rare_trial Profile Banner
Rare Disease Clinical Trial Network, Ireland Profile
Rare Disease Clinical Trial Network, Ireland

@rare_trial

Followers
847
Following
1K
Statuses
710

HRB-funded clinical trial network aiming to increase the quantity and quality of rare disease clinical trials in Ireland, keeping the patient voice at our core.

UCD, Dublin Ireland
Joined February 2023
Don't wanna be here? Send us removal request.
@rare_trial
Rare Disease Clinical Trial Network, Ireland
22 hours
Today!
@RAiNAllIreland
RAiN
3 days
🎉 We’re excited to welcome Dorica Dan from the NoRo Centre to our upcoming webinar on Integrated Care for Rare Diseases! @eurordis @RareDiseasesIE @22Q11_Ireland 📅 Date: 10.02.2025 🕒 Time: 12-14.00 (GMT) 📍 Online Event 🔗 Register here:
Tweet media one
0
0
5
@rare_trial
Rare Disease Clinical Trial Network, Ireland
4 days
💡 Research Community! 💡 Have you explored our #RStudio introduction? It’s designed to help you navigate the platform, start projects and do basic analysis. Check it out, and share your feedback to enhance the toolbox! Visit:
0
2
1
@rare_trial
Rare Disease Clinical Trial Network, Ireland
5 days
🚨 Deadline Tomorrow! 🚨 📢 Last chance to submit your abstracts! Showcase your rare disease research or case studies—submissions close Friday, 7th February. 🔗 Submit now:
Tweet media one
0
0
0
@rare_trial
Rare Disease Clinical Trial Network, Ireland
6 days
💡 Our Tools For PPI page is packed with helpful resources to guide you through the process of meaningful engagement in research. Whether you're a patient, researcher, or advocate, these tools can help you contribute to impactful research efforts. 👉
0
0
1
@rare_trial
Rare Disease Clinical Trial Network, Ireland
7 days
📢 The Rare Disease Research Conference is coming to O’Reilly Hall, UCD, on 10th April 2025. Explore rare disease research, registries, clinical trials, and lived experiences. Don’t miss this key event! 🌟Free registration, sign up now!
Tweet media one
0
4
3
@rare_trial
Rare Disease Clinical Trial Network, Ireland
8 days
📰 Stay in the loop with the latest updates in rare disease research! Visit our Latest News page for the most recent developments, announcements, and insights from the rare disease clinical trial community. Read more 👉
0
0
2
@rare_trial
Rare Disease Clinical Trial Network, Ireland
12 days
Already submitted your abstract? Great! Register for the conference, too! Rare Disease Research Conference 2025 📅 10th April 2025 📍 UCD O’Reilly Hall, Dublin, Ireland ✨ Free registration – all welcome! 🔗 Sign up here:
@rare_trial
Rare Disease Clinical Trial Network, Ireland
28 days
🌟 RARE DISEASE RESEARCH CONFERENCE 2025 🌟 📅 When: 10th April 2025 📍 Where: UCD O’Reilly Hall, Dublin, Ireland ✨ Free registration, all welcome! A huge thank you to our partners at @hrbtmrn for hosting registration. Register here:
Tweet media one
0
0
0
@rare_trial
Rare Disease Clinical Trial Network, Ireland
12 days
⏳ Nearly ONE WEEK left! ⏳ 📢 Abstract Submissions – Showcase your work! Submit rare disease research or case study abstracts by Friday, 7th February. 🔗 Submit:
@rare_trial
Rare Disease Clinical Trial Network, Ireland
2 months
Calling all Rare Disease Researchers! We invite abstract submissions of case studies and rare disease research for consideration for poster presentation at the Rare Disease Research Conference 2025. Registration and full programme details to follow!
Tweet media one
0
0
0
@rare_trial
Rare Disease Clinical Trial Network, Ireland
12 days
RT @RAiNAllIreland: 📢 Take part in free online training on #Raredisease Learn at your own pace, anytime, anywhere! 🌍💻 Explore @eurordis
0
3
0
@rare_trial
Rare Disease Clinical Trial Network, Ireland
12 days
RT @CarersIreland: Stakeholders including family carers are being asked to share their views, experiences and suggestions to help @MHCIrela
0
11
0
@rare_trial
Rare Disease Clinical Trial Network, Ireland
12 days
RT @ERN_RND: Have a look at the programme of our winter school on "Challenges of Treating Rare Neurological Diseases" and register here: ht…
0
1
0
@rare_trial
Rare Disease Clinical Trial Network, Ireland
12 days
RT @ERN_eUROGEN: 🚀 Developers working on paediatric & orphan #MedicalDevices - the #DeCODe call for support is OPEN! ✅ Business & funding a…
0
7
0
@rare_trial
Rare Disease Clinical Trial Network, Ireland
12 days
RT @roinnslainte: Minister @CarrollJennifer has announced the establishment of a Genome of Ireland research project and Ireland’s participa…
0
9
0
@rare_trial
Rare Disease Clinical Trial Network, Ireland
14 days
0
0
0
@rare_trial
Rare Disease Clinical Trial Network, Ireland
14 days
RT @pmrycaretrials1: 4th Feb - Our priority question themed seed funding round closes to applications - up to €10k to contribute to pipelin…
0
2
0
@rare_trial
Rare Disease Clinical Trial Network, Ireland
14 days
RT @pmrycaretrials1: 30th Jan - Deadline for applications for our postdoctoral researcher/research associate vacancy (search 010868 on Rese…
0
2
0
@rare_trial
Rare Disease Clinical Trial Network, Ireland
14 days
RT @eurordis: Data and digital health are crucial in improving the lives of people living with rare diseases, but only if data sharing is p…
0
5
0
@rare_trial
Rare Disease Clinical Trial Network, Ireland
15 days
RT @CrfgHrb: We are hiring! Great opportunity to become part of the @CrfgHrb team, as Clinical Trials Programme Manager/ Operations Lead. A…
0
6
0
@rare_trial
Rare Disease Clinical Trial Network, Ireland
15 days
RT @RareBeacon: Join the @REMEDi4ALL webinar series to learn more about clinical trials! This beginner-friendly session will provide an i…
0
2
0