So I've had my biopsy results. My tumour was a stage 3 cancer, which is malignant so reasonably bad. What this means is that to ensure that I fully beat this I will require radio/chemo therapy. Should start that in a few weeks time. But, I've got this.
Somehow, despite being 4 months into my Chemotherapy, I can officially say my hair has grown back! Still a couple of thin patches but hey, I thought I was going to be bald until next year so big win for me.
This is going to be my last health tweet for a while. I wasn't sure if I should tweet about it but I've kept you all up to date so far so... Here goes. TLDR: My brain cancer is incurable. If all goes to plan, the doctors are giving me 10 years to live.
I didn't initially want to tweet about my battle with brain cancer because I didnt want to seem like I was looking for attention (although I totally was). I'm glad I did because the support has been overwhelming and a much needed pick me up, so thank you! ❤
So my brain surgery is scheduled for Feb 7th. If all goes to plan, they should be able to remove enough cancer that I can finally have a life again without much in the way of follow-up treatment. Fingers crossed!
Radiotherapy has left me with a rather... unique hair style. This is what the pinnacle of Male fashion looks like. This is the peak all others can only dream of attaining.
Off for wee spot of brain surgery tomorrow morning. Going to be MIA for a little bit, I will update you all as soon as I'm able, which should be either tomorrow night or Saturday. Wish me luck and I'll be back soon with a kick-ass scar. Love you all ❤
Health update: after many appointments and scans they found a tumour on my brain.
Not the greatest news I've had but it's in an easy to reach place so should only take one operation to get the entire thing out.
I am officially out of hospital! Now for the long painful road to recovery. Thank you so much for the support during this shitty time, you've all been amazing ❤
My surgery isn't until the middle of January but I shaved my hair off now so I could get used to how it looks. Here are the before, during and after pics. You're welcome.
Sorry for the morbid tweet and self pity that's been happening here lately. I'll still be doing treatment for about 9-ish months but after that I have 60 years of life to fit into 10. And I sure as hell plan to live it to the fullest!
I weighed 106lbs when I finished chemo a little over a year ago. I've spent the year trying my hardest to gain weight healthily, eating well and working out. I'm in the best shape I've ever been and weighed in this morning at 160lbs. Pretty proud of myself!
I appreciate the people defending me, but let's not use this to attack people please, I've defended my position and would just like to move on, not cause more of scene
I've had a huge amount of support during this shitty period, and I can't thank you and the wonderful people in my life enough. I have a bucket list and hopefully once all my treatment is over I'll be doing a lot of tweets about all the cool shit I plan on doing.
The scariest thing about the whole situation is that they will need to shave my head for the surgery... my poor hair deserves better. I'll keep you all updated!
I'm glad my physio therapist doesn't have twitter, I'm still just trying to learn to walk properly again, she'd have an absolute fit if she knew I was running around chasing poultry.
Happy Birthday me, 27. It has taken this many years for me to officially run out of all dignity and allow myself to be seen in public wearing Crocs and a man bun. How the mighty do fall.
That's not to say there is no hope. 10 years is plenty of time for something new to occur in the medical field and there is the slimmest of slim chances it never comes back. BUT the current reality is that I need to prepare for the worst.
Read on if you want the full deets!
So my brain tumour was pretty rare, called an Anaplastic Astrocytoma. It's nasty and with current medicine the best they can do is keep it at bay for as long as possible. I'm in a good position which means I get 10 years hopefully.
Well that is my radiotherapy mask fitting done. So starting on the 18th, I get 6 weeks of daily radiotherapy. Then a 4 week break. THEN 6 months of chemo tablets.
I'll be sure to post a picture of my giant white face condom once my treatment starts.
I REALLY didn't expect to be limping around the garden chasing a chicken that escaped from somewhere up the road today. But guess who is smarter than a chicken? Not me, it took 2 of us to corner the little shit so I could grab it.
I've somehow done the impossible and completed my extensive back catalogue of games that I wanted to play, perfectly timed for the release of Ghosts of Tsushima. I'm so freaking pumped for this.
Everyone is self isolating and social distancing, meanwhile I'm going out every weekday to go to radiotherapy in the middle of this wonderful pandemic. I chose a peak time to start my cancer treatment, guess I don't do half measures!