VASCERN
@vascern
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Gathering the best expertise in Europe to provide accessible cross-border healthcare to patients with rare vascular diseases #ERNeu #RareDiseases
Joined February 2017
🚀We have expanded to new skies! Looking for more ways to stay updated on rare vascular diseases? We’re now sharing insights and resources in even more places. Come find us! 👀 #RareDiseases #VASCERN #StayConnected
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👩🔬 Today, we celebrate the women transforming rare disease research & care! On this #InternationalDayofWomenandGirlsinScience, we honour the female scientists & healthcare professionals advancing research & care for rare vascular diseases. #WomenInScience #IDWGIS #RareDisease
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❄️That’s a wrap on the VASCERN Vascular Anomalies Working Group winter meeting! Over two days, experts & patient advocates worked on #guidelines, #registries & patient pathways to improve care for vascular anomalies. 🎥Celebrating with the traditional boomerang! #RareDiseases
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🩺How often are venous malformations (VMs) mistaken for tumours? More often than you might think. Our diagnostic pathway helps: 🔹 Differentiate VM subtypes 🔹 Support personalised treatment Read more👉 #Researchhighlight #RareDiseases #VascularHealth
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A hug congratulations to our VASCERN expert, Prof. @MiikkaVikkula, recognized with the @EURORDIS Black Pearl Scientific Award! 🏆 His pioneering work in rare vascular anomalies is changing the landscape of research and care for patients across Europe. Well deserved! 👏
The Scientific Award celebrates the achievements of Professor @MiikkaVikkula, whose work in the field of rare vascular anomalies exemplifies the rare combination of scientific excellence and dedication to the patient community. #EURORDISAwards2025 🌟
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🚀 Live now! Our webinar on Varicose Veins in Vascular EDS with Dr. Michael Frank is in full swing! 🎙️ 📺Join us now: #VascularEDS #ehlersdanlossyndromes #ehlersdanlos #VaricoseVeins #MedicalWebinar
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⏳ Just 1 hour to go! If you haven't registered yet, there's still time. Register now and get instant access to the webinar link. Join Dr. Michael Frank as he shares expert insights on varicose veins in vEDS. 🔗 Register here: 📅 Feb 6 | ⏰ 17:00 CET
🚨 Today’s the day! Don’t miss our webinar on Varicose Veins in vEDS! Dr. Michael Frank will cover understanding, managing & treating varicose veins in vascular EDS. 📅 Feb 6 | ⏰ 17:00 CET 💡 Get expert insights & ask questions live! Register now!👉
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🚨 Today’s the day! Don’t miss our webinar on Varicose Veins in vEDS! Dr. Michael Frank will cover understanding, managing & treating varicose veins in vascular EDS. 📅 Feb 6 | ⏰ 17:00 CET 💡 Get expert insights & ask questions live! Register now!👉
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❤️February is Marfan Awareness Month! Marfan syndrome affects the body's connective tissue, impacting the heart, eyes & joints. Early diagnosis & care can prevent serious complications! Learn more👉 #MarfanAwareness #MarfanSyndrome #RareDisease
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🚨 Still waiting to register? Don't miss our webinar on varicose veins in vascular #EhlersDanlos syndrome this Thursday! 📅Feb 6, 2025 | ⏰ 17:00 CET 🎤With Dr. Michael Frank + Live Q&A 👉Sign up now: #VascularEDS #VaricoseVeins #Webinar
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RT @MarfanFdn: Share the most common signs of Marfan syndrome: Marfan presents differently in different people. If you believe you or someo…
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🩺Primary #lymphoedema is often undiagnosed, delaying treatment for years. Early diagnosis helps: 📍 Identify underlying conditions 📍 Guide treatment & slow progression 📍 Improve long-term outcomes Learn more👉 #RareDiseases #Healthcare #guidelines
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⏳ 3 Days to Go! Learn why varicose veins matter in vascular Ehlers-Danlos syndrome at our webinar with Dr. Michael Frank on Feb 6. ✔ Causes. ✔ Symptoms to monitor. ✔ Safe treatments. Register here: #RareDiseases #varicoseveins #ehlersdanlos #vEDS
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RT @ERN_eUROGEN: 🚀 Developers working on paediatric & orphan #MedicalDevices - the #DeCODe call for support is OPEN! ✅ Business & funding a…
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Varicose veins in #vEDS? Let's talk about it! 📅 Join us on 6 Feb to: 📌Understand why varicose veins occur in vEDS. 📌Learn symptoms & safe management. 📌Get YOUR questions answered live by Dr. Michael Frank! Register now!👉 #VascularEDS #EhlersDanlos
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@celebritypharm This is an informative post. Frequent nosebleeds can also be a symptom of the rare "Hereditary Haemorrhagic Telangiectasia (HHT)." You can learn more about it in this video
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@DavidAntill4 @Nigelj08223326 It could be Hereditary Haemorrhagic Telangiectasia. You can learn more here:
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@NathaliaLeHen @IhabFathiSulima Thank you for sharing this valuable information on HHT from @vascern! 🙌
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🚨 Pregnant with #HHT? Know these red flags! PAVMs can pose serious risks during #pregnancy, but early detection saves lives. Don’t ignore these warning signs. 🎥 Watch our expert-led webinar to learn more: 👉 #RareDiseases #VascularHealth
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❗️ Do you know the signs of varicose veins? ✔ Leg heaviness/swelling. ✔ Pain or discomfort. ✔ Twisted or bulging veins. Learn why they occur in vascular EDS + how to manage them safely in our webinar on Feb 6 👉Register here: #VascularEDS #webinar
🚨Varicose veins in vascular #EhlersDanlos (vEDS) could mean vascular fragility. On Feb 6, join our webinar to learn: ✔ Why varicose veins develop in vEDS. ✔ Symptoms to watch for. ✔ How to manage them safely. Register today👉 #VaricoseVeins
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