Renuka Dhinakaran
@renudhinakaran
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International Labour Lawyer Patient Advocate for #hEDS #POTS #LongCovid #rheumatoidarthritis #Dysautonomia Focusing on marriage, parenting & chronic illness
Joined January 2010
#LongCovid recovery story is long but short notes here: #POTS confirmed with heart rate variability test & started on Ivabradine. #MCAS treated based on clinical symptoms with Desloratadine, Famotadine, Montelukast-Cetrizine #autoimmune assays done - #rheumatoidarthritis
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So true! I go absolutely quiet when my pain has hit 9.
People that live with chronic pain mask their pain daily. They are used to living with it and having to hide it. You cannot decide that someone’s pain is lower on the pain scale just because they aren’t screaming hysterically on the floor.
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If you are married or in a relationship and have #LongCovid or #MECFS, has it led to divorce/separation? #NEISvoid #marriage #Divorce
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My son said something that warmed my heart today. He said that I keep just the right level of watch over him - no hovering but also no letting loose. It is a fine line, one that i work very hard to walk in (with my husband). #parenting
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@Naomi_D_Harvey This is my exact problem and I have a mild goiter but all thyroid hormone tests are normal so they do nothing about it.
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RT @SKZ_Tours: Amsterdam Johan Cruyff Arena is SOLD OUT Even the resale is sold out! @Stray_Kids
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RT @FibroWarriorThe: Living with chronic pain & fatigue means some days, plans get postponed—and that’s okay. Resting isn’t failure, it’s s…
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If you are married or in a relationship and have #LongCovid or #MECFS, has it led to divorce/separation? #NEISvoid #marriage #Divorce
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A friend who survived cancer told me exactly this: that even during the worst phase of her cancer, her life was better than mine during the best phase of my #LongCovid. That is when it hit me how bad things were!
I have survived cancer twice—Non-Hodgkin’s Lymphoma and Kidney Cancer. I know fear, pain, and the weight of a diagnosis. But if I had to choose, I would take cancer again and again over Long Covid. Cancer came with a plan, with doctors who fought for me, with a system that recognized the battle I was in. Long COVID came with nothing. No treatment, no answers—only disbelief and abandonment. It is a slow unraveling, a living death, while the world looks away.
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Communication in a marriage where a spouse has #chronicillness needs to be a bit different. It has to be specific, precise & with little room for misinterpretation. Vague requests can lead to worsening symptoms- with your health & your #marriage. #NEISvoid #LongCovid
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RT @Huisarts_Vink: *UPDATE* 1.Extended version of CBT and graded exercise therapy studies have proven that #MEcfs and #LongCovid are phys…
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RT @srikosuri: It’s been a tough few weeks. My 10yo daughter was diagnosed with a very rare, aggressive cancer called interdigitating dendr…
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That is the lietral job of judiciary - to keep the legislature and executive in check!
JD Vance, a Yale-educated lawyer and sitting VP, claims judges can’t check executive power. That’s literally their job. Courts overturned Nixon, Bush, and Trump. If judges couldn’t rule on executive actions, presidents would be kings.
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If you are married/in a relationship, write letters to your better half (even if you are living together). Never stop writing.
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RT @PutrinoLab: Feels like a good time for a little reminder: Countries aren't supposed to be run like businesses. Countries are supposed t…
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