Alistair Beverley
@theLDphysio
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Trying to take what he can from available evidence & apply it to working w people w learning/intellectual disabilities. Follow, you might just learn something..
Nottingham, UK
Joined May 2019
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Nothing to see here, just Sarah who has athetoid quadriplegic cerebral palsy absolutely smashing deadlifts 💪
Recorded and posted with permission.
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When you go to a
#moonlandinglive
thing at a friends house and they've taken it WAY more seriously than you have
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Someone comes into your clinic - they have Down's Syndrome, clinically, what should you be aware of?
a thread🧵
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Dear British govt, can we stop blaming disabled people for being disabled?
Thanks
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Neuro physio CAN be slow and controlled but that doesn't make for good videos. So here is Sarah doing her best to take my head off!
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Thought I'd do a quick thread on the best placards I saw today during the physio strikes. 🧵
Warning many puns.
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@DGlaucomflecken
When you've caught an STI but don't want your girl to know. "yeah, ummm it must've been the umm, vaccine!"
At least the girlfriend saw through it unlike our celeb poster.
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Nobody has "no rehab potential". Nobody.
Thank you for coming to my TED talk.
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Depending on whether you're a respiratory physio or not will very much influence your reaction to this post.
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But noone is in running gear or picking up weights?! How can this be considered exercise?!?!?!
*satire*
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clinical placement is an opportunity to learn and subsequently demonstrate what you know, not to be terrified you'll be exposed for what you don't.
Remember that.
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Physiotherapy isn't a profession based on what you believe, but based on evidence. The end.
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How can fascia be simultaneously tough enough to alter structure in the body and malleable enough to be changed with our hands or contents of the cutlery drawer?
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When professions that have NEVER been on strike before, whose jobs it is to save & rehabilitate lives are saying enough & going on strike then perhaps people should think why & listen.
Solidarity with all healthcare professionals taking industrial action including physios today.
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2 new physio students today, "if we hadnt had this placement we wouldn't have known any of this" we can do better in our undergraduate teachings.
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You can train balance with single leg work 🥱
Or you can train it with a tug o war and maybe have some fun 💪
(posted with consent)
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So today my younger brother and I said our goodbyes to Jonathan. I love you big bro. Rest easy.
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Patient c/o acj pain, when you asked them to replicate symptoms they do this.
What's your next move?
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That's how you kill a vampire, not help someone with back pain!
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I've been a physio for 11 years and I still stop and have to think when documenting the ankle.
Is it inversion or eversion?
Every. Single. Time.
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Out on clinical placement? Unsure what to say when shadowing?
Two questions I have lived by:
"can you explain what you're doing please?"
"can you explain why you're doing it?"
If you sit in awkward silence you're just wasting your time.
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Therapy has to be meaningful to the individual. Use whatever motivation is needed in order to facilitate the person. At 8am Jack is walking Jazzie for the first time ever.
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ONE MORE TIME FOR THE PEOPLE AT THE BACK!!!!!
⚠️⚠️⚠️⚠️
People who consider psychosocial approaches do not automatically dismiss biology and biomechanics.
They're not a bloody dichotomy
⚠️⚠️⚠️⚠️
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In 2008 I took my brother to a local athletics club for
@SOGreatBritain
.
Today I'm proud to say that I've been appointed as Special Olympics Global Faculty Advisor for Healthy Athletes.
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What in the misinformation hell hole is this?!
Mouth breathing has been shown to cause:
· ADHD
· Asthma
· Sleep disorders
· Chronic fatigue
· Allergic reactions
· Facial disfiguration
· Decreased brain activity
What most people don't know is how breathing through the mouth affects the brain.
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This is how we Friday with Tris in physio!!! Crank it LOUD!
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When a clinician writes:
"didn't engage with physio/non compliant" for people with learning disabilities
what they mean is:
"didn't know how to engage the person, so gave up"
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One person who doesn't get enough credit is my wife Liz who, 1 year ago responded with "yeah, do it" when I suggested going going self employed.
Tonight is the inaugural LD physio Christmas Party featuring the ENTIRE TEAM.
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Changing the word "patient" to the person's name really changes the entire tone of clinical records.
Try it.
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Of course, not everyone with Down's Syndrome is the same - I know this. And yes, I used medical language, my target audience is medical professionals, they need to know this stuff and they frequently do not. Save your anger for someone trolling, not trying to make a difference 🙏
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Mid Wednesday evening physio confession:
I use Google a lot more than you might think when looking up conditions, terminology etc.
And do you know what?
That's OK.
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My job?
At times, it's stressful & almost always busy. You deal with great people sometimes in horrific & unfair situations.
However, for 30 mins this afternoon it was complete & utter satisfaction that we have made a difference to someone's day.
#physio
(posted w/ permission)
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Learning Disability Awareness Week, lots of positives flying around and talk of changing attitudes but not a lot of substance IMO. So, what can you, as a professional in non specialist services learn/do? A thread.🧵
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Saying I don't know doesn't make you a bad clinician.
Pretending you do and the inevitably messing up does.
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Medical joke of the day: What prize do you win for ageing?
Atrophy!
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If we went to a healthcare professional and said we were going to sit on the sofa for the next 18 years, we might be encouraged to take some exercise.
But we just accept that this is future for many people with Learning Disabilities, particularly those with PMLD.
Why?
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Physiotherapy is a profession based entirely on anecdotal evidence with zero requirement for any evidence. Just do what you like...
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Happy
#NationalSiblingsDay2023
everyone.
Siblings day is an initiative by
@Sibs_uk
which provides support for siblings of disabled people, helping them to explore and make sense of the unique perspectives they hold in families & life.
Here is Jon and I, Christmas 2018
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Maybe this LD Physio malarkey will be alright.
Spent the morning with Neil and Craig, his PA to decorate the family Christmas tree.
1 proud young man who has worked hard on standing, balance & strength in a meaningful way for him.
(photos with permission)
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Special test to see if you need to activate your core.
Stand up.
Did you fall over or not make it?
No?
Congratulations, its highly unlikely your core in underactive.
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"even though I've got MS and am in a chair, you still laugh, joke and take the piss. You don't know what that mean to be made to feel human again. I've lost so many friends who don't know how to be around me - I wish they could watch us"
best feedback ever.
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Remember Tris? Today he surprised his mum by bring in the standing frame. Complex physical needs doesn't preclude you from standing.
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Nick makes toys for kids (and anyone) who have medical conditions so that they can be represented and understand.
I can't ask enough.
Please take some time to watch and share the heck out of this with anyone this may help or be able to help.
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I heard AGAIN about an physio told not to worry about team dynamics or worry about "things outside their banding, leave it to the band 7". This hierarchical crap needs to stop.
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I wouldn't mark a student down on placement for "not giving up their chair to the physio" and neither should you! 😤
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What a machine!
Chris Nikic IS AN IRONMAN! The first person with Down syndrome to finish an IRONMAN. Chris swam 2.4 miles, biked 112 and ran 26.2. The everyday lives of people with intellectual disabilities are often unecessarily called inspirational. This though, this is inspirational!
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This
#learningdisabilityWeek
, if the focus has to be myth busting, then let's bust the biggest myth of all.
#LDWeek2023
#learningdisability
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Find a job you enjoy and you'll never work another day in your life.
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My brother Jon, would've been 36 today. I think it's fitting that today I announce the formation of LD Physiotherapy Training & Development Ltd, my new business.
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This guy does this from his own house with his kids and volunteers. Making toys that don't exist for people with disabilities so they can have a friend like them.
You can donate or sponsor a teddy here
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Trust me again, this is the aftermath of another successful physio session with a 6 year old with Down Syndrome.
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Me listening to someone I've never met before unload their entire medical history when they discover I'm a physio.
Me enjoying the last 8 minutes of my break while the rest of the understaffed office is struggling
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who dies from a hernia? My brother did and this
#LDweek22
I dedicate my efforts to try and change perceptions of mainstream healthcare practitioners so that this doesn't happen to you.
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Working with a guy with CP who is gay
Me: "let me straighten you up in bed"
Them: "good luck with that"
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Someone has a knee problem, they go to a knee specialist.
Someone has a back problem, they go to a spinal specialist.
Someone has a neurological problem, they go to a neurological specialist.
Someone has breathing problems, they go to a respiratory specialist.
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Struggling to get a person with dementia to stand to a transfer aid.
Tried standing to a kitchen worktop where there was a bottle of wine, next thing, she is up, has poured herself a glass and his having a sip.
Wine. It works.
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BBC news reporting on disabled people in Ukraine in institutions and human rights abuses like our country's shit doesn't stink.
Just follow
@GeorgeJulian
and read.
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Whilst I'm on a rant. If you are still referring to people on the wards as B4 or bed 17 then can I suggest you get in the bin?
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Many of you may not know that my late brother won the award for most inspirational sports person in the City of Sheffield back in 2010 (not just disability sports person, sports person). I'm proud to have known this guy and to call him my big brother. I miss you man.
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Today's reflection from Ellen, physio student.
"a friend asked how I begin engaging someone with a learning disability. I said there is no ONE way, but it starts with a hello"
The kids are alright you know...
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Please take some time to checkout my website , a site designed for healthcare practitioners to improve your knowledge around learning disabilities.
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There's a person I work with who has short term memory loss as a result of a brain injury. I once wore odd socks by accident on a visit. It was never forgotten. Now its the best way he remembers me and what we do together.
So here is me, before going on a home visit this morning
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Home visit this am, worked with a young man with CP to decorate his family Christmas tree in supported standing for 35mins. He worked really hard as it was meaningful to him. Had his family in tears and he, I and his carer had a blast. I think he did a good job
#ldphysio
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We usually display pain of loss on anniversaries and memorable occasions. But more often it kicks you during everyday life, memories, things you hear, do and see hit you like an emotional freight train when you least expect it.
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So....it happened. Join me on the tikky tokky for more 10/10 educational short vids.
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You know, I'd love to be a physio who has the time to argue about different types of management of ACL injuries. But I can't, because disabled people aren't even allowed to be f#@*ing represented in society.
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Rolling is one of my favourite exercises. Control, coordination and strength all play a part to complete the movement and it can be tiring too.
(posted with permission)
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Excellent late entry here. Points for use of a stick to hold up the sign.
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Someone comes into your clinic - they have Retts Syndrome, clinically, what should you be aware of? a thread🧵
(I've done my best to links to only full text articles, we don't do paywalls here)
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Respect 🫡
Today 19 year old Lloyd Martin became the youngest known person with Down syndrome to complete a marathon.
Thank you for showing us what’s possible, Lloyd. ❤️
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The reaction I get from people by doing the basics right - listening, explaining, conversing, treating people like people - makes me worry about what on earth healthcare professionals are doing!
P. S I'm not saying I'm great, im saying how low is the bar?!
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When manual therapy is shown to not be effective, we can discard that modality.
When exercise is shown to be ineffective we CANNOT forget the innumerable other benefits to people and systems it has simply because it may not help an OA elbow specifically.
Stop it.
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"What do you do that makes you different?"
I sometimes go through entire sessions without saying a word if that is what is needed.
I wear odd socks to help a person engage.
I am energetic.
I am calm.
I let people beat me at exercises.
I beat other people at exercises.
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If you're a professional and read my posts thinking "ahh, that doesn't apply to me, I don't see people with learning disabilities".
Then you my friend, are part of the problem.
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Love this, picket song and dance.
Growing crowds at St Thomas’ Hospital today - lots of toots and support on Westminster Bridge for the first Physiotherapy strike
#CSP4FairPay
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More than 85% of people with acquired blindness experience poor balance and most, falls. Add in one sided weakness and you can see why we are working with Ian on both of those things.
Cuz single leg stands are boring 👍
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Sometimes a session takes an unexpected turn. You've got to be able to go with the flow
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@MrAndrewCotter
Ahhh cooling off with labs. Mine were not impressed about sitting on the side for more than 30 seconds.
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Those experts are you.
Be the change.
Take the time.
See the person.
Thank you.
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Neuro physios say its a no brainer and living on a low wage is a stretch
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If you're watching
#ASpecialSchool
and feel warmth and light at cute kids. Remember, those kids will become adults soon. Don't forget about them then.
#SpecialSchool
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I hear "has a really high pain threshold" regularly.
Is this true for a lot of people with learning disabilities or could it be that they are so used to living with unaddressed background pain that it skews their view of what pain is?
#toughtopicsinLD
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So all signed on the line and accepted a role as an hourly paid lecturer at
@CUPhysios
. Thank you for taking the education of your undergraduates with respect of LD seriously. 👍👏
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I can't emphasise this enough, you don't alter leg length by pulling at it or manipulating the back.
Their leg is always gonna be the same length.
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Makaton is a form of sign language used to back up speech to check understanding for some people who have a Learning Disability
I'm compiling a of
#MakatonForHCPs
thread with the fabulous
@exerciseworks
@laurarathbone
@theEndurancePT
@physiojack
@lizbayleyphysio
@AdamMeakins
🧵👇
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Test to see if your gleuts are under active.
Stand up.
Did you stand up?
If so you're gleuts are not under active.
Congratulations.
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What is my number one tip for building rapport with upset/angry patients?
1, Listen, do not interrupt.
2, validate "yeah that was rubbish, I'm sorry you've had to go through that".
3, "how can you and I work together to be the best outcome".
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I don't usually do this but please share and follow this account. Let's expand the reach of LD physio as far and wide as possible.
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Despite it's many flaws Twitter is still the best value CPD I've EVER engaged with.
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News flash, I know other people with learning/intellectual disabilities exist.
Tweets threads, despite being quick to read take more time to put together than it may seem, I spent most of yesterday including 2 hour stint at a kids play area to do this one for example.
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Day 2 of transforming healthcare module at Uni of Nottingham
3 people with disabilities sharing their experiences and reimbursed for their time & expertise 👍
Equipment experience 👍
Health inequality & overcoming barriers 👍
Thanks
@UoNPhysio
for helping us do this properly
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