The Cure Sickle Cell Initiative (CureSCi)
@thecuresci
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An initiative of @NIH_NHLBI working to accelerate the development of treatments aimed at a genetic-based cure for sickle cell disease. Engagement ≠ endorsement
Joined May 2019
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"Advancement in new gene therapy...will entail removing the patient’s stem cells from the bone marrow & then adding a therapeutic gene to those cells which will then lead to the production of anti-sickling cells." #bonemarrowtransplant #sicklecelldisease
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Progress has been made to treat and prevent the complications of #sickle cell disease. Watch our video to learn more about the research that paved the way for @thecuresci: @nih_nhlbi
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Learn more about what living with #SCD is like through firsthand stories of individuals and families. Watch and share these powerful #sicklecell community videos. #genetherapy
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"The last five years have been a very exciting time for sickle cell disease." - Dr. Eboni Lance. A brief history & current therapies in #sicklecell disease: #ClinicalTrials
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#GeneTherapy may help patients living with #SickleCell disease. The following resources are available for download:
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What are the goals of the #CureSickleCell Initiative? Watch this video to learn more: #SickleCell #GeneTherapy
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Want to learn more about the FDA approval of gene therapies for sickle cell disease? Read the Q&A with NHLBI Director Dr. Gary Gibbons and NHLBI’s Division of Blood Diseases and Resources Director Dr. Julie Panepinto
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What Does a Cure for SCD Look Like? Find out more here:
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Dr. Edward J. Benz Jr., CureSCi's Executive Director, speaks about how #genetherapy actually works within the human body and how this applies to those living with #SCD #SickleCellDisease. Watch this short video clip: #genetherapies
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Do you know what gene therapies are and how they are being used in sickle cell disease? Visit:
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While progress has been made in treating & preventing #sicklecell disease complications, significant health challenges remain. The #CureSickleCell Initiative works with individuals like Teonna to continue making progress: #GeneTherapy #ClinicalTrials
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The #CureSickleCell Initiative is a collaborative, patient-focused research effort designed to accelerate promising curative therapies for #sicklecell disease. More on the importance of community engagement: #GeneTherapy #ClinicalTrials
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Take a few minutes to watch this brief video about the history of current #SCD therapies: #SickleCellWarriors
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Curious about the Initiative's community participation? Check out our patient engagement journey thus far:
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A cure for #SCD means different things to different people. Learn what it means to CureSCi's Executive Director Dr. Benz. Check out the video: #sicklecellwarrior #sickecelldisease
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Curious about our Initiative? Check out our CureSCi FAQ page to learn more and get some of your questions answered: #SCD #SicklecellWarriors #sicklecelldisease
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Check out our brief explainer about how #genetherapy works and how it could help us find a cure for #sicklecelldisease.
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