal statements for university applications. Couldn't be more proud. Might have had a cry on the bus home.
I was told age 7 post dyspraxia diagnosis that I wouldn’t pass my year 6 Sats by a teacher.
I now have two MA’s and I’m two weeks into a job I adore. General conclusion from life: people can talk utter rubbish.
Off to Liverpool for work in the morning. This year I’ve certainly seen lots of places and learned which cities if ever do move away, I don’t want to live in.
But that’s all going to change because I just GOT A NEW JOB. Hopefully travelling will just be to see friends in future.
#MoreThanAGrade
My history teacher was the first person I went to age 14 when I started struggling with my mental health. She supported me through GCSE & A Level history & listened when others didn’t. I would never have got to uni without her help in those last years of 6th form.
This is so important. I’m pleased to see more statements being shared. Standing by, being silent & not challenging any form of abuse or harassment, looks like you can condone it. It makes the victim powerless to speak out. Scared to say anything because they are well known.
This is so important.
I was once told in an already degrading and stressful PIP assessment: “You don’t look anxious to me.”
I’d love to know what they think people with anxiety look like.
Similarly, I’m writing a book about neurodivergent inclusion at work, not because I’m following a trend, but because for years I’ve been unsupported & undervalued at work, & when I finally experienced the opposite I wanted to share what I’ve learned. My diagnosis helped get here.
I’m writing a book for women with ADHD & dyspraxia. Not because it’s suddenly ‘cool.’ Because I’ve been trying to write all kinds of books for the last two decades without understanding why it (& everything else) was so hard, and that diagnosis was the answer I needed.
It’s almost exactly two years since I completed Couch 2 5K & earned my first medal at race day, followed by an award at my running clubs award ceremony. Today I ran 10K in ridiculous heat, cried at the end, and felt that I could really do this half marathon. Glad to be here.
Over the last few weeks I’ve quietly taken up running again after it became inconsistent after lots of grief & GNR. Running has been the best thing for my mental health & after feeling a bit low recently, I’m so pleased I took it up at the age of 30 when I didn’t believe I could.
My Grandma who was recently diagnosed with Alzheimer’s & moved into a care earlier this year, told mum: “Can you buy a card from me for Alice for her run.”
The one thing she’s consistent about is remembering I’m training to run “quite a way” as she puts it. This means the world.
In the last week one cousin got engaged & another had her third baby. Meanwhile, today I was very accomplished & watched the re-make of Mary Poppins, mainly because my grandma adored musicals & would have watched it with me if she was here. Last year there was way too much grief.
Endings are so hard to navigate, but I think I got the balance right to manage both my feelings, and those of the young people I work with. Today I left a job of 4 years, working with brill young carers who made it clear how much they appreciate me. I will never forget them.