York Hull Adult CF Centre
@yorkhullcf
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Specialist Cystic Fibrosis centre covering the York and Hull region. Enthusiastic about excellent local care.
Yorkshire and The Humber
Joined October 2018
In relation to the below post re Creon supply shortages. Please contact your CF team if you are afected by the situation, or you need any help or advice. Tel 01904 725601- York 01482 622495- Hull Text 07816 330 902- York 07471 978 990- Hull
While we continue to push for short and long term solutions to the ongoing problems with supply of PERT (Creon), given the huge impact this is having on your lives we wanted to make sure you know how we can help. (1/4)
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RT @cftrust: "It can be scary and depressing when you have CF so I hope my story can show that some people with CF can live a long, happy a…
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NICE approve permanent access to life changing cystic fibrosis drugs
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Check out Ad's new hairstyle following Big Shave to raise funds for CF Trust. Just giving fundrising page is still open if you would like to donate! Adrian Moss is fundraising for Cystic Fibrosis Trust ( #cftrust
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Lovely Adrian is going to 'chop his very long hair off' on his BD, 15th May to raise awarness of Cystic Fibrosis and raise funds for CF Trust Cystic Fibrosis Trust!!
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RT @yorkhullcf: Lovely Adrian is going to 'chop his very long hair off' on his BD, 15th May to raise awarness of Cystic Fibrosis and raise…
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RT @cftrust: Our free body image booklet explores body image issues people with CF have told us they can struggle with, and provides suppor…
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Lovely Adrian is going to 'chop his very long hair off' on his BD, 15th May to raise awarness of Cystic Fibrosis and raise funds for CF Trust Cystic Fibrosis Trust!!
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Work Forwards is CF Trust's programme of free tailored careers information, advice, and guidance for people with CF and their loved ones. Self-employment: the importance of business planning Tuesday 21 May, 12.30-1.30pm, online webinar
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Work Forwards is CF Trust's programme of free tailored careers information, advice, and guidance for people with CF and their loved ones. Know your value! Cystic fibrosis, work and transferable skills webinar Wednesday 1 May, 12.30 – 1.30pm, online
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RT @cftrust: This week, NHS England have confirmed in a statement that commercial negotiations for the modulator appraisal have started and…
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RT @cftrust: People with #cysticfibrosis are living longer than ever. However, living longer with CF can bring its own challenges. We hoste…
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Happy Easter!!! Just a quick reminder : OUT OF HOURS CF CARE over Easter period York Ring Hospital Switch Board on 01904 631 313 Ask for Operator Request CF On-call Hull Ring Hull Hospital Switch Board on 01482 875 875 Request CF On-call
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Work Forwards CF Trust's programme Empowering people with cystic fibrosis to fulfill their career dreams and aspirations More info below
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RT @cftrust: It's #HelplinesAwarenessDay, a great opportunity to remind you that for anyone looking for information or support with any asp…
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RT @Dan_Beever: Very grateful to those that have completed my survey or shared it - it will close in a couple of weeks so any further help…
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Cystic Fibrosis Care- Food Voucher Application Click below for more information
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RT @cftrust: Are you yet to fill out the Your Life and CF Survey? We're particularly looking for people in #Scotland, #Wales and #Northenir…
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RT @cftrust: This Tuesday 20 February marks the official 60th anniversary of Cystic Fibrosis Trust and we are very pleased to share that a…
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