As the national response to COVID has waned so has philanthropic funding.
@Survivor_Corps
shut down 3/31/23 (and ended our relationship w/
@multiplier_team
our fiscal sponsor).
@dianaberrent
, in her role as Founder, will remain active as a
#LongCovid
subject matter expert.
The photo on the left are healthy lungs. You can see all the colorful blood vessels. The center pic is actually *my* lungs. As a long hauler, I have less blood vessels than pre-covid. We don’t know if they will come back. The right are lungs of someone who passed away from covid.
A growing number of children are among the estimated millions of COVID-19 patients that are battling lasting and debilitating health issues. If your child is suffering please email us at press
@survivorcorps
.com.
Don't let your guard down just yet - Getting your vaccination 💉 doesn't mean you can't catch COVID. Breakthrough cases are being reported daily. Mask Up😷
@IAmCattSadler
@julie_mazziotta
@dianaberrent
So excited to be a part of this important study led by
@michelle_monje
on how significant longterm neurologic damage can occur after a mild respiratory-only SARS-CoV-2 infection. My own🧵on the findings of this study with relevance to
#longCovid
(1/)
“We have people in their twenties and thirties, who had average cases of COVID ten months ago,"
@dianaberrent
said. "They were marathon runners ... they are now on feeding tubes, and in wheelchairs... This isn't a post-viral malaise. This is real.”
ON MARCH 24TH
@DIANABERRENT
STARTED SURVIVOR CORPS IN HER BEDROOM WHILE IN ISOLATION W COVID. IT HAS BEEN A HARD ROAD, FULL OF AMAZING STORIES, EXPERT WEBINARS & MORE. THANKS TO THE WORK OF A SMALL TEAM & ALL OF YOU, OUR COMMUNITY OF SUPERHEROES
WE ARE NOW 150K MEMBERS STRONG!
Today
@Survivor_Corps
@dianaberrent
met with the
@CDCgov
to present our data and ask for changes in policy to reflect real world evidence.
@CDCgov
is only tracking hospitalized breakthrough cases.
A thread🧵 ⬇️
Let's talk about breakthrough symptomatic infections in fully vaxxed adults...
Today
@SurvivorCorps
will meet with the
@CDCgov
to present our data and ask for changes in policy to reflect real world evidence.
@CDCgov
is only tracking hospitalized cases so we did it instead.
/
We're launching a Book Club! First pick: "Chronic"
@LymeBook
by
@danaparish
and
@StevePhillipsMD
.
This timely book reveals striking evidence that a broad range of common infections, from COVID-19 to Lyme and others cause a variety of autoimmune, psychiatric, & chronic conditions.
Tl;dr: "All people who had COVID-19 infections, whether they were hospitalized or only had slight symptoms, can experience long COVID.
Studies have shown that even mild cases of COVID-19 can trigger persistent symptoms."
“
@dianaberrent
, founder of Survivor Corps, a group of people who have had Covid-19, has called for establishing a national registry of all people with Covid-19, including those who had mild and asymptomatic cases, in order to gather as much data as possible for future research.”
Survivor Corps, in collaboration w/
@VirusesImmunity
(Principal Investigator: Immunologist), the Iwasaki Lab,
@YaleMed
, and CORE (Center for Outcomes Research & Evaluation) have launched a study to examine how vaccines might improve the symptoms of Long Covid.
@dianaberrent
"After Heidi’s obituary went viral, I connected with Survivor Corps, the world’s largest long Covid advocacy group. They asked if I would be willing to tell Heidi’s story on a broad scale. Recalling my promise to Heidi, I agreed."
@NickGuthe
thank you.
@dianaberrent
#LongCovid
My 12yo just lost an adult front tooth and his other teeth are loose... it turns out from vasculature damage 9 months after Covid.
Omg. PLEASE... I beg of you, take this seriously. For you. For your kids. For everyone.
NEW: A study of over 78,000 people who received a specific medical diagnostic code for long Covid found that most hadn't needed hospitalization for their initial infection and nearly a third had no pre-existing medical issues.
Survivor Corps
@dianaberrent
featured on
@fox5ny
and speaks about Long Covid symptoms, our FB group and if you have Covid you could be eligible for monocolonial treatments. Thank you to
@DariAlexander
also a fellow Survivor!
Join
@dianaberrent
when she speaks with
@washingtonpost
this Wednesday, August 11 at 1:30pm ET to discuss
#LongCovid
and the challenges faced by "long hauler" survivors of COVID-19:
~100 million people in the U.S. are at risk of severe outcomes from COVID-19 in the U.S. today!
We invite you to sign this Joint Petition Urgently Requesting Indoor Mask Requirement to Protect the Most Vulnerable Among Us.
Sign here:
ICYMI:
@dianaberrent
was featured on
@NewsHour
speaking about the devastating effects of
#longcovid
and how there has to be more data sharing to find the answers desperately needed now. Watch and read more here:
Survivor Corps founder Diana Berrent joins The Post to discuss the growing number of people with long-haul COVID, the mounting medical challenges they face and her own experience with lingering symptoms.
NOW is the time! We need to support those living with this virus and build back a better, stronger and “more-stable health care system that works” so this never happens again.
@dianaberrent
Join Survivor Corps all day by lighting a candle for those lost to COVID-19. We remember and will always remember. Share this image with your friends and family. Let's light up social media TODAY.
@dianaberrent
#COVIDMemorial
NIH Director: "Kids can also get long COVID, where they don't maybe that sick with the acute illness, but then end up, months later, with difficulties with brain fog and fatigue that interferes with their school performance. So, this is not to be just dismissed as a zero risk."
Looks like the
@CDCgov
took our breakthrough infection data seriously 💪
CDC to recommend vaccinated people in certain areas resume wearing masks - CNNPolitics
❤️🩹
@dianaberrent
‘s appearance on
#NPR
's
@hereandnow
discussing her symptoms of
#LongCOVID
was their most-listened to episode of 2020.
Support an org centering on transparency and heart.
Donate before 4/30 to DOUBLE your impact:
📍Don’t forget the vulnerable—With mask mandates & mitigation measures lifting in many countries worldwide, millions of people in America at high risk of severe
#COVID19
cannot return to normal. They are seemingly forgotten.😢
By
@victoriaregisk
A tiny group of concerned private citizens did so much good for the world during the greatest crisis of our time but we couldn't do it forever without money.
This is a true loss for the world.
@Survivor_Corps
RIP 💀
#LongCovid
💔
Official announcement to come this week.
“Diana Berrent, who founded Survivor Corps, worries that the slow response to an escalating crisis will have repercussions down the line, as the long-term effects of post-Covid symptoms continue to play out.”
1/2
@dianaberrent
#LongCovid
.
@usnews
brings to light the topic of how COVID-19 has affected those unable to go back to work. Thank you
@ChelseaCirruzzo
for highlighting Survivor Corps help in this fight to seek benefits and change the Disability System.
@dianaberrent
🚨 🚨 We just hit 14K Twitter Followers! We could not have done it without ALL of YOU! We wanted to thank each and every one of you for your support! If you are going through
#LongTermCovid
#LongCovid
Join Us!
Proud to stand with
@NickGuthe
@chriskocher
and so many marching across the Brooklyn Bridge today demanding 1) clear guidance from the
@CDCgov
2) release of $1.15B in
#LongCovid
research from the
@NIH
and a name/billing code from
@CMSGov
💪
We at
@Survivor_Corps
agree. Even if you have had Covid please still mask up, social distance. Basically, act like you've never had it! We still have a lot to learn about
#COVID19
“A while after I realized that my symptoms weren’t going anywhere anytime soon, I decided to turn to the internet…I found Survivor Corps and I finally had a group I could relate to.”
@dianaberrent
@NorthwellHealth
@demetriameow
With Facebook and Instagram down we turn to Twitter to keep our name out there and keep helping those in need. We are
#SurvivorCorps
strong! Help pass this on.
📣
@ResolveTSL
is searching for Long COVID patients to feature in a media campaign. If you are 18-29, fully vaccinated, had a confirmed case of COVID-19 and have long COVID symptoms, please contact info
@resolvetosavelives
.org to learn more.
@dianaberrent
@DrTomFrieden
Vaccinations picking back up — about 790k in past 24 hours per
@CDCgov
report. Might be the biggest 24-hour period since early July. Thanks to everyone involved.
.
@Survivor_Corps
founder
@dianaberrent
is concerned about a particular group of COVID patients: Those who contracted the virus but were never hospitalized. What could be the long-term health implications for this lesser-known group?
Listen:
“We are tracking infections, we are tracking hospitalizations and we are tracking mortality. And so with that comes the assumption that everybody who has survived has recovered. And unfortunately, that is far from the truth,” said Berrent.
via
@11AliveNews
“Imagine having gone to all these doctors, being in debt and still have no answers?” exclaimed
@dianaberrent
. She heads up Survivor CORPS, a grassroots effort to mobilize survivors and advocate for better care.”
@AllenKPIX
@NickGuthe
@KPIXtv
“I couldn’t believe the reaction,” Michael Flor, 71, says after posting on Survivor Corps Facebook page. “I think there’s millions of people out there who are still dealing with this. There’s no closure.”
@seattletimes
@dianaberrent
@ASlavitt
#LongCovid
‼️‼️‼️‼️Thank you all for 13K Twitter followers ‼️‼️‼️‼️
Make sure to follow our fearless founder
@dianaberrent
! 🤩💪💥
@verified
@jack
… where is our blue check?
Join us this Friday, October 30th at 3 PM ET for a conversation with Dr. Anthony Fauci and
@dianaberrent
surrounding LTC-19 and the future of treatments for survivors who have not recovered. Sign up on our website at
Please meet Rob Cohen, our very own Survivor Corps Admin and this week’s Superhero Spotlight. Rob had an asymptomatic case and had no idea he had COVID-19 but once he found out he donated plasma! Thank you Rob!
@dianaberrent
@BoyMeetsGirlusa
Happy Birthday 🎂 to our Fearless Leader
@dianaberrent
. From all of us
@Survivor_Corps
, we wish you all the best today and always. You are our SUPERHERO! 🥳 🎉