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Rosemary Ainley Profile
Rosemary Ainley

@rosieainley

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Editor/writer CreakyJoints Australia @CreakyJointsAus. Co-leader of Young Women's Arthritis Support Group https://t.co/XpMombQAi0. Arthritis advocate. She/her ♿

Bunurong Country Melb. Aus.
Joined April 2011
Don't wanna be here? Send us removal request.
@rosieainley
Rosemary Ainley
2 years
I'm now on Threads @rosemaryainley but will stay on Twitter for now.
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@rosieainley
Rosemary Ainley
7 days
RT @CreakyJointsAus: Do you use #Paracetamol for your pain? Learn about how #Australian access rules for this popular product have changed,…
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@rosieainley
Rosemary Ainley
18 days
Meet Veronica, a resilient woman who has been living with #ThyroidEyeDisease TED) for over 20 years. Her story is one of strength and hope for anyone living with a #ChronicCondition. #LivedExperience #GravesEyeDisease #Eye #Thyroid #TEDAwareness #HealthAdvocacy #Australia
@CreakyJointsAus
CreakyJoints Australia
18 days
#ThyroidEyeDisease is a rare and unsightly eye condition with few treatment options. Veronica kindly shared her #Diagnosis and #Treatment journey with us. ID in comments. #GravesEyeDisease #Hyperthyroidism #LivedExperience #PatientStory
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@rosieainley
Rosemary Ainley
1 month
Hi folks, I'm not on here much these days. I'm over on Threads and Bluesky if you'd like to reconnect. Threads @rosemaryainley Bluesky
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@rosieainley
Rosemary Ainley
4 months
RT @CreakyJointsAus: Ben and Will share their personal experiences with #psoriasis. From initial symptoms and treatment struggles to findin…
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@rosieainley
Rosemary Ainley
4 months
Looking for tips on living with #Psoriasis or #PsoriaticArthritis? Our GHLF Australia resource hub is full of practical tips, treatment information and stories from Aussies living with these conditions. Feel free to share this to help others.
@CreakyJointsAus
CreakyJoints Australia
4 months
Living with #Psoriasis or #PsoriaticArthritis? This #WorldPsoriasisDay2024, explore our GHLF Australia resource hub for key insights on symptoms, treatments and everyday tips to empower your journey. #WPD2024 #WorldPsoriasisDay
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@rosieainley
Rosemary Ainley
4 months
RT @CreakyJointsAus: Are you one of the 11.5 per cent of Australians with #Arthritis who also has #Osteoporosis? Learn about the link betwe…
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@rosieainley
Rosemary Ainley
4 months
RT @JanelleBowden: Are you an Australian 🇦🇺 patient expert struggling for funding to attend a scientific conference before the end of 2024?…
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@rosieainley
Rosemary Ainley
4 months
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@rosieainley
Rosemary Ainley
4 months
I'm so proud to have helped create our new GHLF Australia #ThyroidEyeDisease Education and Resource Hub. Please check it out and feel free to share it.
@CreakyJointsAus
CreakyJoints Australia
4 months
On #WorldSightDay2024, we’re excited to share our new #ThyroidEyeDisease (TED) resources from GHLF Australia! Check out our key facts on TED symptoms, treatments, daily living tips and advocacy insights. ID in comments. #LoveYourEyes #GravesEye #EyeHealth
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@rosieainley
Rosemary Ainley
4 months
RT @JanelleBowden: Do you know an Australian #clinicaltrial participant that deserves a thankyou? Nominate them now for one of 31 #origamis
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@rosieainley
Rosemary Ainley
4 months
Hi folks with #ChronicConditions. We could use your help to gain some insights into your challenges with #MedicationAdherance for an upcoming article. You can complete our short survey and/or add comments in my post or the @CreakyJointsAus post below. Thanks.
@CreakyJointsAus
CreakyJoints Australia
4 months
Share your voice! Living with a chronic condition? We want to hear why you might struggle with taking your meds and how it affects you. Take our short anonymous survey or comment below to contribute! #PatientVoice #MedicationAdherence
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@rosieainley
Rosemary Ainley
5 months
@DrAngelaBrown This looks promising. Thanks for sharing it.
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@rosieainley
Rosemary Ainley
6 months
RT @CreakyJointsAus: Were you affected by the #Abatacept (Orencia®) shortage this year? If so, we have great news. The supply situation in…
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@rosieainley
Rosemary Ainley
6 months
@BexualFeeling Maybe Zoe Simmons can help you. @ItbeginswithZ
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@rosieainley
Rosemary Ainley
6 months
RT @healthgovau: Does a loved one use a 3G enabled personal medical or alert alarm? The 3G network will switch off from 31 August 2024. T…
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@rosieainley
Rosemary Ainley
6 months
Yesterday, I joined 3 others with #RheumatoidArthritis at Monash Uni to share what it feels like to have RA and how it affects our lives with around 300 first year medical students. We hope this helps shape their skills as future doctors. We do this every year and I love it.
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@rosieainley
Rosemary Ainley
7 months
RT @CreakyJointsAus: For anyone living with #psoriasis who would like to share their insights in this confidential, private focus group, we…
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@rosieainley
Rosemary Ainley
7 months
RT @CreakyJointsAus: #COVID-19 is still active in the community and people with #AutoimmuneConditions remain at increased risk of severe sy…
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@rosieainley
Rosemary Ainley
7 months
Calling all those with #PsoriaticArthritis or anyone interested in this #Autoimmune condition. @CreakyJointsAus's latest episodes of our Patient PrepRheum podcast feature tips from people living with #PsA and health professionals for living well with this challenging condition.
@CreakyJointsAus
CreakyJoints Australia
7 months
#PsoriaticArthritis is more complex than you think. 🎧 Dive into our latest episode of Patient PrepRheum with Dr. Premarani Sinnathurai to uncover the challenges and treatment strategies. #Podcast #Arthritis #ChronicIllness #PainManagement @GHLForg
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