My daughter was admitted in the hospital this morning for covid complications. They have her on 6 liters of oxygen. Please keep her in your thoughts and prayers 🙏❤
I had a setback with this pneumonia. My daughter found me unresponsive. Ambulance took me, I still have pneumonia and found out I have sleep apnea too. Still very weak. Can you please say a prayer or send good vibes? ❤️
I am outraged!!! The pharmacist just called and was asking me all kinds of questions about an anxiety meds I'm on and saying the Dr shouldn't be prescribing this because I don't need it. Wth, what right does the pharmacist have over my Dr?! I'm shaking I'm so mad.
Had a really bad day. I simply asked my pcp if I can have something for the pain from me falling. He sent me a message back saying I was drug seeking and dismissed me as a patient. I've cried for hours. I just wanted something for the pain 💔
I was just threatened to be dismissed from my family dr for asking for something for the pain. I was scared to ask and now I'm shaking and very depressed at his response. I feel like I did something wrong 😕
I'm in so much pain and no one will prescribe pain meds. My knee was removed in June due to infection and a spacer was put in. Today I twisted my leg wrong and called the Dr but he said no to pain meds. Wth am I supposed to do? Very depressed 😞
Doing my best to get through but it's so hard. I don't know how to get through the rest of my life without pain meds. I feel for anyone going through this. I struggle to sleep and I'm getting more and more bed bound. Tears as I type this. How is this ok? This is no life.
I fell and been admitted in hospital for broken leg and knee sprain. So much pain and guess what they're giving me? 2 tylenol every 6 hours. I can hardly stand the pain. They are using lidoderm patches too. But it seems like neither are helping. I'm asking for a patient advocate!
I need to find a hobby, something to do but easy. I've lost interest in tv movies etc. I just sit silent a lot anymore. I'm deeply depressed about pain. I'm single and alone. Any ideas? Thx
They say opiods will make us addicted, so by not giving them to us is helping us. 1st of all, it's my body and I've never had a prob in 15 yrs on them. Now I have a prob, being in torturous pain from not being on them. Losing friends due to suicide, but thanks for "protecting us"
I swear if I hear 1 more time how bad opioids are I'm gonna blow. I was on them 15 yrs w no prob. We r not addicts, we r in pain!! We r too sick to be treated like criminals and have to go every mth to appts, pee tests, pill counts, fear mongering.
#ChronicPain
#spoonies
I understand why my best friend commited suicide 2 yrs ago, this is awful. No pain meds=torture, horrendous pain, sleepless nights, stressful days, and anger! I'm so sick of the judgements from Drs and gov. Something must be done. We need relief now!! Was on meds 10 yrs w no prob
#chronicpain
who would of thought 10 years ago we'd have pill counts,Dr's refusing to treat pain, injections, living a life in pain, being accused of being an addict. Idk about you, but I'm miserable!
Haven't been on much lately,too much pain. Saw surgeon for post op today and got a lecture how he can't give pain meds cause they're addictive and he could get in trouble. I hate what this country has come to!
Still in hospital from getting a knee placed. Still only 1 percocet every 6 hours. I'm not happy! I've talked to nurses and my Dr, "nothing else they can do for me " is a bs answer
I'm in excruciating pain 💔. And I'm stuck on the couch ,not allowed to put weight on it for 6 weeks. We were changing the dressing when this picture was taken. And now it's starting to itch. Any advice or prayers appreciated
#chronicpain
is a vicious cycle. Too much pain to sleep, too tired to cook, too much pain to do daily household chores. Over and over. Becomes very isolating. Just getting dressed is an accomplishment anymore.
My 9 yr old granddaughter said "gma, why won't the Dr take your pain away?" How do you answer that to a 9 yr old. Tears welled up in my eyes n i said cause he can't anymore. She don't understand & hell I don't either! I've done nothing wrong. But it's 3:31 n I'm awake in pain 😢
I hope this isn't a waste of gas driving 2 hrs tmrw to a new Pain Dr. I feel myself reciting in my head what to say to him. Isn't that stupid? But I've been through the ringer was pain Drs, so I'm very nervous 😱
Ok guys, home from new pain Dr. Didn't go well, what an ass! Requires injections and wanted me off my antidepressant. Wth... won't be going back. Back to square one, searching or just giving up 😞
Thank you all for your kind words and help. I made it through the night, barely. I had a plan. I was going to end my life. I'm a little better today but still feel like we put animals out of their misery, why can't human have that option. Hanging in there 💕
Please keep me in your thoughts and prayers. I'm in unbearable pain and all they'll give me is tylenol. I'm in the nursing home now and physical therapy is hard especially since I still hurt from the fall last week and broken leg
Haven't been on much lately, very depressed. I'm very worried about my knee and leg. If it gets infected again, may have to be amputated. I currently have no knee, waiting on my next surgery to get 1. Getting around is hard. I could use good vibes prayers or hugs
Dragged my butt to Dr today, I have influenza A. I'm so miserable, especially w having surgery last week. I can't hardly move. Hugs would be appreciated
Idk how social security expects people to survive on what little money you get from ssi. I'm broke and it's still the beginning of the month. Living off $841 a month is extremely stressful. Wish I could find a stay at home job, since I can't drive anymore.
I'm now in tears the pain is so strong. And I'm not strong. Been laying here hoping to doze off but no luck. I absolutely hate what these lawmakers have done to us innocent chronic pain patients! God please make it stop
I had a nervous breakdown today, been crying for hours. My daughter said quit having a pitty party n then inside I wanted to die. I hurt so much and am worrying about upcoming surgery/money. I'm trying to hang in there
I've been off Twitter for a while. My dad got diagnosed with bone cancer and to make matters worse he and my mom were hospitalized yesterday for covid. He's 87 she's 86. Please keep them in your thoughts and prayers ❤
This is so hard friends. Hard to sleep in this pain. Hard to do anything. Life is a big ball of pain wrapped up in stress. In tears,***for all of us. What did we ever do to deserve this? We didn't ask to get sick. I hate life now
Anyone else not want to go to Dr appts cause you fear they look down on you for needing pain meds? And cause you lose trust in them? I hate going to any of my Drs, pcp, urologist, psych all of them.
I've had a bad day. Pains outta control, can hardly move with leg immobilizer on, emotional, nauseous, and my mom's not doing well. She's 89. I could really use some prayers. I didn't sleep at all last night. Since surgery I've been struggling but today was the worst so far
Every since I lost my pain meds a year and a half ago I've been a mess, unable to do most anything, suicidal at times and no clue how to get them back. I feel like I'll never get them again and my qol is forever gone. I hate my pm Dr for doing this to me. I'm so lost 😭
I had surgery yesterday. My incision tore open. He washed it out with an antibiotic solution and stitched me back together. Doing ok other than pain. Was sent home without any pain meds!!
I'm in so much pain 😢. Does anyone think it'll ever go back to the way it was when we could get pain meds from our family Dr? I'm afraid this is how it'll be forever. My qol is awful. Doing dishes is like running a marathon.
#ChronicPain
#Spoonies
I've been having probs w my dogs vet. He's old n in pain and wouldn't prescribe. Then she wouldn't prescribe something for anxiety for the fireworks so I changed vets! It's so ridiculous even our pets have to suffer 😭
2) Limit. I couldn't take another minute of it. I had a plan to kill myself. I fought with my brain whether to do it or not. I started getting messages and comments on here, and each 1 pulled me a little more out of the hole I was in. Your care & support is why I'm here today...
I really hate chronic pain. I also hate that we CPP'S have to go through this w/o help. I'm left suffering after being cut off in July. I can barely move,walk,bathe, play with granddaughter. Life sucks now. It hurts so bad. Just want to be able to function again :(
I've been off Twitter for a month. Been in the hospital then the nursing home. My knee infection came back and the surgeon had to take my knee out and put a spacer in. I'll be without a knee for 8 months. Getting iv antibiotics and therapy in nursing home. Miss home 😪
I wish I'd known that I was going to get a chronic no cure painful disease so I could've done the things in life I wanted to before getting sick.
#chronicpain
#Spoonies
Like so many people w/ chronic pain, I'm a hostage in a body of pain. Can't sleep,can barely move anymore, just need a break.Thinking of anyone else in pain tonight. ❤🙏❤🙏
Thought I was feeling better but now I feel bad again. I wouldn't wish this covid on anyone. I am thankful I haven't had to be in the hospital though. Got a feeling this is gonna be a long night.
Happy Friday everyone! I'm going to force myself to take a shower. Those who are disabled and or chronic pain know how hard this can be. Hope you all have a good day 👍
I'm in so much pain I don't know what to do ugh. I was ok until 2016 when Dr said he can't prescribe pain meds anymore. I've been to countless drs and they only offer injection
I'm so tired of the pain I don't know what to do. Day in day out same stuff. It feels like abuse. Living alone is so hard. It's hard to do anything. My adult daughter helps me, but it's difficult getting to appts, doing dishes, showering,. cooking, heck getting up to get a drink
My daughter came to visit today. It made me think of what I about did this week & how hurt she would've been. I am fighting the desire to leave the world,for her. I don't want to hurt my family,but is it too much to ask to be pain free? Humans suffering when there's meds to help
I'm a nervous wreck. Tomorrow is my parents Christmas. They and my siblings don't understand what's wrong with me, or that I'm in enormous pain. I just act normal as can around them. Ready for the holidays to be over
At my last appt w a pain Dr, he said I don't need opioids and I'd be addicted in 24 hrs, that he has a back injection that will work on my pain better. Umm hello I was on them 10 yrs w no probs and wasn't addicted! This is why I won't go back. All PM Drs say that same thing here
Got home from hospital today from surgery. In a lot of pain but at least the surgery is done. Dr put leg immobilizer on and I can't put weight on it for 6 weeks
Can't sleep guys. I know a lot of us suffer this. Pain is keeping me up. This is so inhumane when their are meds to help. I'm so sick and tired of the relentless pain 😞😖. All I can do is rock back and forth. Hangin on by a thread here. Love you all ❤️💙
I was in the ER last night for 6 hours and got 1 tylenol, that's it! Multiple xrays and cat scans, but Dr wouldn't give me anything, other than that 1 tylenol. I laid there in agony.
1,so if my dad with bone cancer not getting pain meds isn't enough, my boyfriend has diabetes and lost his right leg in 2021 and 4 toes in the psst year on left foot without pain meds..I don't want to live here anymore. This is CRAZY!
I miss all of you! Haven't been on much. Been sick from complications from surgery and in pain. So weak I can barely walk. My momma used to say "this too shall pass", trying to believe in that💕
I was diagnosed with congestive heart failure recently. It explains so much. I've been depressed and haven't been on. Please send good thoughts, prayers.
This abandonment against
#CPP
Is abuse! I'm in so much pain I can't do anything today and prob won't be able to sleep. I'm sick and tired of this! Give us back OUR pain meds. We don't deserve to live like this anymore. It's our bodies, let us decide what's best for us!
To those that tweeted me about me being dismissed from my pcp yesterday for asking for pain meds, Thank You so much and sorry I haven't replied other than liking it.I'm pretty depressed and trying to dig out of a big black hole in my brain. I guess they want us to be in pain 😕
Does anyone else dread holiday get togethers due to having to be around family that don't care about your invisible illness? Putting makeup on doing hair sitting there in pain. I love my family but they just don't get it. I don't ever mention my pain anymore.
In a really bad place in my head... just can't handle the pain. No one will give me pain meds. Been in tears for hours. Then my car broke down in the middle of a busy intersection, it's the alternator and I can't afford it being single & on SSI.
Just had my appt at Cleveland Clinic presurgery tests and surgeon. He is so against"opioids", says losing weight will help my pain not opioids. I cried, it takes time to lose weight. He told me how dangerous the surgery is. It cost me $60 gas, $40 to see Dr, $12 for parking...
I have 3 hernias, IC, fibro, neuropathy, ddd, etc but I'm in pain cause of weight. I'm so lost. Damned if I eat or don't, if I go to a Dr or don't. It's hopeless and I'm struggling physically and mentally. Thanks to all who have reached out. I'm not ignoring, just in bad shape
Please pray/send good vibes for me. Woke up this morning and can't put any weight on my knee. Afraid I'm going to have to call the ambulance and I'm afraid they'll put me back in the nursing home
I feel broken. New Pain Dr said I can't use kratom and since it was in my urine he won't prescribe pain med. I go back in a mth. He said it's against their office policy even though it's legal
2 am n still up. I'm so sleep deprived. My body won't shut down to sleep, between the pain and the worries. It's like my body can't relax, my muscles are tight n tense. I watch my granddaughter every day, it's so hard on little sleep if any. Could use thoughts and prayers. xoxo