@Sally_writes Kids often ask me why I'm in a wheelchair. I usually answer "I got really sick." I'm torn about that answer because I don't want to make them terrified of getting a cold, but at the same time, it was a very common virus that got me.

@GWmag Periwinkle.

Explain to me how a #POTS girl who EATS SALT can find ham too salty?

@austencello Maybe more scary is that I wasn't even remotely concerned?

@JennyCumbria @TinyWriterLaura Well, that's lovely.

@cfs_jo Truth.

@Sally_writes That's a glorious tail though.

I'm starting to see light at the end of the PhD dissertation tunnel, which is making me dream of all the things I want to do afterwards. There are about 3 lifetimes' worth of things and I'm going to have to make #mecfs choices all over again. For now I'll enjoy the dream.

I finished another chapter! This one took me 7 months at the pace of 3 hours a week. And it's 48 pages long, so that's going to be a fun discussion with my committee. But it's done. #CFSPhD

@cfs_jo Happy birthday!! Nice tiara!

I'm not saying the added theme is wrong or anything. I was trying to be concise, so I didn't go down that road. But maybe give feedback along the lines of "develop this further" not write it yourself.

@cfs_jo Wow. I think I got lucky. My folks moved to Peru right about the age where it would really have become an issue, so all traditions got disrupted. Now we do sometime in the two weeks after Christmas (we have a lot of clergy in the family so Christmas day is less of an option).

Two years ago, someone gave me a wheelchair they were no longer using, as mine was looking rather tired. I'm proud to say that today I finally finished installing the battery. (It's rather more of a production than it sounds.) #MECFS triumphs.

@cfs_jo @Naomi_D_Harvey Same. I just move ten minutes a day.

Last night, I dreamed I climbed a mountain. #pwME #MECFS #POTS

@eduleadership @chronicallybeee So. Many. Times. Actually, lack of a working elevator was what put me in a wheelchair. Which totally helped with accessing things.

@Naomi_D_Harvey I started at 30mg and gradually increased over a period of years. I'm at 60 now. The effect that it had started pretty much straight off, although I didn't really notice for a few weeks because I didn't have self-awareness going for me at the time. Others noticed though.