Teresa N
@teresa_nguyen_
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Currently: Director of the Community Living Equity Center at Brandeis U. ❤️: ♿️ public health, civil rights, and coffee | all tweets are my own opinion
United States
Joined January 2018
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What gives
@united
? My chair is now in pieces when I landed tonight. How long will my life need to be on hold for???
#FlyingWithDisability
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Hey
@SouthwestAir
I’m wondering why you wouldn’t let my brother help me get off the plane when I’m a wheelchair user and can’t walk?
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Remember this meeting I attended to speak with
@VP
@SecretaryPete
about flying with a disability??? Here is why this is urgent. I landed in My hometown + my chair is in pieces. I’m heartbroken for the number of work hours and other things I will need to cancel to deal with this
On the 33rd Anniversary of the Americans with Disabilities Act, we recommit to building a more accessible America.
Earlier this month,
@SecretaryPete
and I met with Teresa Nguyen and other advocates to discuss new actions to improve transportation accessibility.
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After calling him “some guy is claiming he’s helping his sister…” … I’m wondering if this is race discrimination or disability discrimination???
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@SouthwestAir
I’d also like to know where in your protocol does it state that family members who helped me board cannot help be de board? Your staff said it was “protocol” to keep him off the plane. 🤔
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Wheelchair Update:
@united
filed a completely wrong piece of paperwork last night just to get me out of their face and now we have to start over this morning. FYI I’m doing this from my bed without a wheelchair.
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@easilymoved
@united
Yes by phone, which they said they are "still processing the claim"... but no working chair still and repair is not an option which they keep pushing for.
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@metalmigrant
@united
And the ramp guy at the airport looked me in the eye and said “we don’t even have tools out here”….
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UPDATE
@united
co Global Repair called... they still don't think it needs to be replaced. Many errors in the parts that were ordered w/o my input. Another assessment is now going to be conducted. Day 5 of a using a chair put together by zip ties and 2 screws
@PeteButtigieg
What gives
@united
? My chair is now in pieces when I landed tonight. How long will my life need to be on hold for???
#FlyingWithDisability
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@Ashaman4250
@united
The back, handlebars mangled, screws missing on both sides, cut wires. Mangled armrests
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Much needed toolkit for all health equity work to ensure we include Native American disabled communities:
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The last “I love you” we exchanged was in the end of January. I can’t believe I’ll never get those calls and texts again. What a legend, activist, and friend she was to myself and my community. I love you
@judithheumann
. Thank you does not suffice.
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The outpour of responses, love, advocacy labor is making me cry. I see you guys. I’ve had folx reach out about help, loaner chairs from across the country… the sad thing for my heart is that the work still lies on us… where is the accountability from the systems that harm????
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Convo just now:
Hi repair company. I can’t come to the door. Thank goodness for smart homes. I’ll be in my bedroom cause I can’t move.
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What an incredible day! Had the opportunity to share about importance of community living and accessible transportation
@WhiteHouse
with
@VP
and
@PeteButtigieg
. What an honor to be a part of this incredible community.
#ADA33
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🤔 Lawsuit. Great idea. Who wants to help a disabled woman of color fund this journey? Corporations do this to communities who literally don’t have resources for retaliation or settlement. Have we thought about that?
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Holy cow, it worked,
#DisCo
! I am going to let this win sink in today. So proud of the organizing of
@BonnieSwenorPhD
and others who have rallied advocates and researchers to continue to advocate for this designation.
NIH recognizes people w/ disabilities as a population that experiences health disparities--after advocates objected to an advisory committee's recommendation against the move.
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Hey
@nytimes
check this out.
Remember this meeting I attended to speak with
@VP
@SecretaryPete
about flying with a disability??? Here is why this is urgent. I landed in My hometown + my chair is in pieces. I’m heartbroken for the number of work hours and other things I will need to cancel to deal with this
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Without Medicaid, I would lose access to healthcare, risk my right of living in my community, and my loving family would have to compromise their lives and careers in order to provide me the care I need daily.
#SaveMedicaid
#DebtCeiling
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@angie303
@SouthwestAir
@TSA
Hmm. Welp I guess for the last 10 years that I’ve traveled with assistance no one followed
@tsa
protocols apparently until yesterday…. Interesting.
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An incredible honor to have this conversation with you and
@SecretaryPete
. Thank you for all that you do for our community ♿️❤️
On the 33rd Anniversary of the Americans with Disabilities Act, we recommit to building a more accessible America.
Earlier this month,
@SecretaryPete
and I met with Teresa Nguyen and other advocates to discuss new actions to improve transportation accessibility.
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An image of my father comfortable in his own home in his last days of life. He is sitting in a manual wheelchair, smiling down at a dog.
#Medicaid
gave him this gift.
#SaveMedicaid
#DebtCeiling
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I can’t even begin to express how devastating it would be that a friend + pal
@SFdirewolf
to SO MANY would not be able to stay in her and our community because of financial reasons (& systems that don’t make sense). Please contribute if you can.
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The reality of care for my community. How many similar stories need to be shared until we prioritize and adequately fundHCBS? 😩😭
Recovery update: laid in my poop in bed for 2 hours because my paid caregiver forgot to come (no emergency/illness) 💩
This is the reality for me & many other disabled & older people because we live in a society w/o a care culture & infrastructure 😤
#CareCantWait
#CripTheVote
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Due to being without a functional wheelchair, this is event
#1
I needed to cancel. Extremely unfair
@united
… when will you value disabled lives?
Registration is open for our FREE conference “Redefining Health for Disability Equity” featuring
@TommyShakes
@teresa_nguyen_
Gloria Krahn, Susan Havercamp, & Elizabeth Barnes.
@CAPS_research
@JHUDisability
@scottdlandes
@BonnieSwenorPhD
Register here:
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A fantastic decision
@NIH
sincerely, a pleased disabled researcher
News: NIH designates people with disabilities as a population with health disparities
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Random wheelchair repair guy showing up in the middle of the day? Sure… not like I have to work or anything 🙄
#WouldHaveAppreciatedACall
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#Medicaid
also helped my family in supporting my father in his last months of life fighting a neurological disease. He remained at home. With us. With care and comfort.
#SaveMedicaid
#DebtCeiling
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This is amazing! Go
@SFdirewolf
!!!
📢 Your girl is now a columnist for
@TeenVogue
!
My first piece is about the
#Medicaid
unwinding process starting 4/1 when states will resume annual redetermination processes for all enrollees which could result in millions losing their coverage
#CripTheVote
#SaveMedicaid
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Feeling so honored to be able to work in the field of research in disability equity and witness the amazing process of participatory action research that is unfolding with my disability community.
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What a week it has been to learn from
@LurieInstitute
Carrie Buck Distinguished Fellow
@smartstatistic
! Tonight was the icing on the cake to also hear from
@RebeccaCokley
in conversation with Laurie. Did I tell you I love my job?
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Cheers to a fantastic year of hard work
@AUCDNews
@AndyDRC
@RylinAUCD
@_jalynm
@Sarah_Advocates
#aucd4all
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@snackpack210
@JenMichelleCrow
@united
Because I don’t have the resources at this moment to take that action.
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The most pleasant snail mail from
@SFdirewolf
@DisVisibility
. Already joyfully relating with my own story of dropping out of Vietnamese school. READ. THIS. BOOK. 🐯
#YearOfTheTiger
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@emily_ladau
I was so fortunate to have a couple of very strong, experienced women who continued to scream at me to say “NO” to things / places that did not value my time or knowledge. It finally got through to me after like 5 yrs of free and it’s so liberating to ask for what you deserve.
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Too many things I’m going to miss. Sharing a single California roll because we both ate like birds… strolling around Rock Creek..talking about my dating life with you..too much. DC visits will never be the same.
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I’m excited to share that I will be speaking alongside
@justiceinaging
at CMS’s Health Equity Conference on June 7 and 8. Join me & others in the health equity space to discuss the future of equitable care. More here:
#HealthEquityCon23
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Me when guys try to tell me how hard they’ve worked to overcome gender bias 🙄...
#PelosiClap
👏🏽
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Man, I needed this letter years ago but I am happy to read this reminder now in my 30s. Thankful to be in community with
@SFdirewolf
❤️
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Such an honor to have
@SenDuckworth
supporting the
#aucd4all
and disability community! ♥️♥️♥️
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The documentary
@CripCampFilm
has changed the way disability should be represented in the media industry. To me this is a win that will continue to create massive change. Lots of love to
@judithheumann
@JimLeBrecht
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Ummm this is so awesome and I can’t wait to engage more!!!
I’ve written and talked about how disabled people are oracles for a while. I’m beyond excited to share my latest project,
#SocietyofDisabledOracles
, a collaboration w/
@AimiHamraie
&
@jtknoxroxs
Share your oracular truths here!
IG: @/disabledoracles
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Judy and friends sent a coffee maker to me as a housewarming gift last year. I’m reminded of her as I make my morning cup and remember there’s a lot more work to be done. More coffee will be needed.
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Day 8 of a damaged chair!
Today
@united
sent me a statement saying the chair is “determined” repairable and is authorizing repairs without my consent. (The guy that determined it missed a bunch of parts on his list)
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@emily_ladau
As women with disabilities, we need to contunue this conversation because it’s such a hard place to be in. And unfair to ask that of us who believe in raising awareness leading to us having to struggle choosing between our values.
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A not so happy start to the Lunar New Year 2023 with
#AsianHate
attacks in CA. Hugging my community near and far. This has got to stop. 💔
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Here it is Twitterland! This was a dream come true to story tell on my favorite storytelling podcast! Thank you
@ttfapodcast
💕💕💕
Teresa fantasized about falling in love as much as any other teenager growing up. But because she never saw people like her on TV or in movies, Teresa could never really SEE herself having that kind of romantic relationship. Listen to "Data Points" wherever you get your podcasts!
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Chair evaluation # 3 today bc
@united
doesn’t seem to think replacement is needed. And wait til you all see the loaner that’s coming. 😩
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Every milestone I reach in my advocacy work, I can’t help but think about and miss some of my dearest disabled ancestors. Thinking of
@judithheumann
and Priscilla this eve.
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Our first Community Living Equity study is launching! So proud of the work it has taken to make this happen. Please share widely!!
#DisabilityTwitter
Looking for Disabled People of Color Who Have Lived in Nursing Homes or Other Institutions to Share their Experiences
We're doing a research study on barriers faced by disabled people of color in accessing home and community-based services. Learn more:
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@SenatorBennet
@Hickenlooper
just emailed you both about this issue as a Colorado constituent. Please respond timely.
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Teaching them young.
An image of a kid’s sidewalk chalk art. They drew multiple parking spots including an accessible spot for me.
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Yesssss
@SFdirewolf
!!! Just pre ordered mine on audible!
Our fall new release book picks are live
@BuzzFeedBooks
! I review Year of the Tiger by
@SFdirewolf
, Ducks: Two Years in the Oil Sands by
@beatonna
, The Golden Enclaves by
@naominovik
, The Spare Man by
@MaryRobinette
, & The World We Make by
@nkjemisin
.
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There is never enough time to chat about alllll the things with
@judithheumann
and
@NotYourAvgHo101
. So glad our time was captured on
#TheHeumannPerspective
. Check it out! ♥️♿️♥️
Be sure to check out this fun episode of
#TheHeumannPerspective
with two long-time friends who always make me smile-
@tee_new_win
and
@NotYourAvgHo101
! 👇
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@mothtoaflame13
@united
Unfortunately I'm learning that it's quite difficult to sue for anything more than just the cost of the chair. So disheartening.
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@AndyDRC
@jeiri_flores
@JudgeWren
@mccrenshaw
@Tuesdaywithliz
@AsieduEdmund
@JayRuderman
@CROWRDREAM
@katperez84
@SFdirewolf
@CarolineBinc
@zoyathexplorer
@ecsbridges
@brothajorrell
@mww22
@CrosbyCromwell
@RylinAUCD
@MgmAUCD
@anjalifp
@DR_KMP
@McNhlapo
@Lu3_1
Happy Friday everyone! Grateful to be amongst some awesome folks doing amazing work ♥️
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Once again disability community members have stepped up to help clean up the mess that a corporation has caused. This page was started to raise funds to cover costs for a new wheelchair. If you can support in any way, I would be so grateful
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@saschasf
Such a waste of time for everyone involved. And yet we are supposed to be “productive” to get off of benefits. How does anyone have time to work when dealing with this kind of stuff?
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Just call me Health Care Transition
@Barbie
So damn grateful for my trustee twin
@teresa_nguyen_
for rolling all the way from the boonies to make sure these doctors don't do me wrong in surgery since we got kicked out of children's hosp! navigating the nightmare of specialized adult health is way better with her by my side
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UPDATE-2 assessments have been done. Diff conclusions by both whether to replace or repair. Each company forgets to add damaged parts to their list for
@united
it is day 6 of a damaged chair. I’m exhausted.
UPDATE
@united
co Global Repair called... they still don't think it needs to be replaced. Many errors in the parts that were ordered w/o my input. Another assessment is now going to be conducted. Day 5 of a using a chair put together by zip ties and 2 screws
@PeteButtigieg
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Will be cleaning until I can articulate better words about the grief and loss I’m feeling.
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Truly an honor to have this opportunity
@VP
@PeteButtigieg
Happening Now: Tune in as
@SecretaryPete
and I convene disability rights advocates to discuss the work ahead to increase transportation accessibility.
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Not much more I can ask for than baby snuggles all weekend. Sweet girl is a trooper with me while mom and dad are with sister in the hospital.
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I cannot wait for this!
#YearOfTheTiger
My tiger babies have arrived and they are magnificent! 🐅📚🍊
Ebook, paperback, audiobook available 9/6 from
@vintageanchor
!
Pre-order link, book events, reviews and more:
#YearOfTheTiger
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Staycation is my new favorite because actual traveling is getting exhausting for this power chair user. Looking forward to a week full of rest, baby cuddles, and out of town guests.
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Really important point. There is the Air Carrier Access Act, which does very little to protect us from this harm. We need a private right of action ASAP
I told people at work about
@teresa_nguyen_
& her destroyed wheelchair after her flight. I told them how my community flyes with fear of the unknown everytime we fly. all the abled said "aren't there laws against this or something?"
This is why we need awareness!
@GioBenitez
@ABC
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The dialogue of "covering" and "uncovering" disability was everything I needed this morning. Thank you to Kathleen Hogan for empowering our community to own our personal process of disability pride.
#AbilitySummit
@MSFTEnable
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Honored to join this fantastic group that
@DisabilityHERN
has convened! Register below.
Registration is open for our FREE conference “Redefining Health for Disability Equity” featuring
@TommyShakes
@teresa_nguyen_
Gloria Krahn, Susan Havercamp, & Elizabeth Barnes.
@CAPS_research
@JHUDisability
@scottdlandes
@BonnieSwenorPhD
Register here:
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Sunday scaries aren’t so bad these days. Feeling like such a lucky auntie for these girls.
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My neighbor is a new single dad to a sweet little babe and asked if I would consider babysitting if he was in a pinch. This is the kind of community building that we need to foster in a country that is prone to a loneliness epidemic.
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@CDCDirector
👋🏽 hello
@CDCgov
I’ve proposed a stronger public health communications strategy for your communities you serve including the
#DisCo
. And it’s been crickets. Here anytime for that strategy conversation and job offer…. 🤔
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I’ve officially become that person that values a good pair of slippers aka house shoes.
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So excited that our
@LurieInstitute
undergrad fellows will be reading
#YearOfTheTiger
by
@SFdirewolf
for book club! 🐯
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It’s hard to imagine a time where I wasn’t constantly worried about getting sick AND worried for my loved ones. Would love to measure my stress hormone levels for 2021.
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@zrawan
@AndyAUCD
@AUCDNews
@emily_ladau
@andyarias
@jeiri_flores
Grateful for such transparent, funny, and thoughtful conversations with everyone! ❤️
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Read whole thread below from
@BonnieSwenorPhD
. I can’t express my frustration and disappointment about this in a single tweet. What a message to the DisCo that our lives don’t matter
@NIMHD
. Terrible decision.
🚨Recap: A VERY disappointing outcome. The
@NIMHD
committee admitted to NOT include anyone with a disclosed disability, yet made a significant decision on behalf of our community - they did not recommend the 'health disparity designation' be given to people with disabilities.
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Things you don’t ever expect to discuss in the same sentence… “These shoes are social justice oriented”
@NotYourAvgHo101
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My heart is so happy to see this!! Congrats
@judithheumann
♥️
I received the first dose of the Moderna COVID-19 vaccine on Wednesday here in D.C.! I may have had a "reaction" to NOT getting a vaccine over 70 years ago (Polio), but I have never had a reaction to getting one! 😂 Gotta laugh every once in a while.
#NothingAboutUsWithoutUs
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Love this tribe!
#FF
Leaders of color in disability community
@annaperng
@tee_new_win
@andyzwheelz
@NotYourAvgHo101
@Imani_Barbarin
@TarynsTake
@JusticeShorter1
@SFdirewolf
@Freelove19xx
@thegreatdancer
@SeeMiaRoll
@AyannaPressley
@VilissaThompson
@anillife
@Conchitahdz
@YomiWrong
@HabenGirma
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I use a wheelchair, am in another city for work and need this issue to be resolved ASAP.
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I love, love LOVE the prompt
@BarackObama
just started discussing w my friend
@judithheumann
. Very important for new leaders in
#disability
justice...
#CripCampVirtual
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@emily_ladau
Or when you push the power button to open a door and they rush in front of you to go through first. 😩😴🤦🏻♀️
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