We are officially one year out from the 2026 TSC World Conference, scheduled for July 30 to August 1, 2026, at the Gaylord Rockies Resort & Convention Center in Aurora, CO, and hotel booking is now open! Book your stay: https://t.co/1zH98WPWYR.

Join our TSC Regional Conference aimed at individuals with tuberous sclerosis complex (TSC) and their caregivers. September 6, 2025 at Iowa Memorial Union at the University of Iowa in Iowa City, IA. More info:

Come join us in Iowa City for the @tscalliance regional conference this fall! @uiowapedneph @boeslab

Just amazing work presented by Dr.Elizabeth Thiele @tscalliance @gastaut @clairebehan @Fergdam @lillyvonschtupp #stongertogether

The 2025 TSC International Conference organized by the amazing @tscalliance just wrapped up. An absolutely incredible conference, so much science packed into two days. In this thread I am going to post some thoughts from the conference. 1/?

What an incredibly inspiring few days at the 2025 TSC International Research Conference! So proud of my talented student @Jimenez_Diana_ for receiving a travel award! Grateful to @tscalliance for bringing the research community together to spark new ideas and collaborations.

We’re back with some of the most powerful My Wish stories yet.  For 18 seasons, My Wish has brought together sports’ biggest stars and Make-A-Wish kids who inspire us all. You don’t want to miss these stories on ESPN’s @SportsCenter.

What is TSC? Let's talk about it with @TheNotoriousEEG. For more visit our friends at @tscalliance. #epilepsy #TSCGlobalDay #TSCGlobalAwarenessDay

⭐Day 31 of TSC Awareness Month! ⭐ Communication between a child's medical professionals and their school about TSC should improve educational outcomes for the child. Learn more about TSC Global Awareness initiatives at https://t.co/JvdGgsQmAI.

⭐Day 30 of TSC Awareness Month! ⭐ Children identified with TSC as babies should be closely monitored for the need of early interventional services. Learn more about TSC Global Awareness initiatives at https://t.co/JvdGgsQmAI. #tscglobalawarenessday #tuberoussclerosiscomplex

⭐Day 29 of TSC Awareness Month! ⭐ Infrequently, TSC can also lead to the formation of fibroids or tumors in the pancreas, bone and liver. Learn more about TSC Global Awareness initiatives at https://t.co/JvdGgsQmAI. #tscglobalawarenessday #tuberoussclerosiscomplex

⭐Day 28 of TSC Awareness Month! ⭐ 80% of those diagnosed with TSC will experience kidney problems due to TSC. Learn more about TSC Global Awareness initiatives at https://t.co/JvdGgsQmAI. #tscglobalawarenessday #tuberoussclerosiscomplex

⭐Day 27 of TSC Awareness Month! ⭐ 98% of those diagnosed with TSC will experience one or more skin manifestations. Learn more about TSC Global Awareness initiatives at https://t.co/JvdGgsQmAI. #tscglobalawarenessday #tuberoussclerosiscomplex

⭐Day 26 of TSC Awareness Month! ⭐ Dental pits occur in about 90% of people with TSC. Learn more about TSC Global Awareness initiatives at https://t.co/JvdGgsQmAI. #tscglobalawarenessday #tuberoussclerosiscomplex

⭐Day 25 of TSC Awareness Month! ⭐ Many infants with TSC are now diagnosed soon after birth thanks to prenatal identification of heart rhabdomyomas during routine ultrasound testing. Learn more about TSC Global Awareness initiatives at https://t.co/JvdGgsQmAI.

⭐Day 24 of TSC Awareness Month! ⭐ A naturally occurring substance derived from bacteria in the soil of Easter Island has led to development of promising treatments for some aspects of TSC. Learn more about TSC Global Awareness initiatives at https://t.co/JvdGgsQmAI.

⭐Day 24 of TSC Awareness Month! ⭐ A naturally occurring substance derived from bacteria in the soil of Easter Island has led to development of promising treatments for some aspects of TSC. Learn more about TSC Global Awareness initiatives at https://t.co/JvdGgsQmAI.

⭐Day 23 of TSC Awareness Month! ⭐ Pre-implantation genetic diagnosis (PGD) is a technique that can detect the TSC mutation in embryos created through in vitro fertilization (IVF). Learn more about TSC Global Awareness initiatives at https://t.co/JvdGgsQmAI.

⭐Day 22 of TSC Awareness Month! ⭐ If parents are unaffected, the chance of a sibling of someone diagnosed with TSC also having TSC is 1-2%. Learn more about TSC Global Awareness initiatives at https://t.co/JvdGgsQmAI. #tscglobalawarenessday #tuberoussclerosiscomplex

⭐Day 21 of TSC Awareness Month! ⭐ If a parent is affected, his or her children have a 50% chance of inheriting the TSC gene. Learn more about TSC Global Awareness initiatives at https://t.co/JvdGgsQmAI. #tscglobalawarenessday #tuberoussclerosiscomplex